PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions
Primary profile: ClinicalVariable (Observation)
Concept map: ClinicalVariableLmToFhir
Cardinality key — M = Mandatory (1..1) · R = Recommended (0..1) · O = Optional (0..1)
ClinicalVariable holds per-visit anthropometrics and symptom notes. Each concomitant disease is a separate ConcomitantDisease (Condition). Three concomitant_disease values (from DMv1.2) are procedures, not diseases (ambulatory blood pressure recording, ERCP, percutaneous transhepatic biliary drainage). They are ConcomitantProcedure (Procedure) resources, bound to ConcomitantProcedureVS.
| DM field | Card. | FHIR path | Notes |
|---|---|---|---|
| clinical_variable_id | M | Observation.identifier.value |
|
| visit_id | M | Observation.encounter |
Reference(Visit) |
| weight | R | Observation.component[weight].valueQuantity |
LOINC 29463-7; kg |
| height | R | Observation.component[height].valueQuantity |
LOINC 8302-2; cm |
| concomitant_disease | M | Condition.code |
Each disease is a ConcomitantDisease (Condition, problem-list-item); ConcomitantDiseaseCategoryVS; one Condition per disease |
| concomitant_disease (procedure values) | M | Procedure.code |
ABPM, ERCP and PTCD are ConcomitantProcedure (Procedure) resources; ConcomitantProcedureVS; one Procedure per procedure |
| description | R | Observation.note |
Free text |
| diuresis_value | R | Observation.component[diuresis_value].valueQuantity |
LOINC 9192-6; mL/d |
| other_symptoms | R | Observation.note |
Free text |
| other_concomitant | R | Observation.note |
Free text |
| organ_dysfunction | R | Observation.note |
Free text |