Research Data Sharing IG
1.0.0 - CI Build
Research Data Sharing IG, published by IEHR-Workgroup. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/InteropEHRate-project/research-data-sharing/ and changes regularly. See the Directory of published versions
@prefix fhir: <http://hl7.org/fhir/> .
@prefix loinc: <https://loinc.org/rdf/> .
@prefix owl: <http://www.w3.org/2002/07/owl#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix sct: <http://snomed.info/id/> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .
# - resource -------------------------------------------------------------------
a fhir:Bundle ;
fhir:nodeRole fhir:treeRoot ;
fhir:id [ fhir:v "3201111"] ; #
fhir:language [ fhir:v "en"] ; #
fhir:type [ fhir:v "collection"] ; #
fhir:timestamp [ fhir:v "2022-05-10T10:28:21.059+02:00"^^xsd:dateTime] ; #
fhir:entry ( [
fhir:fullUrl [ fhir:v "http://interopEHRate.eu/fhir-resource/ResearchStudy/320843325731"^^xsd:anyURI ] ;
( fhir:resource <http://interopEHRate.eu/fhir-resource/ResearchStudy/320843325731> )
] [
fhir:fullUrl [ fhir:v "http://interopEHRate.eu/fhir-resource/Group/32085497"^^xsd:anyURI ] ;
( fhir:resource <http://interopEHRate.eu/fhir-resource/Group/32085497> )
] [
fhir:fullUrl [ fhir:v "http://interopEHRate.eu/fhir-resource/Location/320993"^^xsd:anyURI ] ;
( fhir:resource <http://interopEHRate.eu/fhir-resource/Location/320993> )
] [
fhir:fullUrl [ fhir:v "http://interopEHRate.eu/fhir-resource/Endpoint/433363"^^xsd:anyURI ] ;
( fhir:resource <http://interopEHRate.eu/fhir-resource/Endpoint/433363> )
] ) . #
<http://interopEHRate.eu/fhir-resource/ResearchStudy/320843325731> a fhir:ResearchStudy ;
fhir:id [ fhir:v "320843325731"] ; #
fhir:meta [
( fhir:profile [
fhir:v "http://interopehrate.eu/fhir/StructureDefinition/ResearchStudy-IEHR"^^xsd:anyURI ;
fhir:link <http://interopehrate.eu/fhir/StructureDefinition/ResearchStudy-IEHR> ] )
] ; #
fhir:language [ fhir:v "en"] ; #
fhir:text [
fhir:status [ fhir:v "extensions" ] ;
fhir:div "<div xmlns=\"http://www.w3.org/1999/xhtml\">Example Study with functions in the DataRequirements</div>"
] ; #
fhir:extension ( [
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/EnrollmentPeriodExtension-IEHR"^^xsd:anyURI ] ;
fhir:value [
a fhir:Period ;
fhir:start [ fhir:v "2022-01-01"^^xsd:date ] ;
fhir:end [ fhir:v "2022-07-01"^^xsd:date ] ]
] [
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/AnonymizationExtension-IEHR"^^xsd:anyURI ] ;
fhir:value [
a fhir:Coding ;
fhir:system [ fhir:v "http://interopehrate.eu/fhir/CodeSystem/AnonymizationType-IEHR"^^xsd:anyURI ] ;
fhir:code [ fhir:v "pseudonymization" ] ;
fhir:display [ fhir:v "Pseudonymization" ] ]
] [
( fhir:extension [
fhir:url [ fhir:v "DataRequirement"^^xsd:anyURI ] ;
fhir:value [
a fhir:DataRequirement ;
( fhir:extension [
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/FrequencyExtension-IEHR"^^xsd:anyURI ] ;
fhir:value [
a fhir:Timing ;
fhir:repeat [
fhir:frequency [ fhir:v "1"^^xsd:positiveInteger ] ;
fhir:period [ fhir:v "1"^^xsd:decimal ] ;
fhir:periodUnit [ fhir:v "wk" ] ] ] ] [
( fhir:extension [
fhir:url [ fhir:v "Name"^^xsd:anyURI ] ;
fhir:value [
a fhir:Coding ;
