Research Data Sharing IG, published by IEHR-Workgroup. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/InteropEHRate-project/research-data-sharing/ and changes regularly. See the Directory of published versions

• Content
• Detailed Descriptions
• Mappings
• Examples
• XML
• JSON
• TTL

Resource Profile: ReferenceResearchCenter-IEHR

Usage:

• Refer to this Resource Profile: ResearchStudyIEHR
• Examples for this Resource Profile: Cardiovascular practice Milano, CHU de Liège and Fondazione Toscana Gabriele Monasterio

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

• Differential Table
• Key Elements Table
• Snapshot Table
• Statistics/References
• All

This structure is derived from Location

Name	Flags	Card.	Type	Description & Constraints
Location		0..*	Location	Details and position information for a physical place
identifier		0..1	Identifier	Unique code or number identifying the location to its users
name		1..1	string	Name of the location as used by humans
type		1..1	CodeableConcept	Type of function performed
telecom		1..1	ContactPoint	Contact details of the location
address		1..1	Address	Physical location
endpoint		1..1	Reference(Endpoint)	Technical endpoints providing access to services operated for the location
Documentation for this format

Name	Flags	Card.	Type	Description & Constraints
Location		0..*	Location	Details and position information for a physical place
implicitRules	?!Σ	0..1	uri	A set of rules under which this content was created
modifierExtension	?!	0..*	Extension	Extensions that cannot be ignored
identifier	Σ	0..1	Identifier	Unique code or number identifying the location to its users
status	?!Σ	0..1	code	active | suspended | inactive Binding: LocationStatus (required): Indicates whether the location is still in use.
name	Σ	1..1	string	Name of the location as used by humans
type	Σ	1..1	CodeableConcept	Type of function performed Binding: ServiceDeliveryLocationRoleType (extensible): Indicates the type of function performed at the location.
telecom		1..1	ContactPoint	Contact details of the location
address		1..1	Address	Physical location
endpoint		1..1	Reference(Endpoint)	Technical endpoints providing access to services operated for the location
Documentation for this format

Terminology Bindings

Path	Conformance	ValueSet	URI
Location.status	required	LocationStatus http://hl7.org/fhir/ValueSet/location-status|4.0.1 from the FHIR Standard
Location.type	extensible	ServiceDeliveryLocationRoleType http://terminology.hl7.org/ValueSet/v3-ServiceDeliveryLocationRoleType

Constraints

Id	Grade	Path(s)	Details	Requirements
dom-2	error	Location	If the resource is contained in another resource, it SHALL NOT contain nested Resources : contained.contained.empty()
dom-3	error	Location	If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource : contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4	error	Location	If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated : contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5	error	Location	If a resource is contained in another resource, it SHALL NOT have a security label : contained.meta.security.empty()
dom-6	best practice	Location	A resource should have narrative for robust management : text.`div`.exists()
ele-1	error	**ALL** elements	All FHIR elements must have a @value or children : hasValue() or (children().count() > id.count())
ext-1	error	**ALL** extensions	Must have either extensions or value[x], not both : extension.exists() != value.exists()

Name	Flags	Card.	Type	Description & Constraints
Location		0..*	Location	Details and position information for a physical place
id	Σ	0..1	id	Logical id of this artifact
meta	Σ	0..1	Meta	Metadata about the resource
implicitRules	?!Σ	0..1	uri	A set of rules under which this content was created
language		0..1	code	Language of the resource content Binding: CommonLanguages (preferred): A human language. Additional Bindings Purpose AllLanguages Max Binding
text		0..1	Narrative	Text summary of the resource, for human interpretation
contained		0..*	Resource	Contained, inline Resources
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!	0..*	Extension	Extensions that cannot be ignored
identifier	Σ	0..1	Identifier	Unique code or number identifying the location to its users
status	?!Σ	0..1	code	active | suspended | inactive Binding: LocationStatus (required): Indicates whether the location is still in use.
operationalStatus	Σ	0..1	Coding	The operational status of the location (typically only for a bed/room) Binding: hl7VS-bedStatus (preferred): The operational status if the location (where typically a bed/room).
name	Σ	1..1	string	Name of the location as used by humans
alias		0..*	string	A list of alternate names that the location is known as, or was known as, in the past
description	Σ	0..1	string	Additional details about the location that could be displayed as further information to identify the location beyond its name
mode	Σ	0..1	code	instance | kind Binding: LocationMode (required): Indicates whether a resource instance represents a specific location or a class of locations.
type	Σ	1..1	CodeableConcept	Type of function performed Binding: ServiceDeliveryLocationRoleType (extensible): Indicates the type of function performed at the location.
telecom		1..1	ContactPoint	Contact details of the location
address		1..1	Address	Physical location
physicalType	Σ	0..1	CodeableConcept	Physical form of the location Binding: LocationType (example): Physical form of the location.
position		0..1	BackboneElement	The absolute geographic location
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
longitude		1..1	decimal	Longitude with WGS84 datum
latitude		1..1	decimal	Latitude with WGS84 datum
altitude		0..1	decimal	Altitude with WGS84 datum
managingOrganization	Σ	0..1	Reference(Organization)	Organization responsible for provisioning and upkeep
partOf		0..1	Reference(Location)	Another Location this one is physically a part of
hoursOfOperation		0..*	BackboneElement	What days/times during a week is this location usually open
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
daysOfWeek		0..*	code	mon | tue | wed | thu | fri | sat | sun Binding: DaysOfWeek (required): The days of the week.
allDay		0..1	boolean	The Location is open all day
openingTime		0..1	time	Time that the Location opens
closingTime		0..1	time	Time that the Location closes
availabilityExceptions		0..1	string	Description of availability exceptions
endpoint		1..1	Reference(Endpoint)	Technical endpoints providing access to services operated for the location
Documentation for this format

