PanCareSurPass Project HL7 FHIR Implementation Guide
1.0.0 - release 150

PanCareSurPass Project HL7 FHIR Implementation Guide, published by PanCareSurPass Project. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/pcsp/ and changes regularly. See the Directory of published versions

## : PCSP Code System - JSON Representation

Active as of 2025-10-16

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    {
      "resourceType" : "CodeSystem",
      "id" : "cs-generic-eu-pcsp",
      "text" : {
        "status" : "generated",
        "div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p class=\"res-header-id\"><b>Generated Narrative: CodeSystem cs-generic-eu-pcsp</b></p><a name=\"cs-generic-eu-pcsp\"> </a><a name=\"hccs-generic-eu-pcsp\"> </a><p>This case-sensitive code system <code>http://hl7.eu/fhir/ig/pcsp/CodeSystem/cs-generic-eu-pcsp</code> defines the following codes:</p><table class=\"codes\"><tr><td style=\"white-space:nowrap\"><b>Code</b></td><td><b>Display</b></td><td><b>Definition</b></td></tr><tr><td style=\"white-space:nowrap\">surpass<a name=\"cs-generic-eu-pcsp-surpass\"> </a></td><td>Childhood Cancer Survivor Passport</td><td>Childhood Cancer Survivor Passport. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">section-sct<a name=\"cs-generic-eu-pcsp-section-sct\"> </a></td><td>Stem Cell Transplantation</td><td>Stem Cell Transplantation section. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">section-rt<a name=\"cs-generic-eu-pcsp-section-rt\"> </a></td><td>Radiotherapy</td><td>Radiotherapy section. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">section-otherInfos<a name=\"cs-generic-eu-pcsp-section-otherInfos\"> </a></td><td>Other Medical Information</td><td>Other Medical Information section. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">section-suggestion<a name=\"cs-generic-eu-pcsp-section-suggestion\"> </a></td><td>Medical Suggestions</td><td>Medical Suggestions section. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">section-otherConditions<a name=\"cs-generic-eu-pcsp-section-otherConditions\"> </a></td><td>Other Health Conditions</td><td>Other Health Conditions section. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">section-relapseAfterEOT<a name=\"cs-generic-eu-pcsp-section-relapseAfterEOT\"> </a></td><td>Relapse After EOT</td><td>Relapse After End of Treatment section. Placeholder waiting for a LOINC code</td></tr><tr><td style=\"white-space:nowrap\">nar-chronicCond<a name=\"cs-generic-eu-pcsp-nar-chronicCond\"> </a></td><td>Chronic conditions</td><td>Chronic conditions</td></tr><tr><td style=\"white-space:nowrap\">nar-planNotes<a name=\"cs-generic-eu-pcsp-nar-planNotes\"> </a></td><td>Plan notes</td><td>Plan additional notes</td></tr><tr><td style=\"white-space:nowrap\">cumulativeDose<a name=\"cs-generic-eu-pcsp-cumulativeDose\"> </a></td><td>Cumulative dose received by a patient for a specific drug.</td><td/></tr><tr><td style=\"white-space:nowrap\">orthovoltage<a name=\"cs-generic-eu-pcsp-orthovoltage\"> </a></td><td>Orthovoltage</td><td>Orthovoltage / kilovoltage usually 200 - 300kv X rays/photons</td></tr><tr><td style=\"white-space:nowrap\">linac-mv<a name=\"cs-generic-eu-pcsp-linac-mv\"> </a></td><td>Linac MV</td><td>(Linear Accelerator) megavoltage MV X Rays/photons</td></tr><tr><td style=\"white-space:nowrap\">linac-el<a name=\"cs-generic-eu-pcsp-linac-el\"> </a></td><td>Linac electrons</td><td>Linac (Linear Accelerator) electrons</td></tr><tr><td style=\"white-space:nowrap\">cobalt<a name=\"cs-generic-eu-pcsp-cobalt\"> </a></td><td>Cobalt MV</td><td>Cobalt - MV gamma rays / photons</td></tr><tr><td style=\"white-space:nowrap\">proton-beam<a name=\"cs-generic-eu-pcsp-proton-beam\"> </a></td><td>Proton Beam</td><td>Proton Beam</td></tr><tr><td style=\"white-space:nowrap\">surface-brachytherapy<a