New Zealand Rheumatic Fever FHIR Implementation Guide
1.0.0 - draft

New Zealand Rheumatic Fever FHIR Implementation Guide, published by Te Whatu Ora. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/tewhatuora/fhir-rheumatic-fever/ and changes regularly. See the Directory of published versions

: PatientWhanauGoalsPreferencesQuestionnaireResponse - TTL Representation

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@prefix fhir: <http://hl7.org/fhir/> .
@prefix owl: <http://www.w3.org/2002/07/owl#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

# - resource -------------------------------------------------------------------

 a fhir:QuestionnaireResponse ;
  fhir:nodeRole fhir:treeRoot ;
  fhir:meta [
fhir:versionId [ fhir:v "2" ] ;
fhir:lastUpdated [ fhir:v "2024-08-07T08:31:00Z"^^xsd:dateTime ] ;
    ( fhir:profile [
fhir:v "http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse"^^xsd:anyURI ;
fhir:link <http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse>     ] ) ;
    ( fhir:tag [
fhir:system [ fhir:v "https://fhir-ig.digital.health.nz/rheumatic-fever/CodeSystem/nz-rheumaticfever-codesystem"^^xsd:anyURI ] ;
fhir:code [ fhir:v "rf-nz" ] ;
fhir:display [ fhir:v "rheumatic fever" ]     ] )
  ] ; # 
  fhir:basedOn ( [
fhir:reference [ fhir:v "CarePlan/RegisteredPatient" ]
  ] ) ; # 
  fhir:questionnaire [
fhir:v "https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0"^^xsd:anyURI ;
fhir:link <https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0>
  ] ; # 
  fhir:status [ fhir:v "completed"] ; # 
  fhir:subject [
fhir:type [ fhir:v "Patient"^^xsd:anyURI ] ;
fhir:identifier [
fhir:use [ fhir:v "official" ] ;
fhir:system [ fhir:v "https://standards.digital.health.nz/ns/nhi-id"^^xsd:anyURI ] ;
fhir:value [ fhir:v "ZKC7284" ]     ] ;
fhir:display [ fhir:v "Sage Westbrook" ]
  ] ; # 
  fhir:authored [ fhir:v "2023-06-19T03:08:00.504Z"^^xsd:dateTime] ; # 
  fhir:author [
fhir:type [ fhir:v "Organization"^^xsd:anyURI ] ;
fhir:identifier [
fhir:use [ fhir:v "official" ] ;
fhir:system [ fhir:v "https://standards.digital.health.nz/ns/hpi-organisation-id"^^xsd:anyURI ] ;
fhir:value [ fhir:v "G0M086-B" ]     ] ;
fhir:display [ fhir:v "Te Tai Tokerau Rheumatic Fever Secondary Prevention Service" ]
  ] ; # 
  fhir:item ( [
fhir:linkId [ fhir:v "ImportantToMe" ] ;
fhir:text [ fhir:v "What things that are important to me and my family that support my health and wellbeing? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire." ]     ] )
  ] [
fhir:linkId [ fhir:v "WhanauInvolvement" ] ;
fhir:text [ fhir:v "How would I like my whanau and support persons to be involved? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "I want my sisters to be with me at the injection appointments to support and distract me." ]     ] )
  ] [
fhir:linkId [ fhir:v "BestWayToCommunicate" ] ;
fhir:text [ fhir:v "The best way to communicate with me is…? (choose one)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "text message" ]     ] )
  ] [
fhir:linkId [ fhir:v "AppointmentsContact" ] ;
fhir:text [ fhir:v "I know who to contact about my appointments? (choose one)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "true"^^xsd:boolean ]     ] )
  ] [
fhir:linkId [ fhir:v "PreferredAppointmentsLocation" ] ;
fhir:text [ fhir:v "What location do I prefer to receive injected antibiotics at? (choose one)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Home" ]     ] )
  ] [
fhir:linkId [ fhir:v "InjectionLocationDetail" ] ;
fhir:text [ fhir:v "More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that!" ]     ] )
  ] [
fhir:linkId [ fhir:v "ImportantDuringInjectionVisits" ] ;
fhir:text [ fhir:v "What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections" ]     ] )
  ] [
fhir:linkId [ fhir:v "InjectionVisitsNoNos" ] ;
fhir:text [ fhir:v "What things don't work well for me during my injection visits? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "I prefer not to know anything about the dose of medication in my injections.\nAlso I don't like having the injection in the same part of my thigh on each appointment.  It would be good if the nurse can mix it up a bit." ]     ] )
  ] [
fhir:linkId [ fhir:v "MakingInjectionsComfortable" ] ;
fhir:text [ fhir:v "What things do I like to have with my injections to make them more comfortable? (multiple choice)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Lignocaine" ]     ] [
fhir:value [ fhir:v "Ice pack" ]     ] [
fhir:value [ fhir:v "Numbing spray" ]     ] [
fhir:value [ fhir:v "Distraction" ]     ] )
  ] [
fhir:linkId [ fhir:v "InjectionOtherComfort" ] ;
fhir:text [ fhir:v "What other things make my injections more comfortable? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Ice cream always works well!" ]     ] )
  ] [
fhir:linkId [ fhir:v "MedsPreferredSupplyMethod" ] ;
fhir:text [ fhir:v "I would prefer to get my oral antibiotic medicines from? (choose one)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "MedsSupplyOtherDetail" ] ;
fhir:text [ fhir:v "If other, enter details" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Please can you supply my medications in two-month packs?" ]     ] )
  ] [
fhir:linkId [ fhir:v "EasierToGetToAppointments" ] ;
fhir:text [ fhir:v "What things make it easier for me to get to hospital appointments? (multiple choice)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Morning appointments" ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsImportant" ] ;
fhir:text [ fhir:v "More detail about the things that are important to me about hospital appointments (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "I would like my hospital injections in a room with a view of the mountains." ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsNoNos" ] ;
fhir:text [ fhir:v "Things that don't work well for me about hospital appointments (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "I prefer it if there are not heaps of trainee medics watching me get my injections." ]     ] )
  ] [
fhir:linkId [ fhir:v "SupportGettingToHospitalAppointments" ] ;
fhir:text [ fhir:v "Do I need support getting to and from hospital appointment? (choose one)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "No" ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsTransportSupport" ] ;
fhir:text [ fhir:v "Which transport support option do I need? (choose one)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsTransportOtherDetail" ] ;
fhir:text [ fhir:v "What other details are there about getting to hospital appointments? (enter text)" ] ;
    ( fhir:answer [
fhir:value [ fhir:v "Please can I have a reserved park space to park Dad's '73 Hilux?  This will help me get to my appointments on time." ]     ] )
  ] ) . #