PanCareSurPass Project HL7 FHIR Implementation Guide
1.0.0 - release 150

PanCareSurPass Project HL7 FHIR Implementation Guide, published by PanCareSurPass Project. This guide is not an authorized publication; it is the continuous build for version 1.0.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/pcsp/ and changes regularly. See the Directory of published versions

## : PCSP Conditions at risk - JSON Representation

Active as of 2026-01-16

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    {
      "resourceType" : "CodeSystem",
      "id" : "cs-riskcondition-eu-pcsp",
      "text" : {
        "status" : "generated",
        "div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p class=\"res-header-id\"><b>Generated Narrative: CodeSystem cs-riskcondition-eu-pcsp</b></p><a name=\"cs-riskcondition-eu-pcsp\"> </a><a name=\"hccs-riskcondition-eu-pcsp\"> </a><p>This case-sensitive code system <code>http://hl7.eu/fhir/ig/pcsp/CodeSystem/cs-riskcondition-eu-pcsp</code> defines the following codes:</p><table class=\"codes\"><tr><td style=\"white-space:nowrap\"><b>Code</b></td><td><b>Display</b></td><td><b>Definition</b></td></tr><tr><td style=\"white-space:nowrap\">1<a name=\"cs-riskcondition-eu-pcsp-1\"> </a></td><td>Subsequent thyroid cancer</td><td>Subsequent thyroid cancer</td></tr><tr><td style=\"white-space:nowrap\">2<a name=\"cs-riskcondition-eu-pcsp-2\"> </a></td><td>Subsequent breast cancer</td><td>Subsequent breast cancer</td></tr><tr><td style=\"white-space:nowrap\">3<a name=\"cs-riskcondition-eu-pcsp-3\"> </a></td><td>Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)</td><td>Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)</td></tr><tr><td style=\"white-space:nowrap\">4<a name=\"cs-riskcondition-eu-pcsp-4\"> </a></td><td>Impaired fertility Impaired spermatogenesis</td><td>Impaired fertility Impaired spermatogenesis</td></tr><tr><td style=\"white-space:nowrap\">5<a name=\"cs-riskcondition-eu-pcsp-5\"> </a></td><td>Testosterone deficiency</td><td>Testosterone deficiency</td></tr><tr><td style=\"white-space:nowrap\">6<a name=\"cs-riskcondition-eu-pcsp-6\"> </a></td><td>Physical sexual dysfunction</td><td>Physical sexual dysfunction</td></tr><tr><td style=\"white-space:nowrap\">7<a name=\"cs-riskcondition-eu-pcsp-7\"> </a></td><td>Premature ovarian insufficiency</td><td>Premature ovarian insufficiency</td></tr><tr><td style=\"white-space:nowrap\">8<a name=\"cs-riskcondition-eu-pcsp-8\"> </a></td><td>Ear problems</td><td>Ear problems</td></tr><tr><td style=\"white-space:nowrap\">9<a name=\"cs-riskcondition-eu-pcsp-9\"> </a></td><td>Impaired glucose metabolism and diabetes melitus</td><td>Impaired glucose metabolism and diabetes melitus</td></tr><tr><td style=\"white-space:nowrap\">10<a name=\"cs-riskcondition-eu-pcsp-10\"> </a></td><td>Dyslipidemia</td><td>Dyslipidemia</td></tr><tr><td style=\"white-space:nowrap\">11<a name=\"cs-riskcondition-eu-pcsp-11\"> </a></td><td>Overweight and obesity</td><td>Overweight and obesity</td></tr><tr><td style=\"white-space:nowrap\">12<a name=\"cs-riskcondition-eu-pcsp-12\"> </a></td><td>Hypertension</td><td>Hypertension</td></tr><tr><td style=\"white-space:nowrap\">13<a name=\"cs-riskcondition-eu-pcsp-13\"> </a></td><td>Reduced bone mineral density</td><td>Reduced bone mineral density</td></tr><tr><td style=\"white-space:nowrap\">14<a name=\"cs-riskcondition-eu-pcsp-14\"> </a></td><td>Osteonecrosis</td><td>Osteonecrosis</td></tr><tr><td style=\"white-space:nowrap\">15<a name=\"cs-riskcondition-eu-pcsp-15\"> </a></td><td>Hypothalamic-pituitary (HP) axis problems (High risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)</td><td>Hypothalamic-pituitary (HP) axis problems (High risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)</td></tr><tr><td style=\"white-space:nowrap\">16<a name=\"cs-riskcondition-eu-pcsp-16\"> </a></td><td>Hypothalamic-pituitary (HP) axis problems (Standard risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)</td><td>Hypothalamic-pituitary (HP) axis problems (Standard risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)</td></tr><tr><td style=\"white-space:nowrap\">17<a name=\"cs-riskcondition-eu-pcsp-17\"> </a></td><td>Central precocious puberty (CPP) For girls with age below 8 years</td><td>Central precocious puberty (CPP) For girls with age below 8 years</td></tr><tr><td style=\"white-space:nowrap\">18<a name=\"cs-riskcondition-eu-pcsp-18\"> </a></td><td>Central precocious puberty (CPP) For boys with age below 9 yearss</td><td>Central precocious puberty (CPP) For boys with age below 9 yearss</td></tr><tr><td style=\"white-space:nowrap\">19<a name=\"cs-riskcondition-eu-pcsp-19\"> </a></td><td>Thyroid function problems</td><td>Thyroid function problems</td></tr><tr><td style=\"white-space:nowrap\">20<a name=\"cs-riskcondition-eu-pcsp-20\"> </a></td><td>Cerebrovascular problem</td><td>Cerebrovascular problem</td></tr><tr><td style=\"white-space:nowrap\">21<a name=\"cs-riskcondition-eu-pcsp-21\"> </a></td><td>Neurocognitive problems</td><td>Neurocognitive problems</td></tr><tr><td style=\"white-space:nowrap\">22<a name=\"cs-riskcondition-eu-pcsp-22\"> </a></td><td>Peripheral neuropathy</td><td>Peripheral neuropathy</td></tr><tr><td style=\"white-space:nowrap\">23<a name=\"cs-riskcondition-eu-pcsp-23\"> </a></td><td>Cataract</td><td>Cataract</td></tr><tr><td style=\"white-space:nowrap\">24<a name=\"cs-riskcondition-eu-pcsp-24\"> </a></td><td>Eye problems</td><td>Eye problems</td></tr><tr><td style=\"white-space:nowrap\">25<a name=\"cs-riskcondition-eu-pcsp-25\"> </a></td><td>Craniofacial growth problems</td><td>Craniofacial growth problems</td></tr><tr><td style=\"white-space:nowrap\">26<a name=\"cs-riskcondition-eu-pcsp-26\"> </a></td><td>Spine scoliosis and kyphosis</td><td>Spine scoliosis and kyphosis</td></tr><tr><td style=\"white-space:nowrap\">27<a name=\"cs-riskcondition-eu-pcsp-27\"> </a></td><td>Lower urinary tract problems</td><td>Lower urinary tract problems</td></tr><tr><td style=\"white-space:nowrap\">28<a name=\"cs-riskcondition-eu-pcsp-28\"> </a></td><td>Obstetric problems</td><td>Obstetric problems</td></tr><tr><td style=\"white-space:nowrap\">29<a name=\"cs-riskcondition-eu-pcsp-29\"> </a></td><td>Dental and oral problems</td><td>Dental and oral problems</td></tr><tr><td style=\"white-space:nowrap\">30<a name=\"cs-riskcondition-eu-pcsp-30\"> </a></td><td>Gastro-intestinal problems</td><td>Gastro-intestinal problems</td></tr><tr><td style=\"white-space:nowrap\">31<a name=\"cs-riskcondition-eu-pcsp-31\"> </a></td><td>Arrhythmia</td><td>Arrhythmia</td></tr><tr><td style=\"white-space:nowrap\">32<a name=\"cs-riskcondition-eu-pcsp-32\"> </a></td><td>Pulmonary problems</td><td>Pulmonary problems</td></tr><tr><td style=\"white-space:nowrap\">33<a name=\"cs-riskcondition-eu-pcsp-33\"> </a></td><td>Renal problems (Glomerular dysfunction - Tubular dysfunction)</td><td>Renal problems (Glomerular dysfunction - Tubular dysfunction)</td></tr><tr><td style=\"white-space:nowrap\">34<a name=\"cs-riskcondition-eu-pcsp-34\"> </a></td><td>Liver problems</td><td>Liver problems</td></tr><tr><td style=\"white-space:nowrap\">35<a name=\"cs-riskcondition-eu-pcsp-35\"> </a></td><td>Iron overload</td><td>Iron overload</td></tr><tr><td style=\"white-space:nowrap\">36<a