# FollowupSurPass - PanCareSurPass Project HL7 FHIR Implementation Guide v1.0.0

* [**Table of Contents**](toc.md)
* [**Artifacts Summary**](artifacts.md)
* **FollowupSurPass**

## Questionnaire: FollowupSurPass 

| | |
| :--- | :--- |
| *Official URL*:http://hl7.eu/fhir/ig/pcsp/Questionnaire/FollowupSurPass | *Version*:1.0.0 |
| Draft as of 2026-01-16 | *Computable Name*:FollowupSurPass |

 
Follow up form. The first Followup-Surpass form must be completed at the same time as the SurPass is delivered or in any case at the first visit after the end of the treatment (OT). 



## Resource Content

```json
{
  "resourceType" : "Questionnaire",
  "id" : "FollowupSurPass",
  "contained" : [
    {
      "resourceType" : "ValueSet",
      "id" : "YesNoVS",
      "status" : "draft",
      "experimental" : false,
      "compose" : {
        "include" : [
          {
            "system" : "http://loinc.org",
            "concept" : [
              {
                "code" : "LA32-8",
                "display" : "NO"
              },
              {
                "code" : "LA33-6",
                "display" : "YES"
              }
            ]
          }
        ]
      }
    },
    {
      "resourceType" : "ValueSet",
      "id" : "YesNoNAVS",
      "status" : "draft",
      "experimental" : false,
      "compose" : {
        "include" : [
          {
            "system" : "http://loinc.org",
            "concept" : [
              {
                "code" : "LA32-8",
                "display" : "NO"
              },
              {
                "code" : "LA33-6",
                "display" : "YES"
              },
              {
                "code" : "LA30226-7",
                "display" : "Not applicable (N/A)"
              }
            ]
          }
        ]
      }
    }
  ],
  "url" : "http://hl7.eu/fhir/ig/pcsp/Questionnaire/FollowupSurPass",
  "version" : "1.0.0",
  "name" : "FollowupSurPass",
  "status" : "draft",
  "subjectType" : ["Patient"],
  "date" : "2026-01-16T12:01:48+00:00",
  "publisher" : "PanCareSurPass Project",
  "contact" : [
    {
      "name" : "PanCareSurPass Project",
      "telecom" : [
        {
          "system" : "url",
          "value" : "https://www.pancaresurpass.eu/"
        }
      ]
    },
    {
      "name" : "PanCareSurPass Project",
      "telecom" : [
        {
          "system" : "url",
          "value" : "https://www.pancaresurpass.eu/"
        }
      ]
    }
  ],
  "description" : "Follow up form.\nThe first Followup-Surpass form must be completed at the same time as the SurPass is delivered or in any case at the first visit after the end of the treatment (OT).",
  "jurisdiction" : [
    {
      "coding" : [
        {
          "system" : "http://unstats.un.org/unsd/methods/m49/m49.htm",
          "code" : "150",
          "display" : "Europe"
        }
      ]
    }
  ],
  "item" : [
    {
      "extension" : [
        {
          "url" : "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
          "valueCodeableConcept" : {
            "coding" : [
              {
                "system" : "http://hl7.org/fhir/questionnaire-item-control",
                "code" : "radio-button"
              }
            ]
          }
        }
      ],
      "linkId" : "first-visit",
      "text" : "First visit?",
      "type" : "choice",
      "required" : true,
      "answerValueSet" : "#YesNoVS"
    },
    {
      "extension" : [
        {
          "url" : "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
          "valueCodeableConcept" : {
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              {
                "system" : "http://hl7.org/fhir/questionnaire-item-control",
                "code" : "radio-button"
              }
            ]
          }
        }
      ],
      "linkId" : "consent",
      "text" : "Informed consent to participate in the Followup-SurPass",
      "type" : "choice",
      "enableWhen" : [
        {
          "question" : "first-visit",
          "operator" : "=",
          "answerCoding" : {
            "system" : "http://loinc.org",
            "code" : "LA33-6",
            "display" : "YES"
          }
        }
      ],
      "required" : true,
      "answerValueSet" : "#YesNoVS"
    },
    {
      "extension" : [
        {
          "url" : "http://hl7.org/fhir/StructureDefinition/questionnaire-hidden",
          "valueBoolean" : true
        },
        {
          "url" : "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression",
          "valueExpression" : {
            "language" : "text/fhirpath",
            "expression" : "%resource.item.where(linkId='source-question').answer.first().value"
          }
        }
      ],
      "linkId" : "consent-date",
      "text" : "Consent date",
      "type" : "date",
      "enableWhen" : [
        {
          "question" : "first-visit",
          "operator" : "=",
          "answerCoding" : {
            "system" : "http://loinc.org",
            "code" : "LA33-6",
            "display" : "YES"
          }
        }
      ]
    },
    {
      "linkId" : "visit-date",
      "text" : "Visit date",
      "type" : "date",
      "required" : true
    },
    {
      "linkId" : "new-cancer-after-off-therapy",
      "text" : "Predisposing genetic syndromes or clinical conditions associated with the tumor diagnosed after the first off-therapy",
      "type" : "choice",
      "enableWhen" : [
        {
          "question" : "first-visit",
          "operator" : "=",
          "answerCoding" : {
            "system" : "http://loinc.org",
            "code" : "LA33-6",
            "display" : "YES"
          }
        }
      ],
      "answerValueSet" : "#YesNoVS",
      "item" : [
        {
          "linkId" : "sepcify-new-cancer-txt-1",
          "text" : "If yes, specify",
          "type" : "text",
          "enableWhen" : [
            {