name=\"cs-generic-eu-pcsp-surface-brachytherapy\"> </a></td><td>Surface brachytherapy</td><td>Surface brachytherapy</td></tr><tr><td style=\"white-space:nowrap\">interstitial-brachytherapy<a name=\"cs-generic-eu-pcsp-interstitial-brachytherapy\"> </a></td><td>Interstitial brachytherapy</td><td>Interstitial brachytherapy</td></tr><tr><td style=\"white-space:nowrap\">intra-brachytherapy<a name=\"cs-generic-eu-pcsp-intra-brachytherapy\"> </a></td><td>Intracavitary or intraluminal brachytherapy</td><td>Intracavitary or intraluminal brachytherapy</td></tr><tr><td style=\"white-space:nowrap\">unk-brachytherapy<a name=\"cs-generic-eu-pcsp-unk-brachytherapy\"> </a></td><td>Unknown brachytherapy</td><td>Unknown brachytherapy</td></tr><tr><td style=\"white-space:nowrap\">sht-47020004<a name=\"cs-generic-eu-pcsp-sht-47020004\"> </a></td><td>Ventriculoperitoneal shunt</td><td>Ventriculoperitoneal shunt procedure</td></tr><tr><td style=\"white-space:nowrap\">sht-4579008<a name=\"cs-generic-eu-pcsp-sht-4579008\"> </a></td><td>Ventriculo-atrial shunt</td><td>Ventriculo-atrial shunt procedure</td></tr><tr><td style=\"white-space:nowrap\">sht-280384000<a name=\"cs-generic-eu-pcsp-sht-280384000\"> </a></td><td>Subdural-peritoneal shunt</td><td>Subdural-peritoneal shunt procedure</td></tr><tr><td style=\"white-space:nowrap\">sht-265218003<a name=\"cs-generic-eu-pcsp-sht-265218003\"> </a></td><td>Cisternostomy (III ventricule)</td><td>Cisternostomy (III ventricule)</td></tr><tr><td style=\"white-space:nowrap\">sht-other<a name=\"cs-generic-eu-pcsp-sht-other\"> </a></td><td>Other cerebrovascular shunt procedure</td><td>Other cerebrovascular shunt procedure</td></tr><tr><td style=\"white-space:nowrap\">int-prosthesis<a name=\"cs-generic-eu-pcsp-int-prosthesis\"> </a></td><td>Internal Prosthesis</td><td>Internal Prosthesis</td></tr><tr><td style=\"white-space:nowrap\">ext-prosthesis<a name=\"cs-generic-eu-pcsp-ext-prosthesis\"> </a></td><td>External Prosthesis</td><td>External Prosthesis</td></tr><tr><td style=\"white-space:nowrap\">sct-matched-related<a name=\"cs-generic-eu-pcsp-sct-matched-related\"> </a></td><td>matched related</td><td>matched related, unknown or unspecified</td></tr><tr><td style=\"white-space:nowrap\">sct-matched-unrelated<a name=\"cs-generic-eu-pcsp-sct-matched-unrelated\"> </a></td><td>matched unrelated</td><td>matched unrelated</td></tr><tr><td style=\"white-space:nowrap\">sct-mismatch-related<a name=\"cs-generic-eu-pcsp-sct-mismatch-related\"> </a></td><td>mismatch related</td><td>mismatch related</td></tr><tr><td style=\"white-space:nowrap\">sct-mismatch-unrelated<a name=\"cs-generic-eu-pcsp-sct-mismatch-unrelated\"> </a></td><td>mismatch unrelated</td><td>mismatch unrelated</td></tr><tr><td style=\"white-space:nowrap\">sct-haplo-identical<a name=\"cs-generic-eu-pcsp-sct-haplo-identical\"> </a></td><td>haplo-identical</td><td>haplo-identical</td></tr><tr><td style=\"white-space:nowrap\">sct-matched-related–sibling<a name=\"cs-generic-eu-pcsp-sct-matched-related.8211sibling\"> </a></td><td>matched related – sibling</td><td>matched related – sibling</td></tr><tr><td style=\"white-space:nowrap\">sct-matched-related–parent<a name=\"cs-generic-eu-pcsp-sct-matched-related.8211parent\"> </a></td><td>matched related – parent</td><td>matched related – parent</td></tr><tr><td style=\"white-space:nowrap\">sct-matched-related–other<a name=\"cs-generic-eu-pcsp-sct-matched-related.8211other\"> </a></td><td>matched related – other</td><td>matched related – other (e.g. cousin)</td></tr><tr><td style=\"white-space:nowrap\">sct-pbsc<a name=\"cs-generic-eu-pcsp-sct-pbsc\"> </a></td><td>PBSC</td><td>PBSC</td></tr><tr><td style=\"white-space:nowrap\">sct-bone-marrow<a name=\"cs-generic-eu-pcsp-sct-bone-marrow\"> </a></td><td>Bone marrow</td><td>Bone marrow</td></tr><tr><td style=\"white-space:nowrap\">sct-cord<a