name=\"cs-riskcondition-eu-pcsp-36\"> </a></td><td>Spleen problems</td><td>Spleen problems</td></tr><tr><td style=\"white-space:nowrap\">37<a name=\"cs-riskcondition-eu-pcsp-37\"> </a></td><td>Tumor predisposition</td><td>Tumor predisposition</td></tr><tr><td style=\"white-space:nowrap\">38<a name=\"cs-riskcondition-eu-pcsp-38\"> </a></td><td>Subsequent melanoma and non-melanoma skin cancer</td><td>Subsequent melanoma and non-melanoma skin cancer</td></tr><tr><td style=\"white-space:nowrap\">39<a name=\"cs-riskcondition-eu-pcsp-39\"> </a></td><td>Subsequent colorectal cancer</td><td>Subsequent colorectal cancer</td></tr><tr><td style=\"white-space:nowrap\">40<a name=\"cs-riskcondition-eu-pcsp-40\"> </a></td><td>Subsequent Oral Cancer</td><td>Subsequent Oral Cancer</td></tr><tr><td style=\"white-space:nowrap\">41<a name=\"cs-riskcondition-eu-pcsp-41\"> </a></td><td>Subsequent acute myeloid leukaemia or myelodysplasia</td><td>Subsequent acute myeloid leukaemia or myelodysplasia</td></tr><tr><td style=\"white-space:nowrap\">42<a name=\"cs-riskcondition-eu-pcsp-42\"> </a></td><td>Subsequent bladder cancer</td><td>Subsequent bladder cancer</td></tr><tr><td style=\"white-space:nowrap\">43<a name=\"cs-riskcondition-eu-pcsp-43\"> </a></td><td>Subsequent Bone Cancer</td><td>Subsequent Bone Cancer</td></tr><tr><td style=\"white-space:nowrap\">44<a name=\"cs-riskcondition-eu-pcsp-44\"> </a></td><td>Subsequent lung cancer</td><td>Subsequent lung cancer</td></tr><tr><td style=\"white-space:nowrap\">45<a name=\"cs-riskcondition-eu-pcsp-45\"> </a></td><td>Subsequent CNS neoplasms</td><td>Subsequent CNS neoplasms</td></tr><tr><td style=\"white-space:nowrap\">46<a name=\"cs-riskcondition-eu-pcsp-46\"> </a></td><td>Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)</td><td>Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)</td></tr><tr><td style=\"white-space:nowrap\">47<a name=\"cs-riskcondition-eu-pcsp-47\"> </a></td><td>Renal problems (Tubular dysfunction)</td><td>Renal problems (Tubular dysfunction)</td></tr></table></div>"
      },
      "url" : "http://hl7.eu/fhir/ig/pcsp/CodeSystem/cs-riskcondition-eu-pcsp",
      "version" : "1.0.0",
      "name" : "CsRiskConditionPcsp",
      "title" : "PCSP Conditions at risk",
      "status" : "active",
      "experimental" : false,
      "date" : "2026-01-16T12:01:48+00:00",
      "publisher" : "PanCareSurPass Project",
      "contact" : [
        {
          "name" : "PanCareSurPass Project",
          "telecom" : [
            {
              "system" : "url",
              "value" : "https://www.pancaresurpass.eu/"
            }
          ]
        },
        {
          "name" : "PanCareSurPass Project",
          "telecom" : [
            {
              "system" : "url",
              "value" : "https://www.pancaresurpass.eu/"
            }
          ]
        }
      ],
      "description" : "Condition at risk proposed by the PCSP algorithm",
      "jurisdiction" : [
        {
          "coding" : [
            {
              "system" : "http://unstats.un.org/unsd/methods/m49/m49.htm",
              "code" : "150",
              "display" : "Europe"
            }
          ]
        }
      ],
      "caseSensitive" : true,
      "content" : "complete",
      "count" : 47,
      "concept" : [
        {
          "code" : "1",
          "display" : "Subsequent thyroid cancer",
          "definition" : "Subsequent thyroid cancer"
        },
        {
          "code" : "2",
          "display" : "Subsequent breast cancer",
          "definition" : "Subsequent breast cancer"
        },
        {
          "code" : "3",
          "display" : "Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)",
