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PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -

PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build

PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions

Model Maps

Logical Model → FHIR Mapping Overview

This section maps each entity in the PROTECT-CHILD data model to the FHIR profiles defined in this IG.

Cardinality key — M = Mandatory (1..1) · R = Recommended (0..1) · O = Optional (0..1)

Information Flow

The diagram below shows how the data model entities relate to each other and which FHIR R4 base resource each entity maps to. Solid arrows indicate mandatory references; dashed arrows indicate optional or calculated links.

PROTECT-CHILD Data Model to FHIR Resource Map Diagram showing how PROTECT-CHILD logical model entities relate to each other and map to FHIR R4 resources. Click any box to navigate to its detail page. Participant Event Clinical Lab Medication Specimen Outcome FHIR resource (right panel) DATA MODEL ENTITIES FHIR R4 RESOURCES Patient PatientTransplant Donor Donor profile Visit Encounter Transplant Procedure + Observation Vital Sign Observation (panel) Clinical Variable Observation Immunological Data Observation (panel) Microbiology Observation (panel) Instr. Investigation Observation Lab Test ObservationDefinition Lab Result Observation Clinical Event Type CodeSystem / ValueSet Clinical Event Condition BioSample Specimen Pre-Medication MedicationStatement Concomitant Med. MedicationStatement Immunosuppressant MedicationStatement Drug Catalogue Medication A → B: each B record holds a FHIR Reference back to A (e.g. Observation.encounter → Encounter) Patient PatientTransplant · Donor Encounter Visit · Transplant Observation VitalSign · ClinicalVariable · ImmunologicalData Microbiology · InstrumentalInv · LabResult · TransplantDetail ObservationDefinition Lab Test (catalogue) MedicationStatement Pre-Medication · Immunosuppressant (ImmPat) Concomitant Medication Medication Drug Catalogue Specimen BioSample Condition Clinical Event

Key relationships:

  • Patient is the anchor. Each patient has one or more Visits, which in turn anchor all per-visit clinical data.
  • Donor links to Transplant (the surgical event) and optionally to Immunological Data (for donor-side HLA/ABO typing) and Microbiology (for donor-derived results).
  • Visit acts as the central hub: every clinical, laboratory, medication, specimen, and outcome record carries a visit_id foreign key that resolves to an Encounter reference in FHIR.
  • Transplant is a Procedure that captures the surgical event. Intraoperative details (ischemia times, complications, etc.) are components of a single companion TransplantDetails Observation linked via Observation.partOf.

Entity Index

Entity FHIR base resource Map page
Patient Patient + Observation (panel) + Condition Patient map
Donor Patient Donor map
Visit Encounter Visit map
Transplant Procedure + Observation (panel) Transplant map
Immunological Data Observation (panel) Immunological Data map
Vital Sign Observation (panel) Vital Sign map
BioSample Specimen BioSample map
Pre-Medication MedicationStatement Pre-Medication map
Clinical Variable Observation Clinical Variable map
Concomitant Medication MedicationStatement Concomitant Medication map
Microbiology Observation (panel) Microbiology map
Instrumental Investigation Observation Instrumental Investigation map
Immunosuppressant / ImmPat Medication + MedicationStatement Immunosuppressant map
Lab Test / Lab Result ObservationDefinition + Observation Laboratory map
Clinical Event Type CodeSystem + ValueSet Clinical Event Type map
Clinical Event Condition Clinical Event map