ACT-NOW Implementation Guide
0.5.0 - ci-build

ACT-NOW Implementation Guide, published by Te aho o te kahu - Cancer Control Agency. This guide is not an authorized publication; it is the continuous build for version 0.5.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/tewhatuora/actnow/ and changes regularly. See the Directory of published versions

## Terminology

### ValueSets

These are ValueSets that have been defined in this guide for coded elements…

Each ValueSet resource has a globally unique url (the Canonical url) that is used to unambiguously identify it. This url generally should resolve to the to the FHIR ValueSet resource, though the infrastructure to support this is not yet in place. There's a specific note in the spec on ValueSet identification.

The FHIR spec has much more detail on the use of Terminology in FHIR.

ValueSet | Purpose | Canonical url
Basis of diagnosis | Types of evidence that may be used to reach a cancer diagnosis, which is treated with systemic anti cancer therapy (SACT). | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-basis-of-cancer-diagnosis
Clinical M score | The TNM group score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-cm
Clinical N score | The clincial N score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-cn
Clinical T score | The clinical T score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-ct
Clinical TNM group | The TNM group score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-clinical-stage-group
Dose adjustment reason | Reasons for adjusting the dose of a systemic anti-cancer therapy (SACT) treatment cycle plus other value. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-dose-adjustment-reason
ECOG status | The performance status of a patient as defined by the Eastern Cooperative Oncology Group (ECOG) minus ECOG 5 (A performance status used when a patient is 'Dead'). | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-ecog-status
ER status | A diagnosis of whether or not a tumour is estrogen receptive (ER) minus inconclusive value. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-er-expression
HER2 status | A diagnosis of the human epidermal growth factor receptor 2 (HER2) status of a tumour minus inconculsive value . | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-her2-expression
Histology | Histology | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-who-sact-primary-histology
Intent of treatment | Treatment intents or reasons for using a therapeutic procedure to treat cancer. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-treatment-intent
Is on a clinical trial | Is on a clinical trial | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-drug-trial
Outcome of a regimen | The outcome of the prescribed regimen for the patient | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-regimen-outcome
PR status | A diagnosis of whether or not a tumour is progesterone receptive (PR) minus inconculsive value. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-pr-expression
Pathological M score | Pathological M score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pm
Pathological N score | Pathological N score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pn
Pathological T score | Pathological T score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pt
Pathological TNM group | The TNM group score | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-tnm-pathological-stage-group
Patient factors when discontinuing a regimen | Patient factors that may result in the discontinuation of a systemic anti-cancer therapy (SACT) treatment plus not asked value. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-patient-factor-discontinue-reason
The reason why a regimen was discontinued | The reason why a regimen was discontinued | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-overall-discontinue-reason
Toxicity reasons why a regimen was discontinued | Toxicity factors that may result in the discontinuation of a systemic anti-cancer therapy (SACT) treatment. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-sact-toxicity-discontinue-reason
Type of recurrence | The type of cancer recurrence, e.g. local, regional plus unknown and not applicable values. | https://nzhts.digital.health.nz/fhir/ValueSet/canshare-recurrence-type

### CodeSystems

These are code systems that have been defined in this guide. They define specific concepts that are included in ValueSets. It is preferable to use an international code system such as SNOMED, ICD or LOINC - but this is not always possible.

Each CodeSystem resource has a globally unique url (the canonical url) that is used to unambiguously identify it. The url generally refers to a description of the codesystem, rather than to the FHIR CodeSystem resource.

The FHIR spec has much more detail on the use of Terminology in FHIR

CodeSystem | Purpose | Canonical url