HRSA 2024 Uniform Data System (UDS) Patient Level Submission (PLS) (UDS+) FHIR IG
2.0.0 - STU2 Release 1 - Standard for Trial-Use International flag

HRSA 2024 Uniform Data System (UDS) Patient Level Submission (PLS) (UDS+) FHIR IG, published by HRSA BPHC. This guide is not an authorized publication; it is the continuous build for version 2.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/drajer-health/uds-plus/ and changes regularly. See the Directory of published versions

Extension: UDS Plus Age Extension

Official URL: http://fhir.org/guides/hrsa/uds-plus/StructureDefinition/uds-plus-age-extension Version: 2.0.0
Standards status: Trial-use Maturity Level: 2 Computable Name: UDSPlusAgeExtension

Indicates the age of the patient at a specific time

Context of Use

This extension may be used on the following element(s):

  • Element ID Patient
  • Element ID Encounter

Introduction

This extension is used to convey the age of the patient at a specific point in time. The HHS De-identification Guidance is to be followed to ensure appropriate level of de-identification is performed on the age extension.

According to the HHS guidance, for patients whose age is computed to be greater than 89 the de-identification rule requires it be reported as greater > 90 and not report the specific age.

The following is new content for 1.1.0

**Representing Age > 89 **

Since Age is represented as a valueQuantity data type the following method should be used to represent Age > 89.

* Age > 89 : use valueQuantity.value to represent 90, units of a and comparator of ">="

Usage info

Usage:

Formal Views of Extension Content

Description of Profiles, Differentials, Snapshots, and how the XML and JSON presentations work.

This structure is derived from Extension

Summary

Simple Extension of type Quantity: Indicates the age of the patient at a specific time

Maturity: 2

This structure is derived from Extension

NameFlagsCard.TypeDescription & Constraintsdoco
.. Extension 1..1 Extension Indicates the age of the Patient.
... url 1..1 uri "http://fhir.org/guides/hrsa/uds-plus/StructureDefinition/uds-plus-age-extension"
... value[x] C 1..1 Quantity Value of extension
uds-plus-age-1: All Patients aged more than 89 years, should be grouped together as 90+ years to meet de-identification requirements.

doco Documentation for this format
NameFlagsCard.TypeDescription & Constraintsdoco
.. Extension 1..1 Extension Indicates the age of the Patient.
... id 0..1 string Unique id for inter-element referencing
... extension 0..* Extension Additional content defined by implementations
Slice: Unordered, Open by value:url
... url 1..1 uri "http://fhir.org/guides/hrsa/uds-plus/StructureDefinition/uds-plus-age-extension"

doco Documentation for this format

This structure is derived from Extension

Summary

Simple Extension of type Quantity: Indicates the age of the patient at a specific time

Maturity: 2

Differential View

This structure is derived from Extension

NameFlagsCard.TypeDescription & Constraintsdoco
.. Extension 1..1 Extension Indicates the age of the Patient.
... url 1..1 uri "http://fhir.org/guides/hrsa/uds-plus/StructureDefinition/uds-plus-age-extension"
... value[x] C 1..1 Quantity Value of extension
uds-plus-age-1: All Patients aged more than 89 years, should be grouped together as 90+ years to meet de-identification requirements.

doco Documentation for this format

Snapshot View

NameFlagsCard.TypeDescription & Constraintsdoco
.. Extension 1..1 Extension Indicates the age of the Patient.
... id 0..1 string Unique id for inter-element referencing
... extension 0..* Extension Additional content defined by implementations
Slice: Unordered, Open by value:url
... url 1..1 uri "http://fhir.org/guides/hrsa/uds-plus/StructureDefinition/uds-plus-age-extension"

doco Documentation for this format

 

Other representations of profile: CSV, Excel, Schematron

Constraints

IdGradePath(s)DetailsRequirements
ele-1error**ALL** elementsAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1error**ALL** extensionsMust have either extensions or value[x], not both
: extension.exists() != value.exists()
uds-plus-age-1errorExtension.value[x]All Patients aged more than 89 years, should be grouped together as 90+ years to meet de-identification requirements.
: (($this.where(code = 'a').value <= 89) or ($this.where(code = 'a' and comparator = '>=').value = 90)) or (($this.where(code = 'mo').value <= 1068) or ($this.where(code = 'mo' and value > 1068 and value <= 1080).comparator = '>=')) or (($this.where(code = 'd').value <= 32485) or ($this.where(code = 'd' and value > 32485 and value <= 32850).comparator = '>=')) or (($this.where(code = 'wk').value < 4628) or ($this.where(code = 'wk' and value > 4628 and value <= 4680).comparator = '>='))