ICHOM FHIR Implementation Guide: Breast Cancer
0.0.1 - ci-build
ICHOM FHIR Implementation Guide: Breast Cancer
0.0.1 - ci-build
ICHOM FHIR Implementation Guide: Breast Cancer, published by ICHOM. This is not an authorized publication; it is the continuous build for version 0.0.1). This version is based on the current content of https://github.com/HL7/fhir-ichom-breast-cancer-ig/ and changes regularly. See the Directory of published versions
Contents:
This page provides a list of the FHIR artifacts defined as part of this implementation guide.
These define forms used by systems conforming to this implementation guide to capture or expose data to end users
| BaselineTumorFactors |
Baseline Tumor Factors |
| BreastQ |
Patient Reported Outcomes Instrument about quality of life of patients with breast cancer |
| Demographics |
Demographic Factors |
| EORTCQLQ |
European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ). Including the core questionnaire and the breast cancer and liver metastases colorectal modules |
| FACTES |
Functional Assessment of Cancer Therapy Questionnaire |
| SACQComorbidities |
Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003). |
| Survival |
Survival and disease control questionnaire |
| TreatmentVariables |
Treatment variables |
These define sets of codes used by systems conforming to this implementation guide
| Boolean extended Code System |
Extended Code System of boolean |
| Type of surgery for the Patient Reported Outcomes Instrument (BreastQ) |
Type of surgery of the patient in the Patient Reported Outcomes Instrument about quality of life of patients with breast cancer |
| Patient Reported Outcomes Instrument response (BreastQ) |
Valueset used in the Patient Reported Outcomes Instrument about quality of life of patients with breast cancer |
| BreastSurgeryTypes |
Codes indicating the kind of surgery a patient undertook |
| Type of chemotherapy ValueSet |
Codes indicating the type of chemotherapy |
| Clinical Distant Metastasis |
Clinical distant metastasis (per AJCC 5th - 7th Ed.) |
| Clinical Nodal Stage |
Clinical nodal stage (per AJCC 5th - 7th Ed.) |
| Clinical Tumor Stage |
Clinical tumor stage (per AJCC 5th - 7th Ed.) |
| Complication impact ValueSet |
Codes indicating if the impact of complications |
| Complication type ValueSet |
Codes indicating the type of complication |
| Delayed reconstruction Code System |
Codes indicating type of delayed reconstruction |
| Country |
Country (e.g. of residence) |
| Sex of patient |
Codes used in sex of patient |
| Values used in EORTC-QLQ questionnaire response |
Valueset used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire |
| EducationLevel |
Highest level of education completed based on local standard definitions of education levels |
| Valueset of FACT-ES questionnaire |
Valueset used in the Functional Assessment of Cancer Therapy questionnare |
| Genetic Mutation |
A genetic mutation predisposing the patient to breast cancer |
| HER2 Receptor Status |
HER2 receptor status |
| Historical Type |
Histologic type of the tumor |
| Hormonal therapy type ValueSet |
Codes indicating the type of hormonal therapy |
| Invasion Grade |
Grade of invasive component of tumor |
| Involved margins ValueSet |
Codes indicating if the patient received surgery due to involved margins |
| MenopausalStatus |
Menopausal Status |
| Pathological Distant Metastasis |
Pathological distant metastasis (per AJCC 5th - 7th Ed.) |
| Pathological Nodal Stage |
Pathological nodal stage (per AJCC 5th - 7th Ed.) |
| Pathological Tumor Stage |
Pathological tumor stage (per AJCC 5th - 7th Ed.) |
| Location of radiotherapy ValueSet |
Codes indicating the Location of radiotherapy |
| ReceptorStatus |
Estrogen/progesterone receptor status |
| Method of confirming recurrence |
Codes used describe the method to confirm recurrence of neoplasm |
| Recurrence of neoplasm |
Codes used to indicate recurrence of neoplasm |
| RelationshipStatus |
Relationship Status |
| Reoperations ValueSet |
Codes indicating if the patient received a reoperation |
| Timing of the response of the BreastQ |
Patient reported outcome measures are repeatedly collected from patients. |
| Timing of the response of survival questionnaire |
The survival questionnaire is repeatedly collected from patients starting at the first year post-treatment up untill 10 years post-treatment. |
| Timing of the response of the patient reported outcome measures |
Patient reported outcome measures are repeatedly collected from patients starting at the first doctor’s visit (baseline) up untill 10 years after treatment. |
| SACQ Patient's comorbidity history |
Patient’s documented history of comorbidities |
| Surgery Axilla Types |
Codes indicating the kind of axilla surgery was performed |
| Systemic Therapy ValueSet |
Codes indicating if the patient received systemic therapy |
| Targeted Therapy ValueSet |
Codes indicating type of targeted therapy |
| Intent of Therapy ValueSet |
Codes indicating the intent of Therapy |
| Treatment variables |
Codes indicating the kind of treatment a patient undertook |
