PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions
Primary profile: ClinicalVariable (Observation)
Cardinality key — M = Mandatory (1..1) · R = Recommended (0..1) · O = Optional (0..1)
The ClinicalVariable entity consolidates per-visit anthropometrics, concomitant disease flags, and symptom notes. Multiple component slices are used — one per concomitant disease where applicable.
| DM field | Card. | FHIR path | Notes |
|---|---|---|---|
| clinical_variable_id | M | Observation.identifier.value |
|
| visit_id | M | Observation.encounter |
Reference(Visit) |
| weight | R | Observation.component[weight].valueQuantity |
LOINC 29463-7; kg |
| height | R | Observation.component[height].valueQuantity |
LOINC 8302-2; cm |
| concomitant_disease | M | Observation.component[concomitant_disease].valueCodeableConcept |
ConcomitantDiseaseCategoryVS; repeat slice per disease |
| description | R | Observation.note |
Free text |
| diuresis_value | R | Observation.component[diuresis_value].valueQuantity |
LOINC 9192-6; mL/d |
| other_symptoms | R | Observation.note |
Free text |
| other_concomitant | R | Observation.note |
Free text |
| organ_dysfunction | R | Observation.note |
Free text |