KLChildren implementation guide, an implementation of FBU
2.1.0 - Release

KLChildren implementation guide, an implementation of FBU, published by Kommunernes Landsforening. This guide is not an authorized publication; it is the continuous build for version 2.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7dk/kl-children/ and changes regularly. See the Directory of published versions

Artifacts Summary

This page provides a list of the FHIR artifacts defined as part of this implementation guide.

Structures: Questionnaires

These define forms used by systems conforming to this implementation guide to capture or expose data to end users.

KLGatewayChildrenADBB

Alarm Distress Baby Scale (ADBB)

KLGatewayChildrenAIMS

Alberta Infant Motor Scale (AIMS)

KLGatewayChildrenEPDS

Edinburgh postnatale depressionscore (EPDS)

KLGatewayChildrenPUF

Copenhagen Infant Mental Health Screening/PSYKISK UDVIKLING OG FUNKTION (PUF)

KLGatewayChildrenSDQ1117

Strength and Difficulties Questionnaire (SDQ), including impact supplement for self-completion by 11-17 year olds (SDQ S11-17)

KLGatewayChildrenSDQ410

Strength and Difficulties Questionnaire (SDQ), including impact supplement for completion by parents of 4-10 year olds (SDQ P4-10)

KLGatewayChildrenTOPI

Tidlig opsporing og indsats (TOPI), samlet faglig vurdering lavet af sundhedsplejersker og evt. samarbejdspartnere

Structures: Abstract Profiles

These are profiles on resources or data types that describe patterns used by other profiles, but cannot be instantiated directly. I.e. instances can conform to profiles based on these abstract profiles, but do not declare conformance to the abstract profiles themselves.

KLGatewayChildrenIndicator

Abstract indicator profile, used in the children database

Structures: Resource Profiles

These define constraints on FHIR resources for systems conforming to this implementation guide.

CareIncrementalDelivery

Delivery for all delivery reports made since last update (unordered).

KLGatewayChildrenBodyHeight

Body height profile used in Danish Municipalities, derived from HL7 DK standard profile

KLGatewayChildrenBodyWeight

Profile of HL7 body weight profile used in Danish Municipalities

KLGatewayChildrenCitizen

Administrative information about a citizen receiving care or care related services.

KLGatewayChildrenDeliveryReport

Delivery report to deliver data for each child, including state of the family.

KLGatewayChildrenEncounter

Encounter for health prevention and need-based visits from childrens nurses

KLGatewayChildrenExamResult

Observation used to express qualitative examination results to be reported to the children database

KLGatewayChildrenFeedingObservation

Feeding observation profile used in the children database

KLGatewayChildrenHeadCircumference

Head circumference profile used in Danish Municipalities, derived from HL7 Denmark standard profile

KLGatewayChildrenIndicatorCommunication

Childrens communication, that inherits from Indicator

KLGatewayChildrenIndicatorHearing

Childrens hearing, that inherits from Indicator

KLGatewayChildrenIndicatorInteraction

Childrens social interaction, that inherits from Indicator

KLGatewayChildrenIndicatorMotorFunction

Childrens motor function, that inherits from Indicator

KLGatewayChildrenIndicatorNicotine

Children's use of nicotine, that inherits from Indicator

KLGatewayChildrenIndicatorNutrition

Childrens nutrition, that inherits from Indicator

KLGatewayChildrenIndicatorParentMentalStatus

Parent's mental status, that inherits from Indicator

KLGatewayChildrenIndicatorParentRelationship

Parent-child relationship, that inherits from Indicator

KLGatewayChildrenIndicatorParentSocialStatus

parent's social status, that inherits from Indicator

KLGatewayChildrenIndicatorPassiveSmoking

Children's passive smoking, that inherits from Indicator

KLGatewayChildrenIndicatorPhysicalActivity

Childrens physical activity, that inherits from Indicator

KLGatewayChildrenIndicatorSight

Childrens sight, that inherits from Indicator

KLGatewayChildrenIndicatorSleep

Childrens sleep observation, that inherits from Indicator

KLGatewayChildrenIndicatorSocialSupportNetwork

Families social support network, that inherits from Indicator

KLGatewayChildrenIntervention

Profile representing interventions in the children database

KLGatewayChildrenLocation

Profile representing a location, in this implementation guide only used to represent a school

KLGatewayChildrenQuestionnaire

Questionnaire profile, for all Questionaires in kl-children

KLGatewayChildrenQuestionnaireResponse

Questionnaire response profile, for all questionaires in kl-children

KLGatewayChildrenRelatedParent

Profile for describing the relationship between the child, and the parents who are also relevant for the journal

Structures: Extension Definitions

These define constraints on FHIR data types for systems conforming to this implementation guide.