name=\"cs-generic-eu-pcsp-sct-cord\"> </a></td><td>Cord</td><td>Cord</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-unk<a name=\"cs-generic-eu-pcsp-Gvhd-unk\"> </a></td><td>Gvhd Unknown</td><td>It is not known if this patient suffers Gvhd</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-acute-1<a name=\"cs-generic-eu-pcsp-Gvhd-acute-1\"> </a></td><td>Grade 1</td><td>Acute Gvhd: grade 1</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-acute-2<a name=\"cs-generic-eu-pcsp-Gvhd-acute-2\"> </a></td><td>Grade 2</td><td>Acute Gvhd: grade 2</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-acute-3<a name=\"cs-generic-eu-pcsp-Gvhd-acute-3\"> </a></td><td>Grade 3</td><td>Acute Gvhd: grade 3</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-acute-4<a name=\"cs-generic-eu-pcsp-Gvhd-acute-4\"> </a></td><td>Grade 4</td><td>Acute Gvhd: grade 4</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-chr-1<a name=\"cs-generic-eu-pcsp-Gvhd-chr-1\"> </a></td><td>Limited</td><td>Chronic Gvhd: grade 1 limited</td></tr><tr><td style=\"white-space:nowrap\">Gvhd-chr-2<a name=\"cs-generic-eu-pcsp-Gvhd-chr-2\"> </a></td><td>Extensive</td><td>Chronic Gvhd: grade 2 extensive</td></tr><tr><td style=\"white-space:nowrap\">before-procedure<a name=\"cs-generic-eu-pcsp-before-procedure\"> </a></td><td>Before procedure</td><td>Before procedure</td></tr><tr><td style=\"white-space:nowrap\">after-procedure<a name=\"cs-generic-eu-pcsp-after-procedure\"> </a></td><td>After procedure</td><td>After procedure</td></tr><tr><td style=\"white-space:nowrap\">personalized-plan<a name=\"cs-generic-eu-pcsp-personalized-plan\"> </a></td><td>Personalized</td><td>Personalized Plan</td></tr><tr><td style=\"white-space:nowrap\">guidelines-plan<a name=\"cs-generic-eu-pcsp-guidelines-plan\"> </a></td><td>Guidelines</td><td>Plan based on guidelines</td></tr><tr><td style=\"white-space:nowrap\">to-structure<a name=\"cs-generic-eu-pcsp-to-structure\"> </a></td><td>To-Structure</td><td>To-Structure</td></tr><tr><td style=\"white-space:nowrap\">other-treatment<a name=\"cs-generic-eu-pcsp-other-treatment\"> </a></td><td>Other oncological treatments</td><td>Any other treatment (not included in the chemotherapy, surgery or radiotherapy sections) was adminstered to the survivor</td></tr></table></div>"
      },
      "url" : "http://hl7.eu/fhir/ig/pcsp/CodeSystem/cs-generic-eu-pcsp",
      "version" : "1.0.0",
      "name" : "CsGenericPcsp",
      "title" : "PCSP Code System",
      "status" : "active",
      "experimental" : false,
      "date" : "2025-10-16T12:02:24+00:00",
      "publisher" : "PanCareSurPass Project",
      "contact" : [
        {
          "name" : "PanCareSurPass Project",
          "telecom" : [
            {
              "system" : "url",
              "value" : "https://www.pancaresurpass.eu/"
            }
          ]
        },
        {
          "name" : "PanCareSurPass Project",
          "telecom" : [
            {
              "system" : "url",
              "value" : "https://www.pancaresurpass.eu/"
            }
          ]
        }
      ],
      "description" : "Coded concepts specified by the PancareSurPass Project",
      "jurisdiction" : [
        {
          "coding" : [
            {
              "system" : "http://unstats.un.org/unsd/methods/m49/m49.htm",
              "code" : "150",
              "display" : "Europe"
            }
          ]
        }
      ],
      "caseSensitive" : true,
      "content" : "complete",
      "count" : 50,
      "concept" : [
        {
          "code" : "surpass",
          "display" : "Childhood Cancer Survivor Passport",
          "definition" : "Childhood Cancer Survivor Passport. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "section-sct",
          "display" : "Stem Cell Transplantation",
