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PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -

PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build

PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions

Resource Profile: Study Centre

Official URL: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/StructureDefinition/study-centre Version: 0.1.0-ci-build
Draft as of 2026-06-05 Computable Name: StudyCentre

A PROTECT-CHILD participating transplant centre. center_no (1–4) is carried as identifier.value in the study-centre namespace. All PatientTransplant resources reference their centre via Patient.managingOrganization.

Usages:

You can also check for usages in the FHIR IG Statistics

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Organization C 0..* Organization A grouping of people or organizations with a common purpose
Constraints: org-1
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
... identifier SΣC 1..* Identifier center_no — study centre numeric identifier (1 = La Paz, 2 = Padova, 3 = Palma, 4 = Hamburg)
.... use ?!Σ 0..1 code usual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .
.... system SΣ 1..1 uri The namespace for the identifier value
Fixed Value: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/center
.... value SΣ 1..1 string Centre number (1–4)
Example General: 123456
... name SΣC 1..1 string Full name of the transplant centre
... address SC 0..1 Address An address for the organization
Constraints: org-2
.... use ?!Σ 0..1 code home | work | temp | old | billing - purpose of this address
Binding: AddressUse (required): The use of an address.
Example General: home
.... country SΣ 0..1 string ISO 3166-1 alpha-2 country code

doco Documentation for this format

Terminology Bindings

Path Status Usage ValueSet Version Source
Organization.identifier.​use Base required IdentifierUse 📍4.0.1 FHIR Std.
Organization.address.​use Base required AddressUse 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Organization If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Organization If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Organization If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Organization If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Organization A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
org-1 error Organization The organization SHALL at least have a name or an identifier, and possibly more than one (identifier.count() + name.count()) > 0
org-2 error Organization.address An address of an organization can never be of use 'home' where(use = 'home').empty()

This structure is derived from Organization

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Organization 0..* Organization A grouping of people or organizations with a common purpose
... identifier S 1..* Identifier center_no — study centre numeric identifier (1 = La Paz, 2 = Padova, 3 = Palma, 4 = Hamburg)
.... system S 1..1 uri The namespace for the identifier value
Fixed Value: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/center
.... value S 1..1 string Centre number (1–4)
... name S 1..1 string Full name of the transplant centre
... address S 0..1 Address An address for the organization
.... country S 0..1 string ISO 3166-1 alpha-2 country code

doco Documentation for this format
NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Organization C 0..* Organization A grouping of people or organizations with a common purpose
Constraints: org-1
... id Σ 0..1 id Logical id of this artifact
... meta Σ 0..1 Meta Metadata about the resource
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
... text 0..1 Narrative Text summary of the resource, for human interpretation
This profile does not constrain the narrative in regard to content, language, or traceability to data elements
... contained 0..* Resource Contained, inline Resources
... extension 0..* Extension Additional content defined by implementations
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
... identifier SΣC 1..* Identifier center_no — study centre numeric identifier (1 = La Paz, 2 = Padova, 3 = Palma, 4 = Hamburg)
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ 0..1 code usual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .
.... type Σ 0..1 CodeableConcept Description of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.
.... system SΣ 1..1 uri The namespace for the identifier value
Fixed Value: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/center
.... value SΣ 1..1 string Centre number (1–4)
Example General: 123456
.... period Σ 0..1 Period Time period when id is/was valid for use
.... assigner Σ 0..1 Reference(Organization) Organization that issued id (may be just text)
... active ?!Σ 0..1 boolean Whether the organization's record is still in active use
... type Σ 0..* CodeableConcept Kind of organization
Binding: OrganizationType (example): Used to categorize the organization.
... name SΣC 1..1 string Full name of the transplant centre
... alias 0..* string A list of alternate names that the organization is known as, or was known as in the past
... telecom C 0..* ContactPoint A contact detail for the organization
Constraints: org-3
... address SC 0..1 Address An address for the organization
Constraints: org-2
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ 0..1 code home | work | temp | old | billing - purpose of this address
Binding: AddressUse (required): The use of an address.
Example General: home
.... type Σ 0..1 code postal | physical | both
Binding: AddressType (required): The type of an address (physical / postal).
Example General: both
.... text Σ 0..1 string Text representation of the address
Example General: 137 Nowhere Street, Erewhon 9132
.... line Σ 0..* string Street name, number, direction & P.O. Box etc.
This repeating element order: The order in which lines should appear in an address label
Example General: 137 Nowhere Street
.... city Σ 0..1 string Name of city, town etc.
Example General: Erewhon
.... district Σ 0..1 string District name (aka county)
Example General: Madison
.... state Σ 0..1 string Sub-unit of country (abbreviations ok)
.... postalCode Σ 0..1 string Postal code for area
Example General: 9132
.... country SΣ 0..1 string ISO 3166-1 alpha-2 country code
.... period Σ 0..1 Period Time period when address was/is in use
Example General: {"start":"2010-03-23","end":"2010-07-01"}
... partOf Σ 0..1 Reference(Organization) The organization of which this organization forms a part
... contact 0..* BackboneElement Contact for the organization for a certain purpose
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
.... modifierExtension ?!Σ 0..* Extension Extensions that cannot be ignored even if unrecognized
.... purpose 0..1 CodeableConcept The type of contact
Binding: ContactEntityType (extensible): The purpose for which you would contact a contact party.
.... name 0..1 HumanName A name associated with the contact
.... telecom 0..* ContactPoint Contact details (telephone, email, etc.) for a contact
.... address 0..1 Address Visiting or postal addresses for the contact
... endpoint 0..* Reference(Endpoint) Technical endpoints providing access to services operated for the organization

