Generated Narrative: StructureDefinition onco-azacitidine-questionnaire Name Flags Card. Type Description & Constraints <a href="StructureDefinition-onco-azacitidine-questionnaire-definitions.html#ONCOAzacitidineQuestionnaire" title="Logical model representing the nursing assessment questionnaire for home hospitalization patients receiving Azacitidine. This questionnaire is filled in by the home nurse during each visit and exchanged as a FHIR QuestionnaireResponse with the hospital. Specific features: includes oxygen saturation (conditional, only when cough or shortness of breath), contraindications focused on GI symptoms and general deterioration, and a medication dissolution check.">ONCOAzacitidineQuestionnaire 0..* Base ONCO Azacitidine Questionnaire Logical Model #xD; nursingAssessment 1..1 BackboneElement Nursing Assessment #xD; storage 1..1 BackboneElement Storage #xD; medicationStorageRemarks 1..1 code Are there any remarks or concerns regarding the (proper) home storage of medication? (SNOMED 422413002) | Answers: 710977001 Medication stored correctly | 424363005 Concern about proper home storage #xD; storageRemarksSpecification 0..1 string Specify remarks or concerns (conditional: if medicationStorageRemarks = concern) #xD; observationParameters 1..1 BackboneElement Observation Parameters #xD; bodyTemperature 1..1 decimal Body temperature (°C) (LOINC 8310-5) #xD; pulse 1..1 decimal Pulse (beats/min) (SNOMED 364075005) #xD; bloodPressureSystolic 1..1 decimal Blood pressure systolic (mmHg) (LOINC 8480-6) #xD; bloodPressureDiastolic 1..1 decimal Blood pressure diastolic (mmHg) (LOINC 8462-4) #xD; oxygenSaturation 0..1 decimal Oxygen saturation (%) (LOINC 2708-6) — Only measure if cough or shortness of breath is present #xD; contraindications 1..1 BackboneElement Contraindications #xD; anyContraindication 1..1 code Are there contraindications for administration? (SNOMED 395008009) | Answers: 373066001 Yes | 373067005 No #xD; feverChillsUnwell 0..1 code Fever, chills, feeling unwell (SNOMED 39104002) | Answers: 373066001 Yes | 373067005 No (conditional: if anyContraindication = Yes) #xD; noOralIntake 0..1 code No oral intake due to reduced appetite or taste changes (SNOMED 247318005) | Answers: 373066001 Yes | 373067005 No #xD; severeNausea 0..1 code Severe nausea (nausea with insufficient oral intake) (SNOMED 73335002) | Answers: 373066001 Yes | 373067005 No #xD; increasedDyspnea 0..1 code Increased or severe shortness of breath (at rest or impacting daily activities) (SNOMED 297216006) | Answers: 373066001 Yes | 373067005 No #xD; newOrIncreasedCough 0..1 code New or increased productive/dry cough, with or without dyspnea (SNOMED 11833005) | Answers: 373066001 Yes | 373067005 No #xD; generalDeterioration 0..1 code General deterioration (SNOMED 154091000119106) | Answers: 373066001 Yes | 373067005 No #xD; decisionAfterConsultation 0..1 code Decision after consultation with hospital (SNOMED 182836005) | Answers: Administration | No administration | Other #xD; decisionOtherSpecification 0..1 string Specify if decision = Other (SNOMED 438833006) #xD; symptomBurden 1..1 BackboneElement Symptom Burden #xD; nausea 1..1 code Nausea (SNOMED 422587007) | Answers: 444431007 Grade 0 (None) | 444456001 Grade 1 | 444457005 Grade 2 | 444447009 Grade 3 #xD; <a href="StructureDefinition-onco-azacitidine-questionnaire-definitions.html#ONCOAzacitidineQuestionnaire.nursingAssessment.symptomBurden.vomiting" title="Vomiting (SNOMED 249497008) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (<=2 times) | 444457005 Grade 2 (3-5 times) | 444447009 Grade 3 (6+ times)">vomiting 1..1 code Vomiting (SNOMED 249497008) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (<=2 times) | 444457005 Grade 2 (3-5 times) | 444447009 Grade 3 (6+ times) #xD; reducedAppetiteOrTasteChanges 1..1 code Reduced appetite or taste changes (SNOMED 64379006) | Answers: 444431007 Grade 0 | 444456001 Grade 1 | 444457005 Grade 2 | 444447009 Grade 3 #xD; 6x or impacting daily life)">diarrhea 1..1 code Diarrhea (SNOMED 62315008) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (1-3x more) | 444457005 Grade 2 (4-6x more) | 444447009 Grade 3 (>6x or impacting daily life) #xD; constipation 1..1 code Constipation (SNOMED 14760008) | Answers: 444431007 Grade 0 | 444456001 Grade 1 | 444457005 Grade 2 | 444447009 Grade 3 #xD; fatigue 1..1 code Fatigue / lack of energy (SNOMED 224960004) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (mild) | 444457005 Grade 2 (moderate) | 444447009 Grade 3 (severe) #xD; pain 1..1 code Pain (SNOMED 112104007) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (mild) | 444457005 Grade 2 (moderate) | 444447009 Grade 3 (severe) #xD; skinRash 1..1 code Skin rash (SNOMED 271807003) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (limited redness) | 444457005 Grade 2 (moderate redness) | 444447009 Grade 3 (severe/extensive redness or peeling) #xD; psychosocialBurden 1..1 code Psychosocial burden (SNOMED 384821006) | Answers: 444431007 Grade 0 (Feels well) | 444456001 Grade 1 (mild distress) | 444457005 Grade 2 (moderate impact) | 444447009 Grade 3 (severe impact) #xD; shortnessOfBreath 1..1 code Shortness of breath (SNOMED 267036007) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (moderate exertion only) | 444457005 Grade 2 (light exertion affecting daily activities) | 444447009 Grade 3 (at rest affecting daily activities) #xD; cough 1..1 code Cough (SNOMED 49727002) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (mild) | 444457005 Grade 2 (moderate) | 