PanCareSurPass Project HL7 FHIR Implementation Guide
1.0.0 - release 150

PanCareSurPass Project HL7 FHIR Implementation Guide, published by PanCareSurPass Project. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/pcsp/ and changes regularly. See the Directory of published versions

## : PCSP Code System - XML Representation

Active as of 2026-01-16

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    <CodeSystem xmlns="http://hl7.org/fhir">
      <id value="cs-generic-eu-pcsp"/>
      <text>
        <status value="generated"/>
        <div xmlns="http://www.w3.org/1999/xhtml"><p class="res-header-id"><b>Generated Narrative: CodeSystem cs-generic-eu-pcsp</b></p><a name="cs-generic-eu-pcsp"> </a><a name="hccs-generic-eu-pcsp"> </a><p>This case-sensitive code system <code>http://hl7.eu/fhir/ig/pcsp/CodeSystem/cs-generic-eu-pcsp</code> defines the following codes:</p><table class="codes"><tr><td style="white-space:nowrap"><b>Code</b></td><td><b>Display</b></td><td><b>Definition</b></td></tr><tr><td style="white-space:nowrap">surpass<a name="cs-generic-eu-pcsp-surpass"> </a></td><td>Childhood Cancer Survivor Passport</td><td>Childhood Cancer Survivor Passport. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">section-sct<a name="cs-generic-eu-pcsp-section-sct"> </a></td><td>Stem Cell Transplantation</td><td>Stem Cell Transplantation section. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">section-rt<a name="cs-generic-eu-pcsp-section-rt"> </a></td><td>Radiotherapy</td><td>Radiotherapy section. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">section-otherInfos<a name="cs-generic-eu-pcsp-section-otherInfos"> </a></td><td>Other Medical Information</td><td>Other Medical Information section. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">section-suggestion<a name="cs-generic-eu-pcsp-section-suggestion"> </a></td><td>Medical Suggestions</td><td>Medical Suggestions section. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">section-otherConditions<a name="cs-generic-eu-pcsp-section-otherConditions"> </a></td><td>Other Health Conditions</td><td>Other Health Conditions section. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">section-relapseAfterEOT<a name="cs-generic-eu-pcsp-section-relapseAfterEOT"> </a></td><td>Relapse After EOT</td><td>Relapse After End of Treatment section. Placeholder waiting for a LOINC code</td></tr><tr><td style="white-space:nowrap">nar-chronicCond<a name="cs-generic-eu-pcsp-nar-chronicCond"> </a></td><td>Chronic conditions</td><td>Chronic conditions</td></tr><tr><td style="white-space:nowrap">nar-planNotes<a name="cs-generic-eu-pcsp-nar-planNotes"> </a></td><td>Plan notes</td><td>Plan additional notes</td></tr><tr><td style="white-space:nowrap">cumulativeDose<a name="cs-generic-eu-pcsp-cumulativeDose"> </a></td><td>Cumulative dose received by a patient for a specific drug.</td><td/></tr><tr><td style="white-space:nowrap">orthovoltage<a name="cs-generic-eu-pcsp-orthovoltage"> </a></td><td>Orthovoltage</td><td>Orthovoltage / kilovoltage usually 200 - 300kv X rays/photons</td></tr><tr><td style="white-space:nowrap">linac-mv<a name="cs-generic-eu-pcsp-linac-mv"> </a></td><td>Linac MV</td><td>(Linear Accelerator) megavoltage MV X Rays/photons</td></tr><tr><td style="white-space:nowrap">linac-el<a name="cs-generic-eu-pcsp-linac-el"> </a></td><td>Linac electrons</td><td>Linac (Linear Accelerator) electrons</td></tr><tr><td style="white-space:nowrap">cobalt<a name="cs-generic-eu-pcsp-cobalt"> </a></td><td>Cobalt MV</td><td>Cobalt - MV gamma rays / photons</td></tr><tr><td style="white-space:nowrap">proton-beam<a name="cs-generic-eu-pcsp-proton-beam"> </a></td><td>Proton Beam</td><td>Proton Beam</td></tr><tr><td style="white-space:nowrap">surface-brachytherapy<a name="cs-generic-eu-pcsp-surface-brachytherapy"> </a></td><td>Surface brachytherapy</td><td>Surface brachytherapy</td></tr><tr><td style="white-space:nowrap">interstitial-brachytherapy<a name="cs-generic-eu-pcsp-interstitial-brachytherapy"> </a></td><td>Interstitial