IDEA4RC FHIR Implementation Guide
0.1.0 - CI Build 150

IDEA4RC FHIR Implementation Guide, published by IDEA4RC Project. This guide is not an authorized publication; it is the continuous build for version 0.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/idea4rc/ and changes regularly. See the Directory of published versions

Logical Model: SubjectI4rc - Detailed Descriptions

Draft as of 2024-11-12

Definitions for the Subject logical model.

Guidance on how to interpret the contents of this table can be found here

0. Subject
Definition

Subject of care Maturity Level: 0 Draft

ShortSubject of care
Logical ModelInstances of this logical model are not marked to be the target of a Reference
2. Subject.sex
Definition

Describes biological sex as recorded in the patient's identity document or in the hospital record. In the absence of documentation, the one declared by the patient will be recorded

ShortGender
Comments

Male; Female; Unknown. Male - 8507 Female - 8532 Unknown - 4129922

Control1..1
TypeCodeableConcept
Obligations
    ObligationsActor
    SHALL:handle
    SHALL:handle
    4. Subject.race
    Definition

    Describes race as recorded in the hospital record, the one declared by the patient,, otherwise, the onerecognized by the observer

    ShortRace
    Comments

    Unknown; White; Black; Asians/Pacific Islanders; American Indian/Alaska Native White - 8527 Black - 8516 Asian/Pacific Islanders - 8515 American Indian/Alaska Native - 8657 Unknown - 4129922

    Control1..1
    TypeCodeableConcept
    Obligations
      ObligationsActor
      SHALL:handle
      6. Subject.birthYear
      Definition

      Year of birth of the patient.

      ShortBirth year
      Control0..1
      Typeinteger
      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
      Obligations
        ObligationsActor
        SHALL:handle
        SHALL:handle
        8. Subject.countryOfResidence
        Definition

        Country of residence at the time of diagnosis

        ShortCountry of Residence
        Comments

        Value from the code list of countries Son in the hierarchy of countries

        Control1..1
        TypeCodeableConcept
        Obligations
          ObligationsActor
          SHALL:handle
          SHALL:handle
          10. Subject.smoking
          Definition

          Describes tobacco smoker habits within the options proposed

          ShortSmoking
          Comments

          Current tobacco smoker; Former smoker (at least for 12 months); Never smoker; Unknown Current smoker - 36309332 Former smoker - 45883458 Never smoker - 45879404

          Control1..1
          TypeCodeableConcept
          Obligations
            ObligationsActor
            SHALL:handle
            12. Subject.cigarettesPackYearsSmokedDuringLife
            Definition

            The amount of cigarette pack smoked during life

            ShortCigarettes pack years smoked during life
            Control0..1
            Typeinteger
            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
            Obligations
              ObligationsActor
              SHALL:handle
              14. Subject.alcohol
              Definition

              Describes alcohol habits within the options proposed

              ShortAlcohol
              Comments

              Current; Former (at least for 12 months); Never; History of alcohol dependence; Unknown Current drinker - 4074035 Ex-drinker - 4220362 Lifetime non-drinker of alcohol - 37204556 Ex-problem drinker - 4117706

              Control1..1
              TypeCodeableConcept
              Obligations
                ObligationsActor
                SHALL:handle
                16. Subject.bMI
                Definition

                Body Mass Index information if weight and height are included. it is calculated as BMI = kg/m2 where kg is a person's weight in kilograms and m2 is their height in metres squared.

                ShortHeight/weight (BMI)
                Control0..1
                TypeQuantity
                Obligations
                  ObligationsActor
                  SHALL:handle
                  18. Subject.charlsonComorbidityIndex
                  Definition

                  Provides the Charlson Comorbidity index for the patient

                  ShortCharlson Comorbidity index
                  Control0..1
                  Typeinteger
                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                  Obligations
                    ObligationsActor
                    SHALL:handle
                    20. Subject.comorbidity
                    Definition

                    Describes whether the patient was diagnosed before treatment of at least one of the comorbidities listed next (or not) relevant for head and neck cancer.

                    ShortComorbidity
                    Comments

                    Yes; No; Unknown Yes - 4188539 No - 4188540 Unknown - 4129922

                    Control1..1
                    TypeBackboneElement
                    Obligations
                      ObligationsActor
                      SHALL:handle
                      22. Subject.comorbidity.myocardialInfarction
                      Definition

                      Describes comorbidities reported or assesed before treatment. More than one choice is allowed. Please do not include the current cancer in this calculation, only the previous cancer.

                      ShortMyocardial infarction
                      Control0..1
                      Typeboolean
                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                      Obligations
                        ObligationsActor
                        SHALL:handle
                        24. Subject.comorbidity.congestiveHeartFailure
                        Definition

                        Previous cancer comorbidity related to Congestive heart failure

                        ShortCongestive heart failure
                        Control0..1
                        Typeboolean
                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                        Obligations
                          ObligationsActor
                          SHALL:handle
                          26. Subject.comorbidity.peripheralVascularDisease
                          Definition

                          Previous cancer comorbidity related to Peripheral vascular disease

                          ShortPeripheral vascular disease
                          Control0..1
                          Typeboolean
                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                          Obligations
                            ObligationsActor
                            SHALL:handle
                            28. Subject.comorbidity.cerebrovascularAccidentExceptHemiplegia
                            Definition

                            Previous cancer comorbidity related to Cerebrovascular accident (except hemiplegia)

                            ShortCerebrovascular accident (except hemiplegia)
                            Control0..1
                            Typeboolean
                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                            Obligations
                              ObligationsActor
                              SHALL:handle
                              30. Subject.comorbidity.dementia
                              Definition

                              Previous cancer comorbidity related to Dementia

                              ShortDementia
                              Control0..1
                              Typeboolean
                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                              Obligations
                                ObligationsActor
                                SHALL:handle
                                32. Subject.comorbidity.chronicPulmonaryDisease
                                Definition

                                Previous cancer comorbidity related to Chronic pulmonary disease

                                ShortChronic pulmonary disease
                                Control0..1
                                Typeboolean
                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                Obligations
                                  ObligationsActor
                                  SHALL:handle
                                  34. Subject.comorbidity.connectiveTissueDisease
                                  Definition

                                  Previous cancer comorbidity related to Connective tissue disease

                                  ShortConnective tissue disease
                                  Control0..1
                                  Typeboolean
                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                  Obligations
                                    ObligationsActor
                                    SHALL:handle
                                    36. Subject.comorbidity.ulcer
                                    Definition

                                    Previous cancer comorbidity related to Ulcer

                                    ShortUlcer
                                    Control0..1
                                    Typeboolean
                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                    Obligations
                                      ObligationsActor
                                      SHALL:handle
                                      38. Subject.comorbidity.mildLiverDisease
                                      Definition

                                      Previous cancer comorbidity related to Mild liver disease

                                      ShortMild liver disease
                                      Control0..1
                                      Typeboolean
                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                      Obligations
                                        ObligationsActor
                                        SHALL:handle
                                        40. Subject.comorbidity.moderateToSevereLiverDisease
                                        Definition

                                        Previous cancer comorbidity related to Moderate to severe liver disease

                                        ShortModerate to severe liver disease
                                        Control0..1
                                        Typeboolean
                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                        Obligations
                                          ObligationsActor
                                          SHALL:handle
                                          42. Subject.comorbidity.diabetes
                                          Definition

                                          Previous cancer comorbidity related to Diabetes (without complications)

                                          ShortDiabetes (without complications)
                                          Control0..1
                                          Typeboolean
                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                          Obligations
                                            ObligationsActor
                                            SHALL:handle
                                            44. Subject.comorbidity.diabetesWithEndOrganDamage
                                            Definition

                                            Previous cancer comorbidity related to Diabetes with end organ damage

                                            ShortDiabetes with end organ damage
                                            Control0..1
                                            Typeboolean
                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                            Obligations
                                              ObligationsActor
                                              SHALL:handle
                                              46. Subject.comorbidity.hemiplegia
                                              Definition

                                              Previous cancer comorbidity related to Hemiplegia

                                              ShortHemiplegia
                                              Control0..1
                                              Typeboolean
                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                              Obligations
                                                ObligationsActor
                                                SHALL:handle
                                                48. Subject.comorbidity.moderateToSevereRenalDisease
                                                Definition

                                                Previous cancer comorbidity related to Moderate to severe renal disease

                                                ShortModerate to severe renal disease
                                                Control0..1
                                                Typeboolean
                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                Obligations
                                                  ObligationsActor
                                                  SHALL:handle
                                                  50. Subject.comorbidity.solidTumor
                                                  Definition

                                                  Previous cancer comorbidity related to Solid tumor (non metastatic)

                                                  ShortSolid tumor (non metastatic)
                                                  Control0..1
                                                  Typeboolean
                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                  Obligations
                                                    ObligationsActor
                                                    SHALL:handle
                                                    52. Subject.comorbidity.metastaticSolidTumor
                                                    Definition

                                                    Previous cancer comorbidity related to Metastatic solid tumor

                                                    ShortMetastatic solid tumor
                                                    Control0..1
                                                    Typeboolean
                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                    Obligations
                                                      ObligationsActor
                                                      SHALL:handle
                                                      54. Subject.comorbidity.leukemia
                                                      Definition

