Interoperable Digital Identity and Patient Matching, published by HL7 International - Patient Administration WG. This guide is not an authorized publication; it is the continuous build for version 2.0.0-draft built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/HL7/fhir-identity-matching-ig/ and changes regularly. See the Directory of published versions

Patient Matching

Overview

This section of the guide extends the existing HL7 FHIR patient $match for cross-organizational use by authorized, trusted parties.

The best practices and suggested weights are based on this team’s original research which included the sources cited on the Home tab as well as FAST webinar feedback, FAST subject matter expert (SME) sessions, HL7 FHIR Connectathon events, and FAST Identity team participants’ additional suggestions made to the FAST Identity solution document; this work has been ongoing since spring 2018.

NOTE: As security is generally out of scope for this guide, the conditions required to share personally identifiable information (PII) or to authorize an organization’s or an individual’s, including the patient’s own, access to the results of a match request are not specified completely in this guide, nor should they be inferred. However, patient-initiated workflows (for example, “patient request” purpose of use) SHALL always include explicit end-user authorization.

Except where its recommendations involve FHIR $match parameters, the guidance is intended to also apply to other patient matching workflows including non-FHIR transactions. Use of other (non-FHIR, non $match) matching methods (implementations) that result in comparable or higher matching rates is not precluded by this guidance. Realizing that a better-formed match request produces the most reliable results, this implementation guide (IG) also includes a Guidance on Identity Assurance section as a companion resource to this best practice patient matching.

Match Requirements

When transmitting identity attributes to third parties with whom sharing PII is permitted, such as:

• within an OpenID Connect user profile, another user information request to an Identity Provider, or the resultant assertion/claim,
• within an HL7 B2B with User Authorization Extension Object, or
• as part of a match or search request,

and a level of identity assurance is indicated, each included identity attribute SHALL either have been verified at the identity level of assurance asserted by the transmitting party (for example, the match requestor) or be consistent with other evidence used in that identity verification process completed by that party. If a level of assurance is not explicitly asserted, the combination of identity attributes submitted SHOULD be consistent with, and sufficient to on their own resolve to the identity of a unique person in the real world. Specifically, identity verification SHALL be performed at IAL1.5 or higher level of identity assurance per this IG’s Guidance on Identity Assurance (e.g., a first name, last name, date of birth [DOB], mobile number, and home street address have been verified as belonging to the individual OR a first name, last name, and a Digital Identifier compliant with this IG have been verified as belonging to the individual), consistent with the practices of NIST 800-63A using Fair or stronger evidence and/or credit bureau type records (or equivalent), and consistent with Guidance on Identity Assurance.

As a best practice, identity verification SHOULD be at a minimum of IAL2 or LoA-3 for professionals who are end users of health IT systems and for an implementer’s overall operations.

Individual Access (or if protected health information [PHI] or PII will be returned, other than to a Covered Entity in a Treatment, Payment, or Operations workflow) is outside the scope of this IG’s Patient Matching requirements. Instead, responders to such queries SHALL authenticate the individual before returning PHI or PII.

Security best practices, including transaction authorization, are generally out of scope for this IG; however implementers also SHALL NOT allow patients to request a match directly. A trusted system may request a match on a patient’s behalf and use it to inform the patient, especially to:

• Recognize that the patient already has an account (when a record represents an account)
• Recognize that a patient may have multiple identities within the system, leading to a fragmented medical record
• Recognize that a patient’s identity might have spurious records from other people mixed in
• Help remediate these situations without exposing PHI/PII

For sharing immunization records only, patient matching MAY be performed using identity attributes verified at IAL1.2 or higher by both requesting party and responder.

The expectation for the use of the “IDI” profiles is:

The system making the call to $match (“the client”) will assert their intent/ability to supply valuable input information to support the searching algorithm by specifying, and conforming to, a particular level of data inclusion identified by one of the profiles. An Master Patient Index (MPI) (i.e., a “server” system providing the $match operation) will leverage the client’s assertion by validating conformance and providing a warning(s) or throwing a full exception if invariant level testing fails. In addition, the MPI may potentially direct the logical code flow for matching based on the verified assurance of data quality input, as well as possible assistance in internal match scoring processes. While any designs of the MPI are outside the scope of the IG, the profiles of the Patient resource are intended to contribute a possible communication of data quality between the client and MPI that may be used in different ways.

