Birth Defects Reporting - STU1
0.1.2 - draft United States of America flag

Birth Defects Reporting - STU1, published by HL7 International / Public Health. This guide is not an authorized publication; it is the continuous build for version 0.1.2 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/HL7/fhir-birthdefectsreporting-ig/ and changes regularly. See the Directory of published versions

Artifacts Summary

This page provides a list of the FHIR artifacts defined as part of this implementation guide.

Structures: Resource Profiles

These define constraints on FHIR resources for systems conforming to this implementation guide.

Bundle - Birth Defect Report

The bundle of birth defect report resources.

Condition - Reportable Diagnosis

A description of a reportable birth defect diagnosis for the report subject

Encounter - BDR

This Encounter profile represents a patient's encounter.

MessageHeader - Birth Defect

The message header for the birth defect report.

Observation - Admission to NICU

An observation to represent the admission of a newborn to neonatal intensive care unit.

Observation - Cause of Death

The cause of death of the birth defect report subject.

Observation - Location of Death

The location of death of the report subject.

Observation - Mother Alcohol Use

An observation regarding the mother's use of alcohol during the pregnancy.

Observation - Mother Drug Use

An observation regarding maternal recreational drug use during pregnancy.

Observation - Mother Exposure

The exposure of the mother to potentially harmful chemical, physical, or biological agents in the environment or to environmental factors that may include ionizing radiation, pathogenic organisms, or toxic chemicals that may cause fetal morbidity.

Observation - Mother Labor Onset

Serious complications experienced by the mother associated with labor and delivery.

Observation - Mother Previous Preterm Births

The total number of children for the mother whose birth occurred through the end of the last day of the 37th week (259th day) following onset of the last menstrual period in previous pregnancies.

Observation - Mother Primary Insurance

The primary insurance type for the delivery.

Observation - Mother Total Pregnancies

The mother's total number of prior pregnancies before the current one.

Observation - Pregnancy Outcome

The result of the subject's delivery, such as live birth or not a live birth.

Organization - Submitter

The healthcare Organization responsible for submitting the birth defect report

Procedure - Diagnosis Confirmatory Test

A procedure used to confirm the reportable birth defect diagnosis for the report subject

Procedure - Newborn Procedure

A report of a procedure performed the report subject

Procedure - postnatal echo

This profile represents postnatal echo.

RelatedPerson - Responsible Party

An individual responsible for the birth defect subject. Mother and father are captured separately.

Structures: Extension Definitions

These define constraints on FHIR data types for systems conforming to this implementation guide.

BDR Patient type

Used to indicate whether the report is for inpatient or outpatient.

Reported Age At admission

This Extension profile represents the reported age of the patient at admission time

Reported Age At discharge

This Extension profile represents the reported age of the patient at discharged time

Terminology: Value Sets

These define sets of codes used by systems conforming to this implementation guide.

Admission Status

Valueset for admission status

Birth Defect Report Event Types

Event types for the birth defect report

Discharged Status

Valueset for discharged status

Newborn Procedure List

Procedures performed on the birth defect subject

Patient Location Types

Valueset for location types used to differentate inpatient vs outpatient

Units of Age

This valueset contains the set of codes for specifying the units used when recording age (days, weeks, months, years)

Terminology: Code Systems

These define new code systems used by systems conforming to this implementation guide.

Local BDR Codes

Local Codes for concepts in BDR that lack an appropriate LOINC or SCT code

Example: Example Instances

These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like.

AdmissionToNicuExample

Example Observation of a Patient Admission to the NICU

ApgarFiveMinuteExample

Example Observation of the Five Minute APGAR score

ApgarTenMinuteExample

Example Observation of the Ten Minute APGAR score

BDRMessageHeaderBirthingExample

Example BDR Birthing Message Header

BDRMessageHeaderExample

Example BDR Message Header

BirthWeightExample

Example Observation of the Newborn's Birth Weight

BirthsNowDeadExample

Example Observation of the Number of Previous Births Now Dead

BirthsNowLivingExample

Example Observation of the Number of Previous Births Now Living

ClinicSubmitterExample

Example Clinic Submitter Organization

ConfirmatoryTestExampleWES

Example Confirmatory Test for Reportable Diagnosis

FatherEducationBirthingExample

Example Observation of the Father's Education

FatherEducationExample

Example Observation of the Father's Education

FatherRelatedPersonBirthingExample

Example Father Related Person

FatherRelatedPersonExample

Example Father Related Person

FetalDeathsExample

Example Observation of Number of Fetal Deaths this Delivery

GestationalAgeExample

Example Observation of the Gestational Age at the Time of Delivery

HeadCircumferenceExample

Example Observation of the Subject's Head Circumference at Birth

HeightExample

Example Observation of the Subject's Length at Birth

HospitalSubmittterExample

Example Hospital Submitter Organization

InfantLivingBirthingExample

Example Observation of if the Infant is Living at the Time of Reporting

InfantLivingExample

Example Observation of if the Infant is Living at the Time of Reporting

LMPExample

Example Observation of the Mother's Last Menstrual Period

LaborOnsetExample

Example Observation of the Onset of Labor

LiveBirthsThisPregnancyExample

Example Observation of the Number of Live Births for this Delivery

MotherAlcoholUseBirthingExample

Example Observation of the Mother's Alcohol Use During Pregnancy

MotherAlcoholUseExample

Example Observation of the Mother's Alcohol Use During Pregnancy

MotherDeliveryWeightExample

Example Observation of the Mother's Delivery Weight

MotherDrugUseBirthingExample

Example Observation of the Mother's Drug Use During Pregnancy

MotherEducationBirthingExample

Example Observation of the Mother's Education

MotherEducationExample

Example Observation of the Mother's Education

MotherExposureBirthingExample

Example Observation of the Mother's Exposures During Pregnancy

MotherHeightExample

Example Observation of the Mother's Height

MotherPatientExample

Example Mother as a Patient

MotherPrepregnancyWeightExample

Example Observation of the Mother's Prepregnancy Weight

MotherRelatedPersonBirthingExample

Example Mother Related Person

MotherRelatedPersonExample

Example Mother Related Person

OtherOutcomesExample

Example Observation of Number of Other Pregnancy Outcomes

PatientChildExample

Example BDR Newborn Patient

PatientNewbornExample

Example BDR Newborn Patient

PluralityExample

Example Observation of the Plurality of the Pregnancy

Practitioner - example [Joe Smith]

Example of Practitioner-vr profile (Dr. Joe Smith) with address extensions

PregnancyOutcomeExample

Example Observation of the Pregnancy Outcome

PrenatalVisitsExample

Example Observation of the Number of Prenatal Visits

PreviousCesareansExample

Example Observation of the Number of the Mother's Previous Cesareans

PreviousPretermBirthsExample

Example Observation of the Mother's Number of Previous Preterm Births

PrimaryInsuranceExample

Example Observation of the Mother's Primary Insurance

ReportableDiagnosisBirthingExample

Example Birthing Reportable Diagnosis

ReportableDiagnosisExample

Example Reportable Diagnosis

ResponsiblePartyExample

Example Responsible Party

TotalPregnanciesExample

Example Observation of the Mother's Total Number of Pregnancies