US Core Implementation Guide
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US Core Implementation Guide, published by HL7 International / Cross-Group Projects. This guide is not an authorized publication; it is the continuous build for version 10.0.0-ballot built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/HL7/US-Core/ and changes regularly. See the Directory of published versions

Resource Profile: US Core FamilyMemberHistory Profile

Official URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory Version: 10.0.0-ballot
Standards status: Trial-use Maturity Level: 3 Computable Name: USCoreFamilyMemberHistoryProfile
Other Identifiers: OID:2.16.840.1.113883.4.642.40.2.42.71

The US Core FamilyMemberHistory Profile inherits from the FHIR FamilyMemberHistory resource; refer to it for scope and usage definitions. This profile sets minimum expectations for the FamilyMemberHistory resource to record, search, and retrieve basic clinical information about a family member's health history that is relevant to a patient's care. It specifies which core elements, extensions, vocabularies, and value sets SHALL be present and constrains how the elements are used. Providing the floor for standards development for specific use cases promotes interoperability and adoption.

US Core Maturity: 2

Example Usage Scenarios:

The following are example usage scenarios for the US Core FamilyMemberHistory profile:

  • Query for a family member's relevant health history
  • Record or update relevant health history for a family member

Mandatory and Must Support Data Elements

The following data elements must always be present (Mandatory definition) or must be supported if the data is present in the sending system (Must Support definition). They are presented below in a simple human-readable explanation. Profile specific guidance and examples are provided as well. The Formal Views below provides the formal summary, definitions, and terminology requirements.

Each FamilyMemberHistory Must Have:

  1. a record status
  2. a patient
  3. a relationship to the patient

Each FamilyMemberHistory Must Support:

  1. a condition that the related person had1

Additional USCDI Requirements:

This Additional USCDI Requirements element is not Mandatory or Must Support but is required for ONC Health IT certification testing and is included in the formal definition of the profile and the FamilyMemberHistory examples.

  1. a recorder2

1,2 see guidance below

Profile Specific Implementation Guidance

This section provides detailed implementation guidance for the US Core Profile to support implementation and certification.

  • 1 USCDI's applicable vocabulary standards for Family Health History are SNOMED CT and ICD-10-CM.
    • When using ICD codes, only non-header ICD-10-CM codes SHOULD be used.
    • The US Core Condition Codes supports ICD-9-CM for historical purposes only.
  • 2The profile element US Core FamilyMemberHistory Recorder Extension communicates the individual level provenance author data corresponding to the U.S. Core Data for Interoperability (USCDI) Provenance Author Data Elements.

The US Core FamilyMemberHistory Recorder Extension is used to record the individual provenance. It will be replaced by the FHIR R6 Cross Version Extension when FHIR R6 is published.

Usages:

You can also check for usages in the FHIR IG Statistics

Changes since version 9.0.0:

  • No changes
  • Formal Views of Profile Content

    Description of Profiles, Differentials, Snapshots and how the different presentations work.

    NameFlagsCard.TypeDescription & Constraints    Filter: doco
    FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
    Constraints: fhs-1, fhs-2
    FamilyMemberHistory.implicitRules This element is a modifier element. This element is included in summaries. 0..1 uri A set of rules under which this content was created
    FamilyMemberHistory.Slices for extension 0..* Extension Extension
    Slice: Unordered, Open by value:url

