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PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -

PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build

PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions

Patient

PatientTransplant profile PatientTransplant Patient Patient ID M Gender M Centre No. M Date of Histological Diag. M Primary Disease Diag. Date M Liver Disease Diagnosis M Renal Disease Diagnosis M Age (years) R Age (months) R Max PRA R Last PRA R

Patient — Logical Model → FHIR Map

Primary profile: PatientTransplant (Patient)

Cardinality key — M = Mandatory (1..1) · R = Recommended (0..1) · O = Optional (0..1)

Demographics panel: PatientDemographicsObservation (Observation, category survey) — age at transplant
Immunology panel: PatientImmunologyObservation (Observation, category laboratory) — PRA and histological date
Diagnoses: PatientLiverDiseaseDiagnosis · PatientRenalDiseaseDiagnosis (Condition)

DM field Card. FHIR path Notes
patient_id M Patient.identifier.value  
gender M Patient.gender  
age_years R Observation.component[age_years].valueQuantity UCUM a; in PatientDemographicsObservation
age_months R Observation.component[age_months].valueQuantity UCUM mo; in PatientDemographicsObservation
max_pra R Observation.component[max_pra].valueInteger PatientPRATypeCS#max; in PatientImmunologyObservation
last_pra R Observation.component[last_pra].valueInteger PatientPRATypeCS#last; in PatientImmunologyObservation
date_histological_diag M Observation.component[date_histological_diag].valueDateTime LOINC 77975-1; in PatientImmunologyObservation
diag_primary_disease M Condition.code Shared across both Condition profiles below; the free-text diagnosis name
date_diag_primary_disease M Condition.onsetDateTime Shared across both Condition profiles below
date_diag_primary_disease + diag_liver_disease M Condition.onsetDateTime (date); Condition.code (diagnosis) PatientLiverDiseaseDiagnosis; bodySite = SNOMED 10200004; Liver only
date_diag_primary_disease + diag_renal_disease M Condition.onsetDateTime (date); Condition.code (diagnosis) PatientRenalDiseaseDiagnosis; bodySite = SNOMED 64033007; Kidney only
center_no M Patient.managingOrganization Reference(StudyCentre); identifier.value = 1–4