PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions
| Draft as of 2026-09-28 |
Definitions for the pcPatientLm logical model.
Guidance on how to interpret the contents of this table can be foundhere
| 0. pcPatientLm | |||||||
| Definition | Logical model for the PROTECT-CHILD patient table. | ||||||
| Short | Patient logical model | ||||||
| Control | 0..* | ||||||
| Is Modifier | false | ||||||
| Logical Model | Instances of this logical model are not marked to be the target of a Reference | ||||||
| 2. pcPatientLm.patientId | |||||||
| Definition | Patient ID. | ||||||
| Short | patient_id | ||||||
| Control | 1..1 | ||||||
| Type | string | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 4. pcPatientLm.gender | |||||||
| Definition | Patient sex at birth. | ||||||
| Short | gender | ||||||
| Control | 1..1 | ||||||
| Type | code | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 6. pcPatientLm.birthYear | |||||||
| Definition | Year of birth. | ||||||
| Short | birth_year | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 8. pcPatientLm.birthMonth | |||||||
| Definition | Month of birth (1-12). | ||||||
| Short | birth_month | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 10. pcPatientLm.maxPra | |||||||
| Definition | Maximum historical pre-transplant PRA/cPRA (0-100%). | ||||||
| Short | max_pra | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 12. pcPatientLm.lastPra | |||||||
| Definition | Most recent pre-transplant PRA/cPRA (0-100%). | ||||||
| Short | last_pra | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 14. pcPatientLm.dateHistologicalDiag | |||||||
| Definition | Date histology confirmed the primary disease. | ||||||
| Short | date_histological_diag | ||||||
| Control | 1..1 | ||||||
| Type | date | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 16. pcPatientLm.dateDiagPrimaryDisease | |||||||
| Definition | Date primary disease was first diagnosed. | ||||||
| Short | date_diag_primary_disease | ||||||
| Control | 1..1 | ||||||
| Type | date | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 18. pcPatientLm.diagPrimaryDisease | |||||||
| Definition | Primary diagnosis leading to transplant. | ||||||
| Short | diag_primary_disease | ||||||
| Control | 1..1 | ||||||
| Type | string | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 20. pcPatientLm.centerNo | |||||||
| Definition | Study centre (1=La Paz, 2=Padova, 3=Palermo (ISMETT), 4=Hamburg). | ||||||
| Short | center_no | ||||||
| Control | 1..1 | ||||||
| Type | code | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
Guidance on how to interpret the contents of this table can be foundhere
| 0. pcPatientLm | |||||||
| Definition | Logical model for the PROTECT-CHILD patient table. | ||||||
| Short | Patient logical model | ||||||
| Logical Model | Instances of this logical model are not marked to be the target of a Reference | ||||||
| 2. pcPatientLm.patientId | |||||||
| Definition | Patient ID. | ||||||
| Short | patient_id | ||||||
| Control | 1..1 | ||||||
| Type | string | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 4. pcPatientLm.gender | |||||||
| Definition | Patient sex at birth. | ||||||
| Short | gender | ||||||
| Control | 1..1 | ||||||
| Type | code | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 6. pcPatientLm.birthYear | |||||||
| Definition | Year of birth. | ||||||
| Short | birth_year | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 8. pcPatientLm.birthMonth | |||||||
| Definition | Month of birth (1-12). | ||||||
| Short | birth_month | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 10. pcPatientLm.maxPra | |||||||
| Definition | Maximum historical pre-transplant PRA/cPRA (0-100%). | ||||||
| Short | max_pra | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 12. pcPatientLm.lastPra | |||||||
| Definition | Most recent pre-transplant PRA/cPRA (0-100%). | ||||||
| Short | last_pra | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 14. pcPatientLm.dateHistologicalDiag | |||||||
| Definition | Date histology confirmed the primary disease. | ||||||
| Short | date_histological_diag | ||||||
| Control | 1..1 | ||||||
| Type | date | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 16. pcPatientLm.dateDiagPrimaryDisease | |||||||
| Definition | Date primary disease was first diagnosed. | ||||||
| Short | date_diag_primary_disease | ||||||
| Control | 1..1 | ||||||
| Type | date | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 18. pcPatientLm.diagPrimaryDisease | |||||||
| Definition | Primary diagnosis leading to transplant. | ||||||
| Short | diag_primary_disease | ||||||
| Control | 1..1 | ||||||
| Type | string | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 20. pcPatientLm.centerNo | |||||||
| Definition | Study centre (1=La Paz, 2=Padova, 3=Palermo (ISMETT), 4=Hamburg). | ||||||
| Short | center_no | ||||||
| Control | 1..1 | ||||||
| Type | code | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
Guidance on how to interpret the contents of this table can be foundhere
| 0. pcPatientLm | |||||||
| Definition | Logical model for the PROTECT-CHILD patient table. | ||||||
| Short | Patient logical model | ||||||
| Control | 0..* | ||||||
| Is Modifier | false | ||||||
| Logical Model | Instances of this logical model are not marked to be the target of a Reference | ||||||
| 2. pcPatientLm.patientId | |||||||
| Definition | Patient ID. | ||||||
| Short | patient_id | ||||||
| Control | 1..1 | ||||||
| Type | string | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 4. pcPatientLm.gender | |||||||
| Definition | Patient sex at birth. | ||||||
| Short | gender | ||||||
| Control | 1..1 | ||||||
| Type | code | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 6. pcPatientLm.birthYear | |||||||
| Definition | Year of birth. | ||||||
| Short | birth_year | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 8. pcPatientLm.birthMonth | |||||||
| Definition | Month of birth (1-12). | ||||||
| Short | birth_month | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 10. pcPatientLm.maxPra | |||||||
| Definition | Maximum historical pre-transplant PRA/cPRA (0-100%). | ||||||
| Short | max_pra | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 12. pcPatientLm.lastPra | |||||||
| Definition | Most recent pre-transplant PRA/cPRA (0-100%). | ||||||
| Short | last_pra | ||||||
| Control | 0..1 | ||||||
| Type | integer | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 14. pcPatientLm.dateHistologicalDiag | |||||||
| Definition | Date histology confirmed the primary disease. | ||||||
| Short | date_histological_diag | ||||||
| Control | 1..1 | ||||||
| Type | date | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 16. pcPatientLm.dateDiagPrimaryDisease | |||||||
| Definition | Date primary disease was first diagnosed. | ||||||
| Short | date_diag_primary_disease | ||||||
| Control | 1..1 | ||||||
| Type | date | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 18. pcPatientLm.diagPrimaryDisease | |||||||
| Definition | Primary diagnosis leading to transplant. | ||||||
| Short | diag_primary_disease | ||||||
| Control | 1..1 | ||||||
| Type | string | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||
| 20. pcPatientLm.centerNo | |||||||
| Definition | Study centre (1=La Paz, 2=Padova, 3=Palermo (ISMETT), 4=Hamburg). | ||||||
| Short | center_no | ||||||
| Control | 1..1 | ||||||
| Type | code | ||||||
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension | ||||||
| Obligations |
| ||||||