    Slicing Note: The rules on this element (including its children) apply to all the slices, but are not repeated in them
    FamilyMemberHistory.Slices for extension.extension:recorder 0..1 Reference(US Core Practitioner Profile | US Core PractitionerRole Profile | US Core Patient Profile | US Core RelatedPerson Profile) 𝗔𝗗𝗗𝗜𝗧𝗜𝗢𝗡𝗔𝗟 𝗨𝗦𝗖𝗗𝗜: Who recorded family member's health history
    URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory-recorder
    FamilyMemberHistory.modifierExtension This element is a modifier element. 0..* Extension Extensions that cannot be ignored
    FamilyMemberHistory.status This element is a modifier element. This element must be supported. This element is included in summaries. 1..1 code partial | completed | entered-in-error | health-unknown
    Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.
    FamilyMemberHistory.patient This element must be supported. This element is included in summaries. 1..1 Reference(US Core Patient Profile) Patient history is about
    FamilyMemberHistory.relationship This element must be supported. This element is included in summaries. 1..1 CodeableConcept Relationship to the subject
    Binding: Family Member Value (extensible): Characterization of the familial relationship between two people.
    FamilyMemberHistory.condition This element must be supported. 0..* BackboneElement Condition that the related person had
    FamilyMemberHistory.condition.modifierExtension This element is a modifier element. This element is included in summaries. 0..* Extension Extensions that cannot be ignored even if unrecognized
    FamilyMemberHistory.condition.code This element must be supported. 1..1 CodeableConcept Condition suffered by relation
    Binding: US Core Condition Codes (extensible): Value set to describe the actual problem experienced by the patient

    doco Documentation for this format

    Terminology Bindings

    Path Status Usage ValueSet Version Source
    FamilyMemberHistory.​status Base required FamilyHistoryStatus 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​relationship Base extensible Family Member Value ⏿20250724 tx.fhir.org
    FamilyMemberHistory.​condition.code Base extensible US Core Condition Codes 📦10.0.0-ballot This IG

    Constraints

    Id Grade Path(s) Description Expression

    This structure is derived from FamilyMemberHistory

    NameFlagsCard.TypeDescription & Constraints    Filter: doco
    FamilyMemberHistory 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
    FamilyMemberHistory.Slices for extension 0..* Extension Extension
    Slice: Unordered, Open by value:url
    Slicing Note: The rules on this element (including its children) apply to all the slices, but are not repeated in them
    FamilyMemberHistory.Slices for extension.extension:recorder 0..1 Reference(US Core Practitioner Profile | US Core PractitionerRole Profile | US Core Patient Profile | US Core RelatedPerson Profile) 𝗔𝗗𝗗𝗜𝗧𝗜𝗢𝗡𝗔𝗟 𝗨𝗦𝗖𝗗𝗜: Who recorded family member's health history
    URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory-recorder
    FamilyMemberHistory.status This element must be supported. 1..1 code partial | completed | entered-in-error | health-unknown
    FamilyMemberHistory.patient This element must be supported. 1..1 Reference(US Core Patient Profile) Patient history is about
    FamilyMemberHistory.relationship This element must be supported. 1..1 CodeableConcept Relationship to the subject
    Binding: Family Member Value (extensible): Characterization of the familial relationship between two people.
    FamilyMemberHistory.condition This element must be supported. 0..* BackboneElement Condition that the related person had
    FamilyMemberHistory.condition.code This element must be supported. 1..1 CodeableConcept Condition suffered by relation
    Binding: US Core Condition Codes (extensible): Value set to describe the actual problem experienced by the patient

    doco Documentation for this format

    Terminology Bindings (Differential)

    Path Status Usage ValueSet Version Source
    FamilyMemberHistory.​relationship Base extensible Family Member Value ⏿20250724 tx.fhir.org
    FamilyMemberHistory.​condition.code Base extensible US Core Condition Codes 📦10.0.0-ballot This IG
    NameFlagsCard.TypeDescription & Constraints    Filter: doco
    FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
    Constraints: fhs-1, fhs-2
    FamilyMemberHistory.id This element is included in summaries. 0..1 id Logical id of this artifact
    FamilyMemberHistory.meta This element is included in summaries. 0..1 Meta Metadata about the resource
    FamilyMemberHistory.implicitRules This element is a modifier element. This element is included in summaries. 0..1 uri A set of rules under which this content was created
    FamilyMemberHistory.language 0..1 code Language of the resource content
    Binding: CommonLanguages (preferred): A human language.
    Additional BindingsPurpose
    AllLanguages Max Binding
    FamilyMemberHistory.text 0..1 Narrative Text summary of the resource, for human interpretation
    This profile does not constrain the narrative in regard to content, language, or traceability to data elements
    FamilyMemberHistory.contained 0..* Resource Contained, inline Resources
    FamilyMemberHistory.Slices for extension 0..* Extension Extension
    Slice: Unordered, Open by value:url

