4.4.1.198 ValueSet http://hl7.org/fhir/ValueSet/consent-category

Actions to be taken if they are no longer able to make decisions for themselves

Consent to participate in research protocol and information sharing required

Agreement to collect, access, use or disclose (share) information

Consent to undergo a specific treatment

Any instructions, written or given verbally by a patient in anticipation of potential need for medical treatment.

A legal document, signed by both the patient and their provider, stating a desire not to have CPR initiated in case of a cardiac event.

Opt-in to disclosure of health information for emergency only consent directive. Comment: This general consent directive specifically limits disclosure of health information for purpose of emergency treatment. Additional parameters may further limit the disclosure to specific users, roles, duration, types of information, and impose uses obligations.

Patient authored document communicating to patient's health care provider(s) instructions about the patient's goals, preferences, and priorities if the patient is diagnosed as being terminally ill and in a persistent vegetative state, is in a permanently unconscious condition or is otherwise unable to communicate thoe instructions.

Acknowledgement of custodian notice of privacy practices. Usage Notes: This type of consent directive acknowledges a custodian's notice of privacy practices including its permitted collection, access, use and disclosure of health information to users and for purposes of use specified.

The Physician Order for Life-Sustaining Treatment form records a person's health care wishes for end of life emergency treatment and translates them into an order by the physician. It must be reviewed and signed by both the patient and the physician, Advanced Registered Nurse Practitioner or Physician Assistant.

Consent to have healthcare information in an electronic health record accessed for research purposes.

Consent to have de-identified healthcare information in an electronic health record that is accessed for research purposes, but without consent to re-identify the information under any circumstance.

Consent to have de-identified healthcare information in an electronic health record that is accessed for research purposes re-identified under specific circumstances outlined in the consent.

Definition: The type of consent directive, e.g., to consent or dissent to collect, access, or use in specific ways within an EHRS or for health information exchange; or to disclose health information for purposes such as research.

Definition: Consent to have healthcare information collected in an electronic health record. This entails that the information may be used in analysis, modified, updated.

Definition: Consent to have collected healthcare information disclosed.

Definition: Consent to access healthcare information.

Definition: Consent to access or "read" only, which entails that the information is not to be copied, screen printed, saved, emailed, stored, re-disclosed or altered in any way. This level ensures that data which is masked or to which access is restricted will not be.

Example: Opened and then emailed or screen printed for use outside of the consent directive purpose.

Definition: Consent to access and save only, which entails that access to the saved copy will remain locked.

Definition: Information re-disclosed without the patient's consent.

Definition: Consent to have healthcare information in an electronic health record accessed for research purposes.

Definition: Consent to have de-identified healthcare information in an electronic health record that is accessed for research purposes, but without consent to re-identify the information under any circumstance.

Definition: Consent to have de-identified healthcare information in an electronic health record that is accessed for research purposes re-identified under specific circumstances outlined in the consent.

Example:: Where there is a need to inform the subject of potential health issues.