brachytherapy</td><td>Interstitial brachytherapy</td></tr><tr><td style="white-space:nowrap">intra-brachytherapy<a name="cs-generic-eu-pcsp-intra-brachytherapy"> </a></td><td>Intracavitary or intraluminal brachytherapy</td><td>Intracavitary or intraluminal brachytherapy</td></tr><tr><td style="white-space:nowrap">unk-brachytherapy<a name="cs-generic-eu-pcsp-unk-brachytherapy"> </a></td><td>Unknown brachytherapy</td><td>Unknown brachytherapy</td></tr><tr><td style="white-space:nowrap">sht-47020004<a name="cs-generic-eu-pcsp-sht-47020004"> </a></td><td>Ventriculoperitoneal shunt</td><td>Ventriculoperitoneal shunt procedure</td></tr><tr><td style="white-space:nowrap">sht-4579008<a name="cs-generic-eu-pcsp-sht-4579008"> </a></td><td>Ventriculo-atrial shunt</td><td>Ventriculo-atrial shunt procedure</td></tr><tr><td style="white-space:nowrap">sht-280384000<a name="cs-generic-eu-pcsp-sht-280384000"> </a></td><td>Subdural-peritoneal shunt</td><td>Subdural-peritoneal shunt procedure</td></tr><tr><td style="white-space:nowrap">sht-265218003<a name="cs-generic-eu-pcsp-sht-265218003"> </a></td><td>Cisternostomy (III ventricule)</td><td>Cisternostomy (III ventricule)</td></tr><tr><td style="white-space:nowrap">sht-other<a name="cs-generic-eu-pcsp-sht-other"> </a></td><td>Other cerebrovascular shunt procedure</td><td>Other cerebrovascular shunt procedure</td></tr><tr><td style="white-space:nowrap">int-prosthesis<a name="cs-generic-eu-pcsp-int-prosthesis"> </a></td><td>Internal Prosthesis</td><td>Internal Prosthesis</td></tr><tr><td style="white-space:nowrap">ext-prosthesis<a name="cs-generic-eu-pcsp-ext-prosthesis"> </a></td><td>External Prosthesis</td><td>External Prosthesis</td></tr><tr><td style="white-space:nowrap">sct-matched-related<a name="cs-generic-eu-pcsp-sct-matched-related"> </a></td><td>matched related</td><td>matched related, unknown or unspecified</td></tr><tr><td style="white-space:nowrap">sct-matched-unrelated<a name="cs-generic-eu-pcsp-sct-matched-unrelated"> </a></td><td>matched unrelated</td><td>matched unrelated</td></tr><tr><td style="white-space:nowrap">sct-mismatch-related<a name="cs-generic-eu-pcsp-sct-mismatch-related"> </a></td><td>mismatch related</td><td>mismatch related</td></tr><tr><td style="white-space:nowrap">sct-mismatch-unrelated<a name="cs-generic-eu-pcsp-sct-mismatch-unrelated"> </a></td><td>mismatch unrelated</td><td>mismatch unrelated</td></tr><tr><td style="white-space:nowrap">sct-haplo-identical<a name="cs-generic-eu-pcsp-sct-haplo-identical"> </a></td><td>haplo-identical</td><td>haplo-identical</td></tr><tr><td style="white-space:nowrap">sct-matched-related–sibling<a name="cs-generic-eu-pcsp-sct-matched-related.8211sibling"> </a></td><td>matched related – sibling</td><td>matched related – sibling</td></tr><tr><td style="white-space:nowrap">sct-matched-related–parent<a name="cs-generic-eu-pcsp-sct-matched-related.8211parent"> </a></td><td>matched related – parent</td><td>matched related – parent</td></tr><tr><td style="white-space:nowrap">sct-matched-related–other<a name="cs-generic-eu-pcsp-sct-matched-related.8211other"> </a></td><td>matched related – other</td><td>matched related – other (e.g. cousin)</td></tr><tr><td style="white-space:nowrap">sct-pbsc<a name="cs-generic-eu-pcsp-sct-pbsc"> </a></td><td>PBSC</td><td>PBSC</td></tr><tr><td style="white-space:nowrap">sct-bone-marrow<a name="cs-generic-eu-pcsp-sct-bone-marrow"> </a></td><td>Bone marrow</td><td>Bone marrow</td></tr><tr><td style="white-space:nowrap">sct-cord<a name="cs-generic-eu-pcsp-sct-cord"> </a></td><td>Cord</td><td>Cord</td></tr><tr><td style="white-space:nowrap">Gvhd-unk<a name="cs-generic-eu-pcsp-Gvhd-unk"> </a></td><td>Gvhd Unknown</td><td>It is not known if this patient suffers Gvhd</td></tr><tr><td style="white-space:nowrap">Gvhd-acute-1<a name="cs-generic-eu-pcsp-Gvhd-acute-1"> </a></td><td>Grade 1</td><td>Acute Gvhd: grade 1</td></tr><tr><td style="white-space:nowrap">Gvhd-acute-2<a