FindingInformer

Extension for pointing to who the source of information is

basedOnInterventionExtension

Extension for pointing to the intervention describing why this encounter is taking place (will be part of R5 and comming FHIR versions without needing the extension)

Terminology: Value Sets

These define sets of codes used by systems conforming to this implementation guide.

ErnæringKoder

Mandatory result values for nutrition in school children

ForælderTyper

Limitation on HL7 role class to only represent parent-relationships, as accepted in the children data-set

ForældreBarnRelationsKoder

Mandatory result values for parent child relationship in small children and school children

ForældresPsykiskeTilstandKoder

Mandatory result values for parents mental state

ForældresSårbarhedKoder

Mandatory result values for parents social status. Only documented in parents of small children

FysiskAktiviteteKoder

Mandatory result values for physical activity in school children

HøjdeObservationskoderSCT

SNOMED CT observables for length/height

HørelseKoder

Mandatory result values for hearning in school children

KildeTilOplysningKoder

Codes for who informed the findings

KommunikationKoder

Mandatory result values for ability to communicate in small children and school children

KontaktKlasseKoder

Codes to describe the mode of delivery of an encounter

MotorikKoder

Mandatory result values for motor function in small children and school children

NetværkKoder

Mandatory result values for social support network of the family

NikotinKoder

Mandatory result values for nicotine use in school children

ObservationsEnhederVægt

UCUM units for childrens weight

PassivRygningKoder

Mandatory result values for passive smoking in small- and school children

ResultatkoderSmåbørnMad

Resultcodes for feeding

SocialKontaktKoder

Mandatory result values for social interaction in small children and school children

SundhedsplejeIndikatorkoder

Indicator-observables for parents and children

SundhedsplejeKontaktTyper

Extension on encountertype valueset, to be implemented in KL-term and FKI, does not use exciting codes only those specific to childrens nursing

Sundhedsplejeindsatser

Need based interventions used in municipality health nursing (sundhedsplejen)

Sundhedsplejetilstande

Health nurse conditions, that relates to nursing problem areas and/or challenges found in examinations and evaluations made by the health nurse (sundhedsplejerske)

SynKoder

Mandatory result values for sight in school children

SøvnKoder

Mandatory result values for challenges in sleeping pattern in small children and school children

UndersøgelsesResultatKoder

Valueset for optional history and examination findings in small children and school children

Terminology: Code Systems

These define new code systems used by systems conforming to this implementation guide.

Logical Observation Identifiers, Names and Codes (LOINC)

LOINC provides a set of universal names and ID codes for identifying laboratory and clinical test results.1,2 LOINC facilitates the exchange and pooling of results, such as blood hemoglobin, serum potassium, or vital signs, for clinical care, outcomes management, and research. LOINC's universal identifiers (names and codes) can be used in the context of order and observation exchanges between information systems that use syntax standards such as HL73, CEN TC251, ISO TC215, ASTM4, and DICOM. Specifically, the identifier can be used as the coded value for an observation in any other standard that uses the observation/observation value paradigm, whether messages, documents, application programming interface (API), etc. For example, LOINC codes are used widely in the OBX segment Observation Identifier field (OBX-3) of an ORU HL7 (HL7 version 2.x or ASTM 1238-9410) message that may be sent between a Clinical Laboratory Information Management Systems (LIMS) and Electronic Health Record Systems (EHR).5, 6 In this way, LOINC codes provide universal identifiers that allow the exchange of clinical data between heterogeneous computing environments.

SNOMED CT International Edition

SNOMED CT is a core clinical healthcare terminology that contains concepts with unique meanings and formal logic based definitions organized into hierarchies.

