New Zealand Rheumatic Fever FHIR Implementation Guide
1.0.0 - draft
New Zealand Rheumatic Fever FHIR Implementation Guide, published by Te Whatu Ora. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/tewhatuora/fhir-rheumatic-fever/ and changes regularly. See the Directory of published versions
Generated Narrative: QuestionnaireResponse PatientWhanauGoalsPreferencesQuestionnaireResponse
version: 2; Last updated: 2024-08-07 08:31:00+0000
Profile: QuestionnaireResponse
Tag: rheumatic fever (Details: NZ-specific terminology in rheumatic fever data representation code rf-nz = 'rheumatic fever')
LinkID | Text | Definition | Answer |
---|---|---|---|
PatientWhanauGoalsPreferencesQuestionnaireResponse | Questionnaire:Patient & whanau goals and preferences questionnaire | ||
ImportantToMe | What things that are important to me and my family that support my health and wellbeing? (enter text) | I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire. | |
WhanauInvolvement | How would I like my whanau and support persons to be involved? (enter text) | I want my sisters to be with me at the injection appointments to support and distract me. | |
BestWayToCommunicate | The best way to communicate with me is…? (choose one) | text message | |
AppointmentsContact | I know who to contact about my appointments? (choose one) | true | |
PreferredAppointmentsLocation | What location do I prefer to receive injected antibiotics at? (choose one) | Home | |
InjectionLocationDetail | More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text) | We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that! | |
ImportantDuringInjectionVisits | What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text) | I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections | |
InjectionVisitsNoNos | What things don't work well for me during my injection visits? (enter text) | I prefer not to know anything about the dose of medication in my injections. Also I don't like having the injection in the same part of my thigh on each appointment. It would be good if the nurse can mix it up a bit. | |
MakingInjectionsComfortable | What things do I like to have with my injections to make them more comfortable? (multiple choice) | ||
InjectionOtherComfort | What other things make my injections more comfortable? (enter text) | Ice cream always works well! | |
MedsPreferredSupplyMethod | I would prefer to get my oral antibiotic medicines from? (choose one) | Other | |
MedsSupplyOtherDetail | If other, enter details | Please can you supply my medications in two-month packs? | |
EasierToGetToAppointments | What things make it easier for me to get to hospital appointments? (multiple choice) | Morning appointments | |
HospitalAppointmentsImportant | More detail about the things that are important to me about hospital appointments (enter text) | I would like my hospital injections in a room with a view of the mountains. | |
HospitalAppointmentsNoNos | Things that don't work well for me about hospital appointments (enter text) | I prefer it if there are not heaps of trainee medics watching me get my injections. | |
SupportGettingToHospitalAppointments | Do I need support getting to and from hospital appointment? (choose one) | No | |
HospitalAppointmentsTransportSupport | Which transport support option do I need? (choose one) | Other | |
HospitalAppointmentsTransportOtherDetail | What other details are there about getting to hospital appointments? (enter text) | Please can I have a reserved park space to park Dad's '73 Hilux? This will help me get to my appointments on time. | |
Documentation for this format |