28965f6b-fb09-4208-8b77-d01b10c68903 - PACIO Advance Directive Interoperability Implementation Guide v2.1.0

PACIO Advance Directive Interoperability Implementation Guide, published by HL7 International / Patient Empowerment. This guide is not an authorized publication; it is the continuous build for version 2.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/HL7/fhir-pacio-adi/ and changes regularly. See the Directory of published versions

Example Bundle: 28965f6b-fb09-4208-8b77-d01b10c68903

Document Details

Generated Narrative: Bundle Personal Advance Care Plan Document for Roger McBee

Document Subject

Generated Narrative: Patient b427dedb-c302-4b75-b105-36b7bbcfc1dd

Last updated: 2021-04-07 19:55:22+0000; Language: en-US

Profile: US Core Patient Profile

McBee, Roger Rienman Male, DoB: 1945-04-01 ( Social Beneficiary Identifier: United States Social Security Number#555-12-1246)

Active:

true

Marital Status:

NoInformation

Other Id:

Driver's License Number/33487

Contact Detail

+1(469)238-2858
+1(214)497-9529
rogerb@example.com
12345 Main Street Orlando FL 75219 US

Document Content

Appointment of a Primary Healthcare Agent and Alternate Healthcare Agents

It is very important for you to discuss your medical treatment goals and wishes with your healthcare agent, your family, and your medical care providers. Keep in mind that advance medical directives are simply expressions of your medical treatment goals and preferences. There is no guarantee that your medical care providers will follow all of your wishes, but one thing is certain: If your advance medical directives cannot be quickly located and retrieved in a time of need, then medical care providers, your family and friends will not be able to take your wishes into consideration when they make critical decisions regarding your treatment.

IF THIS PART OF THE uADD™ IS LEFT BLANK, I DO NOT WANT TO DESIGNATE A HEALTHCARE AGENT AT THIS TIME, AND I DO NOT WANT A DEFAULT HEALTHCARE AGENT DESIGNATED FOR ME UNDER APPLICABLE LAW. I TRUST THE DOCTORS AND NURSES TREATING ME TO MAKE MEDICAL TREATMENT DECISIONS REGARDING MY TREATMENT AND CARE.

I am appointing the person or persons below as my healthcare agent and, if applicable, as my alternate healthcare agent(s), and I am granting to each of them the legal authority to make medical treatment decisions on my behalf and to consult with my physician and others. The power to make medical treatment decisions that I am granting to my healthcare agent(s) is expressly subject to, and limited by, the choices that I have expressed elsewhere in my uADD. If my medical treatment choices are not clear, I am authorizing and directing my healthcare agent to make decisions in my best interests and based on what is known of my wishes.

Primary Healthcare Agent

The person I choose as my Primary Healthcare Agent is:

Sally Bobbins

SallyBobbins@example.com

[SELECTED to act as a healthcare agent on 3/23/2018, at 9:13 AM CST]

[As of 12/6/2019, at 1:11 AM CDT, a response is still PENDING]

First Alternate Healthcare Agent

If this healthcare agent is unable or unwilling to make medical treatment decisions for me, or if my spouse is designated as my primary healthcare agent and our marriage is annulled, or we are divorced or legally separated, then my next choice for a healthcare agent is:

S. Leonard Susskind (Friend)

ssuskind@example.com

[SELECTED to act as a healthcare agent on 3/23/2018, at 9:13 AM CST]

[ACCEPTED to act as a healthcare agent on 3/23/2018, at 9:14 AM CST]

My Healthcare Agent’s General Authority

Subject to my medical treatment choices expressed elsewhere in this uADD™ and applicable law that requires otherwise, I grant to my healthcare agent the power to make all choices and medical treatment decisions for me.

Here are some specific instructions that expand or limit the powers I have just granted to my healthcare agent(s):

If my healthcare agent's decisions conflict with my instructions, I want my healthcare agent's decisions to take priority.
If I cannot express my own wishes for medical treatment, I would like the doctors treating me, as well as my healthcare agent if I have chosen one, to make decisions based as much as possible and appropriate on my instructions below.
If at some point in the future I am declared incompetent, I DO NOT want to be allowed to override these preferences. I want my doctors to follow the preferences I express in this document.

Unless I have stated otherwise somewhere else in this uADD™, I understand that my healthcare agent may reconsider my medical treatment choices expressed above in light of my other instructions contained elsewhere in this uADD™ or new medical information.

Patient Goals, Preferences, and Priorities for Care Experience

MyDirectives® offers people a list of optional questions that can be answered by typing text in a text box or by uploading a video or audio file for each question. Only those questions answered by Roger Rienman McBee appear here. For a complete list of questions in My Thoughts, please visit www.MyDirectives.com.

