PACIO Sample Data Depot
0.1.0 - draft

PACIO Sample Data Depot, published by MITRE. This guide is not an authorized publication; it is the continuous build for version 0.1.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/paciowg/sample-data-fsh/ and changes regularly. See the Directory of published versions

Example Bundle: 46349c26-30b3-4f36-94a6-f9ddfe4b7426

Last updated: 2025-06-20 16:47:25+0000

Bundle 46349c26-30b3-4f36-94a6-f9ddfe4b7426 of type searchset

Entry 1 - fullUrl = https://gw.interop.community/cmspqrs/open/Questionnaire/44249-1

Search:Mode = match

Resource Questionnaire:

version: 1; Last updated: 2025-05-28 18:06:29+0000;

Information Source: #aLYUC2N4J9eLQ33k

Structure
LinkIDTextCardinalityTypeDescription & Constraintsdoco
.. PHQ_quick_depression_assessment_panelQuestionnairehttp://loinc.org/q/44249-1
... 14363PHQ-9.1. Little interest or pleasure in doing things1..1choiceOptions: 4 options
... 14364PHQ-9.2. Feeling down, depressed, or hopeless1..1choiceOptions: 4 options
... 14365Trouble falling or staying asleep, or sleeping too much1..1choiceOptions: 4 options
... 14367Poor appetite or overeating1..1choiceOptions: 4 options
... 14368Feeling bad about yourself-or that you are a failure or have let yourself or your family down1..1choiceOptions: 4 options
... 14369Trouble concentrating on things, such as reading the newspaper or watching television1..1choiceOptions: 4 options
... 14370Moving or speaking so slowly that other people could have noticed. Or the opposite-being so fidgety or restless that you have been moving around a lot more than usual1..1choiceOptions: 4 options
... 14371Thoughts that you would be better off dead, or of hurting yourself in some way0..1choiceOptions: 4 options
... 57492How difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?0..1choiceOptions: 4 options
... 14372Patient health questionnaire 9 item total score0..1decimal

doco Documentation for this format

Options Sets

Answer options for 14363

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14364

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14365

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14366

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14367

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14368

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14369

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14370

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 14371

  • http://loinc.org#LA6568-5 ("Not at all")
  • http://loinc.org#LA6569-3 ("Several days")
  • http://loinc.org#LA6570-1 ("More than half the days")
  • http://loinc.org#LA6571-9 ("Nearly every day")

Answer options for 57492

  • http://loinc.org#LA6572-7 ("Not difficult at all")
  • http://loinc.org#LA6573-5 ("Somewhat difficult")
  • http://loinc.org#LA6575-0 ("Very difficult")
  • http://loinc.org#LA6574-3 ("Extremely difficult")

Entry 2 - fullUrl = https://gw.interop.community/cmspqrs/open/Questionnaire/52

Search:Mode = match

Resource Questionnaire:

version: 1; Last updated: 2025-06-10 19:04:47+0000;

Information Source: #zOBHLc4oJjsM2fkp

Structure
LinkIDTextCardinalityTypeFlagsDescription & Constraintsdoco
.. ZBI-22Zarit Burden Interview (ZBI) Questionnairehttps://globalalliantinc.com/fhir/questionnaires/ZBI-22#1.0.0
... mbiWhat is this patient's Medicare Beneficiary Identifier (MBI)?1..1string
... first_nameWhat is the patient's first name?1..1stringMax Length: 100
... last_nameWhat is the patient's last name?1..1stringMax Length: 100
... date_of_birthWhat is this patient's date of birth?1..1date
... pcg_first_nameWhat is the primary caregiver's first name?1..1stringMax Length: 100
... pcg_last_nameWhat is the primary caregiver's last name?1..1stringMax Length: 100
... assessment_datePlease report the date this assessment was complete.1..1date
... ask_moreDo you feel that your relative asks for more help than he/she needs?1..1choiceOptions: 5 options
... enough_timeDo you feel that because of the time you spend with your relative that you don't have enough time for yourself?1..1choiceOptions: 5 options
... stressedDo you feel stressed between caring for your relative and trying to meet other responsibilities for your family or work?1..1choiceOptions: 5 options
... embarrassedDo you feel embarrassed over your relative's behavior?1..1choiceOptions: 5 options
... angryDo you feel angry when you are around your relative?1..1choiceOptions: 5 options
... affects_relationshipsDo you feel that your relative currently affects your relationship with other family members or friends in a negative way?1..1choiceOptions: 5 options
... afraid_futureAre you afraid what the future holds for your relative?1..1choiceOptions: 5 options
... dependentDo you feel your relative is dependent upon you?1..1choiceOptions: 5 options
... strainedDo you feel strained when you are around your relative?1..1choiceOptions: 5 options
... health_sufferedDo you feel your health has suffered because of your involvement with your relative?1..1choiceOptions: 5 options
... privacyDo you feel that you don't have as much privacy as you would like, because of your relative?1..1choiceOptions: 5 options
... social_lifeDo you feel that your social life has suffered because you are caring for your relative?1..1choiceOptions: 5 options
... uncomfortableDo you feel uncomfortable about having friends over, because of your relative?1..1choiceOptions: 5 options
... expectationDo you feel that your relative seems to expect you to take care of him/her, as if you were the only one he/she could depend on?1..1choiceOptions: 5 options
... enough_moneyDo you feel that you don't have enough money to care for your relative, in addition to the rest of your expenses?1..1choiceOptions: 5 options
... much_longerDo you feel that you will be unable to take care of your relative much longer?1..1choiceOptions: 5 options
... lost_controlDo you feel you have lost control of your life since your relative's illness?1..1choiceOptions: 5 options
... leave_careDo you wish you could just leave the care of your relative to someone else?1..1choiceOptions: 5 options
... uncertainDo you feel uncertain about what to do about your relative?1..1choiceOptions: 5 options
... do_moreDo you feel you should be doing more for your relative?1..1choiceOptions: 5 options
... better_jobDo you feel you could do a better job in caring for your relative?1..1choiceOptions: 5 options
... overall_burdenOverall, how burdened do you feel in caring for your relative?1..1choiceOptions: 5 options