                                                      Previous cancer comorbidity related to Leukemia

                                                      ShortLeukemia
                                                      Control0..1
                                                      Typeboolean
                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                      Obligations
                                                        ObligationsActor
                                                        SHALL:handle
                                                        56. Subject.comorbidity.lymphoma
                                                        Definition

                                                        Previous cancer comorbidity related to Lymphoma

                                                        ShortLymphoma
                                                        Control0..1
                                                        Typeboolean
                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                        Obligations
                                                          ObligationsActor
                                                          SHALL:handle
                                                          58. Subject.comorbidity.multipleMyeloma
                                                          Definition

                                                          Previous cancer comorbidity related to Multiple myeloma

                                                          ShortMultiple myeloma
                                                          Control0..1
                                                          Typeboolean
                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                          Obligations
                                                            ObligationsActor
                                                            SHALL:handle
                                                            60. Subject.comorbidity.aids
                                                            Definition

                                                            Previous cancer comorbidity related to AIDS

                                                            ShortAIDS
                                                            Control0..1
                                                            Typeboolean
                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                            Obligations
                                                              ObligationsActor
                                                              SHALL:handle
                                                              62. Subject.ecogPsAtDiagnosis
                                                              Definition

                                                              Eastern Cooperative Oncology Group performance status (ECOG PS) at diagnosis

                                                              ShortEastern Cooperative Oncology Group performance status (ECOG PS) at diagnosis
                                                              Comments

                                                              Ecog grades 0-5

                                                              Control0..1
                                                              Typeinteger
                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                              Obligations
                                                                ObligationsActor
                                                                SHALL:handle
                                                                64. Subject.ecogPsLabel
                                                                Definition

                                                                Eastern Cooperative Oncology Group performance status (ECOG PS) label

                                                                ShortECOG PS label
                                                                Comments

                                                                Ecog grades 0-5

                                                                ECOG performance status grade 0 - 4175026 ECOG performance status grade 1 - 4173614 ECOG performance status grade 2 - 4172043 ECOG performance status grade 3 - 4174241 ECOG performance status grade 4 - 4174251 ECOG performance status grade 5 - 4173456

                                                                Control0..1
                                                                TypeCodeableConcept
                                                                Obligations
                                                                  ObligationsActor
                                                                  SHALL:handle
                                                                  66. Subject.karnofsyIndexAtDiagnosis
                                                                  Definition

                                                                  Karnofsy index at diagnosis

                                                                  ShortKarnofsy index at diagnosis
                                                                  Comments

                                                                  KPS Scale

                                                                  Control0..1
                                                                  Typeinteger
                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                  Obligations
                                                                    ObligationsActor
                                                                    SHALL:handle
                                                                    68. Subject.karnofsyIndexLabel
                                                                    Definition

                                                                    Karnofsy index at diagnosis

                                                                    ShortKarnofsy index label
                                                                    Comments

                                                                    KPS Scale SONS Functional Neurologic Status - Karnofsky Performance Scale (KPS) - 35917688

                                                                    Control0..1
                                                                    TypeCodeableConcept
                                                                    Obligations
                                                                      ObligationsActor
                                                                      SHALL:handle
                                                                      70. Subject.noGeneticSyndromeWho2020
                                                                      Definition

                                                                      Describes whether the patient was diagnosed before treatment of at least one of the diseases, syndromes listed next (or not) relevant for sarcoma.

                                                                      ShortNo Genetic syndrome WHO 2020
                                                                      Control1..1
                                                                      TypeBackboneElement
                                                                      Obligations
                                                                        ObligationsActor
                                                                        SHALL:handle
                                                                        72. Subject.noGeneticSyndromeWho2020.olliersDisease
                                                                        Definition

                                                                        Olliers disease

                                                                        ShortOlliers disease
                                                                        Control1..1
                                                                        Typeboolean
                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                        Obligations
                                                                          ObligationsActor
                                                                          SHALL:handle
                                                                          74. Subject.noGeneticSyndromeWho2020.maffuciSyndrome
                                                                          Definition

                                                                          Maffuci syndrome

                                                                          ShortMaffuci syndrome
                                                                          Control1..1
                                                                          Typeboolean
                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                          Obligations
                                                                            ObligationsActor
                                                                            SHALL:handle
                                                                            76. Subject.noGeneticSyndromeWho2020.liFraumeniSyndrome
                                                                            Definition

                                                                            Li-Fraumeni syndrome

                                                                            ShortLi-Fraumeni syndrome
                                                                            Control1..1
                                                                            Typeboolean
                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                            Obligations
                                                                              ObligationsActor
                                                                              SHALL:handle
                                                                              78. Subject.noGeneticSyndromeWho2020.mcCuneAlbrightSyndrome
                                                                              Definition

                                                                              McCune-Albright syndrome

                                                                              ShortMcCune-Albright syndrome
                                                                              Control1..1
                                                                              Typeboolean
                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                              Obligations
                                                                                ObligationsActor
                                                                                SHALL:handle
                                                                                80. Subject.noGeneticSyndromeWho2020.multipleOsteochondromas
                                                                                Definition

                                                                                Multiple osteochondromas

                                                                                ShortMultiple osteochondromas
                                                                                Control1..1
                                                                                Typeboolean
                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                Obligations
                                                                                  ObligationsActor
                                                                                  SHALL:handle
                                                                                  82. Subject.noGeneticSyndromeWho2020.neurofibromatosisType1
                                                                                  Definition

                                                                                  Neurofibromatosis type 2

                                                                                  ShortNeurofibromatosis type 1
                                                                                  Control1..1
                                                                                  Typeboolean
                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                  Obligations
                                                                                    ObligationsActor
                                                                                    SHALL:handle
                                                                                    84. Subject.noGeneticSyndromeWho2020.rothmundThomsonSyndrome
                                                                                    Definition

                                                                                    Rothmund-Thomson syndrome

                                                                                    ShortRothmund-Thomson syndrome
                                                                                    Control1..1
                                                                                    Typeboolean
                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                    Obligations
                                                                                      ObligationsActor
                                                                                      SHALL:handle
                                                                                      86. Subject.noGeneticSyndromeWho2020.wernerSyndrome
                                                                                      Definition

                                                                                      Werner syndrome

                                                                                      ShortWerner syndrome
                                                                                      Control1..1
                                                                                      Typeboolean
                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                      Obligations
                                                                                        ObligationsActor
                                                                                        SHALL:handle
                                                                                        88. Subject.noGeneticSyndromeWho2020.retinoblastoma
                                                                                        Definition

                                                                                        Retinoblastoma

                                                                                        ShortRetinoblastoma
                                                                                        Control1..1
                                                                                        Typeboolean
                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                        Obligations
                                                                                          ObligationsActor
                                                                                          SHALL:handle
                                                                                          90. Subject.noGeneticSyndromeWho2020.pagetDisease
                                                                                          Definition

                                                                                          Paget disease

                                                                                          ShortPaget disease
                                                                                          Control1..1
                                                                                          Typeboolean
                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                          Obligations
                                                                                            ObligationsActor
                                                                                            SHALL:handle
                                                                                            92. Subject.noGeneticSyndromeWho2020.otherSyndromes
                                                                                            Definition

                                                                                            Other Genetic syndrome WHO 2020

                                                                                            ShortOther Genetic syndrome WHO 2020
                                                                                            Control1..1
                                                                                            Typeboolean
                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                            Obligations
                                                                                              ObligationsActor
                                                                                              SHALL:handle
                                                                                              94. Subject.occurrenceOfOtherCancer
                                                                                              Definition

                                                                                              Occurrence of other cancer

                                                                                              ShortOccurrence of other cancer
                                                                                              Comments

                                                                                              Children (and subchildren) of Neoplasm and/or hamartoma - 4266186

                                                                                              Control1..1
                                                                                              TypeCodeableConcept
                                                                                              Obligations
                                                                                                ObligationsActor
                                                                                                SHALL:handle
                                                                                                96. Subject.previousCancerTreatment
                                                                                                Definition

                                                                                                Previous cancer treatment

                                                                                                ShortPrevious cancer treatment
                                                                                                Comments

                                                                                                Chemotherapy - 4273629 Radiation oncology- 4170755 Surgery - 4121697 Comprehensive medication therapy review - 42535584 Immunological therapy - 4295112

                                                                                                Control1..1
                                                                                                TypeCodeableConcept
                                                                                                Obligations
                                                                                                  ObligationsActor
                                                                                                  SHALL:handle

                                                                                                  Guidance on how to interpret the contents of this table can be found here

                                                                                                  0. Subject
                                                                                                  Definition

                                                                                                  Subject of care Maturity Level: 0 Draft

                                                                                                  ShortSubject of care
                                                                                                  Control0..*
                                                                                                  Is Modifierfalse
                                                                                                  Logical ModelInstances of this logical model are not marked to be the target of a Reference
                                                                                                  2. Subject.sex
                                                                                                  Definition

                                                                                                  Describes biological sex as recorded in the patient's identity document or in the hospital record. In the absence of documentation, the one declared by the patient will be recorded

                                                                                                  ShortGender
                                                                                                  Comments

                                                                                                  Male; Female; Unknown. Male - 8507 Female - 8532 Unknown - 4129922

                                                                                                  Control1..1
                                                                                                  TypeCodeableConcept
                                                                                                  Obligations
                                                                                                    ObligationsActor
                                                                                                    SHALL:handle
                                                                                                    SHALL:handle
                                                                                                    4. Subject.race
                                                                                                    Definition

                                                                                                    Describes race as recorded in the hospital record, the one declared by the patient,, otherwise, the onerecognized by the observer

                                                                                                    ShortRace
                                                                                                    Comments

                                                                                                    Unknown; White; Black; Asians/Pacific Islanders; American Indian/Alaska Native White - 8527 Black - 8516 Asian/Pacific Islanders - 8515 American Indian/Alaska Native - 8657 Unknown - 4129922

                                                                                                    Control1..1
                                                                                                    TypeCodeableConcept
                                                                                                    Obligations
                                                                                                      ObligationsActor
                                                                                                      SHALL:handle
                                                                                                      6. Subject.birthYear
                                                                                                      Definition

                                                                                                      Year of birth of the patient.