          "definition" : "Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)"
        },
        {
          "code" : "4",
          "display" : "Impaired fertility Impaired spermatogenesis",
          "definition" : "Impaired fertility Impaired spermatogenesis"
        },
        {
          "code" : "5",
          "display" : "Testosterone deficiency",
          "definition" : "Testosterone deficiency"
        },
        {
          "code" : "6",
          "display" : "Physical sexual dysfunction",
          "definition" : "Physical sexual dysfunction"
        },
        {
          "code" : "7",
          "display" : "Premature ovarian insufficiency",
          "definition" : "Premature ovarian insufficiency"
        },
        {
          "code" : "8",
          "display" : "Ear problems",
          "definition" : "Ear problems"
        },
        {
          "code" : "9",
          "display" : "Impaired glucose metabolism and diabetes melitus",
          "definition" : "Impaired glucose metabolism and diabetes melitus"
        },
        {
          "code" : "10",
          "display" : "Dyslipidemia",
          "definition" : "Dyslipidemia"
        },
        {
          "code" : "11",
          "display" : "Overweight and obesity",
          "definition" : "Overweight and obesity"
        },
        {
          "code" : "12",
          "display" : "Hypertension",
          "definition" : "Hypertension"
        },
        {
          "code" : "13",
          "display" : "Reduced bone mineral density",
          "definition" : "Reduced bone mineral density"
        },
        {
          "code" : "14",
          "display" : "Osteonecrosis",
          "definition" : "Osteonecrosis"
        },
        {
          "code" : "15",
          "display" : "Hypothalamic-pituitary (HP) axis problems (High risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)",
          "definition" : "Hypothalamic-pituitary (HP) axis problems (High risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)"
        },
        {
          "code" : "16",
          "display" : "Hypothalamic-pituitary (HP) axis problems (Standard risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)",
          "definition" : "Hypothalamic-pituitary (HP) axis problems (Standard risk) Growth hormone deficiency (GHD) TSH deficiency (TSHD) LH/FSH deficiency (LH/FSHD) ACTH deficiency (ACTHD)"
        },
        {
          "code" : "17",
          "display" : "Central precocious puberty (CPP) For girls with age below 8 years",
          "definition" : "Central precocious puberty (CPP) For girls with age below 8 years"
        },
        {
          "code" : "18",
          "display" : "Central precocious puberty (CPP) For boys with age below 9 yearss",
          "definition" : "Central precocious puberty (CPP) For boys with age below 9 yearss"
        },
        {
          "code" : "19",
          "display" : "Thyroid function problems",
          "definition" : "Thyroid function problems"
        },
        {
          "code" : "20",
          "display" : "Cerebrovascular problem",
          "definition" : "Cerebrovascular problem"
        },
        {
          "code" : "21",
          "display" : "Neurocognitive problems",
          "definition" : "Neurocognitive problems"
        },
        {
          "code" : "22",
          "display" : "Peripheral neuropathy",
          "definition" : "Peripheral neuropathy"
        },
        {
          "code" : "23",
          "display" : "Cataract",
          "definition" : "Cataract"
        },
        {
          "code" : "24",
          "display" : "Eye problems",