444447009 Grade 3 (severe) #xD; otherRelevantObservations 0..1 BackboneElement Other Relevant Observations #xD; otherObservations 0..1 string Other side effects or relevant clinical and psychosocial observations. Contact hospital in case of clinical concern. (SNOMED 365275006) #xD; task 1..1 BackboneElement Task #xD; medicationDissolvedClear 1..1 code Medication was completely dissolved into a clear solution without visible particles (SNOMED 396076000) | Answers: 373066001 Yes | 373067005 No #xD; medicationAdministeredPerProcedure 1..1 code Could the medication be administered exactly according to the procedure (no deviations)? (SNOMED 373149000) | Answers: 373066001 Yes | 373067005 No #xD; qualityFollowUp 0..1 BackboneElement Quality Follow-Up #xD; remarks 0..1 string Remarks or concerns about patient registration, data sharing, hospital communication, material availability, or other transmural collaboration aspects (SNOMED 276238005) #xD; Documentation for this format
ONCO Azacitidine Questionnaire Logical Model
Logical model representing the nursing assessment questionnaire for home hospitalization patients receiving Azacitidine. This questionnaire is filled in by the home nurse during each visit and exchanged as a FHIR QuestionnaireResponse with the hospital. Specific features: includes oxygen saturation (conditional, only when cough or shortness of breath), contraindications focused on GI symptoms and general deterioration, and a medication dissolution check.
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hasValue() or (children().count() > id.count())
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Extensions are always sliced by (at least) url
Additional content defined by implementations
May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.
There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
Must have either extensions or value[x], not both
exists(f:extension)!=exists(f:*[starts-with(local-name(.), "value")])
Extensions that cannot be ignored even if unrecognized
May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).
Modifier extensions allow for extensions that *cannot* be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the [definition of modifier extensions](http://hl7.org/fhir/R4/extensibility.html#modifierExtension).
Modifier extensions are expected to modify the meaning or interpretation of the element that contains them
Are there any remarks or concerns regarding the (proper) home storage of medication? (SNOMED 422413002) | Answers: 710977001 Medication stored correctly | 424363005 Concern about proper home storage
Specify remarks or concerns (conditional: if medicationStorageRemarks = concern)
Blood pressure systolic (mmHg) (LOINC 8480-6)
Blood pressure diastolic (mmHg) (LOINC 8462-4)
Oxygen saturation (%) (LOINC 2708-6) — Only measure if cough or shortness of breath is present
Are there contraindications for administration? (SNOMED 395008009) | Answers: 373066001 Yes | 373067005 No
Fever, chills, feeling unwell (SNOMED 39104002) | Answers: 373066001 Yes | 373067005 No (conditional: if anyContraindication = Yes)
No oral intake due to reduced appetite or taste changes (SNOMED 247318005) | Answers: 373066001 Yes | 373067005 No
Severe nausea (nausea with insufficient oral intake) (SNOMED 73335002) | Answers: 373066001 Yes | 373067005 No
Increased or severe shortness of breath (at rest or impacting daily activities) (SNOMED 297216006) | Answers: 373066001 Yes | 373067005 No
New or increased productive/dry cough, with or without dyspnea (SNOMED 11833005) | Answers: 373066001 Yes | 373067005 No
General deterioration (SNOMED 154091000119106) | Answers: 373066001 Yes | 373067005 No
Decision after consultation with hospital (SNOMED 182836005) | Answers: Administration | No administration | Other
Specify if decision = Other (SNOMED 438833006)
Reduced appetite or taste changes (SNOMED 64379006) | Answers: 444431007 Grade 0 | 444456001 Grade 1 | 444457005 Grade 2 | 444447009 Grade 3
Diarrhea (SNOMED 62315008) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (1-3x more) | 444457005 Grade 2 (4-6x more) | 444447009 Grade 3 (>6x or impacting daily life)
Fatigue / lack of energy (SNOMED 224960004) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (mild) | 444457005 Grade 2 (moderate) | 444447009 Grade 3 (severe)
Skin rash (SNOMED 271807003) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (limited redness) | 444457005 Grade 2 (moderate redness) | 444447009 Grade 3 (severe/extensive redness or peeling)
Psychosocial burden (SNOMED 384821006) | Answers: 444431007 Grade 0 (Feels well) | 444456001 Grade 1 (mild distress) | 444457005 Grade 2 (moderate impact) | 444447009 Grade 3 (severe impact)
Shortness of breath (SNOMED 267036007) | Answers: 444431007 Grade 0 | 444456001 Grade 1 (moderate exertion only) | 444457005 Grade 2 (light exertion affecting daily activities) | 444447009 Grade 3 (at rest affecting daily activities)
Other side effects or relevant clinical and psychosocial observations. Contact hospital in case of clinical concern. (SNOMED 365275006)
Medication was completely dissolved into a clear solution without visible particles (SNOMED 396076000) | Answers: 373066001 Yes | 373067005 No
Could the medication be administered exactly according to the procedure (no deviations)? (SNOMED 373149000) | Answers: 373066001 Yes | 373067005 No
Remarks or concerns about patient registration, data sharing, hospital communication, material availability, or other transmural collaboration aspects (SNOMED 276238005)