                                                                                                      ShortBirth year
                                                                                                      Control0..1
                                                                                                      Typeinteger
                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                      Obligations
                                                                                                        ObligationsActor
                                                                                                        SHALL:handle
                                                                                                        SHALL:handle
                                                                                                        8. Subject.countryOfResidence
                                                                                                        Definition

                                                                                                        Country of residence at the time of diagnosis

                                                                                                        ShortCountry of Residence
                                                                                                        Comments

                                                                                                        Value from the code list of countries Son in the hierarchy of countries

                                                                                                        Control1..1
                                                                                                        TypeCodeableConcept
                                                                                                        Obligations
                                                                                                          ObligationsActor
                                                                                                          SHALL:handle
                                                                                                          SHALL:handle
                                                                                                          10. Subject.smoking
                                                                                                          Definition

                                                                                                          Describes tobacco smoker habits within the options proposed

                                                                                                          ShortSmoking
                                                                                                          Comments

                                                                                                          Current tobacco smoker; Former smoker (at least for 12 months); Never smoker; Unknown Current smoker - 36309332 Former smoker - 45883458 Never smoker - 45879404

                                                                                                          Control1..1
                                                                                                          TypeCodeableConcept
                                                                                                          Obligations
                                                                                                            ObligationsActor
                                                                                                            SHALL:handle
                                                                                                            12. Subject.cigarettesPackYearsSmokedDuringLife
                                                                                                            Definition

                                                                                                            The amount of cigarette pack smoked during life

                                                                                                            ShortCigarettes pack years smoked during life
                                                                                                            Control0..1
                                                                                                            Typeinteger
                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                            Obligations
                                                                                                              ObligationsActor
                                                                                                              SHALL:handle
                                                                                                              14. Subject.alcohol
                                                                                                              Definition

                                                                                                              Describes alcohol habits within the options proposed

                                                                                                              ShortAlcohol
                                                                                                              Comments

                                                                                                              Current; Former (at least for 12 months); Never; History of alcohol dependence; Unknown Current drinker - 4074035 Ex-drinker - 4220362 Lifetime non-drinker of alcohol - 37204556 Ex-problem drinker - 4117706

                                                                                                              Control1..1
                                                                                                              TypeCodeableConcept
                                                                                                              Obligations
                                                                                                                ObligationsActor
                                                                                                                SHALL:handle
                                                                                                                16. Subject.bMI
                                                                                                                Definition

                                                                                                                Body Mass Index information if weight and height are included. it is calculated as BMI = kg/m2 where kg is a person's weight in kilograms and m2 is their height in metres squared.

                                                                                                                ShortHeight/weight (BMI)
                                                                                                                Control0..1
                                                                                                                TypeQuantity
                                                                                                                Obligations
                                                                                                                  ObligationsActor
                                                                                                                  SHALL:handle
                                                                                                                  18. Subject.charlsonComorbidityIndex
                                                                                                                  Definition

                                                                                                                  Provides the Charlson Comorbidity index for the patient

                                                                                                                  ShortCharlson Comorbidity index
                                                                                                                  Control0..1
                                                                                                                  Typeinteger
                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                  Obligations
                                                                                                                    ObligationsActor
                                                                                                                    SHALL:handle
                                                                                                                    20. Subject.comorbidity
                                                                                                                    Definition

                                                                                                                    Describes whether the patient was diagnosed before treatment of at least one of the comorbidities listed next (or not) relevant for head and neck cancer.

                                                                                                                    ShortComorbidity
                                                                                                                    Comments

                                                                                                                    Yes; No; Unknown Yes - 4188539 No - 4188540 Unknown - 4129922

                                                                                                                    Control1..1
                                                                                                                    TypeBackboneElement
                                                                                                                    Obligations
                                                                                                                      ObligationsActor
                                                                                                                      SHALL:handle
                                                                                                                      Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                      22. Subject.comorbidity.modifierExtension
                                                                                                                      Definition

                                                                                                                      May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

                                                                                                                      Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

                                                                                                                      ShortExtensions that cannot be ignored even if unrecognized
                                                                                                                      Comments

                                                                                                                      There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

                                                                                                                      Control0..*
                                                                                                                      TypeExtension
                                                                                                                      Is Modifiertrue because Modifier extensions are expected to modify the meaning or interpretation of the element that contains them
                                                                                                                      Summarytrue
                                                                                                                      Requirements

                                                                                                                      Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

                                                                                                                      Alternate Namesextensions, user content, modifiers
                                                                                                                      Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                      ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
                                                                                                                      24. Subject.comorbidity.myocardialInfarction
                                                                                                                      Definition

                                                                                                                      Describes comorbidities reported or assesed before treatment. More than one choice is allowed. Please do not include the current cancer in this calculation, only the previous cancer.

                                                                                                                      ShortMyocardial infarction
                                                                                                                      Control0..1
                                                                                                                      Typeboolean
                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                      Obligations
                                                                                                                        ObligationsActor
                                                                                                                        SHALL:handle
                                                                                                                        26. Subject.comorbidity.congestiveHeartFailure
                                                                                                                        Definition

                                                                                                                        Previous cancer comorbidity related to Congestive heart failure

                                                                                                                        ShortCongestive heart failure
                                                                                                                        Control0..1
                                                                                                                        Typeboolean
                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                        Obligations
                                                                                                                          ObligationsActor
                                                                                                                          SHALL:handle
                                                                                                                          28. Subject.comorbidity.peripheralVascularDisease
                                                                                                                          Definition

                                                                                                                          Previous cancer comorbidity related to Peripheral vascular disease

                                                                                                                          ShortPeripheral vascular disease
                                                                                                                          Control0..1
                                                                                                                          Typeboolean
                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                          Obligations
                                                                                                                            ObligationsActor
                                                                                                                            SHALL:handle
                                                                                                                            30. Subject.comorbidity.cerebrovascularAccidentExceptHemiplegia
                                                                                                                            Definition

                                                                                                                            Previous cancer comorbidity related to Cerebrovascular accident (except hemiplegia)

                                                                                                                            ShortCerebrovascular accident (except hemiplegia)
                                                                                                                            Control0..1
                                                                                                                            Typeboolean
                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                            Obligations
                                                                                                                              ObligationsActor
                                                                                                                              SHALL:handle
                                                                                                                              32. Subject.comorbidity.dementia
                                                                                                                              Definition

                                                                                                                              Previous cancer comorbidity related to Dementia

                                                                                                                              ShortDementia
                                                                                                                              Control0..1
                                                                                                                              Typeboolean
                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                              Obligations
                                                                                                                                ObligationsActor
                                                                                                                                SHALL:handle
                                                                                                                                34. Subject.comorbidity.chronicPulmonaryDisease
                                                                                                                                Definition

                                                                                                                                Previous cancer comorbidity related to Chronic pulmonary disease

                                                                                                                                ShortChronic pulmonary disease
                                                                                                                                Control0..1
                                                                                                                                Typeboolean
                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                Obligations
                                                                                                                                  ObligationsActor
                                                                                                                                  SHALL:handle
                                                                                                                                  36. Subject.comorbidity.connectiveTissueDisease
                                                                                                                                  Definition

                                                                                                                                  Previous cancer comorbidity related to Connective tissue disease

                                                                                                                                  ShortConnective tissue disease
                                                                                                                                  Control0..1
                                                                                                                                  Typeboolean
                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                  Obligations
                                                                                                                                    ObligationsActor
                                                                                                                                    SHALL:handle
                                                                                                                                    38. Subject.comorbidity.ulcer
                                                                                                                                    Definition

                                                                                                                                    Previous cancer comorbidity related to Ulcer

                                                                                                                                    ShortUlcer
                                                                                                                                    Control0..1
                                                                                                                                    Typeboolean
                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                    Obligations
                                                                                                                                      ObligationsActor
                                                                                                                                      SHALL:handle
                                                                                                                                      40. Subject.comorbidity.mildLiverDisease
                                                                                                                                      Definition