    Slicing Note: The rules on this element (including its children) apply to all the slices, but are not repeated in them
    FamilyMemberHistory.Slices for extension.extension:recorder 0..1 Reference(US Core Practitioner Profile | US Core PractitionerRole Profile | US Core Patient Profile | US Core RelatedPerson Profile) 𝗔𝗗𝗗𝗜𝗧𝗜𝗢𝗡𝗔𝗟 𝗨𝗦𝗖𝗗𝗜: Who recorded family member's health history
    URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory-recorder
    FamilyMemberHistory.modifierExtension This element is a modifier element. 0..* Extension Extensions that cannot be ignored
    FamilyMemberHistory.identifier This element is included in summaries. 0..* Identifier External Id(s) for this record
    FamilyMemberHistory.instantiatesCanonical This element is included in summaries. 0..* canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition) Instantiates FHIR protocol or definition
    FamilyMemberHistory.instantiatesUri This element is included in summaries. 0..* uri Instantiates external protocol or definition
    FamilyMemberHistory.status This element is a modifier element. This element must be supported. This element is included in summaries. 1..1 code partial | completed | entered-in-error | health-unknown
    Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.
    FamilyMemberHistory.dataAbsentReason This element is included in summaries. 0..1 CodeableConcept subject-unknown | withheld | unable-to-obtain | deferred
    Binding: FamilyHistoryAbsentReason (example): Codes describing the reason why a family member's history is not available.
    FamilyMemberHistory.patient This element must be supported. This element is included in summaries. 1..1 Reference(US Core Patient Profile) Patient history is about
    FamilyMemberHistory.date This element is included in summaries. 0..1 dateTime When history was recorded or last updated
    FamilyMemberHistory.name This element is included in summaries. 0..1 string The family member described
    FamilyMemberHistory.relationship This element must be supported. This element is included in summaries. 1..1 CodeableConcept Relationship to the subject
    Binding: Family Member Value (extensible): Characterization of the familial relationship between two people.
    FamilyMemberHistory.sex This element is included in summaries. 0..1 CodeableConcept male | female | other | unknown
    Binding: AdministrativeGender (extensible): Codes describing the sex assigned at birth as documented on the birth registration.
    FamilyMemberHistory.born[x] C 0..1 (approximate) date of birth
    FamilyMemberHistory.born[x].bornPeriod Period
    FamilyMemberHistory.born[x].bornDate date
    FamilyMemberHistory.born[x].bornString string
    FamilyMemberHistory.age[x] This element is included in summaries. C 0..1 (approximate) age
    FamilyMemberHistory.age[x].ageAge Age
    FamilyMemberHistory.age[x].ageRange Range
    FamilyMemberHistory.age[x].ageString string
    FamilyMemberHistory.estimatedAge This element is included in summaries. C 0..1 boolean Age is estimated?
    FamilyMemberHistory.deceased[x] This element is included in summaries. 0..1 Dead? How old/when?
    FamilyMemberHistory.deceased[x].deceasedBoolean boolean
    FamilyMemberHistory.deceased[x].deceasedAge Age
    FamilyMemberHistory.deceased[x].deceasedRange Range
    FamilyMemberHistory.deceased[x].deceasedDate date
    FamilyMemberHistory.deceased[x].deceasedString string
    FamilyMemberHistory.reasonCode This element is included in summaries. 0..* CodeableConcept Why was family member history performed?
    Binding: SNOMEDCTClinicalFindings (example): Codes indicating why the family member history was done.
    FamilyMemberHistory.reasonReference This element is included in summaries. 0..* Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference) Why was family member history performed?
    FamilyMemberHistory.note 0..* Annotation General note about related person
    FamilyMemberHistory.condition This element must be supported. 0..* BackboneElement Condition that the related person had
    FamilyMemberHistory.condition.id 0..1 string Unique id for inter-element referencing
    FamilyMemberHistory.condition.extension 0..* Extension Additional content defined by implementations
    FamilyMemberHistory.condition.modifierExtension This element is a modifier element. This element is included in summaries. 0..* Extension Extensions that cannot be ignored even if unrecognized
    FamilyMemberHistory.condition.code This element must be supported. 1..1 CodeableConcept Condition suffered by relation
    Binding: US Core Condition Codes (extensible): Value set to describe the actual problem experienced by the patient
    FamilyMemberHistory.condition.outcome 0..1 CodeableConcept deceased | permanent disability | etc.
    Binding: ConditionOutcomeCodes (example): The result of the condition for the patient; e.g. death, permanent disability, temporary disability, etc.
    FamilyMemberHistory.condition.contributedToDeath 0..1 boolean Whether the condition contributed to the cause of death
    FamilyMemberHistory.condition.onset[x] 0..1 When condition first manifested
    FamilyMemberHistory.condition.onset[x].onsetAge Age
    FamilyMemberHistory.condition.onset[x].onsetRange Range
    FamilyMemberHistory.condition.onset[x].onsetPeriod Period
    FamilyMemberHistory.condition.onset[x].onsetString string
    FamilyMemberHistory.condition.note 0..* Annotation Extra information about condition

