Clinical response questionnaire at annual post-treatment follow-up

Clinical response questionnaire at baseline (first doctors’ visit)

Clinical response questionnaire at 6 months post-treatment follow-up

Patient-reported response at baseline (first doctors’ visit)

Patient-reported response at every 6 months for first 2 years post-treatment, after 2 years tracked annually for up to 10 years

Represents if the breast cancer patient received surgery to the axilla during the last year.

Represents if the breast cancer patient received axillary clearance during the last year. Axilla clearance could be due to lymph node involvement after sentinel lymph node biopsy.

Represents if breast cancer patient received best supportive care during the last year.

Represents the height of a person diagnosed with breast cancer

Represents the weight of a person diagnosed with breastcancer

A patient who has been diagnosed with or is receiving medical treatment for breast cancer. This profile includes the ICHOM patient characteristics and demographic factors.

Represents if the breast cancer patient received surgery during the last year.

A staging system to describe the amount and spread of breast cancer in a patient’s body, using TNM staging (per AJCC 8th Ed.). This profile is in alignment with the mCODE TNM Stage Group Profile.

Represents if the patient received chemotherapy during the last year.

Represents the type and impact of a complication experienced by a patient

Represents if breast cancer was the cause of death

Represents the endopredict score on a scale of 1.1 to 6.2

Represents if the estrogen receptor status is positive in a patient with breast cancer

Represents if the patient carries a germline mutation predisposing breast cancer

Represents if the human epidermal growth factor receptor 2 (HER2) receptor status is positive in a patient with breast cancer

Represents the histological type of the tumor

Represents if the patient received hormonal therapy during the last year.

Represents if the breast cancer patient received immunotherapy during the last year.

Represents the tumor grade of DCIS component of the breast cancer tumor

Represents the number of lymph nodes involved

Represents the mammaprintscore on a scale of 0.000 to 1.000

Represents the menopausal status of a patient

Represents the oncotype score on a scale of 0 to 100

Represent the properties of the primary breast cancer diagnosis

Represents if the progesterone receptor status is positive in a patient with breast cancer

Represents if the breast cancer patient received radiotherapy during the last year.

Represents whether the patient has had a re-operation since their surgery for breast cancer and whether it was due to involved margins.

Indicate if the patient followed the multidisciplinary recommended treatment plan

Represents if the breast cancer patient received reconstruction surgery during the last year.

The method of confirming recurrence breast cancer

Represents the number of lymph nodes resected

Represent the properties of the secondary breast cancer diagnosis

Represents the size of the invasive tumor

Represents the extent of a tumor metastasis in remote anatomical locations (per AJCC 8th Ed.). This profile is in alignment with mCODE TNM Distant Metastases Category Profile.

Represents the stage of the primary tumor (per AJCC 8th Ed.). This profile is in alignment with mCODE TNM Primary Tumor Category Profile.

Represents the presence or absence of metastases in regional lymph nodes (per AJCC 8th Ed.). This profile is in alignment with mCODE TNM Regional Nodes Category Profile.

Type and duration of targeted therapy

Indicate why the multidisciplinary recommended treatment plan was not followed

Represents the treatment that a multidisciplinary team recommended during a multidisciplinary meeting

Represents the grade of the breast cancer tumor

Represents the level of education of a patient.

Represents the ethnicity of a patient. This extension is aligned with USCore

Represents the race of a patient. This extension is aligned with USCore.

Valueset used in a Patient Reported Outcomes Instrument to express the degree of agreement

Valueset of surgery types of the axilla

Valueset of the education level of a patient

Valueset of the Estrogen receptor status

Valueset of the genetic mutation predisposing breast cancer

Valueset of the grade of the tumor

Valueset of the HER2 receptor status

Valueset of the histological types of tumors

ValueSet of the impact of a complication experienced by the breast cancer patient

Valueset of intent of therapy

Valueset of the laterality of breast cancer

Valueset of the laterality of new breast cancer

Valueset of the location of the implant during reconstruction surgery

Valueset of the menopausal status of a patient

Valueset indicating if a molecular profiling tool was used

Valueset of reason for why the treatment plan was not followed

Valueset covering if the patient received sufficient information about the treatment options

Valueset of reason for why the treatment plan was not followed

Valueset of the Progesterone receptor status

Kind of re-operation due to involved margins

Valueset of if the patient followed the multidisciplinary recommended treatment plan

Valueset of the reasons of a re-operation

Valueset of the kind of treatment that the multidisciplinary team recommended

Valueset of the methods used to confirm recurrence of breast cancer

Valueset about whether there is evidence of local, regional or distant recurrence of neoplasm

Valueset of the relationship status of a patient

Patient’s documented history of comorbidities

Valueset used in a Patient Reported Outcomes Instrument to express the statisfation response

Valueset indicating the type of staging, clinical or pathological, of breast cancer.