                                                                                                                                      Previous cancer comorbidity related to Mild liver disease

                                                                                                                                      ShortMild liver disease
                                                                                                                                      Control0..1
                                                                                                                                      Typeboolean
                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                      Obligations
                                                                                                                                        ObligationsActor
                                                                                                                                        SHALL:handle
                                                                                                                                        42. Subject.comorbidity.moderateToSevereLiverDisease
                                                                                                                                        Definition

                                                                                                                                        Previous cancer comorbidity related to Moderate to severe liver disease

                                                                                                                                        ShortModerate to severe liver disease
                                                                                                                                        Control0..1
                                                                                                                                        Typeboolean
                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                        Obligations
                                                                                                                                          ObligationsActor
                                                                                                                                          SHALL:handle
                                                                                                                                          44. Subject.comorbidity.diabetes
                                                                                                                                          Definition

                                                                                                                                          Previous cancer comorbidity related to Diabetes (without complications)

                                                                                                                                          ShortDiabetes (without complications)
                                                                                                                                          Control0..1
                                                                                                                                          Typeboolean
                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                          Obligations
                                                                                                                                            ObligationsActor
                                                                                                                                            SHALL:handle
                                                                                                                                            46. Subject.comorbidity.diabetesWithEndOrganDamage
                                                                                                                                            Definition

                                                                                                                                            Previous cancer comorbidity related to Diabetes with end organ damage

                                                                                                                                            ShortDiabetes with end organ damage
                                                                                                                                            Control0..1
                                                                                                                                            Typeboolean
                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                            Obligations
                                                                                                                                              ObligationsActor
                                                                                                                                              SHALL:handle
                                                                                                                                              48. Subject.comorbidity.hemiplegia
                                                                                                                                              Definition

                                                                                                                                              Previous cancer comorbidity related to Hemiplegia

                                                                                                                                              ShortHemiplegia
                                                                                                                                              Control0..1
                                                                                                                                              Typeboolean
                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                              Obligations
                                                                                                                                                ObligationsActor
                                                                                                                                                SHALL:handle
                                                                                                                                                50. Subject.comorbidity.moderateToSevereRenalDisease
                                                                                                                                                Definition

                                                                                                                                                Previous cancer comorbidity related to Moderate to severe renal disease

                                                                                                                                                ShortModerate to severe renal disease
                                                                                                                                                Control0..1
                                                                                                                                                Typeboolean
                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                Obligations
                                                                                                                                                  ObligationsActor
                                                                                                                                                  SHALL:handle
                                                                                                                                                  52. Subject.comorbidity.solidTumor
                                                                                                                                                  Definition

                                                                                                                                                  Previous cancer comorbidity related to Solid tumor (non metastatic)

                                                                                                                                                  ShortSolid tumor (non metastatic)
                                                                                                                                                  Control0..1
                                                                                                                                                  Typeboolean
                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                  Obligations
                                                                                                                                                    ObligationsActor
                                                                                                                                                    SHALL:handle
                                                                                                                                                    54. Subject.comorbidity.metastaticSolidTumor
                                                                                                                                                    Definition

                                                                                                                                                    Previous cancer comorbidity related to Metastatic solid tumor

                                                                                                                                                    ShortMetastatic solid tumor
                                                                                                                                                    Control0..1
                                                                                                                                                    Typeboolean
                                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                    Obligations
                                                                                                                                                      ObligationsActor
                                                                                                                                                      SHALL:handle
                                                                                                                                                      56. Subject.comorbidity.leukemia
                                                                                                                                                      Definition

                                                                                                                                                      Previous cancer comorbidity related to Leukemia

                                                                                                                                                      ShortLeukemia
                                                                                                                                                      Control0..1
                                                                                                                                                      Typeboolean
                                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                      Obligations
                                                                                                                                                        ObligationsActor
                                                                                                                                                        SHALL:handle
                                                                                                                                                        58. Subject.comorbidity.lymphoma
                                                                                                                                                        Definition

                                                                                                                                                        Previous cancer comorbidity related to Lymphoma

                                                                                                                                                        ShortLymphoma
                                                                                                                                                        Control0..1
                                                                                                                                                        Typeboolean
                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                        Obligations
                                                                                                                                                          ObligationsActor
                                                                                                                                                          SHALL:handle
                                                                                                                                                          60. Subject.comorbidity.multipleMyeloma
                                                                                                                                                          Definition

                                                                                                                                                          Previous cancer comorbidity related to Multiple myeloma

                                                                                                                                                          ShortMultiple myeloma
                                                                                                                                                          Control0..1
                                                                                                                                                          Typeboolean
                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                          Obligations
                                                                                                                                                            ObligationsActor
                                                                                                                                                            SHALL:handle
                                                                                                                                                            62. Subject.comorbidity.aids
                                                                                                                                                            Definition

                                                                                                                                                            Previous cancer comorbidity related to AIDS

                                                                                                                                                            ShortAIDS
                                                                                                                                                            Control0..1
                                                                                                                                                            Typeboolean
                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                            Obligations
                                                                                                                                                              ObligationsActor
                                                                                                                                                              SHALL:handle
                                                                                                                                                              64. Subject.ecogPsAtDiagnosis
                                                                                                                                                              Definition

                                                                                                                                                              Eastern Cooperative Oncology Group performance status (ECOG PS) at diagnosis

                                                                                                                                                              ShortEastern Cooperative Oncology Group performance status (ECOG PS) at diagnosis
                                                                                                                                                              Comments

                                                                                                                                                              Ecog grades 0-5

                                                                                                                                                              Control0..1
                                                                                                                                                              Typeinteger
                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                              Obligations
                                                                                                                                                                ObligationsActor
                                                                                                                                                                SHALL:handle
                                                                                                                                                                66. Subject.ecogPsLabel
                                                                                                                                                                Definition

                                                                                                                                                                Eastern Cooperative Oncology Group performance status (ECOG PS) label

                                                                                                                                                                ShortECOG PS label
                                                                                                                                                                Comments

                                                                                                                                                                Ecog grades 0-5

                                                                                                                                                                ECOG performance status grade 0 - 4175026 ECOG performance status grade 1 - 4173614 ECOG performance status grade 2 - 4172043 ECOG performance status grade 3 - 4174241 ECOG performance status grade 4 - 4174251 ECOG performance status grade 5 - 4173456

                                                                                                                                                                Control0..1
                                                                                                                                                                TypeCodeableConcept
                                                                                                                                                                Obligations
                                                                                                                                                                  ObligationsActor
                                                                                                                                                                  SHALL:handle
                                                                                                                                                                  68. Subject.karnofsyIndexAtDiagnosis
                                                                                                                                                                  Definition

                                                                                                                                                                  Karnofsy index at diagnosis

                                                                                                                                                                  ShortKarnofsy index at diagnosis
                                                                                                                                                                  Comments

                                                                                                                                                                  KPS Scale

                                                                                                                                                                  Control0..1
                                                                                                                                                                  Typeinteger
                                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                  Obligations
                                                                                                                                                                    ObligationsActor
                                                                                                                                                                    SHALL:handle
                                                                                                                                                                    70. Subject.karnofsyIndexLabel
                                                                                                                                                                    Definition

                                                                                                                                                                    Karnofsy index at diagnosis

                                                                                                                                                                    ShortKarnofsy index label
                                                                                                                                                                    Comments

                                                                                                                                                                    KPS Scale SONS Functional Neurologic Status - Karnofsky Performance Scale (KPS) - 35917688

                                                                                                                                                                    Control0..1
                                                                                                                                                                    TypeCodeableConcept
                                                                                                                                                                    Obligations
                                                                                                                                                                      ObligationsActor
                                                                                                                                                                      SHALL:handle
                                                                                                                                                                      72. Subject.noGeneticSyndromeWho2020
                                                                                                                                                                      Definition

                                                                                                                                                                      Describes whether the patient was diagnosed before treatment of at least one of the diseases, syndromes listed next (or not) relevant for sarcoma.

                                                                                                                                                                      ShortNo Genetic syndrome WHO 2020
                                                                                                                                                                      Control1..1
                                                                                                                                                                      TypeBackboneElement
                                                                                                                                                                      Obligations
                                                                                                                                                                        ObligationsActor
                                                                                                                                                                        SHALL:handle
                                                                                                                                                                        Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                        74. Subject.noGeneticSyndromeWho2020.modifierExtension
                                                                                                                                                                        Definition

                                                                                                                                                                        May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

                                                                                                                                                                        Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

                                                                                                                                                                        ShortExtensions that cannot be ignored even if unrecognized
                                                                                                                                                                        Comments

                                                                                                                                                                        There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

                                                                                                                                                                        Control0..*
                                                                                                                                                                        TypeExtension
                                                                                                                                                                        Is Modifiertrue because Modifier extensions are expected to modify the meaning or interpretation of the element that contains them
                                                                                                                                                                        Summarytrue
                                                                                                                                                                        Requirements

                                                                                                                                                                        Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

                                                                                                                                                                        Alternate Namesextensions, user content, modifiers
                                                                                                                                                                        Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                        ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
                                                                                                                                                                        76. Subject.noGeneticSyndromeWho2020.olliersDisease
                                                                                                                                                                        Definition

