ACT-NOW Implementation Guide
0.5.0 - ci-build New Zealand flag

ACT-NOW Implementation Guide, published by Te aho o te kahu - Cancer Control Agency. This guide is not an authorized publication; it is the continuous build for version 0.5.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/davidhay25/actnow/ and changes regularly. See the Directory of published versions

Terminology

ValueSets

These are ValueSets that have been defined in this guide for coded elements.

Each ValueSet resource has a globally unique url (the Canonical url) that is used to unambiguously identify it. This url generally should resolve to the to the FHIR ValueSet resource, though the infrastructure to support this is not yet in place. There's a specific note in the spec on ValueSet identification.

The FHIR spec has much more detail on the use of Terminology in FHIR.

ValueSetPurposeCanonical url
Basis of diagnosis

Types of evidence that may be used to reach a cancer diagnosis, which is treated with systemic anti cancer therapy (SACT).

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-basis-of-cancer-diagnosis
Clinical M score

The TNM group score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-cm
Clinical N score

The clincial N score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-cn
Clinical T score

The clinical T score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-ct
Clinical TNM group

The TNM group score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-clinical-stage-group
Dose adjustment reason

Reasons for adjusting the dose of a systemic anti-cancer therapy (SACT) treatment cycle plus other value.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-dose-adjustment-reason
ECOG status

The performance status of a patient as defined by the Eastern Cooperative Oncology Group (ECOG) minus ECOG 5 (A performance status used when a patient is 'Dead').

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-ecog-status
ER status

A diagnosis of whether or not a tumour is estrogen receptive (ER) minus inconclusive value.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-er-expression
HER2 status

A diagnosis of the human epidermal growth factor receptor 2 (HER2) status of a tumour minus inconculsive value .

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-her2-expression
Histology

Histology

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-who-sact-primary-histology
Intent of treatment

Treatment intents or reasons for using a therapeutic procedure to treat cancer.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-treatment-intent
Is on a clinical trial

Is on a clinical trial

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-drug-trial
Outcome of a regimen

The outcome of the prescribed regimen for the patient

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-regimen-outcome
PR status

A diagnosis of whether or not a tumour is progesterone receptive (PR) minus inconculsive value.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-pr-expression
Pathological M score

Pathological M score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pm
Pathological N score

Pathological N score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pn
Pathological T score

Pathological T score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pt
Pathological TNM group

The TNM group score

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pathological-stage-group
Patient factors when discontinuing a regimen

Patient factors that may result in the discontinuation of a systemic anti-cancer therapy (SACT) treatment plus not asked value.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-patient-factor-discontinue-reason
The reason why a regimen was discontinued

The reason why a regimen was discontinued

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-overall-discontinue-reason
Toxicity reasons why a regimen was discontinued

Toxicity factors that may result in the discontinuation of a systemic anti-cancer therapy (SACT) treatment.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-toxicity-discontinue-reason
Type of recurrence

The type of cancer recurrence, e.g. local, regional plus unknown and not applicable values.

https://nzhts.digital.health.nz/fhir/ValueSet/canshare-recurrence-type



CodeSystems

These are code systems that have been defined in this guide. They define specific concepts that are included in ValueSets. It is preferable to use an international code system such as SNOMED, ICD or LOINC - but this is not always possible.

Each CodeSystem resource has a globally unique url (the canonical url) that is used to unambiguously identify it. The url generally refers to a description of the codesystem, rather than to the FHIR CodeSystem resource.

The FHIR spec has much more detail on the use of Terminology in FHIR

CodeSystemPurposeCanonical Url