          "definition" : "Stem Cell Transplantation section. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "section-rt",
          "display" : "Radiotherapy",
          "definition" : "Radiotherapy section. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "section-otherInfos",
          "display" : "Other Medical Information",
          "definition" : "Other Medical Information section. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "section-suggestion",
          "display" : "Medical Suggestions",
          "definition" : "Medical Suggestions section. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "section-otherConditions",
          "display" : "Other Health Conditions",
          "definition" : "Other Health Conditions section. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "section-relapseAfterEOT",
          "display" : "Relapse After EOT",
          "definition" : "Relapse After End of Treatment section. Placeholder waiting for a LOINC code"
        },
        {
          "code" : "nar-chronicCond",
          "display" : "Chronic conditions",
          "definition" : "Chronic conditions"
        },
        {
          "code" : "nar-planNotes",
          "display" : "Plan notes",
          "definition" : "Plan additional notes"
        },
        {
          "code" : "cumulativeDose",
          "display" : "Cumulative dose received by a patient for a specific drug."
        },
        {
          "code" : "orthovoltage",
          "display" : "Orthovoltage",
          "definition" : "Orthovoltage / kilovoltage usually 200 - 300kv X rays/photons"
        },
        {
          "code" : "linac-mv",
          "display" : "Linac MV",
          "definition" : "(Linear Accelerator) megavoltage MV X Rays/photons"
        },
        {
          "code" : "linac-el",
          "display" : "Linac electrons",
          "definition" : "Linac (Linear Accelerator) electrons"
        },
        {
          "code" : "cobalt",
          "display" : "Cobalt MV",
          "definition" : "Cobalt - MV gamma rays / photons"
        },
        {
          "code" : "proton-beam",
          "display" : "Proton Beam",
          "definition" : "Proton Beam"
        },
        {
          "code" : "surface-brachytherapy",
          "display" : "Surface brachytherapy",
          "definition" : "Surface brachytherapy"
        },
        {
          "code" : "interstitial-brachytherapy",
          "display" : "Interstitial brachytherapy",
          "definition" : "Interstitial brachytherapy"
        },
        {
          "code" : "intra-brachytherapy",
          "display" : "Intracavitary or intraluminal brachytherapy",
          "definition" : "Intracavitary or intraluminal brachytherapy"
        },
        {
          "code" : "unk-brachytherapy",
          "display" : "Unknown brachytherapy",
          "definition" : "Unknown brachytherapy"
        },
        {
          "code" : "sht-47020004",
          "display" : "Ventriculoperitoneal shunt",
          "definition" : "Ventriculoperitoneal shunt procedure"
        },
        {
          "code" : "sht-4579008",
          "display" : "Ventriculo-atrial shunt",
          "definition" : "Ventriculo-atrial shunt procedure"
        },
        {
          "code" : "sht-280384000",
          "display" : "Subdural-peritoneal shunt",
          "definition" : "Subdural-peritoneal shunt procedure"
        },
        {
          "code" : "sht-265218003",
          "display" : "Cisternostomy (III ventricule)",
          "definition" : "Cisternostomy (III ventricule)"
        },
        {
          "code" : "sht-other",
          "display" : "Other cerebrovascular shunt procedure",
          "definition" : "Other cerebrovascular shunt procedure"
        },
        {
          "code" : "int-prosthesis",
          "display" : "Internal Prosthesis",