                                                                                                                                                                        Olliers disease

                                                                                                                                                                        ShortOlliers disease
                                                                                                                                                                        Control1..1
                                                                                                                                                                        Typeboolean
                                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                        Obligations
                                                                                                                                                                          ObligationsActor
                                                                                                                                                                          SHALL:handle
                                                                                                                                                                          78. Subject.noGeneticSyndromeWho2020.maffuciSyndrome
                                                                                                                                                                          Definition

                                                                                                                                                                          Maffuci syndrome

                                                                                                                                                                          ShortMaffuci syndrome
                                                                                                                                                                          Control1..1
                                                                                                                                                                          Typeboolean
                                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                          Obligations
                                                                                                                                                                            ObligationsActor
                                                                                                                                                                            SHALL:handle
                                                                                                                                                                            80. Subject.noGeneticSyndromeWho2020.liFraumeniSyndrome
                                                                                                                                                                            Definition

                                                                                                                                                                            Li-Fraumeni syndrome

                                                                                                                                                                            ShortLi-Fraumeni syndrome
                                                                                                                                                                            Control1..1
                                                                                                                                                                            Typeboolean
                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                            Obligations
                                                                                                                                                                              ObligationsActor
                                                                                                                                                                              SHALL:handle
                                                                                                                                                                              82. Subject.noGeneticSyndromeWho2020.mcCuneAlbrightSyndrome
                                                                                                                                                                              Definition

                                                                                                                                                                              McCune-Albright syndrome

                                                                                                                                                                              ShortMcCune-Albright syndrome
                                                                                                                                                                              Control1..1
                                                                                                                                                                              Typeboolean
                                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                              Obligations
                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                84. Subject.noGeneticSyndromeWho2020.multipleOsteochondromas
                                                                                                                                                                                Definition

                                                                                                                                                                                Multiple osteochondromas

                                                                                                                                                                                ShortMultiple osteochondromas
                                                                                                                                                                                Control1..1
                                                                                                                                                                                Typeboolean
                                                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                Obligations
                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                  86. Subject.noGeneticSyndromeWho2020.neurofibromatosisType1
                                                                                                                                                                                  Definition

                                                                                                                                                                                  Neurofibromatosis type 2

                                                                                                                                                                                  ShortNeurofibromatosis type 1
                                                                                                                                                                                  Control1..1
                                                                                                                                                                                  Typeboolean
                                                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                  Obligations
                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                    88. Subject.noGeneticSyndromeWho2020.rothmundThomsonSyndrome
                                                                                                                                                                                    Definition

                                                                                                                                                                                    Rothmund-Thomson syndrome

                                                                                                                                                                                    ShortRothmund-Thomson syndrome
                                                                                                                                                                                    Control1..1
                                                                                                                                                                                    Typeboolean
                                                                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                    Obligations
                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                      90. Subject.noGeneticSyndromeWho2020.wernerSyndrome
                                                                                                                                                                                      Definition

                                                                                                                                                                                      Werner syndrome

                                                                                                                                                                                      ShortWerner syndrome
                                                                                                                                                                                      Control1..1
                                                                                                                                                                                      Typeboolean
                                                                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                      Obligations
                                                                                                                                                                                        ObligationsActor
                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                        92. Subject.noGeneticSyndromeWho2020.retinoblastoma
                                                                                                                                                                                        Definition

                                                                                                                                                                                        Retinoblastoma

                                                                                                                                                                                        ShortRetinoblastoma
                                                                                                                                                                                        Control1..1
                                                                                                                                                                                        Typeboolean
                                                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                        Obligations
                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                          94. Subject.noGeneticSyndromeWho2020.pagetDisease
                                                                                                                                                                                          Definition

                                                                                                                                                                                          Paget disease

                                                                                                                                                                                          ShortPaget disease
                                                                                                                                                                                          Control1..1
                                                                                                                                                                                          Typeboolean
                                                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                          Obligations
                                                                                                                                                                                            ObligationsActor
                                                                                                                                                                                            SHALL:handle
                                                                                                                                                                                            96. Subject.noGeneticSyndromeWho2020.otherSyndromes
                                                                                                                                                                                            Definition

                                                                                                                                                                                            Other Genetic syndrome WHO 2020

                                                                                                                                                                                            ShortOther Genetic syndrome WHO 2020
                                                                                                                                                                                            Control1..1
                                                                                                                                                                                            Typeboolean
                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                            Obligations
                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                              98. Subject.occurrenceOfOtherCancer
                                                                                                                                                                                              Definition

                                                                                                                                                                                              Occurrence of other cancer

                                                                                                                                                                                              ShortOccurrence of other cancer
                                                                                                                                                                                              Comments

                                                                                                                                                                                              Children (and subchildren) of Neoplasm and/or hamartoma - 4266186

                                                                                                                                                                                              Control1..1
                                                                                                                                                                                              TypeCodeableConcept
                                                                                                                                                                                              Obligations
                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                100. Subject.previousCancerTreatment
                                                                                                                                                                                                Definition

                                                                                                                                                                                                Previous cancer treatment

                                                                                                                                                                                                ShortPrevious cancer treatment
                                                                                                                                                                                                Comments

                                                                                                                                                                                                Chemotherapy - 4273629 Radiation oncology- 4170755 Surgery - 4121697 Comprehensive medication therapy review - 42535584 Immunological therapy - 4295112

                                                                                                                                                                                                Control1..1
                                                                                                                                                                                                TypeCodeableConcept
                                                                                                                                                                                                Obligations
                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                  SHALL:handle

                                                                                                                                                                                                  Guidance on how to interpret the contents of this table can be found here

                                                                                                                                                                                                  0. Subject
                                                                                                                                                                                                  Definition

                                                                                                                                                                                                  Subject of care Maturity Level: 0 Draft

                                                                                                                                                                                                  ShortSubject of care
                                                                                                                                                                                                  Control0..*
                                                                                                                                                                                                  Is Modifierfalse
                                                                                                                                                                                                  Logical ModelInstances of this logical model are not marked to be the target of a Reference
                                                                                                                                                                                                  2. Subject.sex
                                                                                                                                                                                                  Definition

                                                                                                                                                                                                  Describes biological sex as recorded in the patient's identity document or in the hospital record. In the absence of documentation, the one declared by the patient will be recorded

                                                                                                                                                                                                  ShortGender
                                                                                                                                                                                                  Comments

                                                                                                                                                                                                  Male; Female; Unknown. Male - 8507 Female - 8532 Unknown - 4129922

                                                                                                                                                                                                  Control1..1
                                                                                                                                                                                                  TypeCodeableConcept
                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                    4. Subject.race
                                                                                                                                                                                                    Definition

                                                                                                                                                                                                    Describes race as recorded in the hospital record, the one declared by the patient,, otherwise, the onerecognized by the observer

                                                                                                                                                                                                    ShortRace
                                                                                                                                                                                                    Comments

                                                                                                                                                                                                    Unknown; White; Black; Asians/Pacific Islanders; American Indian/Alaska Native White - 8527 Black - 8516 Asian/Pacific Islanders - 8515 American Indian/Alaska Native - 8657 Unknown - 4129922

                                                                                                                                                                                                    Control1..1
                                                                                                                                                                                                    TypeCodeableConcept
                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                                      6. Subject.birthYear
                                                                                                                                                                                                      Definition

                                                                                                                                                                                                      Year of birth of the patient.

                                                                                                                                                                                                      ShortBirth year
                                                                                                                                                                                                      Control0..1
                                                                                                                                                                                                      Typeinteger
                                                                                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                      Obligations
                                                                                                                                                                                                        ObligationsActor
                                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                                        8. Subject.countryOfResidence
                                                                                                                                                                                                        Definition

                                                                                                                                                                                                        Country of residence at the time of diagnosis

                                                                                                                                                                                                        ShortCountry of Residence
                                                                                                                                                                                                        Comments

                                                                                                                                                                                                        Value from the code list of countries Son in the hierarchy of countries

                                                                                                                                                                                                        Control1..1
                                                                                                                                                                                                        TypeCodeableConcept
                                                                                                                                                                                                        Obligations
                                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                          10. Subject.smoking
                                                                                                                                                                                                          Definition

                                                                                                                                                                                                          Describes tobacco smoker habits within the options proposed

                                                                                                                                                                                                          ShortSmoking
                                                                                                                                                                                                          Comments

                                                                                                                                                                                                          Current tobacco smoker; Former smoker (at least for 12 months); Never smoker; Unknown Current smoker - 36309332 Former smoker - 45883458 Never smoker - 45879404

                                                                                                                                                                                                          Control1..1
                                                                                                                                                                                                          TypeCodeableConcept
                                                                                                                                                                                                          Obligations
                                                                                                                                                                                                            ObligationsActor
                                                                                                                                                                                                            SHALL:handle
                                                                                                                                                                                                            12. Subject.cigarettesPackYearsSmokedDuringLife
                                                                                                                                                                                                            Definition

                                                                                                                                                                                                            The amount of cigarette pack smoked during life

                                                                                                                                                                                                            ShortCigarettes pack years smoked during life
                                                                                                                                                                                                            Control0..1
                                                                                                                                                                                                            Typeinteger
                                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                            Obligations
                                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                                              14. Subject.alcohol
                                                                                                                                                                                                              Definition

                                                                                                                                                                                                              Describes alcohol habits within the options proposed

                                                                                                                                                                                                              ShortAlcohol
                                                                                                                                                                                                              Comments

                                                                                                                                                                                                              Current; Former (at least for 12 months); Never; History of alcohol dependence; Unknown Current drinker - 4074035 Ex-drinker - 4220362 Lifetime non-drinker of alcohol - 37204556 Ex-problem drinker - 4117706

                                                                                                                                                                                                              Control1..1
                                                                                                                                                                                                              TypeCodeableConcept
                                                                                                                                                                                                              Obligations
                                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                                16. Subject.bMI
                                                                                                                                                                                                                Definition

                                                                                                                                                                                                                Body Mass Index information if weight and height are included. it is calculated as BMI = kg/m2 where kg is a person's weight in kilograms and m2 is their height in metres squared.