    doco Documentation for this format

    Terminology Bindings

    Path Status Usage ValueSet Version Source
    FamilyMemberHistory.​language Base preferred Common Languages 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​status Base required FamilyHistoryStatus 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​dataAbsentReason Base example FamilyHistoryAbsentReason 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​relationship Base extensible Family Member Value ⏿20250724 tx.fhir.org
    FamilyMemberHistory.​sex Base extensible AdministrativeGender 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​reasonCode Base example SNOMED CT Clinical Findings 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​condition.code Base extensible US Core Condition Codes 📦10.0.0-ballot This IG
    FamilyMemberHistory.​condition.outcome Base example Condition Outcome Codes 📍4.0.1 FHIR Std.

    Constraints

    Id Grade Path(s) Description Expression

    This structure is derived from FamilyMemberHistory

    Summary

    Must-Support: 5 elements

    Structures

    This structure refers to these other structures:

    Extensions

    This structure refers to these extensions:

    Maturity: 3

    Key Elements View

    NameFlagsCard.TypeDescription & Constraints    Filter: doco
    FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
    Constraints: fhs-1, fhs-2
    FamilyMemberHistory.implicitRules This element is a modifier element. This element is included in summaries. 0..1 uri A set of rules under which this content was created
    FamilyMemberHistory.Slices for extension 0..* Extension Extension
    Slice: Unordered, Open by value:url

    Slicing Note: The rules on this element (including its children) apply to all the slices, but are not repeated in them
    FamilyMemberHistory.Slices for extension.extension:recorder 0..1 Reference(US Core Practitioner Profile | US Core PractitionerRole Profile | US Core Patient Profile | US Core RelatedPerson Profile) 𝗔𝗗𝗗𝗜𝗧𝗜𝗢𝗡𝗔𝗟 𝗨𝗦𝗖𝗗𝗜: Who recorded family member's health history
    URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory-recorder
    FamilyMemberHistory.modifierExtension This element is a modifier element. 0..* Extension Extensions that cannot be ignored
    FamilyMemberHistory.status This element is a modifier element. This element must be supported. This element is included in summaries. 1..1 code partial | completed | entered-in-error | health-unknown
    Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.
    FamilyMemberHistory.patient This element must be supported. This element is included in summaries. 1..1 Reference(US Core Patient Profile) Patient history is about
    FamilyMemberHistory.relationship This element must be supported. This element is included in summaries. 1..1 CodeableConcept Relationship to the subject
    Binding: Family Member Value (extensible): Characterization of the familial relationship between two people.
    FamilyMemberHistory.condition This element must be supported. 0..* BackboneElement Condition that the related person had
    FamilyMemberHistory.condition.modifierExtension This element is a modifier element. This element is included in summaries. 0..* Extension Extensions that cannot be ignored even if unrecognized
    FamilyMemberHistory.condition.code This element must be supported. 1..1 CodeableConcept Condition suffered by relation
    Binding: US Core Condition Codes (extensible): Value set to describe the actual problem experienced by the patient

