ACT-NOW Implementation Guide
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ACT-NOW Implementation Guide, published by Te aho o te kahu - Cancer Control Agency. This guide is not an authorized publication; it is the continuous build for version 0.5.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/davidhay25/actnow/ and changes regularly. See the Directory of published versions

Artifacts Summary

This page provides a list of the FHIR artifacts defined as part of this implementation guide.

Behavior: Capability Statements

The following artifacts define the specific capabilities that different types of systems are expected to have in order to comply with this implementation guide. Systems conforming to this implementation guide are expected to declare conformance to one or more of the following capability statements.

CapabilityStatement representing the server requirements for a FHIR server

Server capability statement

Behavior: Search Parameters

These define the properties by which a RESTful server can be searched. They can also be used for sorting and including related resources.

an-supporting-info

Searches for supportingInfo references

Structures: Resource Profiles

These define constraints on FHIR resources for systems conforming to this implementation guide.

ACT-NOW diagnosis

The primary diagnosis for this cancer. Can have an evidence.detail reference to an Observation that has the histology and a stage.assessment reference to the TNM Observation staging (clinical and pathological)

ACT-NOW medication administration

ACT-NOW medication administration. These are medications that were actually administered.

ACT-NOW medication request

ACT-NOW medication request. These are prescriptions given to the patient.

ACT-NOW patient

ACT-NOW patient

Body Surface Area

An observation that represents a Body Surface Area measurement

Clinical M-score

An observation that represents the clinical 'M' score which measures metastases and spread.

Clinical N-score

An observation that represents the clinical 'N' score which measures local lymph node involvement.

Clinical T-score

An observation that represents the clinical 'T' score which measures the tumour size.

Clinical TNM group score

An observation that represents the clinical TNM group score

Creatinine Clearance

An observation that represents a Creatinine Clearance measurement

Cycle Careplan

A CarePlan that represents a single cycle of treatment. It will have a 'partOf' reference to the regiment carePlan.

ECOG score

An observation that represents an Eastern Cooperative Oncology Group (ECOG) score.

Estrogen Receptor status

An observation that represents an ER status

Gleason score

An observation that represents the Gleason score

HER2 status

An observation that represents a human epidermal growth factor receptor 2 (HER2) status

Height

An observation that represents a height measurement

Histology

An observation that represents a histology finding

PR status

An observation that represents a progesterone receptor (PR) status

Pathological M-score

An observation that represents the pathological 'M' score (pM) which measures distant metastases

Pathological N-score

An observation that represents the pathological 'N' score (pN) which measures local lymph node involvement.

Pathological T-score

An observation that represents the pathological 'T' score (pT) which measures tumour size

Pathological TNM group score

An observation that represents the pathological TNM (pTNM) group score

Regimen Careplan

A CarePlan that represents a PlanDefinition being applied to a Patient. Referred to as a regimen. The regimen has multiple cycles also represented as CarePlans which have a 'partOf' reference back to the regimen plan.

Weight

An observation that represents a weight measurement

Structures: Extension Definitions

These define constraints on FHIR data types for systems conforming to this implementation guide.

ClinicalTrial

Is on a clinical trial

CourseNumber

The course number (sequential number) for this regimen

CycleCount

The number of cycles that administered for a regimen

CycleDay

The day of the cycle that this medication was given on. Includes planned day and administered day. Not the same as intended cycle length.

CycleNumber

The cycle number of the regimen that this CP represents

CyclePlannedLength

The number of cycles that administered for a regimen

DoseAdjustmentReason

The reason why the dose given was not the same as that in the regimen

FacilityAdministered

The facility where the medication was given. The HPI code of the facility

IOT

Intent of treatment

LastAdminDate

The last date that a medication administration was made for this cycle

PrescribedDose

The dose of this medication in the regimen (may not be the same as that given

RecurrenceType

Recurrence type

Regimen type

The overall type of the regimen - eg FOLFOX

RegimenDiscontinued

Reasons why a regimen may have been discontinued

RegimenOTU

Overall Treatment Utility measure for a regimen after it has completed.

Terminology: Value Sets

These define sets of codes used by systems conforming to this implementation guide.

Basis of diagnosis

Types of evidence that may be used to reach a cancer diagnosis, which is treated with systemic anti cancer therapy (SACT).

Clinical M score

The TNM group score

Clinical N score

The clincial N score

Clinical T score

The clinical T score

Clinical TNM group

The TNM group score

Dose adjustment reason

Reasons for adjusting the dose of a systemic anti-cancer therapy (SACT) treatment cycle plus other value.

ECOG status

The performance status of a patient as defined by the Eastern Cooperative Oncology Group (ECOG) minus ECOG 5 (A performance status used when a patient is 'Dead').

ER status

A diagnosis of whether or not a tumour is estrogen receptive (ER) minus inconclusive value.

HER2 status

A diagnosis of the human epidermal growth factor receptor 2 (HER2) status of a tumour minus inconculsive value .

Histology

Histology

Intent of treatment

Treatment intents or reasons for using a therapeutic procedure to treat cancer.

Is on a clinical trial

Is on a clinical trial

Outcome of a regimen

The outcome of the prescribed regimen for the patient

PR status

A diagnosis of whether or not a tumour is progesterone receptive (PR) minus inconculsive value.

Pathological M score

Pathological M score

Pathological N score

Pathological N score

Pathological T score

Pathological T score

Pathological TNM group

The TNM group score

Patient factors when discontinuing a regimen

Patient factors that may result in the discontinuation of a systemic anti-cancer therapy (SACT) treatment plus not asked value.

The reason why a regimen was discontinued

The reason why a regimen was discontinued

Toxicity reasons why a regimen was discontinued

Toxicity factors that may result in the discontinuation of a systemic anti-cancer therapy (SACT) treatment.

Type of recurrence

The type of cancer recurrence, e.g. local, regional plus unknown and not applicable values.

Example: Example Instances

These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like.

Clincial M value
Clincial N value
Clinical T value
Clinical TNM group
CreatinineClearance
Cycle 1

Example of a cycle care plan

ERStatus
ExObservationECOG
ExObservationGleason
ExObservationHeight
ExObservationNoValueSystemWeight
ExObservationWeight
Example practitioner
HER2Status
Histology: Small cell lung cancer
Lorrie Lung
PRStatus
Pathological M value
Pathological N value
Pathological T value
Pathological TNM group
Small cell lung cancer diagnosis
bsa
careplan-regimen-1

Example of a regimen care plan

careplan-regimen-2

A regimen care plan that was discontinued after it started

medicationadministration-1

An example medication administration

medicationrequest-1

An example medication administration