IKNL PZP STU3, published by IKNL. This guide is not an authorized publication; it is the continuous build for version 1.0.0-alpha1 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/IKNL/PZP-FHIR-STU3/ and changes regularly. See the Directory of published versions

Index

Official URL: https://api.iknl.nl/docs/pzp/stu3/ImplementationGuide/iknl.fhir.stu3.pzp				Version: 1.0.0-alpha1
Active as of 2025-10-27				Computable Name: PZP

Project Description and Scope

This Implementation Guide (IG) supports the Advance Care Planning (ACP) information standard (Dutch: Proactieve Zorgplanning) and is intended for use within the palliative care domain in the Netherlands. This domain involves care for patients with an incurable illness or condition from which they are expected to die.

Developed by the Netherlands Comprehensive Cancer Organisation (Dutch: Integraal Kankercentrum Nederland (IKNL)), this guide provides technical direction for using FHIR to exchange ACP data. It is based on HL7 FHIR STU3 and builds on top of the Dutch STU3 zib2017 profiles.

This guide assumes that readers are familiar with the functional specifications of ACP and the STU3 version of FHIR.

Call for Feedback

This implementation guide is a work in progress, and its quality and usefulness depend on community input. We welcome feedback on all aspects of this guide, and we are particularly interested in your thoughts on the following decisions and sections:

1. The EncounterReference extension is an optional extension that enables linking the Consent, Goal, and DeviceUseStatement resources to a relevant Encounter. We invite feedback on whether this extension is truly necessary.

2. The Communication profile has been developed to capture all communication events related to advance care planning. It specifically documents whether the patient has been informed about their responsibility to discuss treatment agreements with relatives. As this profile is newly created rather than derived from zib/nl-core profiles, we welcome input on its structure and modeling approach.

3. The ACP Questionnaire has been developed based on the ACP form dataset and aims to preserve the zib structure as much as possible. We welcome any feedback on its design and implementation.

Dependencies

Package nictiz.fhir.nl.stu3.zib2017#2.3.2 Nictiz NL package of FHIR STU3 conformance resources for HCIM Release 2017. Includes MedMij and HL7 NL. HCIMs: https://zibs.nl/wiki/HCIMRelease2017(EN)

Package hl7.fhir.uv.tools.r3#0.8.0 This IG defines the extensions that the tools use internally. Some of these extensions are content that are being evaluated for elevation into the main spec, and others are tooling concerns (built Tue, Aug 5, 2025 20:09+1000+10:00)