                                                                                                                                                                                                                ShortHeight/weight (BMI)
                                                                                                                                                                                                                Control0..1
                                                                                                                                                                                                                TypeQuantity
                                                                                                                                                                                                                Obligations
                                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                                                  18. Subject.charlsonComorbidityIndex
                                                                                                                                                                                                                  Definition

                                                                                                                                                                                                                  Provides the Charlson Comorbidity index for the patient

                                                                                                                                                                                                                  ShortCharlson Comorbidity index
                                                                                                                                                                                                                  Control0..1
                                                                                                                                                                                                                  Typeinteger
                                                                                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                                    20. Subject.comorbidity
                                                                                                                                                                                                                    Definition

                                                                                                                                                                                                                    Describes whether the patient was diagnosed before treatment of at least one of the comorbidities listed next (or not) relevant for head and neck cancer.

                                                                                                                                                                                                                    ShortComorbidity
                                                                                                                                                                                                                    Comments

                                                                                                                                                                                                                    Yes; No; Unknown Yes - 4188539 No - 4188540 Unknown - 4129922

                                                                                                                                                                                                                    Control1..1
                                                                                                                                                                                                                    TypeBackboneElement
                                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                                                      Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                                                                      22. Subject.comorbidity.id
                                                                                                                                                                                                                      Definition

                                                                                                                                                                                                                      Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

                                                                                                                                                                                                                      ShortUnique id for inter-element referencing
                                                                                                                                                                                                                      Control0..1
                                                                                                                                                                                                                      Typestring
                                                                                                                                                                                                                      Is Modifierfalse
                                                                                                                                                                                                                      XML FormatIn the XML format, this property is represented as an attribute.
                                                                                                                                                                                                                      Summaryfalse
                                                                                                                                                                                                                      24. Subject.comorbidity.extension
                                                                                                                                                                                                                      Definition

                                                                                                                                                                                                                      May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

                                                                                                                                                                                                                      ShortAdditional content defined by implementations
                                                                                                                                                                                                                      Comments

                                                                                                                                                                                                                      There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

                                                                                                                                                                                                                      Control0..*
                                                                                                                                                                                                                      TypeExtension
                                                                                                                                                                                                                      Is Modifierfalse
                                                                                                                                                                                                                      Summaryfalse
                                                                                                                                                                                                                      Alternate Namesextensions, user content
                                                                                                                                                                                                                      Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                                                                      ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
                                                                                                                                                                                                                      SlicingThis element introduces a set of slices on Subject.comorbidity.extension. The slices areUnordered and Open, and can be differentiated using the following discriminators:
                                                                                                                                                                                                                      • value @ url
                                                                                                                                                                                                                      • 26. Subject.comorbidity.modifierExtension
                                                                                                                                                                                                                        Definition

                                                                                                                                                                                                                        May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

                                                                                                                                                                                                                        Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

                                                                                                                                                                                                                        ShortExtensions that cannot be ignored even if unrecognized
                                                                                                                                                                                                                        Comments

                                                                                                                                                                                                                        There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

                                                                                                                                                                                                                        Control0..*
                                                                                                                                                                                                                        TypeExtension
                                                                                                                                                                                                                        Is Modifiertrue because Modifier extensions are expected to modify the meaning or interpretation of the element that contains them
                                                                                                                                                                                                                        Summarytrue
                                                                                                                                                                                                                        Requirements

                                                                                                                                                                                                                        Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

                                                                                                                                                                                                                        Alternate Namesextensions, user content, modifiers
                                                                                                                                                                                                                        Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                                                                        ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
                                                                                                                                                                                                                        28. Subject.comorbidity.myocardialInfarction
                                                                                                                                                                                                                        Definition

                                                                                                                                                                                                                        Describes comorbidities reported or assesed before treatment. More than one choice is allowed. Please do not include the current cancer in this calculation, only the previous cancer.

                                                                                                                                                                                                                        ShortMyocardial infarction
                                                                                                                                                                                                                        Control0..1
                                                                                                                                                                                                                        Typeboolean
                                                                                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                        Obligations
                                                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                                          30. Subject.comorbidity.congestiveHeartFailure
                                                                                                                                                                                                                          Definition

                                                                                                                                                                                                                          Previous cancer comorbidity related to Congestive heart failure

                                                                                                                                                                                                                          ShortCongestive heart failure
                                                                                                                                                                                                                          Control0..1
                                                                                                                                                                                                                          Typeboolean
                                                                                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                          Obligations
                                                                                                                                                                                                                            ObligationsActor
                                                                                                                                                                                                                            SHALL:handle
                                                                                                                                                                                                                            32. Subject.comorbidity.peripheralVascularDisease
                                                                                                                                                                                                                            Definition

                                                                                                                                                                                                                            Previous cancer comorbidity related to Peripheral vascular disease

                                                                                                                                                                                                                            ShortPeripheral vascular disease
                                                                                                                                                                                                                            Control0..1
                                                                                                                                                                                                                            Typeboolean
                                                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                            Obligations
                                                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                                                              34. Subject.comorbidity.cerebrovascularAccidentExceptHemiplegia
                                                                                                                                                                                                                              Definition

                                                                                                                                                                                                                              Previous cancer comorbidity related to Cerebrovascular accident (except hemiplegia)

                                                                                                                                                                                                                              ShortCerebrovascular accident (except hemiplegia)
                                                                                                                                                                                                                              Control0..1
                                                                                                                                                                                                                              Typeboolean
                                                                                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                              Obligations
                                                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                                                36. Subject.comorbidity.dementia
                                                                                                                                                                                                                                Definition

                                                                                                                                                                                                                                Previous cancer comorbidity related to Dementia

                                                                                                                                                                                                                                ShortDementia
                                                                                                                                                                                                                                Control0..1
                                                                                                                                                                                                                                Typeboolean
                                                                                                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                Obligations
                                                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                                                                  38. Subject.comorbidity.chronicPulmonaryDisease
                                                                                                                                                                                                                                  Definition

                                                                                                                                                                                                                                  Previous cancer comorbidity related to Chronic pulmonary disease

                                                                                                                                                                                                                                  ShortChronic pulmonary disease
                                                                                                                                                                                                                                  Control0..1
                                                                                                                                                                                                                                  Typeboolean
                                                                                                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                                                    40. Subject.comorbidity.connectiveTissueDisease
                                                                                                                                                                                                                                    Definition

                                                                                                                                                                                                                                    Previous cancer comorbidity related to Connective tissue disease

                                                                                                                                                                                                                                    ShortConnective tissue disease
                                                                                                                                                                                                                                    Control0..1
                                                                                                                                                                                                                                    Typeboolean
                                                                                                                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                                                                      42. Subject.comorbidity.ulcer
                                                                                                                                                                                                                                      Definition

                                                                                                                                                                                                                                      Previous cancer comorbidity related to Ulcer

                                                                                                                                                                                                                                      ShortUlcer
                                                                                                                                                                                                                                      Control0..1
                                                                                                                                                                                                                                      Typeboolean
                                                                                                                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                      Obligations
                                                                                                                                                                                                                                        ObligationsActor
                                                                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                                                                        44. Subject.comorbidity.mildLiverDisease
                                                                                                                                                                                                                                        Definition

                                                                                                                                                                                                                                        Previous cancer comorbidity related to Mild liver disease

                                                                                                                                                                                                                                        ShortMild liver disease
                                                                                                                                                                                                                                        Control0..1
                                                                                                                                                                                                                                        Typeboolean
                                                                                                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                        Obligations
                                                                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                                                          46. Subject.comorbidity.moderateToSevereLiverDisease
                                                                                                                                                                                                                                          Definition

                                                                                                                                                                                                                                          Previous cancer comorbidity related to Moderate to severe liver disease

                                                                                                                                                                                                                                          ShortModerate to severe liver disease
                                                                                                                                                                                                                                          Control0..1
                                                                                                                                                                                                                                          Typeboolean
                                                                                                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                          Obligations
                                                                                                                                                                                                                                            ObligationsActor
                                                                                                                                                                                                                                            SHALL:handle
                                                                                                                                                                                                                                            48. Subject.comorbidity.diabetes
                                                                                                                                                                                                                                            Definition

                                                                                                                                                                                                                                            Previous cancer comorbidity related to Diabetes (without complications)

                                                                                                                                                                                                                                            ShortDiabetes (without complications)
                                                                                                                                                                                                                                            Control0..1
                                                                                                                                                                                                                                            Typeboolean
                                                                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                            Obligations
                                                                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                                                                              50. Subject.comorbidity.diabetesWithEndOrganDamage
                                                                                                                                                                                                                                              Definition