          "definition" : "Internal Prosthesis"
        },
        {
          "code" : "ext-prosthesis",
          "display" : "External Prosthesis",
          "definition" : "External Prosthesis"
        },
        {
          "code" : "sct-matched-related",
          "display" : "matched related",
          "definition" : "matched related, unknown or unspecified"
        },
        {
          "code" : "sct-matched-unrelated",
          "display" : "matched unrelated",
          "definition" : "matched unrelated"
        },
        {
          "code" : "sct-mismatch-related",
          "display" : "mismatch related",
          "definition" : "mismatch related"
        },
        {
          "code" : "sct-mismatch-unrelated",
          "display" : "mismatch unrelated",
          "definition" : "mismatch unrelated"
        },
        {
          "code" : "sct-haplo-identical",
          "display" : "haplo-identical",
          "definition" : "haplo-identical"
        },
        {
          "code" : "sct-matched-related–sibling",
          "display" : "matched related – sibling",
          "definition" : "matched related – sibling"
        },
        {
          "code" : "sct-matched-related–parent",
          "display" : "matched related – parent",
          "definition" : "matched related – parent"
        },
        {
          "code" : "sct-matched-related–other",
          "display" : "matched related – other",
          "definition" : "matched related – other (e.g. cousin)"
        },
        {
          "code" : "sct-pbsc",
          "display" : "PBSC",
          "definition" : "PBSC"
        },
        {
          "code" : "sct-bone-marrow",
          "display" : "Bone marrow",
          "definition" : "Bone marrow"
        },
        {
          "code" : "sct-cord",
          "display" : "Cord",
          "definition" : "Cord"
        },
        {
          "code" : "Gvhd-unk",
          "display" : "Gvhd Unknown",
          "definition" : "It is not known if this patient suffers Gvhd"
        },
        {
          "code" : "Gvhd-acute-1",
          "display" : "Grade 1",
          "definition" : "Acute Gvhd: grade 1"
        },
        {
          "code" : "Gvhd-acute-2",
          "display" : "Grade 2",
          "definition" : "Acute Gvhd: grade 2"
        },
        {
          "code" : "Gvhd-acute-3",
          "display" : "Grade 3",
          "definition" : "Acute Gvhd: grade 3"
        },
        {
          "code" : "Gvhd-acute-4",
          "display" : "Grade 4",
          "definition" : "Acute Gvhd: grade 4"
        },
        {
          "code" : "Gvhd-chr-1",
          "display" : "Limited",
          "definition" : "Chronic Gvhd: grade 1 limited"
        },
        {
          "code" : "Gvhd-chr-2",
          "display" : "Extensive",
          "definition" : "Chronic Gvhd: grade 2 extensive"
        },
        {
          "code" : "before-procedure",
          "display" : "Before procedure",
          "definition" : "Before procedure"
        },
        {
          "code" : "after-procedure",
          "display" : "After procedure",
          "definition" : "After procedure"
        },
        {
          "code" : "personalized-plan",
          "display" : "Personalized",
          "definition" : "Personalized Plan"
        },
        {
          "code" : "guidelines-plan",
          "display" : "Guidelines",
          "definition" : "Plan based on guidelines"
        },
        {
          "code" : "to-structure",
          "display" : "To-Structure",
          "definition" : "To-Structure"
        },
        {
          "code" : "other-treatment",
          "display" : "Other oncological treatments",
          "definition" : "Any other treatment (not included in the chemotherapy, surgery or radiotherapy sections) was adminstered to the survivor"
        }
      ]
    }