    doco Documentation for this format

    Terminology Bindings

    Path Status Usage ValueSet Version Source
    FamilyMemberHistory.​status Base required FamilyHistoryStatus 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​relationship Base extensible Family Member Value ⏿20250724 tx.fhir.org
    FamilyMemberHistory.​condition.code Base extensible US Core Condition Codes 📦10.0.0-ballot This IG

    Constraints

    Id Grade Path(s) Description Expression

    Differential View

    This structure is derived from FamilyMemberHistory

    NameFlagsCard.TypeDescription & Constraints    Filter: doco
    FamilyMemberHistory 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
    FamilyMemberHistory.Slices for extension 0..* Extension Extension
    Slice: Unordered, Open by value:url
    Slicing Note: The rules on this element (including its children) apply to all the slices, but are not repeated in them
    FamilyMemberHistory.Slices for extension.extension:recorder 0..1 Reference(US Core Practitioner Profile | US Core PractitionerRole Profile | US Core Patient Profile | US Core RelatedPerson Profile) 𝗔𝗗𝗗𝗜𝗧𝗜𝗢𝗡𝗔𝗟 𝗨𝗦𝗖𝗗𝗜: Who recorded family member's health history
    URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory-recorder
    FamilyMemberHistory.status This element must be supported. 1..1 code partial | completed | entered-in-error | health-unknown
    FamilyMemberHistory.patient This element must be supported. 1..1 Reference(US Core Patient Profile) Patient history is about
    FamilyMemberHistory.relationship This element must be supported. 1..1 CodeableConcept Relationship to the subject
    Binding: Family Member Value (extensible): Characterization of the familial relationship between two people.
    FamilyMemberHistory.condition This element must be supported. 0..* BackboneElement Condition that the related person had
    FamilyMemberHistory.condition.code This element must be supported. 1..1 CodeableConcept Condition suffered by relation
    Binding: US Core Condition Codes (extensible): Value set to describe the actual problem experienced by the patient

    doco Documentation for this format

    Terminology Bindings (Differential)

    Path Status Usage ValueSet Version Source
    FamilyMemberHistory.​relationship Base extensible Family Member Value ⏿20250724 tx.fhir.org
    FamilyMemberHistory.​condition.code Base extensible US Core Condition Codes 📦10.0.0-ballot This IG

    Snapshot View

    NameFlagsCard.TypeDescription & Constraints    Filter: doco
    FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
    Constraints: fhs-1, fhs-2
    FamilyMemberHistory.id This element is included in summaries. 0..1 id Logical id of this artifact
    FamilyMemberHistory.meta This element is included in summaries. 0..1 Meta Metadata about the resource
    FamilyMemberHistory.implicitRules This element is a modifier element. This element is included in summaries. 0..1 uri A set of rules under which this content was created
    FamilyMemberHistory.language 0..1 code Language of the resource content
    Binding: CommonLanguages (preferred): A human language.
    Additional BindingsPurpose
    AllLanguages Max Binding
    FamilyMemberHistory.text 0..1 Narrative Text summary of the resource, for human interpretation
    This profile does not constrain the narrative in regard to content, language, or traceability to data elements
    FamilyMemberHistory.contained 0..* Resource Contained, inline Resources
    FamilyMemberHistory.Slices for extension 0..* Extension Extension
    Slice: Unordered, Open by value:url