fhir:system [ fhir:v "http://interopehrate.eu/fhir/CodeSystem/Function-Codes-IEHR"^^xsd:anyURI ] ;
fhir:code [ fhir:v "element" ] ] ] [
fhir:url [ fhir:v "Parameter"^^xsd:anyURI ] ;
fhir:value [ fhir:v "value" ] ] ) ;
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/FunctionExtension-IEHR"^^xsd:anyURI ] ] ) ;
fhir:type [ fhir:v "Observation" ] ;
( fhir:codeFilter [
fhir:path [ fhir:v "code" ] ;
( fhir:code [
a loinc:8310-5 ;
fhir:system [ fhir:v "http://loinc.org"^^xsd:anyURI ] ;
fhir:code [ fhir:v "8310-5" ] ;
fhir:display [ fhir:v "Body temperature" ] ] ) ] ) ;
( fhir:dateFilter [
fhir:path [ fhir:v "effectivePeriod" ] ;
fhir:value [
a fhir:Period ;
fhir:start [ fhir:v "2020-01-01"^^xsd:date ] ;
fhir:end [ fhir:v "2022-12-31"^^xsd:date ] ] ] ) ] ] [
fhir:url [ fhir:v "DataRequirement"^^xsd:anyURI ] ;
fhir:value [
a fhir:DataRequirement ;
( fhir:extension [
( fhir:extension [
fhir:url [ fhir:v "Name"^^xsd:anyURI ] ;
fhir:value [
a fhir:Coding ;
fhir:system [ fhir:v "http://interopehrate.eu/fhir/CodeSystem/Function-Codes-IEHR"^^xsd:anyURI ] ;
fhir:code [ fhir:v "ageFromDate" ] ] ] [
fhir:url [ fhir:v "Parameter"^^xsd:anyURI ] ;
fhir:value [ fhir:v "subject" ] ] [
fhir:url [ fhir:v "Parameter"^^xsd:anyURI ] ;
fhir:value [ fhir:v "effectiveDateTime" ] ] ) ;
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/FunctionExtension-IEHR"^^xsd:anyURI ] ] ) ;
fhir:type [ fhir:v "Observation" ] ;
( fhir:codeFilter [
fhir:path [ fhir:v "code" ] ;
( fhir:code [
a loinc:67502-5 ;
fhir:system [ fhir:v "http://loinc.org"^^xsd:anyURI ] ;
fhir:code [ fhir:v "67502-5" ] ] ) ] ) ;
( fhir:dateFilter [
fhir:path [ fhir:v "effectivePeriod" ] ;
fhir:value [
a fhir:Period ;
fhir:start [ fhir:v "2015-01-01"^^xsd:date ] ;
fhir:end [ fhir:v "2020-01-01"^^xsd:date ] ] ] ) ] ] [
fhir:url [ fhir:v "DataRequirement"^^xsd:anyURI ] ;
fhir:value [
a fhir:DataRequirement ;
( fhir:extension [
( fhir:extension [
fhir:url [ fhir:v "Name"^^xsd:anyURI ] ;
fhir:value [
a fhir:Coding ;
fhir:system [ fhir:v "http://interopehrate.eu/fhir/CodeSystem/Function-Codes-IEHR"^^xsd:anyURI ] ;
fhir:code [ fhir:v "count" ] ] ] ) ;
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/FunctionExtension-IEHR"^^xsd:anyURI ] ] ) ;
fhir:type [ fhir:v "Procedure" ] ;
( fhir:codeFilter [
fhir:path [ fhir:v "code" ] ;
( fhir:code [
a sct:3130004 ;
fhir:system [ fhir:v "http://snomed.info/sct"^^xsd:anyURI ] ;
fhir:code [ fhir:v "3130004" ] ] ) ] ) ;
( fhir:dateFilter [
fhir:path [ fhir:v "effectivePeriod" ] ;
fhir:value [
a fhir:Period ;
fhir:start [ fhir:v "2015-01-01"^^xsd:date ] ;
fhir:end [ fhir:v "2020-01-01"^^xsd:date ] ] ] ) ] ] ) ;
fhir:url [ fhir:v "http://interopehrate.eu/fhir/StructureDefinition/DataSetDefinitionExtension-IEHR"^^xsd:anyURI ]
] ) ; #
fhir:identifier ( [
fhir:system [ fhir:v "http://interopEHRate.eu/fhir-resource/"^^xsd:anyURI ] ;
fhir:value [ fhir:v "320843325731" ]
] ) ; #
fhir:title [ fhir:v "FunctionExample Study"] ; #
fhir:status [ fhir:v "active"] ; #
fhir:primaryPurposeType [
( fhir:coding [
fhir:system [ fhir:v "http://terminology.hl7.org/CodeSystem/research-study-prim-purp-type"^^xsd:anyURI ] ;
fhir:code [ fhir:v "screening" ] ;
fhir:display [ fhir:v "Screening" ] ] )
