PACIO Advance Directive Interoperability Implementation Guide, published by HL7 International / Patient Empowerment. This guide is not an authorized publication; it is the continuous build for version 2.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/HL7/fhir-pacio-adi/ and changes regularly. See the Directory of published versions

User Stories and Personas

Create in a digital form and make available for sharing and accessing advance directive information

Example Persona

Betsy Smith-Johnson is a 73 year-old female who lived in Texas. In 2015, just before her 65th birthday, she saw her Primary Care Physician (PCP) in Texas who recommended she complete an Advance Directive before her upcoming Annual Wellness Visit. She completed a paper Texas Living Will form by hand and obtained the wet signatures of two witnesses, which she then uploaded to her account in a consumer-facing application, MyExampleAD.

Betsy uses a consumer facing tool to create a digital advance directive or upload a scanned copy of her paper advance directive document. This tool may any customer-facing application, including but not limited to an EHR or a specialized care application. Her interoperable digital advance directive information is made available by being stored in a registry/repository/HIE/QHIN/EHR.

Betsy then shares her advance directive information with her son Charles, her primary healthcare agent (HCA) her daughter Debra, her first Alternate HCA, and her primary care physician via the MyExampleAD application. That way, if either Charles or Debra are contacted by a treating provider in an emergency, they can make her advance directive accessible to inform treatment.

NOTE: This IG makes no comment as to how EHRs should be architected, as this is beyond the scope of a FHIR implementation guide.

Workflow Representation

FHIR Representation

The example AD document for Betsy Smith-Johnson is represented as a here.