Birth Defects Reporting - STU1
0.1.2 - draft
Birth Defects Reporting - STU1, published by HL7 International / Public Health. This guide is not an authorized publication; it is the continuous build for version 0.1.2 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/HL7/fhir-birthdefectsreporting-ig/ and changes regularly. See the Directory of published versions
Contents:
This page provides a list of the FHIR artifacts defined as part of this implementation guide.
These define constraints on FHIR resources for systems conforming to this implementation guide.
Bundle - Birth Defect Report |
The bundle of birth defect report resources. |
Condition - Reportable Diagnosis |
A description of a reportable birth defect diagnosis for the report subject |
Encounter - BDR |
This Encounter profile represents a patient's encounter. |
MessageHeader - Birth Defect |
The message header for the birth defect report. |
Observation - Admission to NICU |
An observation to represent the admission of a newborn to neonatal intensive care unit. |
Observation - Cause of Death |
The cause of death of the birth defect report subject. |
Observation - Location of Death |
The location of death of the report subject. |
Observation - Mother Alcohol Use |
An observation regarding the mother's use of alcohol during the pregnancy. |
Observation - Mother Drug Use |
An observation regarding maternal recreational drug use during pregnancy. |
Observation - Mother Exposure |
The exposure of the mother to potentially harmful chemical, physical, or biological agents in the environment or to environmental factors that may include ionizing radiation, pathogenic organisms, or toxic chemicals that may cause fetal morbidity. |
Observation - Mother Labor Onset |
Serious complications experienced by the mother associated with labor and delivery. |
Observation - Mother Previous Preterm Births |
The total number of children for the mother whose birth occurred through the end of the last day of the 37th week (259th day) following onset of the last menstrual period in previous pregnancies. |
Observation - Mother Primary Insurance |
The primary insurance type for the delivery. |
Observation - Mother Total Pregnancies |
The mother's total number of prior pregnancies before the current one. |
Observation - Pregnancy Outcome |
The result of the subject's delivery, such as live birth or not a live birth. |
Organization - Submitter |
The healthcare Organization responsible for submitting the birth defect report |
Procedure - Diagnosis Confirmatory Test |
A procedure used to confirm the reportable birth defect diagnosis for the report subject |
Procedure - Newborn Procedure |
A report of a procedure performed the report subject |
Procedure - postnatal echo |
This profile represents postnatal echo. |
RelatedPerson - Responsible Party |
An individual responsible for the birth defect subject. Mother and father are captured separately. |
These define constraints on FHIR data types for systems conforming to this implementation guide.
BDR Patient type |
Used to indicate whether the report is for inpatient or outpatient. |
Reported Age At admission |
This Extension profile represents the reported age of the patient at admission time |
Reported Age At discharge |
This Extension profile represents the reported age of the patient at discharged time |
These define sets of codes used by systems conforming to this implementation guide.
Admission Status |
Valueset for admission status |
Birth Defect Report Event Types |
Event types for the birth defect report |
Discharged Status |
Valueset for discharged status |
Newborn Procedure List |
Procedures performed on the birth defect subject |
Patient Location Types |
Valueset for location types used to differentate inpatient vs outpatient |
Units of Age |
This valueset contains the set of codes for specifying the units used when recording age (days, weeks, months, years) |
These define new code systems used by systems conforming to this implementation guide.
Local BDR Codes |
Local Codes for concepts in BDR that lack an appropriate LOINC or SCT code |
These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like.
AdmissionToNicuExample |
Example Observation of a Patient Admission to the NICU |
ApgarFiveMinuteExample |
Example Observation of the Five Minute APGAR score |
ApgarTenMinuteExample |
Example Observation of the Ten Minute APGAR score |
BDRMessageHeaderBirthingExample |
Example BDR Birthing Message Header |
BDRMessageHeaderExample |
Example BDR Message Header |
BirthWeightExample |
Example Observation of the Newborn's Birth Weight |
BirthsNowDeadExample |
Example Observation of the Number of Previous Births Now Dead |
BirthsNowLivingExample |
Example Observation of the Number of Previous Births Now Living |
ClinicSubmitterExample |
Example Clinic Submitter Organization |
ConfirmatoryTestExampleWES |
Example Confirmatory Test for Reportable Diagnosis |
FatherEducationBirthingExample |
Example Observation of the Father's Education |
FatherEducationExample |
Example Observation of the Father's Education |
FatherRelatedPersonBirthingExample |
Example Father Related Person |
FatherRelatedPersonExample |
Example Father Related Person |
FetalDeathsExample |
Example Observation of Number of Fetal Deaths this Delivery |
GestationalAgeExample |
Example Observation of the Gestational Age at the Time of Delivery |
HeadCircumferenceExample |
Example Observation of the Subject's Head Circumference at Birth |
HeightExample |
Example Observation of the Subject's Length at Birth |
HospitalSubmittterExample |
Example Hospital Submitter Organization |
InfantLivingBirthingExample |
Example Observation of if the Infant is Living at the Time of Reporting |
InfantLivingExample |
Example Observation of if the Infant is Living at the Time of Reporting |
LMPExample |
Example Observation of the Mother's Last Menstrual Period |
LaborOnsetExample |
Example Observation of the Onset of Labor |
LiveBirthsThisPregnancyExample |
Example Observation of the Number of Live Births for this Delivery |
MotherAlcoholUseBirthingExample |
Example Observation of the Mother's Alcohol Use During Pregnancy |
MotherAlcoholUseExample |
Example Observation of the Mother's Alcohol Use During Pregnancy |
MotherDeliveryWeightExample |
Example Observation of the Mother's Delivery Weight |
MotherDrugUseBirthingExample |
Example Observation of the Mother's Drug Use During Pregnancy |
MotherEducationBirthingExample |
Example Observation of the Mother's Education |
MotherEducationExample |
Example Observation of the Mother's Education |
MotherExposureBirthingExample |
Example Observation of the Mother's Exposures During Pregnancy |
MotherHeightExample |
Example Observation of the Mother's Height |
MotherPatientExample |
Example Mother as a Patient |
MotherPrepregnancyWeightExample |
Example Observation of the Mother's Prepregnancy Weight |
MotherRelatedPersonBirthingExample |
Example Mother Related Person |
MotherRelatedPersonExample |
Example Mother Related Person |
OtherOutcomesExample |
Example Observation of Number of Other Pregnancy Outcomes |
PatientChildExample |
Example BDR Newborn Patient |
PatientNewbornExample |
Example BDR Newborn Patient |
PluralityExample |
Example Observation of the Plurality of the Pregnancy |
Practitioner - example [Joe Smith] |
Example of Practitioner-vr profile (Dr. Joe Smith) with address extensions |
PregnancyOutcomeExample |
Example Observation of the Pregnancy Outcome |
PrenatalVisitsExample |
Example Observation of the Number of Prenatal Visits |
PreviousCesareansExample |
Example Observation of the Number of the Mother's Previous Cesareans |
PreviousPretermBirthsExample |
Example Observation of the Mother's Number of Previous Preterm Births |
PrimaryInsuranceExample |
Example Observation of the Mother's Primary Insurance |
ReportableDiagnosisBirthingExample |
Example Birthing Reportable Diagnosis |
ReportableDiagnosisExample |
Example Reportable Diagnosis |
ResponsiblePartyExample |
Example Responsible Party |
TotalPregnanciesExample |
Example Observation of the Mother's Total Number of Pregnancies |