PanCareSurPass Project HL7 FHIR Implementation Guide, published by PanCareSurPass Project. This guide is not an authorized publication; it is the continuous build for version 0.2.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/pcsp/ and changes regularly. See the Directory of published versions
The Survivorship Passport (SurPass) is a digital tool based on international clinical guidelines that provides childhood cancer survivors (CCS) and health care professionals (HCPs) with the information needed for long-term follow-up survivorship care, better health promotion, improved late effects management and secondary cancer prevention. The SurPass provides an overview of all relevant personal health data related to the cancer treatment of CCS (e.g. demographics, cancer diagnosis, therapeutic management etc.) in a Treatment Summary together with a personalized Survivorship Care Plan.
The following table summarizes the logical models used by this guide.
Name | Title | Description |
Chemotherapy | Chemotherapy | Chemotherapy Maturity Level: 2 - Ready for Review |
Diagnosis | Diagnosis | Diagnosis Maturity Level: 2 - Ready for Review |
DocMetadataFSE | Metadata FSE Italy | Metadata FSE Italy. Maturity Level: 0 |
FrontLineTreatment | Front Line Treatment | Front Line Treatment. The first treatment given for a disease. It is often part of a standard set of treatments, such as surgery followed by chemotherapy and radiation. When used by itself, first-line therapy is the one accepted as the best treatment. If it does not cure the disease or it causes severe side effects, other treatment may be added or used instead. Also called induction therapy, primary therapy, and primary treatment. Maturity Level: 2 - Ready for Review |
MajorSurgery | Major Surgery | Major Surgery. Maturity Level: 2 - Ready for Review |
OtherInfos | Other info and relevant events | Other info and relevant events Maturity Level: 2 - Ready for Review |
PlanOfCare | Care Plan | Care Plan Maturity Level: 0 - Draft |
Radiotherapy | Radiotherapy | Radiotherapy Maturity Level: 2 - Ready for Review |
RelapseAfterFLT | Progression-Relapse after FLT | Progression-Relapse after FLT Maturity Level: 2 - Ready for Review |
RelapseDuringFLT | Progression-Relapse during FLT | Progression-Relapse during FLT Maturity Level: 2 - Ready for Review |
StemCellTransplantation | Stem Cell Transplantation | Stem Cell Transplantation. Maturity Level: 2 - Ready for Review |
Subject | Subject of care | Subject of care Maturity Level: 2 - Ready for Review |
SurPass | SurPass V2.0 | Survivorship Passport V2.0 Maturity Level: 2 - Ready for Review |
TreatmentSummary | Treatment Summary | Treatment Summary data model Maturity Level: 2 - Ready for Review |