              "question" : "new-cancer-after-off-therapy",
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                "display" : "YES"
              }
            }
          ],
          "required" : true
        }
      ]
    },
    {
      "linkId" : "other-clinical",
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      "type" : "choice",
      "enableWhen" : [
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          "question" : "first-visit",
          "operator" : "=",
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            "system" : "http://loinc.org",
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          }
        }
      ],
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      "item" : [
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          "linkId" : "sepcify-other-clinical-txt-1",
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                "display" : "YES"
              }
            }
          ],
          "required" : true
        }
      ]
    },
    {
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          "valueCodeableConcept" : {
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                "code" : "radio-button"
              }
            ]
          }
        }
      ],
      "linkId" : "new-condition-after-off-therapy",
      "text" : "After the first off therapy the patient experienced one or more pathological conditions",
      "type" : "choice",
      "enableWhen" : [
        {
          "question" : "first-visit",
          "operator" : "=",
          "answerCoding" : {
            "system" : "http://loinc.org",
            "code" : "LA33-6",
            "display" : "YES"
          }
        }
      ],
      "required" : true,
      "answerValueSet" : "#YesNoVS",
      "item" : [
        {
          "extension" : [
            {
              "url" : "http://hl7.org/fhir/StructureDefinition/questionnaire-maxOccurs",
              "valueInteger" : 15
            }
          ],
          "linkId" : "group-condition-1",
          "text" : "Pathological conditions",
          "type" : "group",
          "enableWhen" : [
            {
              "question" : "new-condition-after-off-therapy",
              "operator" : "=",
              "answerCoding" : {
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              }
            }
          ],
          "required" : true,
          "repeats" : true,
          "item" : [
            {
              "linkId" : "condition-1",
              "text" : "Condition",
              "type" : "choice",
              "required" : true,
              "answerValueSet" : "http://hl7.eu/fhir/ig/pcsp/ValueSet/cond-test-vs"
            },
            {
              "linkId" : "condition-note-1",
              "type" : "text",
              "readOnly" : true,
              "initial" : [
                {
                  "valueString" : "This space will contain guidance for the selected condition. Content is not yet available."
                }
              ]
            },
            {
              "linkId" : "condition-other-1",
              "text" : "If other, specify",
              "type" : "text",
              "enableWhen" : [
                {
                  "question" : "condition-1",
                  "operator" : "=",
                  "answerCoding" : {
                    "system" : "http://hl7.eu/fhir/ig/pcsp/CodeSystem/ConditionsCS",
                    "code" : "1001,99"
                  }
                },
                {
                  "question" : "condition-1",
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                  "answerCoding" : {
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                  }
                },
                {
                  "question" : "condition-1",
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                  }
                },
                {
                  "question" : "condition-1",
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                  "answerCoding" : {
                    "system" : "http://hl7.eu/fhir/ig/pcsp/CodeSystem/ConditionsCS",
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                  }
                },
                {
                  "question" : "condition-1",
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                  "answerCoding" : {
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                },
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                },
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                  "question" : "condition-1",
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                  "question" : "condition-1",
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                    "system" : "http://hl7.eu/fhir/ig/pcsp/CodeSystem/ConditionsCS",
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                  "question" : "condition-1",
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                  "question" : "condition-1",
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                  "question" : "condition-1",
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                },
                {
                  "question" : "condition-1",
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                  "question" : "condition-1",
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                  "question" : "condition-1",
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                  "question" : "condition-1",
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                  }
                }
              ],
              "enableBehavior" : "any",
              "required" : true,
              "readOnly" : false
            },
            {
              "linkId" : "appearance-date-1",