] ; #
fhir:contact ( [
fhir:name [ fhir:v "Dr. Stefano Dalmiani" ] ;
( fhir:telecom [
fhir:system [ fhir:v "phone" ] ;
fhir:value [ fhir:v "+39 050 315 3711" ] ] )
] ) ; #
fhir:location ( [
( fhir:coding [
fhir:system [ fhir:v "urn:iso:std:iso:3166"^^xsd:anyURI ] ;
fhir:code [ fhir:v "IT" ] ;
fhir:display [ fhir:v "Italy" ] ] )
] ) ; #
fhir:description [ fhir:v "Example Study with functions in the DataRequirements"] ; #
fhir:enrollment ( [
fhir:reference [ fhir:v "Group/32085497" ]
] ) ; #
fhir:period [
fhir:start [ fhir:v "2022-01-01"^^xsd:date ] ;
fhir:end [ fhir:v "2022-12-31"^^xsd:date ]
] ; #
fhir:site ( [
fhir:reference [ fhir:v "Location/320993" ]
] ) . #
<http://interopEHRate.eu/fhir-resource/Group/32085497> a fhir:Group ;
fhir:id [ fhir:v "32085497"] ; #
fhir:meta [
( fhir:profile [
fhir:v "http://interopehrate.eu/fhir/StructureDefinition/Group-Cohort-IEHR"^^xsd:anyURI ;
fhir:link <http://interopehrate.eu/fhir/StructureDefinition/Group-Cohort-IEHR> ] )
] ; #
fhir:text [
fhir:status [ fhir:v "generated" ] ;
fhir:div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><a name=\"Group_32085497\"> </a><p><b>Generated Narrative: Group</b><a name=\"32085497\"> </a><a name=\"hc32085497\"> </a></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource Group "32085497" </p><p style=\"margin-bottom: 0px\">Profile: <a href=\"StructureDefinition-Group-Cohort-IEHR.html\">Cohort</a></p></div><p><b>type</b>: person</p><p><b>actual</b>: false</p><h3>Characteristics</h3><table class=\"grid\"><tr><td style=\"display: none\">-</td><td><b>Code</b></td><td><b>Value[x]</b></td><td><b>Exclude</b></td></tr><tr><td style=\"display: none\">*</td><td>Age <span style=\"background: LightGoldenRodYellow; margin: 4px; border: 1px solid khaki\"> (<a href=\"https://loinc.org/\">LOINC</a>#30525-0)</span></td><td>65-? years</td><td>false</td></tr></table></div>"
] ; #
fhir:type [ fhir:v "person"] ; #
fhir:actual [ fhir:v "false"^^xsd:boolean] ; #
fhir:characteristic ( [
fhir:code [
( fhir:coding [
a loinc:30525-0 ;
fhir:system [ fhir:v "http://loinc.org"^^xsd:anyURI ] ;
fhir:code [ fhir:v "30525-0" ] ;
fhir:display [ fhir:v "Age" ] ] ) ] ;
fhir:value [
a fhir:Range ;
fhir:low [
fhir:value [ fhir:v "65"^^xsd:decimal ] ;
fhir:unit [ fhir:v "years" ] ;
fhir:system [ fhir:v "http://unitsofmeasure.org"^^xsd:anyURI ] ;
fhir:code [ fhir:v "a" ] ] ] ;
fhir:exclude [ fhir:v "false"^^xsd:boolean ]
] ) . #
<http://interopEHRate.eu/fhir-resource/Location/320993> a fhir:Location ;
fhir:id [ fhir:v "320993"] ; #
fhir:meta [
( fhir:profile [
fhir:v "http://interopehrate.eu/fhir/StructureDefinition/Location-ReferenceResearchCenter-IEHR"^^xsd:anyURI ;
fhir:link <http://interopehrate.eu/fhir/StructureDefinition/Location-ReferenceResearchCenter-IEHR> ] )
] ; #
fhir:text [
fhir:status [ fhir:v "generated" ] ;