          "definition" : "Eye problems"
        },
        {
          "code" : "25",
          "display" : "Craniofacial growth problems",
          "definition" : "Craniofacial growth problems"
        },
        {
          "code" : "26",
          "display" : "Spine scoliosis and kyphosis",
          "definition" : "Spine scoliosis and kyphosis"
        },
        {
          "code" : "27",
          "display" : "Lower urinary tract problems",
          "definition" : "Lower urinary tract problems"
        },
        {
          "code" : "28",
          "display" : "Obstetric problems",
          "definition" : "Obstetric problems"
        },
        {
          "code" : "29",
          "display" : "Dental and oral problems",
          "definition" : "Dental and oral problems"
        },
        {
          "code" : "30",
          "display" : "Gastro-intestinal problems",
          "definition" : "Gastro-intestinal problems"
        },
        {
          "code" : "31",
          "display" : "Arrhythmia",
          "definition" : "Arrhythmia"
        },
        {
          "code" : "32",
          "display" : "Pulmonary problems",
          "definition" : "Pulmonary problems"
        },
        {
          "code" : "33",
          "display" : "Renal problems (Glomerular dysfunction - Tubular dysfunction)",
          "definition" : "Renal problems (Glomerular dysfunction - Tubular dysfunction)"
        },
        {
          "code" : "34",
          "display" : "Liver problems",
          "definition" : "Liver problems"
        },
        {
          "code" : "35",
          "display" : "Iron overload",
          "definition" : "Iron overload"
        },
        {
          "code" : "36",
          "display" : "Spleen problems",
          "definition" : "Spleen problems"
        },
        {
          "code" : "37",
          "display" : "Tumor predisposition",
          "definition" : "Tumor predisposition"
        },
        {
          "code" : "38",
          "display" : "Subsequent melanoma and non-melanoma skin cancer",
          "definition" : "Subsequent melanoma and non-melanoma skin cancer"
        },
        {
          "code" : "39",
          "display" : "Subsequent colorectal cancer",
          "definition" : "Subsequent colorectal cancer"
        },
        {
          "code" : "40",
          "display" : "Subsequent Oral Cancer",
          "definition" : "Subsequent Oral Cancer"
        },
        {
          "code" : "41",
          "display" : "Subsequent acute myeloid leukaemia or myelodysplasia",
          "definition" : "Subsequent acute myeloid leukaemia or myelodysplasia"
        },
        {
          "code" : "42",
          "display" : "Subsequent bladder cancer",
          "definition" : "Subsequent bladder cancer"
        },
        {
          "code" : "43",
          "display" : "Subsequent Bone Cancer",
          "definition" : "Subsequent Bone Cancer"
        },
        {
          "code" : "44",
          "display" : "Subsequent lung cancer",
          "definition" : "Subsequent lung cancer"
        },
        {
          "code" : "45",
          "display" : "Subsequent CNS neoplasms",
          "definition" : "Subsequent CNS neoplasms"
        },
        {
          "code" : "46",
          "display" : "Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)",
          "definition" : "Cardiac problems (Cardiomyopathy and/or Valvular disease and/or Cardiac ischemia)"
        },
        {
          "code" : "47",
          "display" : "Renal problems (Tubular dysfunction)",
          "definition" : "Renal problems (Tubular dysfunction)"
        }
      ]
    }