              "text" : "Onset date",
              "type" : "date",
              "required" : true
            },
            {
              "linkId" : "condition-grading-1",
              "text" : "Grading m-CTCAE at onset/last visit",
              "type" : "choice",
              "required" : true,
              "answerValueSet" : "http://hl7.eu/fhir/ig/pcsp/ValueSet/grade-test-vs"
            },
            {
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                        "code" : "radio-button"
                      }
                    ]
                  }
                }
              ],
              "linkId" : "condition-evolution-1",
              "text" : "Evolution",
              "type" : "choice",
              "required" : true,
              "answerOption" : [
                {
                  "valueString" : "Yes, resolved"
                },
                {
                  "valueString" : "No, not resolved"
                }
              ]
            },
            {
              "linkId" : "resolution-date-1",
              "text" : "If yes, date",
              "type" : "date",
              "enableWhen" : [
                {
                  "question" : "condition-evolution-1",
                  "operator" : "=",
                  "answerString" : "Yes, resolved"
                }
              ],
              "enableBehavior" : "any",
              "required" : true
            },
            {
              "linkId" : "new-condition-grading-1",
              "text" : "If changed, new grading",
              "type" : "choice",
              "enableWhen" : [
                {
                  "question" : "condition-evolution-1",
                  "operator" : "=",
                  "answerString" : "No, not resolved"
                }
              ],
              "required" : true,
              "answerValueSet" : "http://hl7.eu/fhir/ig/pcsp/ValueSet/grade-test-vs"
            },
            {
              "linkId" : "details-1",
              "text" : "Details",
              "type" : "text"
            },
            {
              "linkId" : "next-check-1",
              "text" : "Next check-up planned on",
              "type" : "text"
            }
          ]
        }
      ]
    },
    {
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          "url" : "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
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                "code" : "radio-button"
              }
            ]
          }
        }
      ],
      "linkId" : "condition-changed",
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                }
              ],
              "enableBehavior" : "any",
              "required" : true,
              "readOnly" : false
            },
            {
              "linkId" : "appearance-date-3",
              "text" : "Onset date",
              "type" : "date",
              "required" : true
            },
            {
              "linkId" : "condition-grading-3",
              "text" : "Grading m-CTCAE at onset/last visit",
              "type" : "choice",
              "required" : true,
              "answerValueSet" : "http://hl7.eu/fhir/ig/pcsp/ValueSet/grade-test-vs"
            },
            {
              "extension" : [
                {
                  "url" : "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
                  "valueCodeableConcept" : {
                    "coding" : [
                      {
                        "system" : "http://hl7.org/fhir/questionnaire-item-control",
                        "code" : "radio-button"
                      }
                    ]
                  }
                }
              ],
              "linkId" : "condition-evolution-3",
              "text" : "Evolution",
              "type" : "choice",
              "required" : true,
              "answerOption" : [
                {
                  "valueString" : "Yes, resolved"
                },
                {
                  "valueString" : "No, not resolved"
                }
              ]
            },
            {
              "linkId" : "resolution-date-3",
              "text" : "If yes, date",
              "type" : "date",
              "enableWhen" : [
                {
                  "question" : "condition-evolution-3",
                  "operator" : "=",
                  "answerString" : "Yes, resolved"
                }
              ],
              "enableBehavior" : "any",
              "required" : true
            },
            {
              "linkId" : "new-condition-grading-3",
              "text" : "If changed, new grading",
              "type" : "choice",
              "enableWhen" : [
                {
                  "question" : "condition-evolution-3",
                  "operator" : "=",
                  "answerString" : "No, not resolved"
                }
              ],
              "required" : true,
              "answerValueSet" : "http://hl7.eu/fhir/ig/pcsp/ValueSet/grade-test-vs"
            },
            {
              "linkId" : "details-3",
              "text" : "Details",
              "type" : "text"
            },
            {
              "linkId" : "next-check-3",
              "text" : "Next check-up planned on",
              "type" : "text"
            }
          ]
        }
      ]
    },
    {
      "linkId" : "notes",
      "text" : "Notes",
      "type" : "string",
      "required" : false
    },
    {
      "extension" : [
        {
          "url" : "http://hl7.org/fhir/StructureDefinition/maxSize",
          "valueDecimal" : 5
        }
      ],
      "linkId" : "notes-attachments",
      "text" : "Reports relating to significant laboratory instrumental tests",
      "type" : "attachment",
      "required" : false,
      "repeats" : true
    }
  ]
}

```