name="cs-generic-eu-pcsp-Gvhd-acute-2"> </a></td><td>Grade 2</td><td>Acute Gvhd: grade 2</td></tr><tr><td style="white-space:nowrap">Gvhd-acute-3<a name="cs-generic-eu-pcsp-Gvhd-acute-3"> </a></td><td>Grade 3</td><td>Acute Gvhd: grade 3</td></tr><tr><td style="white-space:nowrap">Gvhd-acute-4<a name="cs-generic-eu-pcsp-Gvhd-acute-4"> </a></td><td>Grade 4</td><td>Acute Gvhd: grade 4</td></tr><tr><td style="white-space:nowrap">Gvhd-chr-1<a name="cs-generic-eu-pcsp-Gvhd-chr-1"> </a></td><td>Limited</td><td>Chronic Gvhd: grade 1 limited</td></tr><tr><td style="white-space:nowrap">Gvhd-chr-2<a name="cs-generic-eu-pcsp-Gvhd-chr-2"> </a></td><td>Extensive</td><td>Chronic Gvhd: grade 2 extensive</td></tr><tr><td style="white-space:nowrap">before-procedure<a name="cs-generic-eu-pcsp-before-procedure"> </a></td><td>Before procedure</td><td>Before procedure</td></tr><tr><td style="white-space:nowrap">after-procedure<a name="cs-generic-eu-pcsp-after-procedure"> </a></td><td>After procedure</td><td>After procedure</td></tr><tr><td style="white-space:nowrap">personalized-plan<a name="cs-generic-eu-pcsp-personalized-plan"> </a></td><td>Personalized</td><td>Personalized Plan</td></tr><tr><td style="white-space:nowrap">guidelines-plan<a name="cs-generic-eu-pcsp-guidelines-plan"> </a></td><td>Guidelines</td><td>Plan based on guidelines</td></tr><tr><td style="white-space:nowrap">to-structure<a name="cs-generic-eu-pcsp-to-structure"> </a></td><td>To-Structure</td><td>To-Structure</td></tr><tr><td style="white-space:nowrap">other-treatment<a name="cs-generic-eu-pcsp-other-treatment"> </a></td><td>Other oncological treatments</td><td>Any other treatment (not included in the chemotherapy, surgery or radiotherapy sections) was adminstered to the survivor</td></tr></table></div>
      </text>
      <url value="http://hl7.eu/fhir/ig/pcsp/CodeSystem/cs-generic-eu-pcsp"/>
      <version value="1.0.0"/>
      <name value="CsGenericPcsp"/>
      <title value="PCSP Code System"/>
      <status value="active"/>
      <experimental value="false"/>
      <date value="2026-01-16T12:01:48+00:00"/>
      <publisher value="PanCareSurPass Project"/>
      <contact>
        <name value="PanCareSurPass Project"/>
        <telecom>
          <system value="url"/>
          <value value="https://www.pancaresurpass.eu/"/>
        </telecom>
      </contact>
      <contact>
        <name value="PanCareSurPass Project"/>
        <telecom>
          <system value="url"/>
          <value value="https://www.pancaresurpass.eu/"/>
        </telecom>
      </contact>
      <description
                   value="Coded concepts specified by the PancareSurPass Project"/>
      <jurisdiction>
        <coding>
          <system value="http://unstats.un.org/unsd/methods/m49/m49.htm"/>
          <code value="150"/>
          <display value="Europe"/>
        </coding>
      </jurisdiction>
      <caseSensitive value="true"/>
      <content value="complete"/>
      <count value="50"/>
      <concept>
        <code value="surpass"/>
        <display value="Childhood Cancer Survivor Passport"/>
        <definition
                    value="Childhood Cancer Survivor Passport. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="section-sct"/>
        <display value="Stem Cell Transplantation"/>
        <definition
                    value="Stem Cell Transplantation section. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="section-rt"/>
        <display value="Radiotherapy"/>
        <definition
                    value="Radiotherapy section. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="section-otherInfos"/>
        <display value="Other Medical Information"/>
        <definition
                    value="Other Medical Information section. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="section-suggestion"/>
        <display value="Medical Suggestions"/>
        <definition
                    value="Medical Suggestions section. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="section-otherConditions"/>
