HL7 Europe Common Cancer Model
0.1.0 - ci-build 150

HL7 Europe Common Cancer Model, published by HL7 Europe. This guide is not an authorized publication; it is the continuous build for version 0.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/cancer-common/ and changes regularly. See the Directory of published versions

The Cancer Journey 3

A patient’s cancer journey is a longitudinal sequence of events that starts with presentation and evidence gathering, continues through condition assertion and staging, proceeds to treatment (often in overlapping episodes), and is followed by ongoing assessment of response and disease status. Capturing dates consistently for each step is essential so the timeline can be accurately reconstructed for care and research.

Cancer Journey
Figure 1: the cancer journey [click to zoom]

Overall journey

Cancer Journey - Conceptual FlowCancer Journey - Conceptual FlowDIAGNOSIS + FIRST TREATMENTOVERALL TREATMENT RESPONSEDIAGNOSIS + FIRST TREATMENTEVIDENCE + FOLLOWUP VISITEVIDENCE + FOLLOWUP VISITEVIDENCE + FOLLOWUP VISIT (Disease evolution)TREATMENTEVIDENCE + FOLLOWUP VISITEVIDENCE + FOLLOWUP VISIT (Disease evolution)PATIENT's DEATH
Figure 2: the cancer journey: overall flow

This diagram shows the main phases of the cancer journey and indicates at which phases information is collected.

Data Collection per step

From diagnosis to first follow-up

Cancer Journey - timeline + data collectedCancer Journey - timeline + data collectedDIAGNOSIS + FIRST TREATMENTCollect:- Patient Record (Demographics; Comorbidities)- Cancer Condition- Cancer StageDate 0 (2018-xx-xx)Diagnosis / First SuspicionCollect:- Surgery dataDate 1 (2018-06-12)Surgical ProcedureCollect:- Radiotherapy dataDate 2 (2018-09-10)Radiotherapy startCollect:- Radiotherapy dataDate 3 (2018-10-12)Radiotherapy endOVERALL TREATMENT RESPONSECollect:- Overall treatment responseUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 4 (2019-10-30)Response assessmentEVIDENCE + FOLLOWUP VISITUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 5 (2019-02-28);Follow-up visit (No evolution)
Figure 3: the cancer journey: from diagnosis to first follow-up

From first follow-up to first drug treatment

Cancer Journey - timeline + data collectedCancer Journey - timeline + data collectedEVIDENCE + FOLLOWUP VISITDate 5 (2019-02-28)EVIDENCE + FOLLOWUP VISITUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 6 (2019-05-30)Follow-up visit (No evolution)EVIDENCE + FOLLOWUP VISITCollect:- Disease evolution dataUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 7 (2019-08-31)Follow-up visit (Disease evolution)TREATMENTCollect:- Drug Administration dataDate 8 (2019-09-10)Drug AdministrationCollect:- Drug Administration dataDate 9 (2019-12-16)Drug AdministrationEVIDENCE + FOLLOWUP VISITDate 10 (2020-01-02)
Figure 4: the cancer journey: from first follow-up to first drug treatment

From first drug treatment to patient death

Cancer Journey - timeline + data collectedCancer Journey - timeline + data collectedTREATMENTDate 8 (2019-09-10)EVIDENCE + FOLLOWUP VISITCollect:- Treatment response- Disease evolution dataUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 10 (2020-01-02)Follow-up visit (No evolution)EVIDENCE + FOLLOWUP VISITCollect:- Disease evolution dataUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 11 (2020-04-15)Follow-up visit (Disease evolution)PATIENT'S DEATHCollect:- Disease evolution dataUpdate:- Cancer Condition- Patient Record (e.g. Life status)Date 12 (2020-06-28)Death
Figure 5: the cancer journey: from first drug treatment to patient death

Data evolution

From diagnosis to radiotheraphy

Cancer Journey
Figure 6 Data evolution: from dignosis to radiotheraphy