    Slicing Note: The rules on this element (including its children) apply to all the slices, but are not repeated in them
    FamilyMemberHistory.Slices for extension.extension:recorder 0..1 Reference(US Core Practitioner Profile | US Core PractitionerRole Profile | US Core Patient Profile | US Core RelatedPerson Profile) 𝗔𝗗𝗗𝗜𝗧𝗜𝗢𝗡𝗔𝗟 𝗨𝗦𝗖𝗗𝗜: Who recorded family member's health history
    URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-familymemberhistory-recorder
    FamilyMemberHistory.modifierExtension This element is a modifier element. 0..* Extension Extensions that cannot be ignored
    FamilyMemberHistory.identifier This element is included in summaries. 0..* Identifier External Id(s) for this record
    FamilyMemberHistory.instantiatesCanonical This element is included in summaries. 0..* canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition) Instantiates FHIR protocol or definition
    FamilyMemberHistory.instantiatesUri This element is included in summaries. 0..* uri Instantiates external protocol or definition
    FamilyMemberHistory.status This element is a modifier element. This element must be supported. This element is included in summaries. 1..1 code partial | completed | entered-in-error | health-unknown
    Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.
    FamilyMemberHistory.dataAbsentReason This element is included in summaries. 0..1 CodeableConcept subject-unknown | withheld | unable-to-obtain | deferred
    Binding: FamilyHistoryAbsentReason (example): Codes describing the reason why a family member's history is not available.
    FamilyMemberHistory.patient This element must be supported. This element is included in summaries. 1..1 Reference(US Core Patient Profile) Patient history is about
    FamilyMemberHistory.date This element is included in summaries. 0..1 dateTime When history was recorded or last updated
    FamilyMemberHistory.name This element is included in summaries. 0..1 string The family member described
    FamilyMemberHistory.relationship This element must be supported. This element is included in summaries. 1..1 CodeableConcept Relationship to the subject
    Binding: Family Member Value (extensible): Characterization of the familial relationship between two people.
    FamilyMemberHistory.sex This element is included in summaries. 0..1 CodeableConcept male | female | other | unknown
    Binding: AdministrativeGender (extensible): Codes describing the sex assigned at birth as documented on the birth registration.
    FamilyMemberHistory.born[x] C 0..1 (approximate) date of birth
    FamilyMemberHistory.born[x].bornPeriod Period
    FamilyMemberHistory.born[x].bornDate date
    FamilyMemberHistory.born[x].bornString string
    FamilyMemberHistory.age[x] This element is included in summaries. C 0..1 (approximate) age
    FamilyMemberHistory.age[x].ageAge Age
    FamilyMemberHistory.age[x].ageRange Range
    FamilyMemberHistory.age[x].ageString string
    FamilyMemberHistory.estimatedAge This element is included in summaries. C 0..1 boolean Age is estimated?
    FamilyMemberHistory.deceased[x] This element is included in summaries. 0..1 Dead? How old/when?
    FamilyMemberHistory.deceased[x].deceasedBoolean boolean
    FamilyMemberHistory.deceased[x].deceasedAge Age
    FamilyMemberHistory.deceased[x].deceasedRange Range
    FamilyMemberHistory.deceased[x].deceasedDate date
    FamilyMemberHistory.deceased[x].deceasedString string
    FamilyMemberHistory.reasonCode This element is included in summaries. 0..* CodeableConcept Why was family member history performed?
    Binding: SNOMEDCTClinicalFindings (example): Codes indicating why the family member history was done.
    FamilyMemberHistory.reasonReference This element is included in summaries. 0..* Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference) Why was family member history performed?
    FamilyMemberHistory.note 0..* Annotation General note about related person
    FamilyMemberHistory.condition This element must be supported. 0..* BackboneElement Condition that the related person had
    FamilyMemberHistory.condition.id 0..1 string Unique id for inter-element referencing
    FamilyMemberHistory.condition.extension 0..* Extension Additional content defined by implementations
    FamilyMemberHistory.condition.modifierExtension This element is a modifier element. This element is included in summaries. 0..* Extension Extensions that cannot be ignored even if unrecognized
    FamilyMemberHistory.condition.code This element must be supported. 1..1 CodeableConcept Condition suffered by relation
    Binding: US Core Condition Codes (extensible): Value set to describe the actual problem experienced by the patient
    FamilyMemberHistory.condition.outcome 0..1 CodeableConcept deceased | permanent disability | etc.
    Binding: ConditionOutcomeCodes (example): The result of the condition for the patient; e.g. death, permanent disability, temporary disability, etc.
    FamilyMemberHistory.condition.contributedToDeath 0..1 boolean Whether the condition contributed to the cause of death
    FamilyMemberHistory.condition.onset[x] 0..1 When condition first manifested
    FamilyMemberHistory.condition.onset[x].onsetAge Age
    FamilyMemberHistory.condition.onset[x].onsetRange Range
    FamilyMemberHistory.condition.onset[x].onsetPeriod Period
    FamilyMemberHistory.condition.onset[x].onsetString string
    FamilyMemberHistory.condition.note 0..* Annotation Extra information about condition

