PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions
Mila (7) is registered as a transplant candidate (Patient). During evaluation and waiting-list follow-up visits (Visit), clinicians capture vitals and growth (PcClinicalVariable), order and record lab tests/results (LabTest, LabResult), document imaging and other investigations (PatInstInv), and record infection screening/monitoring relevant to transplant (Microbiology). Any intercurrent episodes (e.g., cholangitis) and their treatments are logged (ConcomitantEpisode, ConcomitantMedication), alongside her regular pre-transplant medications (PreMedication). When a suitable donor organ becomes available (Donor), the transplant procedure and key graft/operative details are recorded (Transplant). Post-operatively, induction and maintenance immunosuppression (and drug monitoring) are captured (ImmIndPat, ImmMainPat), and complications (e.g., Delayed Graft Function) are recorded as typed post-transplant events (PostEventType, PostEvent). At longer-term follow-up (e.g., 1 year), Mila’s status is summarised as outcomes (OutcomeType, Outcome).