                                                                                                                                                                                                                                              Previous cancer comorbidity related to Diabetes with end organ damage

                                                                                                                                                                                                                                              ShortDiabetes with end organ damage
                                                                                                                                                                                                                                              Control0..1
                                                                                                                                                                                                                                              Typeboolean
                                                                                                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                              Obligations
                                                                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                                                                52. Subject.comorbidity.hemiplegia
                                                                                                                                                                                                                                                Definition

                                                                                                                                                                                                                                                Previous cancer comorbidity related to Hemiplegia

                                                                                                                                                                                                                                                ShortHemiplegia
                                                                                                                                                                                                                                                Control0..1
                                                                                                                                                                                                                                                Typeboolean
                                                                                                                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                Obligations
                                                                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                                                                                  54. Subject.comorbidity.moderateToSevereRenalDisease
                                                                                                                                                                                                                                                  Definition

                                                                                                                                                                                                                                                  Previous cancer comorbidity related to Moderate to severe renal disease

                                                                                                                                                                                                                                                  ShortModerate to severe renal disease
                                                                                                                                                                                                                                                  Control0..1
                                                                                                                                                                                                                                                  Typeboolean
                                                                                                                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                                                                    56. Subject.comorbidity.solidTumor
                                                                                                                                                                                                                                                    Definition

                                                                                                                                                                                                                                                    Previous cancer comorbidity related to Solid tumor (non metastatic)

                                                                                                                                                                                                                                                    ShortSolid tumor (non metastatic)
                                                                                                                                                                                                                                                    Control0..1
                                                                                                                                                                                                                                                    Typeboolean
                                                                                                                                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                                                                                      58. Subject.comorbidity.metastaticSolidTumor
                                                                                                                                                                                                                                                      Definition

                                                                                                                                                                                                                                                      Previous cancer comorbidity related to Metastatic solid tumor

                                                                                                                                                                                                                                                      ShortMetastatic solid tumor
                                                                                                                                                                                                                                                      Control0..1
                                                                                                                                                                                                                                                      Typeboolean
                                                                                                                                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                      Obligations
                                                                                                                                                                                                                                                        ObligationsActor
                                                                                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                                                                                        60. Subject.comorbidity.leukemia
                                                                                                                                                                                                                                                        Definition

                                                                                                                                                                                                                                                        Previous cancer comorbidity related to Leukemia

                                                                                                                                                                                                                                                        ShortLeukemia
                                                                                                                                                                                                                                                        Control0..1
                                                                                                                                                                                                                                                        Typeboolean
                                                                                                                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                        Obligations
                                                                                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                                                                          62. Subject.comorbidity.lymphoma
                                                                                                                                                                                                                                                          Definition

                                                                                                                                                                                                                                                          Previous cancer comorbidity related to Lymphoma

                                                                                                                                                                                                                                                          ShortLymphoma
                                                                                                                                                                                                                                                          Control0..1
                                                                                                                                                                                                                                                          Typeboolean
                                                                                                                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                          Obligations
                                                                                                                                                                                                                                                            ObligationsActor
                                                                                                                                                                                                                                                            SHALL:handle
                                                                                                                                                                                                                                                            64. Subject.comorbidity.multipleMyeloma
                                                                                                                                                                                                                                                            Definition

                                                                                                                                                                                                                                                            Previous cancer comorbidity related to Multiple myeloma

                                                                                                                                                                                                                                                            ShortMultiple myeloma
                                                                                                                                                                                                                                                            Control0..1
                                                                                                                                                                                                                                                            Typeboolean
                                                                                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                            Obligations
                                                                                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                                                                                              66. Subject.comorbidity.aids
                                                                                                                                                                                                                                                              Definition

                                                                                                                                                                                                                                                              Previous cancer comorbidity related to AIDS

                                                                                                                                                                                                                                                              ShortAIDS
                                                                                                                                                                                                                                                              Control0..1
                                                                                                                                                                                                                                                              Typeboolean
                                                                                                                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                              Obligations
                                                                                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                                                                                68. Subject.ecogPsAtDiagnosis
                                                                                                                                                                                                                                                                Definition

                                                                                                                                                                                                                                                                Eastern Cooperative Oncology Group performance status (ECOG PS) at diagnosis

                                                                                                                                                                                                                                                                ShortEastern Cooperative Oncology Group performance status (ECOG PS) at diagnosis
                                                                                                                                                                                                                                                                Comments

                                                                                                                                                                                                                                                                Ecog grades 0-5

                                                                                                                                                                                                                                                                Control0..1
                                                                                                                                                                                                                                                                Typeinteger
                                                                                                                                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                Obligations
                                                                                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                                                                                                  70. Subject.ecogPsLabel
                                                                                                                                                                                                                                                                  Definition

                                                                                                                                                                                                                                                                  Eastern Cooperative Oncology Group performance status (ECOG PS) label

                                                                                                                                                                                                                                                                  ShortECOG PS label
                                                                                                                                                                                                                                                                  Comments

                                                                                                                                                                                                                                                                  Ecog grades 0-5

                                                                                                                                                                                                                                                                  ECOG performance status grade 0 - 4175026 ECOG performance status grade 1 - 4173614 ECOG performance status grade 2 - 4172043 ECOG performance status grade 3 - 4174241 ECOG performance status grade 4 - 4174251 ECOG performance status grade 5 - 4173456

                                                                                                                                                                                                                                                                  Control0..1
                                                                                                                                                                                                                                                                  TypeCodeableConcept
                                                                                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                                                                                    72. Subject.karnofsyIndexAtDiagnosis
                                                                                                                                                                                                                                                                    Definition

                                                                                                                                                                                                                                                                    Karnofsy index at diagnosis

                                                                                                                                                                                                                                                                    ShortKarnofsy index at diagnosis
                                                                                                                                                                                                                                                                    Comments

                                                                                                                                                                                                                                                                    KPS Scale

                                                                                                                                                                                                                                                                    Control0..1
                                                                                                                                                                                                                                                                    Typeinteger
                                                                                                                                                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                                                                                                      74. Subject.karnofsyIndexLabel
                                                                                                                                                                                                                                                                      Definition

                                                                                                                                                                                                                                                                      Karnofsy index at diagnosis

                                                                                                                                                                                                                                                                      ShortKarnofsy index label
                                                                                                                                                                                                                                                                      Comments

                                                                                                                                                                                                                                                                      KPS Scale SONS Functional Neurologic Status - Karnofsky Performance Scale (KPS) - 35917688

                                                                                                                                                                                                                                                                      Control0..1
                                                                                                                                                                                                                                                                      TypeCodeableConcept
                                                                                                                                                                                                                                                                      Obligations
                                                                                                                                                                                                                                                                        ObligationsActor
                                                                                                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                                                                                                        76. Subject.noGeneticSyndromeWho2020
                                                                                                                                                                                                                                                                        Definition

                                                                                                                                                                                                                                                                        Describes whether the patient was diagnosed before treatment of at least one of the diseases, syndromes listed next (or not) relevant for sarcoma.

                                                                                                                                                                                                                                                                        ShortNo Genetic syndrome WHO 2020
                                                                                                                                                                                                                                                                        Control1..1
                                                                                                                                                                                                                                                                        TypeBackboneElement
                                                                                                                                                                                                                                                                        Obligations
                                                                                                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                                                                                          Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                                                                                                                          78. Subject.noGeneticSyndromeWho2020.id
                                                                                                                                                                                                                                                                          Definition

                                                                                                                                                                                                                                                                          Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

                                                                                                                                                                                                                                                                          ShortUnique id for inter-element referencing
                                                                                                                                                                                                                                                                          Control0..1
                                                                                                                                                                                                                                                                          Typestring
                                                                                                                                                                                                                                                                          Is Modifierfalse
                                                                                                                                                                                                                                                                          XML FormatIn the XML format, this property is represented as an attribute.
                                                                                                                                                                                                                                                                          Summaryfalse
                                                                                                                                                                                                                                                                          80. Subject.noGeneticSyndromeWho2020.extension
                                                                                                                                                                                                                                                                          Definition

                                                                                                                                                                                                                                                                          May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

                                                                                                                                                                                                                                                                          ShortAdditional content defined by implementations
                                                                                                                                                                                                                                                                          Comments

                                                                                                                                                                                                                                                                          There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

                                                                                                                                                                                                                                                                          Control0..*
                                                                                                                                                                                                                                                                          TypeExtension
                                                                                                                                                                                                                                                                          Is Modifierfalse
                                                                                                                                                                                                                                                                          Summaryfalse
                                                                                                                                                                                                                                                                          Alternate Namesextensions, user content
                                                                                                                                                                                                                                                                          Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                                                                                                                          ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
                                                                                                                                                                                                                                                                          SlicingThis element introduces a set of slices on Subject.noGeneticSyndromeWho2020.extension. The slices areUnordered and Open, and can be differentiated using the following discriminators:
                                                                                                                                                                                                                                                                          • value @ url
                                                                                                                                                                                                                                                                          • 82. Subject.noGeneticSyndromeWho2020.modifierExtension
                                                                                                                                                                                                                                                                            Definition

