Research Data Sharing IG
1.0.0 - CI Build
Research Data Sharing IG
1.0.0 - CI Build
Research Data Sharing IG, published by IEHR-Workgroup. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/InteropEHRate-project/research-data-sharing/ and changes regularly. See the Directory of published versions
This page contains a list with the name and a short description for all the extensions, that are defined in this IG. To see a list of all FHIR artifacts defined as part of this IG go to Artifact Index.
This extension extends the ResearchStudy resource and contains the type of annonymization used by the study
Currently only anonymization and pseudoanonymization are valid types, but the list can be extended if necessary.
This extension extends the ResearchStudy resource and contains a list of all DataRequirements for the study.
Since each DataRequirement is one requested data point the DataSetDefinition contains a list of all information requested as part of the study.
This extension extends the ResearchStudy resource and the period during which new particapits can enroll in the study.
This extension extends the DataRequirement resource and contains the information how often the data should be send.
This extension extends the DataRequirement resource and contains information how matching resources should be transformed before they are send.
If this extension is missing from a DataRequirement the whole resource should be send.
This extension contains a ValueSet with codes that can be used for the operator in Coding-IEHR.
This extension extends the ResearchStudy resource and contains a questionnaire that participats should fill out.
It also contains a frequency how often the participant should be remindet to fill out the questionnaire and its deadline.