fhir:div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><a name=\"Location_320993\"> </a><p><b>Generated Narrative: Location</b><a name=\"320993\"> </a><a name=\"hc320993\"> </a></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource Location "320993" </p><p style=\"margin-bottom: 0px\">Profile: <a href=\"StructureDefinition-Location-ReferenceResearchCenter-IEHR.html\">ResearchLocation</a></p></div><p><b>identifier</b>: <code>http://interopEHRate.eu/fhir-resource/</code>/Location/FTGM01</p><p><b>name</b>: Fondazione Toscana Gabriele Monasterio</p><p><b>type</b>: Cardiovascular diagnostics or therapeutics unit <span style=\"background: LightGoldenRodYellow; margin: 4px; border: 1px solid khaki\"> (<a href=\"http://terminology.hl7.org/5.3.0/CodeSystem-v3-RoleCode.html\">RoleCode</a>#CVDX)</span></p><p><b>telecom</b>: <a href=\"tel:+390503153229\">+39 050 315 3229</a></p><p><b>address</b>: Via Giuseppe Moruzzi 1 Pisa ITA (work)</p><p><b>endpoint</b>: See on this page: Endpoint/433363</p></div>"
] ; #
fhir:identifier ( [
fhir:system [ fhir:v "http://interopEHRate.eu/fhir-resource/"^^xsd:anyURI ] ;
fhir:value [ fhir:v "Location/FTGM01" ]
] ) ; #
fhir:name [ fhir:v "Fondazione Toscana Gabriele Monasterio"] ; #
fhir:type ( [
( fhir:coding [
fhir:system [ fhir:v "http://terminology.hl7.org/CodeSystem/v3-RoleCode"^^xsd:anyURI ] ;
fhir:code [ fhir:v "CVDX" ] ;
fhir:display [ fhir:v "Cardiovascular diagnostics or therapeutics unit" ] ] )
] ) ; #
fhir:telecom ( [
fhir:system [ fhir:v "phone" ] ;
fhir:value [ fhir:v "+39 050 315 3229" ] ;
fhir:use [ fhir:v "work" ]
] ) ; #
fhir:address [
fhir:use [ fhir:v "work" ] ;
fhir:type [ fhir:v "postal" ] ;
( fhir:line [ fhir:v "Via Giuseppe Moruzzi 1" ] ) ;
fhir:city [ fhir:v "Pisa" ] ;
fhir:country [ fhir:v "ITA" ]
] ; #
fhir:endpoint ( [
fhir:reference [ fhir:v "Endpoint/433363" ]
] ) . #
<http://interopEHRate.eu/fhir-resource/Endpoint/433363> a fhir:Endpoint ;
fhir:id [ fhir:v "433363"] ; #
fhir:text [
fhir:status [ fhir:v "generated" ] ;
fhir:div "<div xmlns=\"http://www.w3.org/1999/xhtml\"><a name=\"Endpoint_433363\"> </a><p><b>Generated Narrative: Endpoint</b><a name=\"433363\"> </a><a name=\"hc433363\"> </a></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource Endpoint "433363" </p></div><p><b>status</b>: off</p><p><b>connectionType</b>: HL7 FHIR (Details: http://terminology.hl7.org/CodeSystem/endpoint-connection-type code hl7-fhir-rest = 'HL7 FHIR', stated as 'HL7 FHIR')</p><p><b>payloadType</b>: Any <span style=\"background: LightGoldenRodYellow; margin: 4px; border: 1px solid khaki\"> (<a href=\"http://terminology.hl7.org/5.3.0/CodeSystem-endpoint-payload-type.html\">Endpoint Payload Type</a>#any)</span></p><p><b>address</b>: <a href=\"http://interopEHRate.eu/rdd/endpoint\">http://interopEHRate.eu/rdd/endpoint</a></p></div>"
] ; #
fhir:status [ fhir:v "off"] ; #
fhir:connectionType [
fhir:system [ fhir:v "http://terminology.hl7.org/CodeSystem/endpoint-connection-type"^^xsd:anyURI ] ;
fhir:code [ fhir:v "hl7-fhir-rest" ] ;
fhir:display [ fhir:v "HL7 FHIR" ]
] ; #
fhir:payloadType ( [
( fhir:coding [
fhir:system [ fhir:v "http://terminology.hl7.org/CodeSystem/endpoint-payload-type"^^xsd:anyURI ] ;
fhir:code [ fhir:v "any" ] ;
fhir:display [ fhir:v "Any" ] ] )
] ) ; #
fhir:address [ fhir:v "http://interopEHRate.eu/rdd/endpoint"^^xsd:anyURI] . #
IG © 2019+ IEHR-Workgroup. Package fhir.uv.researchdatasharing#1.0.0 based on FHIR 4.0.1. Generated 2024-04-08
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