                                                                                                                                                                                                                                                                            May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

                                                                                                                                                                                                                                                                            Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

                                                                                                                                                                                                                                                                            ShortExtensions that cannot be ignored even if unrecognized
                                                                                                                                                                                                                                                                            Comments

                                                                                                                                                                                                                                                                            There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

                                                                                                                                                                                                                                                                            Control0..*
                                                                                                                                                                                                                                                                            TypeExtension
                                                                                                                                                                                                                                                                            Is Modifiertrue because Modifier extensions are expected to modify the meaning or interpretation of the element that contains them
                                                                                                                                                                                                                                                                            Summarytrue
                                                                                                                                                                                                                                                                            Requirements

                                                                                                                                                                                                                                                                            Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

                                                                                                                                                                                                                                                                            Alternate Namesextensions, user content, modifiers
                                                                                                                                                                                                                                                                            Invariantsele-1: All FHIR elements must have a @value or children (hasValue() or (children().count() > id.count()))
                                                                                                                                                                                                                                                                            ext-1: Must have either extensions or value[x], not both (extension.exists() != value.exists())
                                                                                                                                                                                                                                                                            84. Subject.noGeneticSyndromeWho2020.olliersDisease
                                                                                                                                                                                                                                                                            Definition

                                                                                                                                                                                                                                                                            Olliers disease

                                                                                                                                                                                                                                                                            ShortOlliers disease
                                                                                                                                                                                                                                                                            Control1..1
                                                                                                                                                                                                                                                                            Typeboolean
                                                                                                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                            Obligations
                                                                                                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                                                                                                              86. Subject.noGeneticSyndromeWho2020.maffuciSyndrome
                                                                                                                                                                                                                                                                              Definition

                                                                                                                                                                                                                                                                              Maffuci syndrome

                                                                                                                                                                                                                                                                              ShortMaffuci syndrome
                                                                                                                                                                                                                                                                              Control1..1
                                                                                                                                                                                                                                                                              Typeboolean
                                                                                                                                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                              Obligations
                                                                                                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                                                                                                88. Subject.noGeneticSyndromeWho2020.liFraumeniSyndrome
                                                                                                                                                                                                                                                                                Definition

                                                                                                                                                                                                                                                                                Li-Fraumeni syndrome

                                                                                                                                                                                                                                                                                ShortLi-Fraumeni syndrome
                                                                                                                                                                                                                                                                                Control1..1
                                                                                                                                                                                                                                                                                Typeboolean
                                                                                                                                                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                Obligations
                                                                                                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                                                                                                                  90. Subject.noGeneticSyndromeWho2020.mcCuneAlbrightSyndrome
                                                                                                                                                                                                                                                                                  Definition

                                                                                                                                                                                                                                                                                  McCune-Albright syndrome

                                                                                                                                                                                                                                                                                  ShortMcCune-Albright syndrome
                                                                                                                                                                                                                                                                                  Control1..1
                                                                                                                                                                                                                                                                                  Typeboolean
                                                                                                                                                                                                                                                                                  Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                                                                                                    92. Subject.noGeneticSyndromeWho2020.multipleOsteochondromas
                                                                                                                                                                                                                                                                                    Definition

                                                                                                                                                                                                                                                                                    Multiple osteochondromas

                                                                                                                                                                                                                                                                                    ShortMultiple osteochondromas
                                                                                                                                                                                                                                                                                    Control1..1
                                                                                                                                                                                                                                                                                    Typeboolean
                                                                                                                                                                                                                                                                                    Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                                                                                                      SHALL:handle
                                                                                                                                                                                                                                                                                      94. Subject.noGeneticSyndromeWho2020.neurofibromatosisType1
                                                                                                                                                                                                                                                                                      Definition

                                                                                                                                                                                                                                                                                      Neurofibromatosis type 2

                                                                                                                                                                                                                                                                                      ShortNeurofibromatosis type 1
                                                                                                                                                                                                                                                                                      Control1..1
                                                                                                                                                                                                                                                                                      Typeboolean
                                                                                                                                                                                                                                                                                      Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                      Obligations
                                                                                                                                                                                                                                                                                        ObligationsActor
                                                                                                                                                                                                                                                                                        SHALL:handle
                                                                                                                                                                                                                                                                                        96. Subject.noGeneticSyndromeWho2020.rothmundThomsonSyndrome
                                                                                                                                                                                                                                                                                        Definition

                                                                                                                                                                                                                                                                                        Rothmund-Thomson syndrome

                                                                                                                                                                                                                                                                                        ShortRothmund-Thomson syndrome
                                                                                                                                                                                                                                                                                        Control1..1
                                                                                                                                                                                                                                                                                        Typeboolean
                                                                                                                                                                                                                                                                                        Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                        Obligations
                                                                                                                                                                                                                                                                                          ObligationsActor
                                                                                                                                                                                                                                                                                          SHALL:handle
                                                                                                                                                                                                                                                                                          98. Subject.noGeneticSyndromeWho2020.wernerSyndrome
                                                                                                                                                                                                                                                                                          Definition

                                                                                                                                                                                                                                                                                          Werner syndrome

                                                                                                                                                                                                                                                                                          ShortWerner syndrome
                                                                                                                                                                                                                                                                                          Control1..1
                                                                                                                                                                                                                                                                                          Typeboolean
                                                                                                                                                                                                                                                                                          Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                          Obligations
                                                                                                                                                                                                                                                                                            ObligationsActor
                                                                                                                                                                                                                                                                                            SHALL:handle
                                                                                                                                                                                                                                                                                            100. Subject.noGeneticSyndromeWho2020.retinoblastoma
                                                                                                                                                                                                                                                                                            Definition

                                                                                                                                                                                                                                                                                            Retinoblastoma

                                                                                                                                                                                                                                                                                            ShortRetinoblastoma
                                                                                                                                                                                                                                                                                            Control1..1
                                                                                                                                                                                                                                                                                            Typeboolean
                                                                                                                                                                                                                                                                                            Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                            Obligations
                                                                                                                                                                                                                                                                                              ObligationsActor
                                                                                                                                                                                                                                                                                              SHALL:handle
                                                                                                                                                                                                                                                                                              102. Subject.noGeneticSyndromeWho2020.pagetDisease
                                                                                                                                                                                                                                                                                              Definition

                                                                                                                                                                                                                                                                                              Paget disease

                                                                                                                                                                                                                                                                                              ShortPaget disease
                                                                                                                                                                                                                                                                                              Control1..1
                                                                                                                                                                                                                                                                                              Typeboolean
                                                                                                                                                                                                                                                                                              Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                              Obligations
                                                                                                                                                                                                                                                                                                ObligationsActor
                                                                                                                                                                                                                                                                                                SHALL:handle
                                                                                                                                                                                                                                                                                                104. Subject.noGeneticSyndromeWho2020.otherSyndromes
                                                                                                                                                                                                                                                                                                Definition

                                                                                                                                                                                                                                                                                                Other Genetic syndrome WHO 2020

                                                                                                                                                                                                                                                                                                ShortOther Genetic syndrome WHO 2020
                                                                                                                                                                                                                                                                                                Control1..1
                                                                                                                                                                                                                                                                                                Typeboolean
                                                                                                                                                                                                                                                                                                Primitive ValueThis primitive element may be present, or absent, or replaced by an extension
                                                                                                                                                                                                                                                                                                Obligations
                                                                                                                                                                                                                                                                                                  ObligationsActor
                                                                                                                                                                                                                                                                                                  SHALL:handle
                                                                                                                                                                                                                                                                                                  106. Subject.occurrenceOfOtherCancer
                                                                                                                                                                                                                                                                                                  Definition

                                                                                                                                                                                                                                                                                                  Occurrence of other cancer

                                                                                                                                                                                                                                                                                                  ShortOccurrence of other cancer
                                                                                                                                                                                                                                                                                                  Comments

                                                                                                                                                                                                                                                                                                  Children (and subchildren) of Neoplasm and/or hamartoma - 4266186

                                                                                                                                                                                                                                                                                                  Control1..1
                                                                                                                                                                                                                                                                                                  TypeCodeableConcept
                                                                                                                                                                                                                                                                                                  Obligations
                                                                                                                                                                                                                                                                                                    ObligationsActor
                                                                                                                                                                                                                                                                                                    SHALL:handle
                                                                                                                                                                                                                                                                                                    108. Subject.previousCancerTreatment
                                                                                                                                                                                                                                                                                                    Definition

                                                                                                                                                                                                                                                                                                    Previous cancer treatment

                                                                                                                                                                                                                                                                                                    ShortPrevious cancer treatment
                                                                                                                                                                                                                                                                                                    Comments

                                                                                                                                                                                                                                                                                                    Chemotherapy - 4273629 Radiation oncology- 4170755 Surgery - 4121697 Comprehensive medication therapy review - 42535584 Immunological therapy - 4295112

                                                                                                                                                                                                                                                                                                    Control1..1
                                                                                                                                                                                                                                                                                                    TypeCodeableConcept
                                                                                                                                                                                                                                                                                                    Obligations
                                                                                                                                                                                                                                                                                                      ObligationsActor
                                                                                                                                                                                                                                                                                                      SHALL:handle