New Zealand Rheumatic Fever FHIR Implementation Guide
1.0.0 - draft
New Zealand Rheumatic Fever FHIR Implementation Guide
1.0.0 - draft
New Zealand Rheumatic Fever FHIR Implementation Guide, published by Te Whatu Ora. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/tewhatuora/fhir-rheumatic-fever/ and changes regularly. See the Directory of published versions
{
"resourceType" : "QuestionnaireResponse",
"meta" : {
"versionId" : "2",
"lastUpdated" : "2024-08-07T08:31:00Z",
"profile" : [
🔗 "http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse"
],
"tag" : [
{
"system" : "https://fhir-ig.digital.health.nz/rheumatic-fever/CodeSystem/nz-rheumaticfever-codesystem",
"code" : "rf-nz",
"display" : "rheumatic fever"
}
]
},
"basedOn" : [
{
🔗 "reference" : "CarePlan/RegisteredPatient"
}
],
"questionnaire" : "https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0",
"status" : "completed",
"subject" : {
"type" : "Patient",
"identifier" : {
"use" : "official",
"system" : "https://standards.digital.health.nz/ns/nhi-id",
"value" : "ZKC7284"
},
"display" : "Sage Westbrook"
},
"authored" : "2023-06-19T03:08:00.504Z",
"author" : {
"type" : "Organization",
"identifier" : {
"use" : "official",
"system" : "https://standards.digital.health.nz/ns/hpi-organisation-id",
"value" : "G0M086-B"
},
"display" : "Te Tai Tokerau Rheumatic Fever Secondary Prevention Service"
},
"item" : [
{
"linkId" : "ImportantToMe",
"text" : "What things that are important to me and my family that support my health and wellbeing? (enter text)",
"answer" : [
{
"valueString" : "I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire."
}
]
},
{
"linkId" : "WhanauInvolvement",
"text" : "How would I like my whanau and support persons to be involved? (enter text)",
"answer" : [
{
"valueString" : "I want my sisters to be with me at the injection appointments to support and distract me."
}
]
},
{
"linkId" : "BestWayToCommunicate",
"text" : "The best way to communicate with me is…? (choose one)",
"answer" : [
{
"valueString" : "text message"
}
]
},
{
"linkId" : "AppointmentsContact",
"text" : "I know who to contact about my appointments? (choose one)",
"answer" : [
{
"valueBoolean" : true
}
]
},
{
"linkId" : "PreferredAppointmentsLocation",
"text" : "What location do I prefer to receive injected antibiotics at? (choose one)",
"answer" : [
{
"valueString" : "Home"
}
]
},
{
"linkId" : "InjectionLocationDetail",
"text" : "More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)",
"answer" : [
{
"valueString" : "We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that!"
}
]
},
{
"linkId" : "ImportantDuringInjectionVisits",
"text" : "What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)",
"answer" : [
{
"valueString" : "I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections"
}
]
},
{
"linkId" : "InjectionVisitsNoNos",
"text" : "What things don't work well for me during my injection visits? (enter text)",
"answer" : [
{
"valueString" : "I prefer not to know anything about the dose of medication in my injections.\nAlso I don't like having the injection in the same part of my thigh on each appointment. It would be good if the nurse can mix it up a bit."
}
]
},
{
"linkId" : "MakingInjectionsComfortable",
"text" : "What things do I like to have with my injections to make them more comfortable? (multiple choice)",
"answer" : [
{
"valueString" : "Lignocaine"
},
{
"valueString" : "Ice pack"
},
{
"valueString" : "Numbing spray"
},
{
"valueString" : "Distraction"
}
]
},
{
"linkId" : "InjectionOtherComfort",
"text" : "What other things make my injections more comfortable? (enter text)",
"answer" : [
{
"valueString" : "Ice cream always works well!"
}
]
},
{
"linkId" : "MedsPreferredSupplyMethod",
"text" : "I would prefer to get my oral antibiotic medicines from? (choose one)",
"answer" : [
{
"valueString" : "Other"
}
]
},
{
"linkId" : "MedsSupplyOtherDetail",
"text" : "If other, enter details",
"answer" : [
{
"valueString" : "Please can you supply my medications in two-month packs?"
}
]
},
{
"linkId" : "EasierToGetToAppointments",
"text" : "What things make it easier for me to get to hospital appointments? (multiple choice)",
"answer" : [
{
"valueString" : "Morning appointments"
}
]
},
{
"linkId" : "HospitalAppointmentsImportant",
"text" : "More detail about the things that are important to me about hospital appointments (enter text)",
"answer" : [
{
"valueString" : "I would like my hospital injections in a room with a view of the mountains."
}
]
},
{
"linkId" : "HospitalAppointmentsNoNos",
"text" : "Things that don't work well for me about hospital appointments (enter text)",
"answer" : [
{
"valueString" : "I prefer it if there are not heaps of trainee medics watching me get my injections."
}
]
},
{
"linkId" : "SupportGettingToHospitalAppointments",
"text" : "Do I need support getting to and from hospital appointment? (choose one)",
"answer" : [
{
"valueString" : "No"
}
]
},
{
"linkId" : "HospitalAppointmentsTransportSupport",
"text" : "Which transport support option do I need? (choose one)",
"answer" : [
{
"valueString" : "Other"
}
]
},
{
"linkId" : "HospitalAppointmentsTransportOtherDetail",
"text" : "What other details are there about getting to hospital appointments? (enter text)",
"answer" : [
{
"valueString" : "Please can I have a reserved park space to park Dad's '73 Hilux? This will help me get to my appointments on time."
}
]
}
]
}