New Zealand rheumatic fever FHIR Implementation Guide
0.4.6 - draft
New Zealand rheumatic fever FHIR Implementation Guide
0.4.6 - draft
New Zealand rheumatic fever FHIR Implementation Guide, published by Te Whatu Ora. This guide is not an authorized publication; it is the continuous build for version 0.4.6 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/tewhatuora/rheumatic-fever/ and changes regularly. See the Directory of published versions
<QuestionnaireResponse xmlns="http://hl7.org/fhir">
<meta>
<versionId value="2"/>
<lastUpdated value="2024-08-07T08:31:00Z"/>
<profile
value="http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse"/>
<tag>
<system
value="https://build.fhir.org/ig/tewhatuora/rheumatic-fever/CodeSystem/nz-rheumaticfever-codesystem"/>
<code value="rf-nz"/>
<display value="rheumatic fever"/>
</tag>
</meta>
<basedOn>🔗
<reference value="CarePlan/RegisteredPatient"/>
</basedOn>
<questionnaire
value="https://build.fhir.org/ig/tewhatuora/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0"/>
<status value="completed"/>
<subject>
<type value="Patient"/>
<identifier>
<use value="official"/>
<system value="https://standards.digital.health.nz/ns/nhi-id"/>
<value value="ZKC7284"/>
</identifier>
<display value="Sage Westbrook"/>
</subject>
<authored value="2023-06-19T03:08:00.504Z"/>
<author>
<type value="Organization"/>
<identifier>
<use value="official"/>
<system
value="https://standards.digital.health.nz/ns/hpi-organisation-id"/>
<value value="G0M086-B"/>
</identifier>
<display
value="Te Tai Tokerau Rheumatic Fever Secondary Prevention Service"/>
</author>
<item>
<linkId value="ImportantToMe"/>
<text
value="What things that are important to me and my family that support my health and wellbeing? (enter text)"/>
<answer>
<valueString
value="I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire."/>
</answer>
</item>
<item>
<linkId value="WhanauInvolvement"/>
<text
value="How would I like my whanau and support persons to be involved? (enter text)"/>
<answer>
<valueString
value="I want my sisters to be with me at the injection appointments to support and distract me."/>
</answer>
</item>
<item>
<linkId value="BestWayToCommunicate"/>
<text value="The best way to communicate with me is…? (choose one)"/>
<answer>
<valueString value="text message"/>
</answer>
</item>
<item>
<linkId value="AppointmentsContact"/>
<text value="I know who to contact about my appointments? (choose one)"/>
<answer>
<valueBoolean value="true"/>
</answer>
</item>
<item>
<linkId value="PreferredAppointmentsLocation"/>
<text
value="What location do I prefer to receive injected antibiotics at? (choose one)"/>
<answer>
<valueString value="Home"/>
</answer>
</item>
<item>
<linkId value="InjectionLocationDetail"/>
<text
value="More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)"/>
<answer>
<valueString
value="We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that!"/>
</answer>
</item>
<item>
<linkId value="ImportantDuringInjectionVisits"/>
<text
value="What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)"/>
<answer>
<valueString
value="I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections"/>
</answer>
</item>
<item>
<linkId value="InjectionVisitsNoNos"/>
<text
value="What things don't work well for me during my injection visits? (enter text)"/>
<answer>
<valueString
value="I prefer not to know anything about the dose of medication in my injections.
Also I don't like having the injection in the same part of my thigh on each appointment. It would be good if the nurse can mix it up a bit."/>
</answer>
</item>
<item>
<linkId value="MakingInjectionsComfortable"/>
<text
value="What things do I like to have with my injections to make them more comfortable? (multiple choice)"/>
<answer>
<valueString value="Lignocaine"/>
</answer>
<answer>
<valueString value="Ice pack"/>
</answer>
<answer>
<valueString value="Numbing spray"/>
</answer>
<answer>
<valueString value="Distraction"/>
</answer>
</item>
<item>
<linkId value="InjectionOtherComfort"/>
<text
value="What other things make my injections more comfortable? (enter text)"/>
<answer>
<valueString value="Ice cream always works well!"/>
</answer>
</item>
<item>
<linkId value="MedsPreferredSupplyMethod"/>
<text
value="I would prefer to get my oral antibiotic medicines from? (choose one)"/>
<answer>
<valueString value="Other"/>
</answer>
</item>
<item>
<linkId value="MedsSupplyOtherDetail"/>
<text value="If other, enter details"/>
<answer>
<valueString
value="Please can you supply my medications in two-month packs?"/>
</answer>
</item>
<item>
<linkId value="EasierToGetToAppointments"/>
<text
value="What things make it easier for me to get to hospital appointments? (multiple choice)"/>
<answer>
<valueString value="Morning appointments"/>
</answer>
</item>
<item>
<linkId value="HospitalAppointmentsImportant"/>
<text
value="More detail about the things that are important to me about hospital appointments (enter text)"/>
<answer>
<valueString
value="I would like my hospital injections in a room with a view of the mountains."/>
</answer>
</item>
<item>
<linkId value="HospitalAppointmentsNoNos"/>
<text
value="Things that don't work well for me about hospital appointments (enter text)"/>
<answer>
<valueString
value="I prefer it if there are not heaps of trainee medics watching me get my injections."/>
</answer>
</item>
<item>
<linkId value="SupportGettingToHospitalAppointments"/>
<text
value="Do I need support getting to and from hospital appointment? (choose one)"/>
<answer>
<valueString value="No"/>
</answer>
</item>
<item>
<linkId value="HospitalAppointmentsTransportSupport"/>
<text value="Which transport support option do I need? (choose one)"/>
<answer>
<valueString value="Other"/>
</answer>
</item>
<item>
<linkId value="HospitalAppointmentsTransportOtherDetail"/>
<text
value="What other details are there about getting to hospital appointments? (enter text)"/>
<answer>
<valueString
value="Please can I have a reserved park space to park Dad's '73 Hilux? This will help me get to my appointments on time."/>
</answer>
</item>
</QuestionnaireResponse>