Terminology Bindings

Path	Conformance	ValueSet	URI
Location.language	preferred	CommonLanguages Additional Bindings Purpose AllLanguages Max Binding http://hl7.org/fhir/ValueSet/languages from the FHIR Standard
Location.status	required	LocationStatus http://hl7.org/fhir/ValueSet/location-status|4.0.1 from the FHIR Standard
Location.operationalStatus	preferred	Hl7VSBedStatus http://terminology.hl7.org/ValueSet/v2-0116
Location.mode	required	LocationMode http://hl7.org/fhir/ValueSet/location-mode|4.0.1 from the FHIR Standard
Location.type	extensible	ServiceDeliveryLocationRoleType http://terminology.hl7.org/ValueSet/v3-ServiceDeliveryLocationRoleType
Location.physicalType	example	LocationType http://hl7.org/fhir/ValueSet/location-physical-type from the FHIR Standard
Location.hoursOfOperation.daysOfWeek	required	DaysOfWeek http://hl7.org/fhir/ValueSet/days-of-week|4.0.1 from the FHIR Standard

Constraints

Id	Grade	Path(s)	Details	Requirements
dom-2	error	Location	If the resource is contained in another resource, it SHALL NOT contain nested Resources : contained.contained.empty()
dom-3	error	Location	If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource : contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4	error	Location	If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated : contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5	error	Location	If a resource is contained in another resource, it SHALL NOT have a security label : contained.meta.security.empty()
dom-6	best practice	Location	A resource should have narrative for robust management : text.`div`.exists()
ele-1	error	**ALL** elements	All FHIR elements must have a @value or children : hasValue() or (children().count() > id.count())
ext-1	error	**ALL** extensions	Must have either extensions or value[x], not both : extension.exists() != value.exists()

This structure is derived from Location

Summary

Mandatory: 5 elements

Differential View

This structure is derived from Location

Name	Flags	Card.	Type	Description & Constraints
Location		0..*	Location	Details and position information for a physical place
identifier		0..1	Identifier	Unique code or number identifying the location to its users
name		1..1	string	Name of the location as used by humans
type		1..1	CodeableConcept	Type of function performed
telecom		1..1	ContactPoint	Contact details of the location
address		1..1	Address	Physical location
endpoint		1..1	Reference(Endpoint)	Technical endpoints providing access to services operated for the location
Documentation for this format

Key Elements View

Name	Flags	Card.	Type	Description & Constraints
Location		0..*	Location	Details and position information for a physical place
implicitRules	?!Σ	0..1	uri	A set of rules under which this content was created
modifierExtension	?!	0..*	Extension	Extensions that cannot be ignored
identifier	Σ	0..1	Identifier	Unique code or number identifying the location to its users
status	?!Σ	0..1	code	active | suspended | inactive Binding: LocationStatus (required): Indicates whether the location is still in use.
name	Σ	1..1	string	Name of the location as used by humans
type	Σ	1..1	CodeableConcept	Type of function performed Binding: ServiceDeliveryLocationRoleType (extensible): Indicates the type of function performed at the location.
telecom		1..1	ContactPoint	Contact details of the location
address		1..1	Address	Physical location
endpoint		1..1	Reference(Endpoint)	Technical endpoints providing access to services operated for the location
Documentation for this format

Terminology Bindings

Path	Conformance	ValueSet	URI
Location.status	required	LocationStatus http://hl7.org/fhir/ValueSet/location-status|4.0.1 from the FHIR Standard
Location.type	extensible	ServiceDeliveryLocationRoleType http://terminology.hl7.org/ValueSet/v3-ServiceDeliveryLocationRoleType

Constraints

Id	Grade	Path(s)	Details	Requirements
dom-2	error	Location	If the resource is contained in another resource, it SHALL NOT contain nested Resources : contained.contained.empty()
dom-3	error	Location	If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource : contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4	error	Location	If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated : contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5	error	Location	If a resource is contained in another resource, it SHALL NOT have a security label : contained.meta.security.empty()
dom-6	best practice	Location	A resource should have narrative for robust management : text.`div`.exists()
ele-1	error	**ALL** elements	All FHIR elements must have a @value or children : hasValue() or (children().count() > id.count())
ext-1	error	**ALL** extensions	Must have either extensions or value[x], not both : extension.exists() != value.exists()