Reminder: Historical demographics are held to the same requirements and guidance as current demographics.

Match on Identities

While FHIR systems often expect to have only one Patient Resource per actual patient, some systems may normally have many records for the same patient, typically originating from many disparate systems such as clinics, insurance companies, labs, etc. In this scenario, the Patient resources are typically already linked via automatic matching into sets of Patient Resources using Patient.link, where each set represents a specific patient in the opinion of the MPI system. In such a system, the patient match should be performed against the sets of records as opposed to the individual records. For example, if five records are currently believed to represent the same patient, a search for that patient would find the set of five and consider that as one candidate as opposed to five candidates. Moreover, that search would benefit from all of the information in the set. For example, consider a set of five linked Patient records currently in the system and a Patient input to a $match operation that includes a name, birthdate, telephone and MBI such that the $match input Patient:

• name matches Patient 1 but is somewhat different from Patients 2-5
• birthdate matches all five of them
• telephone matches Patient 3 and is not present in Patients 1,2,4,5
• MBI matches Patient 5 and is absent in patients 1-4

Then the strength of the match for that single candidate should consider all the matching information as opposed to either each record individually or some aggregation of the information in the records that tries to subset it to the “correct” information only (a “golden” record).

Asking for at most four results to be returned in a match request may mean more than four actual Patient resources returned, if the responding system has not mapped one identity to one record. This results in two options:

1. In this case, only the requested number of identities are returned and the requester can ask for all resources or some subset, as needed.

2. All applicable records are returned; a different threshold on number of records returned could be considered instead.

   Note that a collection of records together can make them more valuable than one of the records may appear on its own. Feedback is welcome on the use of MatchGrade extension to help provide additional detail.

NOTE: Although some systems may employ referential matching capabilities or other industry-established practices, methods for determining match and the use of any specific algorithms to produce results in which a responder is sufficiently confident to appropriately release are out of scope for this IG.

B2B with User Authorization Extension Object

The B2B with User Authorization Extension Object is used by client apps following the client_credentials flow to provide additional information regarding the context under which the request for data is authorized. The client app constructs a JSON object containing the following keys and values and includes this object in the extensions object of the Authentication JSON Web Token (JWT), as per UDAP Security 5.2.1.1, as the value associated with the key name hl7-b2b-user. The same requirements for use of hl7-b2b apply in the use of hl7-b2b-user.

Example Person Resource Profile for FAST ID:

{
    "resourceType": "StructureDefinition",
    "id": "FASTIDPerson",
    "url": "TBD",
    "name": "FASTIDPerson",
    "title": "FAST Identity UDAP Person",
    "status": "active",
    "description": "Profile on Person for use with the Interoperable Digital Identity and Patient Matching IG",
    "fhirVersion": "4.0.1",
    "kind": "resource",
    "abstract": false,
    "type": "Person",
    "baseDefinition": "http://hl7.org/fhir/StructureDefinition/Person",
    "derivation": "constraint",
    "differential": {
        "element": [
            {
                "id": "Person.name.family",
                "path": "Person.name.family",
                "min": 1
            },
            {
                "id": "Person.name.given",
                "path": "Person.name.given",
                "min": 1
            },
            {
                "id": "Person.telecom",
                "path": "Person.telecom",
                "slicing": {
                    "discriminator": [
                        {
                            "type": "pattern",
                            "path": "system"
                        }
                    ],
                    "rules": "open",
                    "description": "Forcing both a phone and an email contact"
                },
                "min": 2
            },
            {
                "id": "Person.telecom:tphone",
                "path": "Person.telecom",
                "sliceName": "tphone",
                "min": 1,
                "max": "*"
            },
            {
                "id": "Person.telecom:tphone.system",
                "path": "Person.telecom.system",
                "min": 1,
                "patternCode": "phone"
            },
            {
                "id": "Person.telecom:email",
                "path": "Person.telecom",
                "sliceName": "email",
                "min": 1,
                "max": "*"
            },
            {
                "id": "Person.telecom:email.system",
                "path": "Person.telecom.system",
                "min": 1,
                "patternCode": "email"
            },
            {
                "id": "Person.birthDate",
                "path": "Person.birthDate",
                "min": 1
            },
            {
                "id": "Person.address.line",
                "path": "Person.address.line",
                "min": 1
            },
            {
                "id": "Person.address.city",
                "path": "Person.address.city",
                "min": 1
            },
            {
                "id": "Person.address.state",
                "path": "Person.address.state",
                "min": 1
            },
            {
                "id": "Person.address.postalCode",
                "path": "Person.address.postalCode",
                "min": 1
            }
        ]
    }
}