        <display value="Other Health Conditions"/>
        <definition
                    value="Other Health Conditions section. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="section-relapseAfterEOT"/>
        <display value="Relapse After EOT"/>
        <definition
                    value="Relapse After End of Treatment section. Placeholder waiting for a LOINC code"/>
      </concept>
      <concept>
        <code value="nar-chronicCond"/>
        <display value="Chronic conditions"/>
        <definition value="Chronic conditions"/>
      </concept>
      <concept>
        <code value="nar-planNotes"/>
        <display value="Plan notes"/>
        <definition value="Plan additional notes"/>
      </concept>
      <concept>
        <code value="cumulativeDose"/>
        <display
                 value="Cumulative dose received by a patient for a specific drug."/>
      </concept>
      <concept>
        <code value="orthovoltage"/>
        <display value="Orthovoltage"/>
        <definition
                    value="Orthovoltage / kilovoltage usually 200 - 300kv X rays/photons"/>
      </concept>
      <concept>
        <code value="linac-mv"/>
        <display value="Linac MV"/>
        <definition value="(Linear Accelerator) megavoltage MV X Rays/photons"/>
      </concept>
      <concept>
        <code value="linac-el"/>
        <display value="Linac electrons"/>
        <definition value="Linac (Linear Accelerator) electrons"/>
      </concept>
      <concept>
        <code value="cobalt"/>
        <display value="Cobalt MV"/>
        <definition value="Cobalt - MV gamma rays / photons"/>
      </concept>
      <concept>
        <code value="proton-beam"/>
        <display value="Proton Beam"/>
        <definition value="Proton Beam"/>
      </concept>
      <concept>
        <code value="surface-brachytherapy"/>
        <display value="Surface brachytherapy"/>
        <definition value="Surface brachytherapy"/>
      </concept>
      <concept>
        <code value="interstitial-brachytherapy"/>
        <display value="Interstitial brachytherapy"/>
        <definition value="Interstitial brachytherapy"/>
      </concept>
      <concept>
        <code value="intra-brachytherapy"/>
        <display value="Intracavitary or intraluminal brachytherapy"/>
        <definition value="Intracavitary or intraluminal brachytherapy"/>
      </concept>
      <concept>
        <code value="unk-brachytherapy"/>
        <display value="Unknown brachytherapy"/>
        <definition value="Unknown brachytherapy"/>
      </concept>
      <concept>
        <code value="sht-47020004"/>
        <display value="Ventriculoperitoneal shunt"/>
        <definition value="Ventriculoperitoneal shunt procedure"/>
      </concept>
      <concept>
        <code value="sht-4579008"/>
        <display value="Ventriculo-atrial shunt"/>
        <definition value="Ventriculo-atrial shunt procedure"/>
      </concept>
      <concept>
        <code value="sht-280384000"/>
        <display value="Subdural-peritoneal shunt"/>
        <definition value="Subdural-peritoneal shunt procedure"/>
      </concept>
      <concept>
        <code value="sht-265218003"/>
        <display value="Cisternostomy (III ventricule)"/>
        <definition value="Cisternostomy (III ventricule)"/>
      </concept>
      <concept>
        <code value="sht-other"/>
        <display value="Other cerebrovascular shunt procedure"/>
        <definition value="Other cerebrovascular shunt procedure"/>
      </concept>
      <concept>
        <code value="int-prosthesis"/>
        <display value="Internal Prosthesis"/>
        <definition value="Internal Prosthesis"/>
      </concept>
      <concept>
        <code value="ext-prosthesis"/>
        <display value="External Prosthesis"/>
        <definition value="External Prosthesis"/>
      </concept>
      <concept>
        <code value="sct-matched-related"/>
        <display value="matched related"/>