Valueset of the TNM stage for the M category, according to TNM staging rules

Valueset of the TNM stage for the T category, according to TNM staging rules

Valueset of the TNM stage for the N category, according to TNM staging rules

Valueset of targeted surgery types of the axilla

Valueset of the location of radiotherapy

Valueset of reason for the treatment plan not being followed

Valueset of the types of chemotherapy

ValueSet of the type of complication experienced by the breast cancer patient

Valueset of the types of hormonal therapy

Valueset of the types of re-operation

Valueset of the type of reconstruction surgery that is performed

Valueset of the types of targeted therapy

Valueset of the kind of treatment a patient with breastcancer underwent

Valueset of the types of breast surgery a patient underwent

Valueset of the unit of the patient’s body weight

Valueset with yes, no and unknown answers

Codes used in a Patient Reported Outcomes Instrument to express the degree of agreement

Codes indicating the types of breast surgery a patient underwent

Codes indicating the impact of a complication experienced by the breast cancer patient

Codes indicating the location of the implant that was placed during reconstruction surgery

Codes used to describe the different types of molecular profiling scoring

Codes covering observation identifiers for treatment plan non-compliance reaso

Codes covering if the patient received sufficient information about the treatment options

Codes covering for why the treatment plan was not followed

Codes covering if the patient followed the multidisciplinary recommended treatment plan

Codes covering if the patient has not followed the multidisciplinary recommended treatment plan

Additional code covering combination of radiological and histological diagnosis method

Additional code covering whether there is evidence of local, regional or distant recurrence of neoplasm

Codes used in a Patient Reported Outcomes Instrument to express the statisfation response

Codes defining types of treatment a breast cancer patient could receive

Codes indicating the type of a complication experienced by the breast cancer patient

Codes indicating the type of reconstruction surgery that is performed

Example of a breast cancer patient who underwent surgery to the axilla

Example of a breast cancer patient who received axilla clearance

Example of a breast cancer patient who received best supportive care

Example of the height of a patient diagnosed with breast cancer

Example of the weight of a patient diagnosed with breast cancer

Example of the surgical procedure the breast cancer patient underwent

Example of a breast cancer patient who received chemotherapy

Extended example: example showing clinical TNM staging (M)

Extended example: example showing clinical TNM staging (N)

Example showing TNM staging in patient with breast cancer

Extended example: example showing clinical TNM staging (T)

Example of a complication in patient with breast cancer

Example of death attributable to breast cancer

Example of the estrogen receptor status in a patient with breast cancer

Example of the endopredict score

Example of how the real treatment plan was followed

Example of why the treatment plan was not followed

The characteristics and demographic factors of an example patient.

The characteristics and demographic factors of an example patient.

The characteristics and demographic factors of an example patient.

Example of the targeted therapy for this patient.

Example of the menopausal status of a patient

Example of whether a patient carries a germline mutation predisposing breast cancer

Example of the human epidermal growth factor receptor 2 (HER2) status in a patient with breast cancer

Example of the histological type of the breast cancer tumor

Example of a breast cancer patient who received hormonal therapy

Example of a breast cancer patient who received immunotherapy

Example of the tumor grade of DCIS component of the breast cancer tumor

Example of the number of involved lymph nodes in a patient with breast cancer

Example of the number of resected lymph nodes in a patient with breast cancer

Example of the mammaprint score

Example of the oncotype score

Example of the progesterone receptor status in a patient with breast cancer

Extended example: example showing patholgical TNM staging (M)

Extended example: example showing patholgical TNM staging (N)

Example showing TNM staging in patient with breast cancer

Extended example: example showing patholgical TNM staging (T)

Example of the primary breast cancer diagnosis of a patient

Example of a breast cancer patient who received radiotherapy

Example of a breast cancer patient who underwent reconstruction surgery

Example of method of confirming recurrence breast cancer

Example of a reoperation due to involved margins after primary surgery

Example of the secondary condition breast cancer diagnosed in a patient

Example of the treatment that a multidisciplinary team recommended during a multidisciplinary meeting

Example of the grade of a breast cancer tumor

Example of the size of the invasive tumor of a patient with breast cancer