Verification

It is helpful to know the date verification of attributes was performed, in the case of address and mobile number since those attributes change. Future versions of this IG will likely include a grammar for indicating verification date in match transactions, as well the evidence used to verify individual demographic attributes or entire identities. This information may also be applied to Patient Weighted Input Information.

The identity verification level performed to establish matching attributes is another meaningful piece of information to convey in a transaction; for an example of how to include level of identity and authentication assurance in an OpenID Connect user profile, see the section on Digital Identity.

When attributes like email address and telephone number are verified as associated with a patient, that information helps to bootstrap new portal account creation and (later) account recovery.

An API from USPS may be helpful in verifying individual street addresses in future versions of this IG.

Currently, National Provider Identifier (NPI) records can be used to verify provider names, addresses, and telephone numbers.

Recommended Best Practices

It is a best practice to include all known (required + optional) patient matching attributes in a match request (e.g., USCDI Patient Demographics); the table below indicates examples of attributes and levels of verification for consideration in different use cases:

Patient Match is not expected to enforce the minimum included attributes listed above. However, when a minimum combination of attributes is supplied, Patient Match SHOULD find matching candidates if they exist. Under the hood, this is a requirement on the indexing capability for Patient Match to locate candidates before evaluating them. When something less than the minimum is supplied, Patient Match MAY return no candidates, even if matching candidates exist.

• For example, a bare name might theoretically match no candidates or an overwhelming number of candidates. In this case, Patient Match may return no candidates, even if matching data exists. A simple phone number may or may not be enough for Patient Match to find candidates - that is left up to the implementation.

Patient Match is expected to supply a Patient resource conforming to the Patient profile(s) defined within this IG to $match and entering as much information as possible is encouraged. However, requestors SHOULD NOT include elements whose value is unknown, since that may eliminate potential matches where the responder’s system contains that information. More information helps find the right candidate and disambiguate cases where there are several candidates. This implies that Patient Match is not simply a matter of finding a candidate that exactly matches all the given demographics. Requiring a match on every included attribute tends to discourage entering more information because the user cannot know exactly which demographics will appear in the existing Identities.

• For example, a user should enter an address even if they are worried the patient has moved and the search will fail to find the patient at the old address.

When onlyCertainMatches are requested, responders SHOULD return only results which are an exact match on Last Name and First Name, where exact means there is at most a single character or two character (for example, a transposition error) difference between the Name in the match request and the name associated with the Identity(ies) or the set of records identified as matches in the responding system. Ideally the industry will work toward developing a reliable, publicly-available list of nickname associations and common misspellings that, combined with stepped up best practices in identity verification by both requesters and responders, would support requiring such exact matches in future versions of this IG.

Patient Match SHOULD be in terms of groups of records that have been partitioned prior to the Patient Match call into Identities – groups of records that are thought to represent people.

• For example, a candidate Identity that has the right address in one record, the right name in another, and the right telephone in another could be a strong candidate, even though no single record contains all the given information.

Names are verified at a point in time and previous names are often useful in matching. However, best practices include periodic reverification, and it is generally expected that First and Last names reflect current names. Best practice data stewardship expects previous names to be designated as such within the Patient resource. Appropriate use of Patient.name.use and Patient.name.period are expected for use of previous names.

Although it is possible to request a match with only First or only Last Name and still be compliant with this IG, the example Invariants highlight minimum thresholds for the primary use cases where this is expected to occur.