        <definition value="matched related, unknown or unspecified"/>
      </concept>
      <concept>
        <code value="sct-matched-unrelated"/>
        <display value="matched unrelated"/>
        <definition value="matched unrelated"/>
      </concept>
      <concept>
        <code value="sct-mismatch-related"/>
        <display value="mismatch related"/>
        <definition value="mismatch related"/>
      </concept>
      <concept>
        <code value="sct-mismatch-unrelated"/>
        <display value="mismatch unrelated"/>
        <definition value="mismatch unrelated"/>
      </concept>
      <concept>
        <code value="sct-haplo-identical"/>
        <display value="haplo-identical"/>
        <definition value="haplo-identical"/>
      </concept>
      <concept>
        <code value="sct-matched-related–sibling"/>
        <display value="matched related – sibling"/>
        <definition value="matched related – sibling"/>
      </concept>
      <concept>
        <code value="sct-matched-related–parent"/>
        <display value="matched related – parent"/>
        <definition value="matched related – parent"/>
      </concept>
      <concept>
        <code value="sct-matched-related–other"/>
        <display value="matched related – other"/>
        <definition value="matched related – other (e.g. cousin)"/>
      </concept>
      <concept>
        <code value="sct-pbsc"/>
        <display value="PBSC"/>
        <definition value="PBSC"/>
      </concept>
      <concept>
        <code value="sct-bone-marrow"/>
        <display value="Bone marrow"/>
        <definition value="Bone marrow"/>
      </concept>
      <concept>
        <code value="sct-cord"/>
        <display value="Cord"/>
        <definition value="Cord"/>
      </concept>
      <concept>
        <code value="Gvhd-unk"/>
        <display value="Gvhd Unknown"/>
        <definition value="It is not known if this patient suffers Gvhd"/>
      </concept>
      <concept>
        <code value="Gvhd-acute-1"/>
        <display value="Grade 1"/>
        <definition value="Acute Gvhd: grade 1"/>
      </concept>
      <concept>
        <code value="Gvhd-acute-2"/>
        <display value="Grade 2"/>
        <definition value="Acute Gvhd: grade 2"/>
      </concept>
      <concept>
        <code value="Gvhd-acute-3"/>
        <display value="Grade 3"/>
        <definition value="Acute Gvhd: grade 3"/>
      </concept>
      <concept>
        <code value="Gvhd-acute-4"/>
        <display value="Grade 4"/>
        <definition value="Acute Gvhd: grade 4"/>
      </concept>
      <concept>
        <code value="Gvhd-chr-1"/>
        <display value="Limited"/>
        <definition value="Chronic Gvhd: grade 1 limited"/>
      </concept>
      <concept>
        <code value="Gvhd-chr-2"/>
        <display value="Extensive"/>
        <definition value="Chronic Gvhd: grade 2 extensive"/>
      </concept>
      <concept>
        <code value="before-procedure"/>
        <display value="Before procedure"/>
        <definition value="Before procedure"/>
      </concept>
      <concept>
        <code value="after-procedure"/>
        <display value="After procedure"/>
        <definition value="After procedure"/>
      </concept>
      <concept>
        <code value="personalized-plan"/>
        <display value="Personalized"/>
        <definition value="Personalized Plan"/>
      </concept>
      <concept>
        <code value="guidelines-plan"/>
        <display value="Guidelines"/>
        <definition value="Plan based on guidelines"/>
      </concept>
      <concept>
        <code value="to-structure"/>
        <display value="To-Structure"/>
        <definition value="To-Structure"/>
      </concept>
      <concept>
        <code value="other-treatment"/>
        <display value="Other oncological treatments"/>
        <definition
                    value="Any other treatment (not included in the chemotherapy, surgery or radiotherapy sections) was adminstered to the survivor"/>
      </concept>
    </CodeSystem>