doco Documentation for this format

Terminology Bindings

Path Status Usage ValueSet Version Source
Organization.language Base preferred Common Languages 📍4.0.1 FHIR Std.
Organization.identifier.​use Base required IdentifierUse 📍4.0.1 FHIR Std.
Organization.identifier.​type Base extensible IdentifierType 📍4.0.1 FHIR Std.
Organization.type Base example Organization type 📍4.0.1 FHIR Std.
Organization.address.​use Base required AddressUse 📍4.0.1 FHIR Std.
Organization.address.​type Base required AddressType 📍4.0.1 FHIR Std.
Organization.contact.​purpose Base extensible Contact entity type 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Organization If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Organization If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Organization If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Organization If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Organization A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
org-1 error Organization The organization SHALL at least have a name or an identifier, and possibly more than one (identifier.count() + name.count()) > 0
org-2 error Organization.address An address of an organization can never be of use 'home' where(use = 'home').empty()
org-3 error Organization.telecom The telecom of an organization can never be of use 'home' where(use = 'home').empty()

This structure is derived from Organization

Summary

Mandatory: 4 elements
Must-Support: 6 elements
Fixed: 1 element

Key Elements View

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Organization C 0..* Organization A grouping of people or organizations with a common purpose
Constraints: org-1
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
... identifier SΣC 1..* Identifier center_no — study centre numeric identifier (1 = La Paz, 2 = Padova, 3 = Palma, 4 = Hamburg)
.... use ?!Σ 0..1 code usual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .
.... system SΣ 1..1 uri The namespace for the identifier value
Fixed Value: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/center
.... value SΣ 1..1 string Centre number (1–4)
Example General: 123456
... name SΣC 1..1 string Full name of the transplant centre
... address SC 0..1 Address An address for the organization
Constraints: org-2
.... use ?!Σ 0..1 code home | work | temp | old | billing - purpose of this address
Binding: AddressUse (required): The use of an address.
Example General: home
.... country SΣ 0..1 string ISO 3166-1 alpha-2 country code

doco Documentation for this format

Terminology Bindings

Path Status Usage ValueSet Version Source
Organization.identifier.​use Base required IdentifierUse 📍4.0.1 FHIR Std.
Organization.address.​use Base required AddressUse 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Organization If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Organization If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Organization If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Organization If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Organization A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
org-1 error Organization The organization SHALL at least have a name or an identifier, and possibly more than one (identifier.count() + name.count()) > 0
org-2 error Organization.address An address of an organization can never be of use 'home' where(use = 'home').empty()

Differential View

This structure is derived from Organization

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Organization 0..* Organization A grouping of people or organizations with a common purpose
... identifier S 1..* Identifier center_no — study centre numeric identifier (1 = La Paz, 2 = Padova, 3 = Palma, 4 = Hamburg)
.... system S 1..1 uri The namespace for the identifier value
Fixed Value: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/center
.... value S 1..1 string Centre number (1–4)
... name S 1..1 string Full name of the transplant centre
... address S 0..1 Address An address for the organization
.... country S 0..1 string ISO 3166-1 alpha-2 country code