To request a match on a patient with a single legal name, known as a mononamous individual, requestors SHOULD use that name in the Last name field and leave the First name NULL.

When it is permitted by $match or other match transaction types, and if the requestor is using a profile that includes these, additional matching information can be included as input extensions or contained resources within the Patient resource. For example, current occupation data for health attributes from Resource Profile: Past Or Present Job as per the Occupational Data for Health (ODH) set of profiles on Observation resource, SHOULD be included by requestors since this information is useful to matching.

Patient Match need not support wildcards, unlike the usual FHIR search mechanism.

The section below provides example weight values that a match requestor can use along with specialized patient resource profiles to indicate their intent to follow pre-defined minimum match input requirements.
 

Patient Weighted Input Information

  (The information and values included here serve as an example for weights that may be adopted to achieve various threshold levels responders systems may choose to require.)

Providing an agreed-upon value for matching (i.e., “weight”) to specific Patient information elements included in a match request allows for a degree of matching capability either through profiling the Patient resource or through other potential mechanisms within the guidance.

In cases where Address is not a single-family residence–for example, an apartment building without unit number, hospital, or homeless shelter–the alternative inputs are particularly important.

This guide provides multiple profiles of the Patient resource to support varying levels of information to be provided to the $match operation. Patient Match SHALL support a minimum requirement that the IDI Patient profile be used (base level with no information “weighting” included). More robust matching quality will necessitate stricter data inclusion requirements and, as such, Patient Match SHOULD use profiles supporting a higher level of data inclusion requirements (i.e., whereas IDI Patient L0 may be suitable for use cases in which returning multiple match results is acceptable, IDI Patient L1 indicates an input weight threshold that is expected to only result in matches on the individual whose identity was verified at the minimum level required by this IG for match requests (IAL1.5) and that attributes provided in the match request are confirmed to be consistent with).

Trust communities may have specific requirements about minimum attributes, but in the absence of such requirements, the minimum attribute requirements of the L0 invariant are intended to reflect what may be appropriate for probabilistic searches in which requestors are HIPAA Covered Entities, and the minimum attribute requirements of the L1 invariant are intended to reflect what may be appropriate for deterministic searches in which requestors are potentially returning PHI to the consumer/patient who is the subject of a query (or their authorized representative).

This IG does not intend to set requirements on the use of HumanName.family and HumanName.given in lieu of HumanName.text, though for purposes of clarity we generally refer to First name and Last name (Surname) since some requirements depend on that level of granularity. Systems compliant with this IG SHALL recognize that HumanName.text may be provided instead of or in lieu of HumanName.family and HumanName.given.

Golden Records

The concept of matching Identities is best kept separate from the notion of a Golden Record. Many organizations use a Golden Record to capture all the correct and current information for a Patient while suppressing information that is thought to be out-of-date or incorrect. Often, such a Golden Record simply omits older inconsistent information such as an address. While the FHIR Patient resource can represent both current and old names, addresses and telecoms, its restriction on birthDate limits the representation to only one. A record partitioning system behind Patient Match may decide that two records with different birthDates represent the same person, but may not be able to know which of the birthDates is correct. Ideally, Patient Match would be able to find and appropriately evaluate such a candidate, regardless of which birthDate appears on the Golden Record.

At this time, we are not expecting match responders to organize identities according to the same standards match requestors are today, though in a future version of this IG we do expect responding systems to organize records on unique individual identities as established in the Guidance on Identity Assurance and Patient Matching sections of this guide.

• Matching and searching SHOULD be identity-to-identity, not Record-to-Record.
• Match output SHOULD contain every record of every candidate identity, subject to volume limits
• Linkage between records SHOULD be indicated by the Patient.link field
• Records SHOULD be ordered first by identity, then by score vs. the input
• Identities (sets of records) SHOULD be ordered by score vs. the input as per: “The response from an ‘mpi’ query is a bundle containing patient records, ordered from most likely to least likely.”

If a match implementation supports creating a Golden Record to summarize the identity, match output SHOULD contain that record as well.

• For example, it may have an opinion on the patient’s current address and consolidate demographics that were distributed across records.

A match implementation SHOULD enable Manual Stewardship of the partitioning based on identity.