Example: Example Instances

These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like.

10 måneders besøg ved Rikke

Kontakt, hvor der leveres Besøg hos det 8-11 måneder gamle barn til Rikke og hendes familie

2 måneders besøg ved Rikke

Kontakt, hvor der leveres Besøg hos det ca. 2 måneder gamle barn til Rikke og hendes familie

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DeliveryReport-Lars-2a

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DeliveryReport-Rikke-5

5f1d5816-a906-4314-a6f4-69b400682ec6

DeliveryReport-Lars-1

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DeliveryReport-Rikke-2b

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DeliveryReport-Rikke-4b

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DeliveryReport-Lars-2b

ADBBAnswerRikke

Udfyldt ADBB skema for Rikke

AIMSAnswerRikke

Udfyldt AIMS skema for Rikke

Andet besøg inden første måned ved Rikke

Kontakt, hvor der leveres Andet besøg inden første måned til Rikke og hendes familie

Behovskontakt ved Rikke på skærm

Kontakt, hvor der leveres behovskontakt på skærm ved Rikke og hendes familie

EPDSAnswerKirsten

EPDS besvarelse mor, Kirsten

Indskolingsundersøgelse Lars

Kontakt, der er Lars' indskolingsundersøgelse

Kirsten

Borger, Kirsten

KirstenParentMentalStatus

Kirstens psykiske tilstand ved Rikkes 2mrd

Lars

Barnet Lars

LarsIncontinenceObservation

Lars' unrininkontinens ved indskolingsundersøgelsen

LarsMentalState

Lars' egenvurderede generelle trivsel ved indskolingsundersøgelsen

PUFAnswerRikke

PUF besvarelse Rikke

Rikke

Barnet Rikke

RikkeBodyHeight

Rikkes kropslængde

RikkeBodyHeight2mth

Rikkes kropslængde

RikkeBodyWeight

Rikkes vægt

RikkeBodyWeight

Rikkes vægt

RikkeBodyWeight3mth

Rikkes vægt ved 3 måneder

RikkeChildrenParentRelationship

Rikkes relation til forældre ved 2mrd

RikkeCommunication2mth

Rikkes kommunikation ved 2mrd

RikkeDeliveryReport2months

Indberetning for Rikke 2 måneder

RikkeDeliveryReport3months

Indberetning for Rikke 3 måneder - eksempel på at der er foretaget en enkelt vægtmåling udenfor standardkontakter

RikkeEyeContact2mth

Rikke har afvigende øjenkontakt ved 2 måneder

RikkeFeedingObservationNewPeriod

Rikkes periode-start for ammes som supplement til anden kost

RikkeFeedingObservationPeriod

Rikkes periode for fuldamning

RikkeFeedingObservationStatus

Rikkes status på madning ved 2 mrd

RikkeFeedingObservationStatus10mth

Rikkes status, ved 10 måneder, udelukkende status fordi perioden er startet tidligere, og ikke er afsluttet

RikkeHeadCircum

Rikkes hovedomkreds

RikkeInterventionSocialContact

Rikkes behovsindsats vedr. social kontakt

RikkeMotorFunction2mth

Rikkes motorik ved 2mrd

RikkeSleep2mth

Rikkes søvn ved 2mrd

RikkeSocialInteraction

Rikkes sociale kontakt ved 2mrd

RikkesParent

RikkesParent

SDQ11-17AnswerRikke

SDQ svar lavet af Rikke (Rikkes alder passer ikke til spørgeskemaet)

SDQ4-10AnswerLars

SDQ svar om Lars lavet af Lars' mor eller far

SchoolHolbaek

Skole i Holbæk

TOPIAnswerRikke

TOPI vurdering af Rikke lavet af sundhedsplejersker og eventuelle samarbejdspartnere.

TestIncrementalDelivery

Example of an incremental delivery with one delivery report

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DeliveryReport-Rikke-3

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DeliveryReport-Rikke-7

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DeliveryReport-Rikke-1

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DeliveryReport-Rikke-2a

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DeliveryReport-Rikke-4a

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DeliveryReport-Rikke-8

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DeliveryReport-Rikke-6