In case I’m being cared for by a person(s) who doesn't know me very well, I’d like my following thoughts to be known.

My likes / joys: Here are some examples of the things that I would like to have near me, music that I’d like to hear, and other details of my care that would help to keep me happy and relaxed:

Like Bach, especially the cantatas. St. Martin in the Fields

How to care for me: If I become incapacitated and cannot express myself, here is what I would like to tell my healthcare agent, family and friends about how I would like for them to care for me:

I don’t like being treated like an object. I would like to be greeted like a person before working on me.

Please attempt to notify someone from my religion at the following phone number: (If I have included one)

Not Religious

My unfinished business: If it appears that I am approaching the end of my life, and I cannot communicate with persons around me, I would want my doctors and nurses, my family, and my friends to know about some unfinished business that I need to address:

I am awaiting a message from the Noble Committee. Please keep me alive if I look promising this year.

Goals, Priorities, and Preferences under certain health condition

My Advance Care Goals

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:

Being at peace with my God
Dying at home
Being able to feed, bathe, and take care of myself
Being free from pain
Resolving conflicts
Being with my family
Not being a financial burden to my family

If I am having significant pain or suffering, I would like my doctors to consult a Supportive and Palliative Care Team to help treat my physical, emotional and spiritual discomfort, and to support my family.

My Preferences in Specific Circumstances

In addition to the general advance care goals provided above, below are specific treatment preferences with respect to certain specific circumstances or situations.

If my health ever deteriorates due to a terminal illness, and my doctors believe I will not be able to interact meaningfully with my family, friends, or surroundings, I prefer that they stop all life-sustaining treatments and let me die as gently as possible. I realize that I will not receive life-sustaining treatments including but not limited to breathing machines, blood transfusions, dialysis, heart machines, and IV drugs to keep my heart working. I also realize that medical personnel will not attempt cardiopulmonary resuscitation (CPR), and they will allow me to die naturally.

If my response above indicates that I do not want life-sustaining treatments,

I expressly authorize my attending physician to withhold or withdraw artificial nutrition and hydration and instruct my healthcare agent (or, if I have not designated a healthcare agent, my default surrogate), my family and the doctors and nurses who are taking care of me to respect this request.

If I have a severe, irreversible brain injury or illness and can’t dress, feed, or bathe myself, or communicate my medical wishes, but doctors can keep me alive in this condition for a long period of time, I would like for them to keep trying life-sustaining treatments for 2 months.

Although I understand that, depending on the situation and circumstances, medical personnel may not be able to follow my wishes, here are my general thoughts on cardiopulmonary resuscitation (CPR):

I do not want CPR attempted.

I want my healthcare agent to make the decision, but if my chances are slim to none that I'll leave the hospital, even if they resuscitate me, then I absolutely do not want CPR.

Other Instructions

If it were possible to choose, here is where I would like to spend my final days:

At home.I would like to receive hospice care at home if possible.

Goals, Preferences and Priorities upon Death

Consent to Donate

I don’t want to donate my organs.

Autopsy

I want an autopsy if my doctor thinks it will help others.

Here are my thoughts on funeral or burial plans:

If I were to pass away: I have a plot. My wife has the details, also my secretary, Ms. Williams, will know.

Witnesses and Notary

I am emotionally and mentally competent to make this uADD. I understand the purpose and effect of this uADD, I agree with everything that is written in this uADD, and I have made this uADD knowingly, willingly and after careful deliberation.

Signature:	Roger R. McBee
Date:	8/28/2018

Statement of Witnesses

I declare that the person who signed this uADD, or who asked another to sign this uADD on his/her behalf, is the individual identified in the document, and he/she did so in my presence or otherwise provided satisfactory proof to me of his/her identity. I believe him/her to be of sound mind and at least 18 years of age. I personally witnessed him/her sign this document or ask the person indicated to do so, or I received proof of his/her identity that I believe is adequate, and I believe that he/she did so voluntarily. By signing this document as a witness, I certify that I am:

At least 18 years of age.
Not related to the person signing this document by blood, marriage or adoption.
Not a healthcare agent appointed by the person signing this document.
Not directly financially responsible for that person’s healthcare.
Not a healthcare provider directly serving the person at this time.
Not an employee (other than a social worker or chaplain), officer, director, or partner of a healthcare provider (or any parent organization of such healthcare provider) directly serving the person at this time.
Not aware that I am entitled to or have a claim against the person’s estate.

Witness Number:
Signature:
Date:

Additional Resources Included in Document

Entry 1 - fullUrl = http://www.example.org/fhir/Composition/8e70011f-ccbf-45f6-aafe-ac30246fb1c1

Resource Composition:

Generated Narrative: Composition 8e70011f-ccbf-45f6-aafe-ac30246fb1c1

Language: en-US
Profile: ADI PtAuthored Composition
Composition Version Number: 98e4d027-8689-4062-ab35-f25e78b323a0
Data Enterer: McBee, Roger Rienman Male, DoB: 1945-04-01 ( Social Beneficiary Identifier: United States Social Security Number#555-12-1246)
Effective Date: 2018-08-28 08:49:58-0400 --> (ongoing)
Informant: RelatedPerson Sally, Bobbins
Participant: RelatedPerson Sally, Bobbins
Performer: Advance Directives, Inc.
identifier: urn:oid:2.16.840.1.113883.4.823.1.7124/20130607100315-CCDA-CCD
status: Final
type: Patient Personal advance care plan
category: Advance directives
date: 2018-08-28 08:49:58-0400
author: author name in PDF attachment
title: Personal Advance Care Plan Document for Roger McBee
Attesters
- Mode Party
* Personal RelatedPerson Sally, Bobbins
custodian: Organization MyDirectives.com

Entry 2 - fullUrl = http://www.example.org/fhir/Patient/b427dedb-c302-4b75-b105-36b7bbcfc1dd

Resource Patient:

Generated Narrative: Patient b427dedb-c302-4b75-b105-36b7bbcfc1dd
Last updated: 2021-04-07 19:55:22+0000; Language: en-US
Profile: US Core Patient Profile
McBee, Roger Rienman Male, DoB: 1945-04-01 ( Social Beneficiary Identifier: United States Social Security Number#555-12-1246)
Active: true Marital Status: NoInformation
Other Id: Driver's License Number/33487
Contact Detail
+1(469)238-2858
+1(214)497-9529
rogerb@example.com
12345 Main Street Orlando FL 75219 US

Entry 3 - fullUrl = http://www.example.org/fhir/RelatedPerson/6231012c-74ea-43bf-b58e-eebc30665312

Resource RelatedPerson:

Primary Healthcare Agent
The person I choose as my Primary Healthcare Agent is:
Sally Bobbins (daughter)
SallyBobbins@example.com
[SELECTED to act as a healthcare agent on 3/23/2018, at 9:13 AM CST]
[As of 12/6/2019, at 1:11 AM CDT, a response is still PENDING]

Entry 4 - fullUrl = http://www.example.org/fhir/RelatedPerson/a1b59e18-6be8-4458-91d0-e85a7102d74f

Resource RelatedPerson:

First Alternate Healthcare Agent
If this healthcare agent is unable or unwilling to make medical treatment decisions for me, or if my spouse is designated as my primary healthcare agent and our marriage is annulled, or we are divorced or legally separated, then my next choice for a healthcare agent is:
S. Leonard Susskind (Friend)
ssuskind@example.com
[SELECTED to act as a healthcare agent on 3/23/2018, at 9:13 AM CST]
[ACCEPTED to act as a healthcare agent on 3/23/2018, at 9:14 AM CST]

Entry 5 - fullUrl = http://www.example.org/fhir/Consent/2f908986-f2b0-4c80-b21e-697b74a5361f

Resource Consent:

status: active
scope: Powers granted to healthcare agent [Reported]
category: Advance Directive
patient: Social Beneficiary Identifier: 555-12-1246, Roger Rienman McBee; Phone: +1(469)238-2858, Phone: +1(214)497-9529, rogerb@example.com; gender: male; birthDate: 1945-04-01
dateTime: 2020-08-03
Policies
- Authority Uri
* https://www.michigan.gov/ http://www.legislature.mi.gov/(S(tpnclc1ofteerx2x2dppcmdz))/mileg.aspx?page=GetObject&objectname=mcl-386-1998-V-5
provision
type: permit
actor
role: Primary healthcare agent [Reported]
reference: Bobbins Sally ; SallyBobbins@example.com
actor
role: First alternate healthcare agent [Reported]
reference: unrelated friend; Susskind S. Leonard ; ssuskind@example.com
action: Advance directive - request for intubation, Advance directive - request for tube feeding, Advance directive - request for life support
purpose: power of attorney

Entry 6 - fullUrl = http://www.example.org/fhir/CarePlan/b7fd57b6-26b0-4ae6-a4f5-3aabc0f01421

Resource CarePlan:

Generated Narrative: CarePlan b7fd57b6-26b0-4ae6-a4f5-3aabc0f01421

Profile: ADI PtAuthored Care Plan
status: Active
intent: Proposal
category: Assessment and Plan of Treatment, Goals, preferences, and priorities under certain health conditions [Reported]
title: Care Plan for Unconscious, vegetative state, coma for McBee
subject: McBee, Roger Rienman Male, DoB: 1945-04-01 ( Social Beneficiary Identifier: United States Social Security Number#555-12-1246)
addresses:
No display for CarePlan.addresses (reference: ->display: string (PrimitiveType/Bundle.entry[5].resource.addresses[0].reference.display): native = string -> Unconscious, in a coma, or in a persistent vegetative state with little or no chance of recovery)
No display for CarePlan.addresses (reference: ->display: string (PrimitiveType/Bundle.entry[5].resource.addresses[1].reference.display): native = string -> Persistent vegetative state (SNOMED CT 24473007))
No display for CarePlan.addresses (reference: ->display: string (PrimitiveType/Bundle.entry[5].resource.addresses[2].reference.display): native = string -> Irreversible coma (SNOMED CT 73453007))
supportingInfo:
Observation Preference on consulting a supportive and palliative care team to help treat physical, emotional, and spiritual discomfort and support family [Reported]
Observation Information to tell doctors if my health deteriorates due to a terminal illness and I am unable to interact meaningfully with family, friends, or surroundings [Reported]
Observation Thoughts on artificial nutrition and hydration [Reported]
Observation Information to tell doctors if I have a severe, irreversible brain injury or illness and can't dress, feed, or bathe myself, or communicate my medical wishes, but can be kept alive [Reported]
Observation Thoughts on cardiopulmonary resuscitation (CPR) [Reported]
Observation Thoughts on cardiopulmonary resuscitation (CPR) [Reported]
Observation Preferred location to spend final days if possible to choose [Reported]

Entry 7 - fullUrl = http://www.example.org/fhir/Observation/ac9fb124-cd13-4385-af15-5689f51efb8b

Resource Observation:

My likes / joys: Here are some examples of the things that I would like to have near me, music that I’d like to hear, and other details of my care that would help to keep me happy and relaxed:
Like Bach, especially the cantatas. St. Martin in the Fields

Entry 8 - fullUrl = http://www.example.org/fhir/Observation/a01374e7-a996-4723-9d8e-d853aa5dd3b1

Resource Observation:

How to care for me: If I become incapacitated and cannot express myself, here is what I would like to tell my healthcare agent, family and friends about how I would like for them to care for me:
I don’t like being treated like an object. I would like to be greeted like a person before working on me.

Entry 9 - fullUrl = http://www.example.org/fhir/Observation/a0f0fa54-a910-4648-81ec-bde78b88176c

Resource Observation:

Please attempt to notify someone from my religion at the following phone number: (If I have included one)
Not Religious

Entry 10 - fullUrl = http://www.example.org/fhir/Observation/e4010ed7-6aa5-4ea7-9c6b-6e212ab29fbb

Resource Observation:

My unfinished business: If it appears that I am approaching the end of my life, and I cannot communicate with persons around me, I would want my doctors and nurses, my family, and my friends to know about some unfinished business that I need to address:
I am awaiting a message from the Noble Committee. Please keep me alive if I look promising this year.

Entry 11 - fullUrl = http://www.example.org/fhir/List/179bf6b3-86b3-4ffb-936a-db1bad05f3df

Resource List:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Being at peace with my God
Dying at home
Being able to feed, bathe, and take care of myself
Being free from pain
Resolving conflicts
Being with my family
Not being a financial burden to my family

Entry 12 - fullUrl = http://www.example.org/fhir/Observation/dba86d6c-cf50-4758-a13f-74bf8ca8ea4b

Resource Observation:

If I am having significant pain or suffering, I would like my doctors to consult a Supportive and Palliative Care Team to help treat my physical, emotional and spiritual discomfort, and to support my family.

Entry 13 - fullUrl = http://www.example.org/fhir/Observation/c335c2e6-46f0-4f25-a0c1-4b1b469ac173

Resource Observation:

If my health ever deteriorates due to a terminal illness, and my doctors believe I will not be able to interact meaningfully with my family, friends, or surroundings, I prefer that they stop all life-sustaining treatments and let me die as gently as possible. I realize that I will not receive life-sustaining treatments including but not limited to breathing machines, blood transfusions, dialysis, heart machines, and IV drugs to keep my heart working. I also realize that medical personnel will not attempt cardiopulmonary resuscitation (CPR), and they will allow me to die naturally.

