Kenya National Cancer Control Programme (NCCP) FHIR Implementation Guide, published by Digital Health Agency (DHA), Kenya. This guide is not an authorized publication; it is the continuous build for version 0.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/IntelliSOFT-Consulting/nccpFHIRIG/ and changes regularly. See the Directory of published versions
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Draft · Version 0.1.0 · FHIR R4
Kenya NCCP FHIR Implementation Guide
Standardizing oncology data exchange for the National Cancer Control Programme
across Kenya's cancer treatment facilities, referral networks, and Social Health Authority (SHA)
claims system.
36
FHIR Profiles
55
Extensions
31
Value Sets
31
Code Systems
About This Guide
This Implementation Guide (IG) defines the FHIR R4 data exchange specification for the
Kenya National Cancer Control Programme (NCCP), published by the
Digital Health Agency (DHA) under the Ministry of Health, Republic of Kenya.
The NCCP IG enables interoperable, structured exchange of oncology clinical data — including
diagnosis, chemotherapy and radiotherapy care plans, treatment administration records,
adverse events, staging observations, and insurance claims — across Kenya's cancer care ecosystem.
Current Status: Draft (CI Build)
This Implementation Guide is under active development. Content is subject to change.
Feedback and contributions are welcome via the
Digital Health Agency.
Scope of This Guide
Oncology Diagnosis
Structured FHIR profiles for cancer diagnosis conditions, morphology observations, TNM staging,
and performance status. Supports ICD-O-3, SNOMED CT, and LOINC coding.
Chemotherapy
Profiles for chemotherapy care plans, medication requests (BSA-based dosing), medication
administration records, and request groups for cycle/session management.
Radiotherapy
Profiles capturing radiotherapy service requests, treatment plans (fractions, dose, technique),
fraction delivery procedures, cumulative dose observations, and target volumes.
Care Coordination
Oncology episode of care, encounters, multidisciplinary care team, and care plan structures
linking diagnosis through treatment across facilities.
Adverse Events and Toxicity
CTCAE-graded adverse event observations and oncology adverse event profiles for toxicity
monitoring during active cancer treatment.
Claims and Eligibility
SHA insurance claim and claim response profiles, coverage eligibility requests, and referral
service request profiles aligned with SHA benefit packages.
Design Principles
This IG is built on the following principles aligned with Kenya's national digital health strategy:
- FHIR R4 Compliance — All profiles are valid FHIR R4 constraints that do not relax base
resource cardinalities or override required terminology bindings.
- Kenya-first Terminology — Value sets and code systems reference the Kenya National Health
Terminology Service (KNHTS) hosted at
ilm-hie.dha.go.ke, the Kenya Pharmaceutical and
Poisons Board (PPB), and the Social Health Authority (SHA) intervention catalogue.
- Interoperability with KHIS/SHA — Resources are designed for exchange with the Kenya Health
Information System (KHIS) and the Social Health Authority (SHA) claims platform.
- Extensibility — Extensions follow FHIR best practices and are named, typed, and scoped
to the resources they extend.
- Alignment with mCODE — Where applicable, profiles align conceptually with the HL7 minimal
Common Oncology Data Elements (mCODE) standard.
Relationship to Other Kenya Health IGs
| Implementation Guide |
Relationship |
| Kenya Core FHIR IG |
This IG builds on Kenya Core Patient, Practitioner, and Organization profiles |
| Kenya ePrescription IG |
Chemotherapy medication requests align with ePrescription patterns |
| SHA Claims IG |
Claim and ClaimResponse profiles are compatible with SHA adjudication workflows |
How to Read This Guide
- Background — Policy context, National Cancer Control Programme overview,
and cancer burden in Kenya
- Use Cases — Supported clinical workflows and data exchange scenarios
- Artifacts — All FHIR profiles, extensions, value sets, code systems, and
example instances
- Downloads — Package downloads and integration resources
Contact and Feedback
For questions about this Implementation Guide, contact the Digital Health Agency FHIR Team
at
info@dha.go.ke or visit
dha.go.ke.
There are no Global profiles defined
This publication includes IP covered under the following statements.
- HL7 Inc.
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- HL7 International.
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- This is an example set.
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- This material contains content from LOINC. LOINC is copyright © 1995-2020, Regenstrief Institute, Inc. and the Logical Observation Identifiers Names and Codes (LOINC) Committee and is available at no cost under the license. LOINC® is a registered United States trademark of Regenstrief Institute, Inc.
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