    doco Documentation for this format

    Terminology Bindings

    Path Status Usage ValueSet Version Source
    FamilyMemberHistory.​language Base preferred Common Languages 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​status Base required FamilyHistoryStatus 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​dataAbsentReason Base example FamilyHistoryAbsentReason 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​relationship Base extensible Family Member Value ⏿20250724 tx.fhir.org
    FamilyMemberHistory.​sex Base extensible AdministrativeGender 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​reasonCode Base example SNOMED CT Clinical Findings 📍4.0.1 FHIR Std.
    FamilyMemberHistory.​condition.code Base extensible US Core Condition Codes 📦10.0.0-ballot This IG
    FamilyMemberHistory.​condition.outcome Base example Condition Outcome Codes 📍4.0.1 FHIR Std.

    Constraints

    Id Grade Path(s) Description Expression

    This structure is derived from FamilyMemberHistory

    Summary

    Must-Support: 5 elements

    Structures

    This structure refers to these other structures:

    Extensions

    This structure refers to these extensions:

    Maturity: 3

     

    Other representations of profile: CSV, Excel, Schematron

    Notes:


    Quick Start


    Below is an overview of the required Server RESTful FHIR interactions for this profile - for example, search and read operations - when supporting the US Core interactions to access this profile's information (Profile Support + Interaction Support). Note that systems that support only US Core Profiles (Profile Only Support) are not required to support these interactions. See the US Core Server CapabilityStatement for a complete list of supported RESTful interactions for this IG.

    • See the Scopes Format section for a description of the SMART scopes syntax.
    • See the Search Syntax section for a description of the US Core search syntax.
    • See the General Requirements section for additional rules and expectations when a Server requires status parameters.
    • See the General Guidance section for additional guidance on searching for multiple patients.

    US Core Scopes

    Servers providing access to family health history data SHALL support these US Core SMART Scopes:


    Mandatory Search Parameters:

    The following search parameters and search parameter combinations SHALL be supported:

    1. SHALL support searching for all family member's relevant health history using the patient search parameter

      GET [base]/FamilyMemberHistory?patient={Patient/}[id]

      Example:

      1. GET [base]/FamilyMemberHistory?patient=Patient/1137192

      Implementation Notes: Fetches a bundle of all US Core FamilyMemberHistory Profile resources for the specified patient ( see how to search by reference).

    Optional Search Parameters:

    The following search parameters and search parameter combinations SHOULD be supported

    1. SHOULD support searching for family member's condition for a patient (e.g., all family members with breast cancer) using the combination of the patient and code search parameters

      GET [base]/FamilyMemberHistory?patient={Patient/}[id]&code={system|}[search_code]

      Example:

      1. GET [base]/FamilyMemberHistory?patient=Patient/1137192&code=http://snomed.info/sct|709044004

      Implementation Notes: Fetches a bundle of all US Core FamilyMemberHistory Profile resources for the specified patient and condition ( see how to search by reference and how to search by token).