• This involves specifying not just the current state, but constraints on future states of the partitioning as records arrive or are updated.
• While this document does not describe the form or process for such manual stewardship, it is suggested that the output of $match should support such contribution by providing the information on the records such that the doctor (or other authenticated user trusted with PII for specific people of interest) might spot the problem.

Example: Suppose that a doctor at a clinic looks up a new patient in their regional health information exchange (HIE) to get a more complete medical record and sees a surprising diagnosis. This could arise due to several possibilities: 1) the patient has a diagnosis that was unknown to the doctor, 2) the HIE has another patient’s record mixed into the identity of the patient of interest (an error in partitioning), 3) the clinician is simply looking at the wrong patient’s information. In all three cases, the patient’s care might be improved if the doctor reviews the set of records that constitute the identity. If the problem is the second case above, both the care of this patient and perhaps others might be improved if the doctor could contribute to how these records are partitioned.

A match implementation SHOULD partition its records into identities in real time as they arrive. Doing so:

• Enables manual stewardship
• Improves the quality of matching
• Improves the quality of searching

This is especially helpful in regard to situations where only a single unambiguous match is desired via onlyCertainMatches.

A match output SHOULD reveal a presence or lack of manual stewardship.

• Currently this could be supported via extensions
• The IG authors request feedback from implementers regarding future guidance that may be needed in the case of a FHIR system that contains both records from many sources and Golden Records from the match implementation itself, i.e., are both types of matches returned?

Scoring Matches & Responder’s System Match Output Quality Score

Scoring SHOULD be as probabilistic as possible; however search scoring algorithms vary and stakeholders have expressed interest in better informing the score shared across organizational boundaries in a $match response. The group, therefore, seeks feedback on $match implementers’ interest in using either the new Score indicated below or a similar option which would include attribute-specific match result information from the $match responder (exact match, partial match, soundex match, etc.) for each demographic element relevant to matching within the Patient resource.

Common correlations such as families SHALL be modeled (ONC recommendation reference?).

Scores SHOULD be computed, not guessed, whenever possible.

The table below which designates a grading of match quality SHOULD be used to inform responder’s search quality scoring algorithm, so that the search score returned by a responder is meaningful to the requestor (This grading score SHOULD be conveyed within the Bundle.entry.search.score element); feedback is requested on the ability of a responder to compute and return such a score, as well as the potential value of such a quality score to requesters. The Good level generally corresponds to traits the Sequoia Initiative estimates to be 95-98% unique, and Very Good corresponds to traits that are 98-99.7% unique. Superior matches include matching information that is even more likely to indicate a unique individual, while Best matches involve a match on a government- or industry-assigned identifier.

Recognizing and scoring identifier matches can be quite sophisticated in several ways. Our guidance above is geared toward simplistic scenarios where the system or assigner is specified, corresponds, and is recognized as a system that identifies individual people. However, in some cases, scoring an Identifier may depend on the type of system (from the Identifier.type field) without knowing or recognizing the exact system. Also, cross-system identifier scoring can be appropriate in some situations. While ostensibly unique identifiers such as a PPN should generally score higher, non-unique identifiers can be valuable as scoring lower. Note that some healthcare insurance identifiers identify the family as opposed to an individual. Scoring an identifier match where the system or type is not given or not recognized, or the identifier context is otherwise unknown, should be avoided due to the possibility that it identifies a broad group of unknown size such as all employees of a large organization, all members of an insurance plan, or when the assignor is unknown.

The scoring system used may be validated by the organization using it to determine its accuracy so that the level of effort to manually close identity matching is known and scoring factors that are missing are added to the score based on experience to refine the score and reduce the level of manually matching that needs to be done–over time this process should result in minimal manual matching.

This scoring system has not been widely implemented/tested. Implementers are encouraged to report suggestions to the Identity team via Jira tickets on ways to improve the scoring methodology over time based on their experience. The team will consider such input for updating the scoring match system for the next version.

Future versions of this IG will include language about additional considerations regarding permitted transposition errors, edit distances, and the use of soundex and special characters.  

No Match Results

Exception Handling

Privacy Considerations

Benchmarking