| Tumor Grade |
Tumor grade of DCIS component of tumor |
These define new code systems used by systems conforming to this implementation guide
| Boolean extended Code System |
Extended Code System of boolean |
| Patient Reported Outcomes Instrument response (BreastQ) |
Codes used in the Patient Reported Outcomes Instrument about quality of life of patients with breast cancer |
| Type of surgery for BreastQ |
Type of surgery of the patient in the Patient Reported Outcomes Instrument about quality of life of patients with breast cancer |
| Breast surgery types |
Codes indicating the kind of surgery a patient undertook |
| Type of chemotherapy Code System |
Codes indicating the type of chemotherapy |
| Clinical Distant Metastasis Code System |
Clinical distant metastasis (per AJCC 5th - 7th Ed.) |
| Clinical Nodal Stage Code System |
Clinical nodal stage (per AJCC 5th - 7th Ed.) |
| Clinical Tumor Stage Code System |
Clinical tumor stage (per AJCC 5th - 7th Ed.) |
| Complication impact Code System |
Codes indicating if the impact of complications |
| Complication type Code System |
Codes indicating the type of complication |
| Delayed reconstruction Code System |
Codes indicating type of delayed reconstruction |
| Codes used in EORTC-QLQ questionnaire response |
Codes used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire |
| EducationLevelCodeSystem |
Highest level of education completed based on local standard definitions of education levels |
| Codesystem of FACT-ES questionnaire |
Codes used in the Functional Assessment of Cancer Therapy questionnare |
| Genetic Mutation |
A genetic mutation predisposing the patient to breast cancer |
| HER2 Receptor Status Code System |
HER2 receptor status |
| Histological Type |
Histologic type of the tumor |
| Hormonal therapy type Code System |
Codes indicating the type of hormonal therapy |
| Invasion Grade CodeSystem |
Grade of invasive component of tumor |
| Involved margins Code System |
Codes indicating if the patient received surgery due to involved margins |
| MenopausalStatusCodeSystem |
Menopausal Status |
| Pathological Distant Metastasis Code System |
Pathological distant metastasis (per AJCC 5th - 7th Ed.) |
| Pathological Nodal Stage Code System |
Pathological nodal stage (per AJCC 5th - 7th Ed.) |
| Pathological Tumor Stage Code System |
Pathological tumor stage (per AJCC 5th - 7th Ed.) |
| Location of radiotherapy Code System |
Codes indicating the location of radiotherapy |
| Receptor Status Positive Code System |
Estrogen/progesterone receptor status |
| Recurrence of neoplasm |
Codes used to indicate recurrence of neoplasm |
| Method of confirming recurrence |
Codes used describe the method to confirm recurrence of neoplasm |
| RelationshipStatusCodeSystem |
Codes used in ICHOM relationship status that are not available yet in standard terminologies |
| Reoperations Code System |
Codes indicating if the patient received a reoperation |
| Timing of the response of the patient reported outcome measures |
Patient reported outcome measures are repeatedly collected from patients starting at the first doctor’s visit (baseline) up untill 10 years after treatment. |
| SACQ patient's comorbidity history |
Codes used in SACQ patient’s comorbidity history that are not available yet in standard terminologies |
| Surgery Axilla Code System |
Codes indicating the kind of surgery axilla was performed |
| Systemic Therapy Code System |
Codes indicating if the patient received systemic therapy |
| Targeted Therapy Code System |
Codes indicating type of targeted therapy |
| Intent of Therapy Code System |
Codes indicating the intent of Therapy |
| Treatment variables |
Codes indicating the kind of treatment a patient undertook |
| Tumor Grade Code System |
Tumor grade of DCIS component of tumor |
These are example instances that show what data produced and consumed by systems conforming with this implementation guide might look like
| Bundle of all valuesystems and questionnaires related to BaselineTumorFactors |
Bundle of the BaselineTumorFactors Questionnaire |
| Bundle of all valuesystems and questionnaires related to BreastQ |
Bundle of the Patient Reported Outcomes Instrument about quality of life of patients with breast cancer |
| Bundle of all valuesystems and questionnaires related to EORTCQLQ |
Bundle of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ) |
| Bundle of all valuesystems and questionnaires related to FACT-ES |
Bundle of the Functional Assesment of Cancer Therapy Questionnaire |
| Bundle of all valuesystems and questionnaires related to SACQComorbidities |
Bundle of the Self-administered Comorbidity Questionnaire |
| Bundle of all valuesystems and questionnaires related to Survival and Disease control |
Bundle of the Survival and disease control questionnaire |
| Bundle of all valuesystems and questionnaires related to demographics |
Bundle of the Demographics Questionnaire |
IG © 2021+ ICHOM. Package hl7.fhir.uv.ichom.breastcancer#0.0.1 based on FHIR 4.0.1. Generated 2022-03-28
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