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PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -

PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build

PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions

CodeSystem: Clinical Event Type CodeSystem (Experimental)

Official URL: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/CodeSystem/clinical-event-type-cs Version: 0.1.0-ci-build
Draft as of 2026-08-11 Computable Name: ClinicalEventTypeCS

Types of clinical events in the PROTECT-CHILD study (DMv1.2), replacing outcome_type and post_event_type.

This Code system is referenced in the content logical definition of the following value sets:

This case-insensitive code system https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/CodeSystem/clinical-event-type-cs defines the following codes:

CodeDisplayDefinition
alloimmunization Alloimmunization Development of antibodies against alloantigens (e.g. HLA) following transplantation or transfusion.
biliary-complications Biliary Complications Post-transplant complications of the biliary tract (e.g. stricture, leak, stones).
bk-virus-infection BK Virus Infection Infection or reactivation of BK polyomavirus.
chronic-liver-failure Chronic Liver Failure Progressive, long-standing loss of liver function.
chronic-liver-rejection Chronic Liver Rejection Chronic rejection of the liver allograft (e.g. ductopenia / vanishing bile duct syndrome).
chronic-renal-failure-after-pltx Chronic Renal Failure After pLTx Chronic kidney disease developing after paediatric liver transplantation.
cmv-infection Cytomegalovirus Infection Infection or reactivation of cytomegalovirus.
delayed-kidney-graft-function Delayed Kidney Graft Function Delayed function of the kidney allograft requiring dialysis in the first post-transplant week.
diabetes Diabetes Diabetes mellitus, including new-onset diabetes after transplantation.
graft-failure Graft Failure Loss of function of the transplanted organ.
high-blood-pressure High Blood Pressure Arterial hypertension.
kidney-primary-non-function Kidney Primary Non-Function Kidney allograft that never achieves function after transplantation.
kidney-rejection-episode Kidney Rejection Episode An episode of acute or chronic rejection of the kidney allograft.
liver-early-allograft-dysfunction Liver Early Allograft Dysfunction Early dysfunction of the liver allograft in the initial post-transplant period.
liver-primary-non-function Liver Primary Non-Function Liver allograft that never achieves function, requiring urgent re-transplantation.
liver-rejection-episode Liver Rejection Episode An episode of acute or chronic rejection of the liver allograft.
microangiopathy Microangiopathy Thrombotic microangiopathy affecting small blood vessels.
mortality Mortality Death of the patient.
mtor-inhibitors-toxicity mTOR Inhibitors Toxicity Adverse effects attributable to mTOR-inhibitor immunosuppression.
mycophenolate-toxicity Mycophenolate Toxicity Adverse effects attributable to mycophenolate immunosuppression.
pres PRES Posterior reversible encephalopathy syndrome (PRES).
ptld PTLD Post-transplant lymphoproliferative disorder (PTLD).
relapse-primary-immunomediated-disease Relapse Primary Immunomediated Disease Recurrence of the primary immune-mediated disease that led to transplantation.
renal-cni-toxicity Renal CNI Toxicity Calcineurin-inhibitor-induced renal toxicity.
urological-complications Urological Complications Post-transplant complications of the urinary tract (e.g. obstruction, leak, reflux).
vascular-complications Vascular Complications Post-transplant vascular complications (e.g. thrombosis, stenosis).