PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build -
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide
0.1.0-ci-build - ci-build
PROTECT-CHILD Pediatric Transplant Data Implementation Guide, published by Protect Child. This guide is not an authorized publication; it is the continuous build for version 0.1.0-ci-build built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/protect-child/ and changes regularly. See the Directory of published versions
| Draft as of 2026-06-05 |
Definitions for the pc-patient-lm logical model.
Guidance on how to interpret the contents of this table can be foundhere
| 0. pc-patient-lm | |
| Definition | Logical model for the PROTECT-CHILD patient table. |
| Short | Patient logical model |
| Control | 0..* |
| Is Modifier | false |
| Logical Model | Instances of this logical model are not marked to be the target of a Reference |
| 2. pc-patient-lm.patientId | |
| Definition | Patient ID. |
| Short | patient_id |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 4. pc-patient-lm.gender | |
| Definition | Patient sex at birth. |
| Short | gender |
| Control | 1..1 |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 6. pc-patient-lm.ageYears | |
| Definition | Patient age in years. |
| Short | age_years |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 8. pc-patient-lm.ageMonths | |
| Definition | Patient age in months (sub-year precision). |
| Short | age_months |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 10. pc-patient-lm.maxPra | |
| Definition | Maximum historical pre-transplant PRA/cPRA (0-100%). |
| Short | max_pra |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 12. pc-patient-lm.lastPra | |
| Definition | Most recent pre-transplant PRA/cPRA (0-100%). |
| Short | last_pra |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 14. pc-patient-lm.dateHistologicalDiag | |
| Definition | Date histology confirmed the primary disease. |
| Short | date_histological_diag |
| Control | 1..1 |
| Type | date |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 16. pc-patient-lm.dateDiagPrimaryDisease | |
| Definition | Date primary disease was first diagnosed. |
| Short | date_diag_primary_disease |
| Control | 1..1 |
| Type | date |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 18. pc-patient-lm.diagPrimaryDisease | |
| Definition | Primary diagnosis leading to transplant. |
| Short | diag_primary_disease |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 20. pc-patient-lm.centerNo | |
| Definition | Study centre (1=La Paz, 2=Padova, 3=Palma, 4=Hamburg). |
| Short | center_no |
| Control | 1..1 |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
Guidance on how to interpret the contents of this table can be foundhere
| 0. pc-patient-lm | |
| Definition | Logical model for the PROTECT-CHILD patient table. |
| Short | Patient logical model |
| Logical Model | Instances of this logical model are not marked to be the target of a Reference |
| 2. pc-patient-lm.patientId | |
| Definition | Patient ID. |
| Short | patient_id |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 4. pc-patient-lm.gender | |
| Definition | Patient sex at birth. |
| Short | gender |
| Control | 1..1 |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 6. pc-patient-lm.ageYears | |
| Definition | Patient age in years. |
| Short | age_years |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 8. pc-patient-lm.ageMonths | |
| Definition | Patient age in months (sub-year precision). |
| Short | age_months |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 10. pc-patient-lm.maxPra | |
| Definition | Maximum historical pre-transplant PRA/cPRA (0-100%). |
| Short | max_pra |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 12. pc-patient-lm.lastPra | |
| Definition | Most recent pre-transplant PRA/cPRA (0-100%). |
| Short | last_pra |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 14. pc-patient-lm.dateHistologicalDiag | |
| Definition | Date histology confirmed the primary disease. |
| Short | date_histological_diag |
| Control | 1..1 |
| Type | date |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 16. pc-patient-lm.dateDiagPrimaryDisease | |
| Definition | Date primary disease was first diagnosed. |
| Short | date_diag_primary_disease |
| Control | 1..1 |
| Type | date |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 18. pc-patient-lm.diagPrimaryDisease | |
| Definition | Primary diagnosis leading to transplant. |
| Short | diag_primary_disease |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 20. pc-patient-lm.centerNo | |
| Definition | Study centre (1=La Paz, 2=Padova, 3=Palma, 4=Hamburg). |
| Short | center_no |
| Control | 1..1 |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
Guidance on how to interpret the contents of this table can be foundhere
| 0. pc-patient-lm | |
| Definition | Logical model for the PROTECT-CHILD patient table. |
| Short | Patient logical model |
| Control | 0..* |
| Is Modifier | false |
| Logical Model | Instances of this logical model are not marked to be the target of a Reference |
| 2. pc-patient-lm.patientId | |
| Definition | Patient ID. |
| Short | patient_id |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 4. pc-patient-lm.gender | |
| Definition | Patient sex at birth. |
| Short | gender |
| Control | 1..1 |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 6. pc-patient-lm.ageYears | |
| Definition | Patient age in years. |
| Short | age_years |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 8. pc-patient-lm.ageMonths | |
| Definition | Patient age in months (sub-year precision). |
| Short | age_months |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 10. pc-patient-lm.maxPra | |
| Definition | Maximum historical pre-transplant PRA/cPRA (0-100%). |
| Short | max_pra |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 12. pc-patient-lm.lastPra | |
| Definition | Most recent pre-transplant PRA/cPRA (0-100%). |
| Short | last_pra |
| Control | 0..1 |
| Type | integer |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 14. pc-patient-lm.dateHistologicalDiag | |
| Definition | Date histology confirmed the primary disease. |
| Short | date_histological_diag |
| Control | 1..1 |
| Type | date |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 16. pc-patient-lm.dateDiagPrimaryDisease | |
| Definition | Date primary disease was first diagnosed. |
| Short | date_diag_primary_disease |
| Control | 1..1 |
| Type | date |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 18. pc-patient-lm.diagPrimaryDisease | |
| Definition | Primary diagnosis leading to transplant. |
| Short | diag_primary_disease |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 20. pc-patient-lm.centerNo | |
| Definition | Study centre (1=La Paz, 2=Padova, 3=Palma, 4=Hamburg). |
| Short | center_no |
| Control | 1..1 |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |