ICHOM FHIR Implementation Guide: Breast Cancer
0.0.1 - ci-build
ICHOM FHIR Implementation Guide: Breast Cancer
0.0.1 - ci-build
ICHOM FHIR Implementation Guide: Breast Cancer, published by ICHOM. This is not an authorized publication; it is the continuous build for version 0.0.1). This version is based on the current content of https://github.com/HL7/fhir-ichom-breast-cancer-ig/ and changes regularly. See the Directory of published versions
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"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>Generated Narrative</b></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource \"EORTCQLQCodeSystem\" </p></div><p><b>url</b>: <code>http://connect.ichom.org/fhir/CodeSystem/EORTC-QLQ</code></p><p><b>version</b>: 0.0.1</p><p><b>name</b>: EORTCQLQCodeSystem</p><p><b>title</b>: Codes used in EORTC-QLQ questionnaire response</p><p><b>status</b>: active</p><p><b>description</b>: Codes used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire</p><p><b>caseSensitive</b>: true</p><p><b>content</b>: complete</p><p><b>count</b>: 4</p><blockquote><p><b>concept</b></p><p><b>code</b>: 1</p><p><b>display</b>: Not at all</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 2</p><p><b>display</b>: A little</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 3</p><p><b>display</b>: Quite a bit</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 4</p><p><b>display</b>: Very much</p></blockquote></div>"
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"url" : "http://connect.ichom.org/fhir/CodeSystem/EORTC-QLQ",
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"name" : "EORTCQLQCodeSystem",
"title" : "Codes used in EORTC-QLQ questionnaire response",
"status" : "active",
"description" : "Codes used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire",
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"code" : "1",
"display" : "Not at all"
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{
"code" : "2",
"display" : "A little"
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{
"code" : "3",
"display" : "Quite a bit"
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{
"code" : "4",
"display" : "Very much"
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"method" : "PUT",
"url" : "CodeSystem/EORTCQLQCodeSystem"
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"resource" : {
"resourceType" : "ValueSet",
"id" : "EORTCQLQValueSet",
"text" : {
"status" : "generated",
"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>Generated Narrative</b></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource \"EORTCQLQValueSet\" </p></div><p><b>url</b>: <code>https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet</code></p><p><b>version</b>: 0.0.1</p><p><b>name</b>: EORTCQLQValueSet</p><p><b>title</b>: Values used in EORTC-QLQ questionnaire response</p><p><b>status</b>: active</p><p><b>description</b>: Valueset used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire</p><blockquote><p><b>compose</b></p><h3>Includes</h3><table class=\"grid\"><tr><td>-</td><td><b>System</b></td></tr><tr><td>*</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Codes used in EORTC-QLQ questionnaire response</a></td></tr></table></blockquote></div>"
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"url" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet",
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"name" : "EORTCQLQValueSet",
"title" : "Values used in EORTC-QLQ questionnaire response",
"status" : "active",
"description" : "Valueset used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire",
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"include" : [
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{
"resource" : {
"resourceType" : "CodeSystem",
"id" : "ResponseTimingCodeSystem",
"text" : {
"status" : "generated",
"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>Generated Narrative</b></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource \"ResponseTimingCodeSystem\" </p></div><p><b>url</b>: <code>http://connect.ichom.org/fhir/CodeSystem/Timing</code></p><p><b>version</b>: 0.0.1</p><p><b>name</b>: ResponseTimingCodeSystem</p><p><b>title</b>: Timing of the response of the patient reported outcome measures</p><p><b>status</b>: active</p><p><b>description</b>: Patient reported outcome measures are repeatedly collected from patients starting at the first doctor's visit (baseline) up untill 10 years after treatment.</p><p><b>caseSensitive</b>: true</p><p><b>content</b>: complete</p><p><b>count</b>: 12</p><blockquote><p><b>concept</b></p><p><b>code</b>: 0</p><p><b>display</b>: Patient's first doctor's visit (baseline)</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 6m</p><p><b>display</b>: 6 months post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 1</p><p><b>display</b>: 1 year post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 2</p><p><b>display</b>: 2 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 3</p><p><b>display</b>: 3 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 4</p><p><b>display</b>: 4 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 5</p><p><b>display</b>: 5 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 6</p><p><b>display</b>: 6 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 7</p><p><b>display</b>: 7 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 8</p><p><b>display</b>: 8 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 9</p><p><b>display</b>: 9 years post-treatment</p></blockquote><blockquote><p><b>concept</b></p><p><b>code</b>: 10</p><p><b>display</b>: 10 years post-treatment</p></blockquote></div>"
},
"url" : "http://connect.ichom.org/fhir/CodeSystem/Timing",
"version" : "0.0.1",
"name" : "ResponseTimingCodeSystem",
"title" : "Timing of the response of the patient reported outcome measures",
"status" : "active",
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{
"code" : "6m",
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{
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{
"code" : "2",
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{
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{
"code" : "4",
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{
"code" : "5",
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{
"code" : "6",
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{
"code" : "7",
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{
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"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>Generated Narrative</b></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource \"ResponseTimingValueSet\" </p></div><p><b>url</b>: <code>https://connect.ichom.org/fhir/ValueSet/ResponseTimingValueSet</code></p><p><b>version</b>: 0.0.1</p><p><b>name</b>: ResponseTimingValueSet</p><p><b>title</b>: Timing of the response of the patient reported outcome measures</p><p><b>status</b>: active</p><p><b>description</b>: Patient reported outcome measures are repeatedly collected from patients starting at the first doctor's visit (baseline) up untill 10 years after treatment.</p><blockquote><p><b>compose</b></p><h3>Includes</h3><table class=\"grid\"><tr><td>-</td><td><b>System</b></td></tr><tr><td>*</td><td><a href=\"Bundle-DebugBundleSurvival.html\">Timing of the response of the patient reported outcome measures</a></td></tr></table></blockquote></div>"
},
"url" : "https://connect.ichom.org/fhir/ValueSet/ResponseTimingValueSet",
"version" : "0.0.1",
"name" : "ResponseTimingValueSet",
"title" : "Timing of the response of the patient reported outcome measures",
"status" : "active",
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{
"resource" : {
"resourceType" : "Questionnaire",
"id" : "EORTCQLQ",
"text" : {
"status" : "generated",
"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p><b>Generated Narrative</b></p><div style=\"display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%\"><p style=\"margin-bottom: 0px\">Resource \"EORTCQLQ\" </p></div><p><b>url</b>: <code>https://connect.ichom.org/fhir/Questionnaire/EORTCQLQ</code></p><p><b>name</b>: EORTCQLQ</p><p><b>title</b>: European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire</p><p><b>status</b>: draft</p><p><b>experimental</b>: true</p><p><b>publisher</b>: ICHOM</p><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQC30_Timing</p><p><b>text</b>: What is the timing of the response of this questionnaire?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleFACTES.html\">Timing of the response of the patient reported outcome measures</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: Group_Q01-Q05</p><p><b>text</b>: We are interested in some things about you and your health. Please answer all of the questions yourself by selecting the answer that best applies to you. \n There are no 'right' or 'wrong' answers. The information that you provide will remain strictly confidential.</p><p><b>type</b>: group</p><h3>Items</h3><table class=\"grid\"><tr><td>-</td><td><b>LinkId</b></td><td><b>Text</b></td><td><b>Type</b></td><td><b>Required</b></td><td><b>AnswerValueSet</b></td></tr><tr><td>*</td><td>EORTCQLQC30_Q01</td><td>Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q02</td><td>Do you have any trouble taking a long walk?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q03</td><td>Do you have any trouble taking a short walk outside of the house?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q04</td><td>Do you need to stay in bed or a chair during the day?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q05</td><td>Do you need help with eating, dressing, washing yourself or using the toilet?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr></table></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: Group_Q06-Q28</p><p><b>text</b>: During the past week:</p><p><b>type</b>: group</p><h3>Items</h3><table class=\"grid\"><tr><td>-</td><td><b>LinkId</b></td><td><b>Text</b></td><td><b>Type</b></td><td><b>Required</b></td><td><b>AnswerValueSet</b></td></tr><tr><td>*</td><td>EORTCQLQC30_Q06</td><td>Were you limited in doing either your work or other daily activities?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q07</td><td>Were you limited in pursuing your hobbies or other leisure time activities?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q08</td><td>Were you short of breath?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q09</td><td>Have you had pain?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q10</td><td>Did you need to rest?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q11</td><td>Have you had trouble sleeping?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q12</td><td>Have you felt weak?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q13</td><td>Have you lacked appetite?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q14</td><td>Have you felt nauseated?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q15</td><td>Have you vomited?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q16</td><td>Have you been constipated?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q17</td><td>Have you had diarrhea?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q18</td><td>Were you tired?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q19</td><td>Did pain interfere with your daily activities?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q20</td><td>Have you had difficulty in concentrating on things, like reading a newspaper or watching television?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q21</td><td>Did you feel tense?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q22</td><td>Did you worry?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q23</td><td>Did you feel irritable?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q24</td><td>Did you feel depressed?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q25</td><td>Have you had difficulty remembering things?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q26</td><td>Has your physical condition or medical treatment interfered with your family life?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q27</td><td>Has your physical condition or medical treatment interfered with your social activities?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQC30_Q28</td><td>Has your physical condition or medical treatment caused you financial difficulties?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr></table></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: Group_Q29-Q30</p><p><b>text</b>: For the following questions please select the number between 1 and 7 that best applies to you, with 1 = Very poor and 7 = Excellent.</p><p><b>type</b>: group</p><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQC30_Q29</p><p><b>text</b>: How would you rate your overall health during the past week?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQC30_Q30</p><p><b>text</b>: How would you rate your overall quality of life during the past week?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p></blockquote></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: Group_Q31-Q43</p><p><b>text</b>: Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these symptoms or problems during the past week. \nPlease answer by selecting the answer that best applies to you. During the past week:</p><p><b>type</b>: group</p><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q31</p><p><b>text</b>: Did you have a dry mouth?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q32</p><p><b>text</b>: Did food and drink taste different than usual?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q33</p><p><b>text</b>: Were your eyes painful, irritated or watery?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q34</p><p><b>text</b>: Have you lost any hair?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q35</p><p><b>text</b>: Were you upset by the loss of your hair?</p><p><b>type</b>: choice</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q36</p><p><b>text</b>: Did you feel ill or unwell?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q37</p><p><b>text</b>: Did you have hot flushes?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q38</p><p><b>text</b>: Did you have headaches?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q39</p><p><b>text</b>: Have you felt physically less attractive as a result of your disease or treatment?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q40</p><p><b>text</b>: Have you been feeling less feminine as a result of your disease or treatment?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q41</p><p><b>text</b>: Did you find it difficult to look at yourself naked?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q42</p><p><b>text</b>: Have you been dissatisfied with your body?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q43</p><p><b>text</b>: Were you worried about your health in the future?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: Group_Q44-Q46</p><p><b>text</b>: During the past four weeks:</p><p><b>type</b>: group</p><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q44</p><p><b>text</b>: To what extent were you interested in sex?</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q45</p><p><b>text</b>: To what extent were you sexually active? (with or without intercourse)</p><p><b>type</b>: choice</p><p><b>required</b>: true</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: EORTCQLQBR23_Q46</p><p><b>text</b>: To what extent was sex enjoyable for you?</p><p><b>type</b>: choice</p><p><b>answerValueSet</b>: <a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></p></blockquote></blockquote><blockquote><p><b>item</b></p><p><b>linkId</b>: Group_Q47-Q53</p><p><b>text</b>: During the past week:</p><p><b>type</b>: group</p><h3>Items</h3><table class=\"grid\"><tr><td>-</td><td><b>LinkId</b></td><td><b>Text</b></td><td><b>Type</b></td><td><b>Required</b></td><td><b>AnswerValueSet</b></td></tr><tr><td>*</td><td>EORTCQLQBR23_Q48</td><td>Did you have a swollen arm or hand?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQBR23_Q49</td><td>Was it difficult to raise your arm or to move it sideways?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQBR23_Q50</td><td>Have you had any pain in the area of your affected breast?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQBR23_Q51</td><td>Was the area of your affected breast swollen?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQBR23_Q52</td><td>Was the area of your affected breast oversensitive?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTCQLQBR23_Q53</td><td>Have you had skin problems on or in the area of your affected breast (e.g., itchy, dry, flaky)?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr><tr><td>*</td><td>EORTC QLQ-LMC21</td><td>Have you had tingling hands or feet?</td><td>choice</td><td>true</td><td><a href=\"Bundle-DebugBundleEORTCQLQ.html\">Values used in EORTC-QLQ questionnaire response</a></td></tr></table></blockquote></div>"
},
"url" : "https://connect.ichom.org/fhir/Questionnaire/EORTCQLQ",
"name" : "EORTCQLQ",
"title" : "European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire",
"status" : "draft",
"experimental" : true,
"publisher" : "ICHOM",
"item" : [
{
"linkId" : "EORTCQLQC30_Timing",
"text" : "What is the timing of the response of this questionnaire?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/ResponseTimingValueSet"
},
{
"linkId" : "Group_Q01-Q05",
"text" : "We are interested in some things about you and your health. Please answer all of the questions yourself by selecting the answer that best applies to you. \n There are no 'right' or 'wrong' answers. The information that you provide will remain strictly confidential.",
"type" : "group",
"item" : [
{
"linkId" : "EORTCQLQC30_Q01",
"text" : "Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q02",
"text" : "Do you have any trouble taking a long walk?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q03",
"text" : "Do you have any trouble taking a short walk outside of the house?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q04",
"text" : "Do you need to stay in bed or a chair during the day?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q05",
"text" : "Do you need help with eating, dressing, washing yourself or using the toilet?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
}
]
},
{
"linkId" : "Group_Q06-Q28",
"text" : "During the past week:",
"type" : "group",
"item" : [
{
"linkId" : "EORTCQLQC30_Q06",
"text" : "Were you limited in doing either your work or other daily activities?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q07",
"text" : "Were you limited in pursuing your hobbies or other leisure time activities?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q08",
"text" : "Were you short of breath?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q09",
"text" : "Have you had pain?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q10",
"text" : "Did you need to rest?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q11",
"text" : "Have you had trouble sleeping?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q12",
"text" : "Have you felt weak?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q13",
"text" : "Have you lacked appetite?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q14",
"text" : "Have you felt nauseated?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q15",
"text" : "Have you vomited?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q16",
"text" : "Have you been constipated?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q17",
"text" : "Have you had diarrhea?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q18",
"text" : "Were you tired?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q19",
"text" : "Did pain interfere with your daily activities?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q20",
"text" : "Have you had difficulty in concentrating on things, like reading a newspaper or watching television?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q21",
"text" : "Did you feel tense?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q22",
"text" : "Did you worry?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q23",
"text" : "Did you feel irritable?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q24",
"text" : "Did you feel depressed?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q25",
"text" : "Have you had difficulty remembering things?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q26",
"text" : "Has your physical condition or medical treatment interfered with your family life?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q27",
"text" : "Has your physical condition or medical treatment interfered with your social activities?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQC30_Q28",
"text" : "Has your physical condition or medical treatment caused you financial difficulties?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
}
]
},
{
"linkId" : "Group_Q29-Q30",
"text" : "For the following questions please select the number between 1 and 7 that best applies to you, with 1 = Very poor and 7 = Excellent.",
"type" : "group",
"item" : [
{
"linkId" : "EORTCQLQC30_Q29",
"text" : "How would you rate your overall health during the past week?",
"type" : "choice",
"required" : true,
"answerOption" : [
{
"valueInteger" : 1
},
{
"valueInteger" : 2
},
{
"valueInteger" : 3
},
{
"valueInteger" : 4
},
{
"valueInteger" : 5
},
{
"valueInteger" : 6
},
{
"valueInteger" : 7
}
]
},
{
"linkId" : "EORTCQLQC30_Q30",
"text" : "How would you rate your overall quality of life during the past week?",
"type" : "choice",
"required" : true,
"answerOption" : [
{
"valueInteger" : 1
},
{
"valueInteger" : 2
},
{
"valueInteger" : 3
},
{
"valueInteger" : 4
},
{
"valueInteger" : 5
},
{
"valueInteger" : 6
},
{
"valueInteger" : 7
}
]
}
]
},
{
"linkId" : "Group_Q31-Q43",
"text" : "Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these symptoms or problems during the past week. \nPlease answer by selecting the answer that best applies to you. During the past week:",
"type" : "group",
"item" : [
{
"linkId" : "EORTCQLQBR23_Q31",
"text" : "Did you have a dry mouth?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q32",
"text" : "Did food and drink taste different than usual?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q33",
"text" : "Were your eyes painful, irritated or watery?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q34",
"text" : "Have you lost any hair?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q35",
"text" : "Were you upset by the loss of your hair?",
"type" : "choice",
"enableWhen" : [
{
"question" : "EORTCQLQBR23_Q34",
"operator" : "=",
"answerBoolean" : true
}
],
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q36",
"text" : "Did you feel ill or unwell?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q37",
"text" : "Did you have hot flushes?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q38",
"text" : "Did you have headaches?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q39",
"text" : "Have you felt physically less attractive as a result of your disease or treatment?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q40",
"text" : "Have you been feeling less feminine as a result of your disease or treatment?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q41",
"text" : "Did you find it difficult to look at yourself naked?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q42",
"text" : "Have you been dissatisfied with your body?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q43",
"text" : "Were you worried about your health in the future?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
}
]
},
{
"linkId" : "Group_Q44-Q46",
"text" : "During the past four weeks:",
"type" : "group",
"item" : [
{
"linkId" : "EORTCQLQBR23_Q44",
"text" : "To what extent were you interested in sex?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q45",
"text" : "To what extent were you sexually active? (with or without intercourse)",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q46",
"text" : "To what extent was sex enjoyable for you?",
"type" : "choice",
"enableWhen" : [
{
"question" : "EORTCQLQBR23_Q45",
"operator" : "=",
"answerBoolean" : true
}
],
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
}
]
},
{
"linkId" : "Group_Q47-Q53",
"text" : "During the past week:",
"type" : "group",
"item" : [
{
"linkId" : "EORTCQLQBR23_Q48",
"text" : "Did you have a swollen arm or hand?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q49",
"text" : "Was it difficult to raise your arm or to move it sideways?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q50",
"text" : "Have you had any pain in the area of your affected breast?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q51",
"text" : "Was the area of your affected breast swollen?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q52",
"text" : "Was the area of your affected breast oversensitive?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTCQLQBR23_Q53",
"text" : "Have you had skin problems on or in the area of your affected breast (e.g., itchy, dry, flaky)?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
},
{
"linkId" : "EORTC QLQ-LMC21",
"text" : "Have you had tingling hands or feet?",
"type" : "choice",
"required" : true,
"answerValueSet" : "https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet"
}
]
}
]
},
"request" : {
"method" : "PUT",
"url" : "Questionnaire/EORTCQLQ"
}
}
]
}
IG © 2021+ ICHOM. Package hl7.fhir.uv.ichom.breastcancer#0.0.1 based on FHIR 4.0.1. Generated 2022-03-28
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