Entry 14 - fullUrl = http://www.example.org/fhir/Observation/3f6ba1b2-2744-4cb8-a934-56ab2869e5cc

Resource Observation:

If my response above indicates that I do not want life-sustaining treatments,
I expressly authorize my attending physician to withhold or withdraw artificial nutrition and hydration and instruct my healthcare agent (or, if I have not designated a healthcare agent, my default surrogate), my family and the doctors and nurses who are taking care of me to respect this request.

Entry 15 - fullUrl = http://www.example.org/fhir/Observation/02944fe6-22e3-4778-9998-f855e8ddaa7a

Resource Observation:

If I have a severe, irreversible brain injury or illness and can’t dress, feed, or bathe myself, or communicate my medical wishes, but doctors can keep me alive in this condition for a long period of time, I would like for them to keep trying life-sustaining treatments for 2 months.

Entry 16 - fullUrl = http://www.example.org/fhir/Observation/ea4e0672-58c7-40c7-95a3-7b3de53deedb

Resource Observation:

Although I understand that, depending on the situation and circumstances, medical personnel may not be able to follow my wishes, here are my general thoughts on cardiopulmonary resuscitation (CPR):
I want my healthcare agent to make the decision, but if my chances are slim to none that I'll leave the hospital, even if they resuscitate me, then I absolutely do not want CPR.

Entry 17 - fullUrl = http://www.example.org/fhir/Observation/a2580d19-76a3-40e4-bbf1-58d0dedf6967

Resource Observation:

Although I understand that, depending on the situation and circumstances, medical personnel may not be able to follow my wishes, here are my general thoughts on cardiopulmonary resuscitation (CPR):
I want my healthcare agent to make the decision, but if my chances are slim to none that I'll leave the hospital, even if they resuscitate me, then I absolutely do not want CPR.

Entry 18 - fullUrl = http://www.example.org/fhir/Observation/75ae1fa5-a04a-4035-8e02-0eb15af293a3

Resource Observation:

If it were possible to choose, here is where I would like to spend my final days:
At home.I would like to receive hospice care at home if possible.

Entry 19 - fullUrl = http://www.example.org/fhir/Observation/65324b22-c801-4b7e-8643-dc1d4e1e83c4

Resource Observation:

Here are my thoughts on funeral or burial plans:
If I were to pass away: I have a plot. My wife has the details, also my secretary, Ms. Williams, will know.

Entry 20 - fullUrl = http://www.example.org/fhir/Goal/ec568aef-4612-4cca-ac77-f54c90b9da5f

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Being at peace with my God

Entry 21 - fullUrl = http://www.example.org/fhir/Goal/00bea71d-f735-4571-9037-5682ac4ec8f4

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Dying at home

Entry 22 - fullUrl = http://www.example.org/fhir/Goal/7ac88aaa-0440-4361-842b-8bf293f0400f

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Being able to feed, bathe, and take care of myself

Entry 23 - fullUrl = http://www.example.org/fhir/Goal/8107564a-77d6-4b9f-a79e-0a7d9ad5cc27

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Being free from pain

Entry 24 - fullUrl = http://www.example.org/fhir/Goal/c3944cc5-5c3d-49dd-84c5-ddea3bb2d549

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Resolving conflicts

Entry 25 - fullUrl = http://www.example.org/fhir/Goal/df215bd4-21b3-47bd-beda-1c7349908b8d

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Being with my family

Entry 26 - fullUrl = http://www.example.org/fhir/Goal/c77c5747-d274-438b-b32c-63a035d68527

Resource Goal:

If I am so sick or seriously injured that I cannot express my own medical treatment preferences, and if I am not expected to live without additional treatment for my illness, disease, condition or injury, then I want my medical care team to know that these are the things that are most important to me:
Not being a financial burden to my family

Entry 27 - fullUrl = http://www.example.org/fhir/Observation/8c8cf0ca-1d02-46d4-8b50-bd7e89506127

Resource Observation:

Consent to Donate
I don’t want to donate my organs.

Entry 28 - fullUrl = http://www.example.org/fhir/Observation/34759fe4-120c-458f-ae4f-363a3abe84a2

Resource Observation:

Autopsy
I want an autopsy if my doctor thinks it will help others.

Entry 29 - fullUrl = http://www.example.org/fhir/Organization/011aa682-5c47-4f9b-95fe-c601eedb68ae

Resource Organization:

Generated Narrative: Organization 011aa682-5c47-4f9b-95fe-c601eedb68ae

Profile: US Core Organization Profile
identifier: United States National Provider Identifier/1234567893
active: true
name: MyDirectives.com
Contacts
- Telecom Address
* +1(202)776-7700 740 E. Campbell Rd. Suite 825 Richardson TX 75081 US