doco Documentation for this format

Options Sets

Answer options for ask_more

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for enough_time

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for stressed

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for embarrassed

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for angry

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for affects_relationships

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for afraid_future

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for dependent

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for strained

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for health_suffered

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for privacy

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for social_life

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for uncomfortable

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for expectation

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for enough_money

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for much_longer

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for lost_control

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for leave_care

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for uncertain

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for do_more

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for better_job

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for overall_burden

  • null#0 ("Not at all")
  • null#1 ("A little bit")
  • null#2 ("Moderately")
  • null#3 ("Quite a bit")
  • null#4 ("Extremely")

Entry 3 - fullUrl = https://gw.interop.community/cmspqrs/open/Questionnaire/questionnaire-ZBI22

Search:Mode = match

Resource Questionnaire:

version: 1; Last updated: 2025-06-12 13:01:35+0000;

Information Source: #jhl8BZ4aslKK0xGI

Structure
LinkIDTextCardinalityTypeFlagsDescription & Constraintsdoco
.. ZBI-22Zarit Burden Interview (ZBI) Questionnairehttps://globalalliantinc.com/fhir/questionnaires/ZBI-22#0.1.0
... first_nameWhat is the patient's first name?1..1stringMax Length: 100
... last_nameWhat is the patient's last name?1..1stringMax Length: 100
... date_of_birthWhat is this patient's date of birth?1..1date
... mbiWhat is this patient's Medicare Beneficiary Identifier (MBI)?1..1string
... pcg_first_nameWhat is the primary caregiver's first name?1..1stringMax Length: 100
... pcg_last_nameWhat is the primary caregiver's last name?1..1stringMax Length: 100
... assessment_datePlease report the date this assessment was complete.1..1date
... ask_moreDo you feel that your relative asks for more help than he/she needs?1..1choiceOptions: 5 options
... enough_timeDo you feel that because of the time you spend with your relative that you don’t have enough time for yourself?1..1choiceOptions: 5 options
... stressedDo you feel stressed between caring for your relative and trying to meet other responsibilities for your family or work?1..1choiceOptions: 5 options
... embarrassedDo you feel embarrassed over your relative’s behavior?1..1choiceOptions: 5 options
... angryDo you feel angry when you are around your relative?1..1choiceOptions: 5 options
... affects_relationshipsDo you feel that your relative currently affects your relationship with other family members or friends in a negative way?1..1choiceOptions: 5 options
... afraid_futureAre you afraid what the future holds for your relative?1..1choiceOptions: 5 options
... dependentDo you feel your relative is dependent upon you?1..1choiceOptions: 5 options
... strainedDo you feel strained when you are around your relative?1..1choiceOptions: 5 options
... health_sufferedDo you feel your health has suffered because of your involvement with your relative?1..1choiceOptions: 5 options
... privacyDo you feel that you don’t have as much privacy as you would like, because of your relative?1..1choiceOptions: 5 options
... social_lifeDo you feel that your social life has suffered because you are caring for your relative?1..1choiceOptions: 5 options
... uncomfortableDo you feel uncomfortable about having friends over, because of your relative?1..1choiceOptions: 5 options
... expectationDo you feel that your relative seems to expect you to take care of him/her, as if you were the only one he/she could depend on?1..1choiceOptions: 5 options
... enough_moneyDo you feel that you don’t have enough money to care for your relative, in addition to the rest of your expenses?1..1choiceOptions: 5 options
... much_longerDo you feel that you will be unable to take care of your relative much longer?1..1choiceOptions: 5 options
... lost_controlDo you feel you have lost control of your life since your relative’s illness?1..1choiceOptions: 5 options
... leave_careDo you wish you could just leave the care of your relative to someone else?1..1choiceOptions: 5 options
... uncertainDo you feel uncertain about what to do about your relative?1..1choiceOptions: 5 options
... do_moreDo you feel you should be doing more for your relative?1..1choiceOptions: 5 options
... better_jobDo you feel you could do a better job in caring for your relative?1..1choiceOptions: 5 options
... overall_burdenOverall, how burdened do you feel in caring for your relative?1..1choiceOptions: 5 options

doco Documentation for this format

Options Sets

Answer options for ask_more

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for enough_time

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for stressed

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for embarrassed

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for angry

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for affects_relationships

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for afraid_future

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for dependent

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for strained

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for health_suffered

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for privacy

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for social_life

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for uncomfortable

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for expectation

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for enough_money

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for much_longer

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for lost_control

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for leave_care

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for uncertain

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for do_more

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for better_job

  • null#0 ("Never")
  • null#1 ("Rarely")
  • null#2 ("Sometimes")
  • null#3 ("Quite Frequently")
  • null#4 ("Nearly Always")

Answer options for overall_burden

  • null#0 ("Not at all")
  • null#1 ("A little bit")
  • null#2 ("Moderately")
  • null#3 ("Quite a bit")
  • null#4 ("Extremely")