Snapshot View

Name	Flags	Card.	Type	Description & Constraints
Location		0..*	Location	Details and position information for a physical place
id	Σ	0..1	id	Logical id of this artifact
meta	Σ	0..1	Meta	Metadata about the resource
implicitRules	?!Σ	0..1	uri	A set of rules under which this content was created
language		0..1	code	Language of the resource content Binding: CommonLanguages (preferred): A human language. Additional Bindings Purpose AllLanguages Max Binding
text		0..1	Narrative	Text summary of the resource, for human interpretation
contained		0..*	Resource	Contained, inline Resources
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!	0..*	Extension	Extensions that cannot be ignored
identifier	Σ	0..1	Identifier	Unique code or number identifying the location to its users
status	?!Σ	0..1	code	active | suspended | inactive Binding: LocationStatus (required): Indicates whether the location is still in use.
operationalStatus	Σ	0..1	Coding	The operational status of the location (typically only for a bed/room) Binding: hl7VS-bedStatus (preferred): The operational status if the location (where typically a bed/room).
name	Σ	1..1	string	Name of the location as used by humans
alias		0..*	string	A list of alternate names that the location is known as, or was known as, in the past
description	Σ	0..1	string	Additional details about the location that could be displayed as further information to identify the location beyond its name
mode	Σ	0..1	code	instance | kind Binding: LocationMode (required): Indicates whether a resource instance represents a specific location or a class of locations.
type	Σ	1..1	CodeableConcept	Type of function performed Binding: ServiceDeliveryLocationRoleType (extensible): Indicates the type of function performed at the location.
telecom		1..1	ContactPoint	Contact details of the location
address		1..1	Address	Physical location
physicalType	Σ	0..1	CodeableConcept	Physical form of the location Binding: LocationType (example): Physical form of the location.
position		0..1	BackboneElement	The absolute geographic location
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
longitude		1..1	decimal	Longitude with WGS84 datum
latitude		1..1	decimal	Latitude with WGS84 datum
altitude		0..1	decimal	Altitude with WGS84 datum
managingOrganization	Σ	0..1	Reference(Organization)	Organization responsible for provisioning and upkeep
partOf		0..1	Reference(Location)	Another Location this one is physically a part of
hoursOfOperation		0..*	BackboneElement	What days/times during a week is this location usually open
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
daysOfWeek		0..*	code	mon | tue | wed | thu | fri | sat | sun Binding: DaysOfWeek (required): The days of the week.
allDay		0..1	boolean	The Location is open all day
openingTime		0..1	time	Time that the Location opens
closingTime		0..1	time	Time that the Location closes
availabilityExceptions		0..1	string	Description of availability exceptions
endpoint		1..1	Reference(Endpoint)	Technical endpoints providing access to services operated for the location
Documentation for this format

Terminology Bindings

Path	Conformance	ValueSet	URI
Location.language	preferred	CommonLanguages Additional Bindings Purpose AllLanguages Max Binding http://hl7.org/fhir/ValueSet/languages from the FHIR Standard
Location.status	required	LocationStatus http://hl7.org/fhir/ValueSet/location-status|4.0.1 from the FHIR Standard
Location.operationalStatus	preferred	Hl7VSBedStatus http://terminology.hl7.org/ValueSet/v2-0116
Location.mode	required	LocationMode http://hl7.org/fhir/ValueSet/location-mode|4.0.1 from the FHIR Standard
Location.type	extensible	ServiceDeliveryLocationRoleType http://terminology.hl7.org/ValueSet/v3-ServiceDeliveryLocationRoleType
Location.physicalType	example	LocationType http://hl7.org/fhir/ValueSet/location-physical-type from the FHIR Standard
Location.hoursOfOperation.daysOfWeek	required	DaysOfWeek http://hl7.org/fhir/ValueSet/days-of-week|4.0.1 from the FHIR Standard

Constraints

Id	Grade	Path(s)	Details	Requirements
dom-2	error	Location	If the resource is contained in another resource, it SHALL NOT contain nested Resources : contained.contained.empty()
dom-3	error	Location	If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource : contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4	error	Location	If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated : contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5	error	Location	If a resource is contained in another resource, it SHALL NOT have a security label : contained.meta.security.empty()
dom-6	best practice	Location	A resource should have narrative for robust management : text.`div`.exists()
ele-1	error	**ALL** elements	All FHIR elements must have a @value or children : hasValue() or (children().count() > id.count())
ext-1	error	**ALL** extensions	Must have either extensions or value[x], not both : extension.exists() != value.exists()

This structure is derived from Location

Summary

Mandatory: 5 elements

Other representations of profile: CSV, Excel, Schematron