doco Documentation for this format

Snapshot View

NameFlagsCard.TypeDescription & Constraints    Filter: Filtersdoco
.. Organization C 0..* Organization A grouping of people or organizations with a common purpose
Constraints: org-1
... id Σ 0..1 id Logical id of this artifact
... meta Σ 0..1 Meta Metadata about the resource
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
... text 0..1 Narrative Text summary of the resource, for human interpretation
This profile does not constrain the narrative in regard to content, language, or traceability to data elements
... contained 0..* Resource Contained, inline Resources
... extension 0..* Extension Additional content defined by implementations
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
... identifier SΣC 1..* Identifier center_no — study centre numeric identifier (1 = La Paz, 2 = Padova, 3 = Palma, 4 = Hamburg)
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ 0..1 code usual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .
.... type Σ 0..1 CodeableConcept Description of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.
.... system SΣ 1..1 uri The namespace for the identifier value
Fixed Value: https://hl7.eu/fhir/ig/hl7.eu.fhir.protect-child/center
.... value SΣ 1..1 string Centre number (1–4)
Example General: 123456
.... period Σ 0..1 Period Time period when id is/was valid for use
.... assigner Σ 0..1 Reference(Organization) Organization that issued id (may be just text)
... active ?!Σ 0..1 boolean Whether the organization's record is still in active use
... type Σ 0..* CodeableConcept Kind of organization
Binding: OrganizationType (example): Used to categorize the organization.
... name SΣC 1..1 string Full name of the transplant centre
... alias 0..* string A list of alternate names that the organization is known as, or was known as in the past
... telecom C 0..* ContactPoint A contact detail for the organization
Constraints: org-3
... address SC 0..1 Address An address for the organization
Constraints: org-2
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ 0..1 code home | work | temp | old | billing - purpose of this address
Binding: AddressUse (required): The use of an address.
Example General: home
.... type Σ 0..1 code postal | physical | both
Binding: AddressType (required): The type of an address (physical / postal).
Example General: both
.... text Σ 0..1 string Text representation of the address
Example General: 137 Nowhere Street, Erewhon 9132
.... line Σ 0..* string Street name, number, direction & P.O. Box etc.
This repeating element order: The order in which lines should appear in an address label
Example General: 137 Nowhere Street
.... city Σ 0..1 string Name of city, town etc.
Example General: Erewhon
.... district Σ 0..1 string District name (aka county)
Example General: Madison
.... state Σ 0..1 string Sub-unit of country (abbreviations ok)
.... postalCode Σ 0..1 string Postal code for area
Example General: 9132
.... country SΣ 0..1 string ISO 3166-1 alpha-2 country code
.... period Σ 0..1 Period Time period when address was/is in use
Example General: {"start":"2010-03-23","end":"2010-07-01"}
... partOf Σ 0..1 Reference(Organization) The organization of which this organization forms a part
... contact 0..* BackboneElement Contact for the organization for a certain purpose
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
.... modifierExtension ?!Σ 0..* Extension Extensions that cannot be ignored even if unrecognized
.... purpose 0..1 CodeableConcept The type of contact
Binding: ContactEntityType (extensible): The purpose for which you would contact a contact party.
.... name 0..1 HumanName A name associated with the contact
.... telecom 0..* ContactPoint Contact details (telephone, email, etc.) for a contact
.... address 0..1 Address Visiting or postal addresses for the contact
... endpoint 0..* Reference(Endpoint) Technical endpoints providing access to services operated for the organization

doco Documentation for this format

Terminology Bindings

Path Status Usage ValueSet Version Source
Organization.language Base preferred Common Languages 📍4.0.1 FHIR Std.
Organization.identifier.​use Base required IdentifierUse 📍4.0.1 FHIR Std.
Organization.identifier.​type Base extensible IdentifierType 📍4.0.1 FHIR Std.
Organization.type Base example Organization type 📍4.0.1 FHIR Std.
Organization.address.​use Base required AddressUse 📍4.0.1 FHIR Std.
Organization.address.​type Base required AddressType 📍4.0.1 FHIR Std.
Organization.contact.​purpose Base extensible Contact entity type 📍4.0.1 FHIR Std.

Constraints

Id Grade Path(s) Description Expression
dom-2 error Organization If the resource is contained in another resource, it SHALL NOT contain nested Resources contained.contained.empty()
dom-3 error Organization If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4 error Organization If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5 error Organization If a resource is contained in another resource, it SHALL NOT have a security label contained.meta.security.empty()
dom-6 best practice Organization A resource should have narrative for robust management text.`div`.exists()
ele-1 error **ALL** elements All FHIR elements must have a @value or children hasValue() or (children().count() > id.count())
ext-1 error **ALL** extensions Must have either extensions or value[x], not both extension.exists() != value.exists()
org-1 error Organization The organization SHALL at least have a name or an identifier, and possibly more than one (identifier.count() + name.count()) > 0
org-2 error Organization.address An address of an organization can never be of use 'home' where(use = 'home').empty()
org-3 error Organization.telecom The telecom of an organization can never be of use 'home' where(use = 'home').empty()

This structure is derived from Organization

Summary

Mandatory: 4 elements
Must-Support: 6 elements
Fixed: 1 element

 

Other representations of profile: CSV, Excel, Schematron