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PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -

PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build

PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions

Patient

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PatientTransplant profile PatientTransplant Patient Patient ID M Gender M Centre No. M Date of Histological Diag. M Primary Disease Diag. Date M Primary Disease Diagnosis M Year of Birth R Month of Birth R Max PRA R Last PRA R

Primary profile: PatientTransplant (Patient, derived from Patient (EU base))

Concept map: PatientLmToFhir

Cardinality key — M = Mandatory (1..1) · R = Recommended (0..1) · O = Optional (0..1)

Immunology panel: PatientImmunologyObservation (Observation, category laboratory): PRA and histological date
Diagnosis: PatientPrimaryDiseaseDiagnosis (Condition): one profile for liver or renal primary disease, with the organ in Condition.bodySite

DM field Card. FHIR path Notes
patient_id M Patient.identifier.value  
gender M Patient.gender  
birth_year R Patient.birthDate The year of a partial date: 2015 → 2015
birth_month R Patient.birthDate The month of the same partial date: 2015 + 2 → 2015-02. No day is added (warning pc-pat-birth-1)
max_pra R Observation.component[max_pra].valueInteger PatientPRATypeCS#max; in PatientImmunologyObservation
last_pra R Observation.component[last_pra].valueInteger PatientPRATypeCS#last; in PatientImmunologyObservation
date_histological_diag M Observation.component[date_histological_diag].valueDateTime LOINC 77975-1; in PatientImmunologyObservation
diag_primary_disease M Condition.code PatientPrimaryDiseaseDiagnosis. The organ is carried in Condition.bodySite — SNOMED 10200004 (Liver) or 64033007 (Kidney) — not by a separate field per organ.
date_diag_primary_disease M Condition.onsetDateTime On the same Condition
center_no M Patient.managingOrganization Reference(StudyCentre); identifier.value = 1–4