# De-Identified UDS Plus Sexual Orientation - De-Identified, Anonymized FHIR Profiles Library v0.1.0

* [**Table of Contents**](toc.md)
* [**Artifacts Summary**](artifacts.md)
* **De-Identified UDS Plus Sexual Orientation**

## Resource Profile: De-Identified UDS Plus Sexual Orientation 

| | | |
| :--- | :--- | :--- |
| *Official URL*:http://hl7.org/fhir/us/uds-plus/StructureDefinition/uds-plus-sexual-orientation-observation | *Version*:0.1.0 | |
| * Standards status: *[Trial-use](http://hl7.org/fhir/R4/versions.html#std-process) | [Maturity Level](http://hl7.org/fhir/versions.html#maturity): 1 | *Computable Name*:UDSPlusSexualOrientation |

 
The UDS+ profile is based on the **US Core Sexual Orientation Observation profile and establishes the core elements, extensions, vocabularies and value sets for representing Sexual Orientation for UDS+ program. 

All canonical (Official) URLs will be changed in the future and are not available currently on the web.

### Introduction

This profile is used to represent de-identified sexual orientation information. The de-identification process has to remove all data elements not explicitly identified as "SUPPORTED" in the profile.

The [HHS De-identification Guidance](https://www.hhs.gov/sites/default/files/ocr/privacy/hipaa/understanding/coveredentities/De-identification/hhs_deid_guidance.pdf) is to be followed to ensure appropriate level of de-identification is performed.

In FHIR Resources, text elements and reference.display elements which provide human readable information to the providers may be generated using programs and tools from the data present within the resource. For e.g a Sexual Orientation Observation resource text element may contain Patient information such as names. This type of information will enable identification of the individuals. In order to avoid inadvertent revealing of PII/PHI, text elements cannot be included in the De-identified FHIR resource and the submission will be rejected when text elements are present by the validation process.

**Ids and References**

The original Observation resource id should not be included in the De-identified Observation instance. Instead a new id should be created and provided as part of the FHIR resource. This Data Submitter should be capable of using the generated id to relink the data to the original Income Observation. All resource references to the Sexual Orientation Observation submitted as part of the UDS+ report should refer to newly generated id.

Resource references cannot contain text element as it may contain PHI/PII. The text element for following references are not allowed

* subject

**Usages:**

* Examples for this Profile: [Observation/de-identified-sexual-orientation-example](Observation-de-identified-sexual-orientation-example.md)

You can also check for [usages in the FHIR IG Statistics](https://packages2.fhir.org/xig/hl7.fhir.us.dapl|current/StructureDefinition/uds-plus-sexual-orientation-observation)

### Formal Views of Profile Content

 [Description of Profiles, Differentials, Snapshots and how the different presentations work](http://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#structure-definitions). 

 

Other representations of profile: [CSV](StructureDefinition-uds-plus-sexual-orientation-observation.csv), [Excel](StructureDefinition-uds-plus-sexual-orientation-observation.xlsx), [Schematron](StructureDefinition-uds-plus-sexual-orientation-observation.sch) 



## Resource Content

```json
{
  "resourceType" : "StructureDefinition",
  "id" : "uds-plus-sexual-orientation-observation",
  "meta" : {
    "versionId" : "12",
    "lastUpdated" : "2022-07-12T02:03:11.293+00:00",
    "source" : "#3LDMUQYYwafwTzqK"
  },
  "extension" : [{
    "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-wg",
    "valueCode" : "cgp"
  },
  {
    "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-fmm",
    "valueInteger" : 1,
    "_valueInteger" : {
      "extension" : [{
        "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-conformance-derivedFrom",
        "valueCanonical" : "http://hl7.org/fhir/us/dapl/ImplementationGuide/dapl"
      }]
    }
  },
  {
    "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-standards-status",
    "valueCode" : "trial-use",
    "_valueCode" : {
      "extension" : [{
        "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-conformance-derivedFrom",
        "valueCanonical" : "http://hl7.org/fhir/us/dapl/ImplementationGuide/dapl"
      }]
    }
  }],
  "url" : "http://hl7.org/fhir/us/uds-plus/StructureDefinition/uds-plus-sexual-orientation-observation",
  "version" : "0.1.0",
  "name" : "UDSPlusSexualOrientation",
  "title" : "De-Identified UDS Plus Sexual Orientation",
  "status" : "active",
  "experimental" : false,
  "date" : "2026-03-16T10:54:28+00:00",
  "publisher" : "HL7 International / Cross Group Projects",
  "contact" : [{
    "telecom" : [{
      "system" : "url",
      "value" : "http://www.hl7.org/Special/committees/cgp"
    }]
  }],
  "description" : "The UDS+ profile is based on the **US Core Sexual Orientation Observation profile and establishes the core elements, extensions, vocabularies and value sets for representing Sexual Orientation for UDS+ program.",
  "jurisdiction" : [{
    "coding" : [{
      "system" : "urn:iso:std:iso:3166",
      "code" : "US"
    }]
  }],
  "fhirVersion" : "4.0.1",
  "mapping" : [{
    "identity" : "workflow",
    "uri" : "http://hl7.org/fhir/workflow",
    "name" : "Workflow Pattern"
  },
  {
    "identity" : "sct-concept",
    "uri" : "http://snomed.info/conceptdomain",
    "name" : "SNOMED CT Concept Domain Binding"
  },
  {
    "identity" : "v2",
    "uri" : "http://hl7.org/v2",
    "name" : "HL7 v2 Mapping"
  },
  {
    "identity" : "rim",
    "uri" : "http://hl7.org/v3",
    "name" : "RIM Mapping"
  },
  {
    "identity" : "w5",
    "uri" : "http://hl7.org/fhir/fivews",
    "name" : "FiveWs Pattern Mapping"
  },
  {
    "identity" : "sct-attr",
    "uri" : "http://snomed.org/attributebinding",
    "name" : "SNOMED CT Attribute Binding"
  }],
  "kind" : "resource",
  "abstract" : false,
  "type" : "Observation",
  "baseDefinition" : "http://hl7.org/fhir/StructureDefinition/Observation",
  "derivation" : "constraint",
  "differential" : {
    "element" : [{
      "id" : "Observation",
      "path" : "Observation",
      "short" : "De-Identified UDS Plus Sexual Orientation",
      "definition" : "The UDS+ profile is based on the **US Core Sexual Orientation Observation profile and establishes the core elements, extensions, vocabularies and value sets for representing Sexual Orientation for UDS+ program."
    },
    {
      "id" : "Observation.status",
      "path" : "Observation.status",
      "min" : 1,
      "max" : "1",
      "fixedCode" : "final",
      "mustSupport" : true
    },
    {
      "id" : "Observation.code",
      "path" : "Observation.code",
      "min" : 1,
      "max" : "1",
      "patternCodeableConcept" : {
        "coding" : [{
          "system" : "http://loinc.org",
          "code" : "76690-7"
        }]
      },
      "mustSupport" : true
    },
    {
      "id" : "Observation.subject",
      "path" : "Observation.subject",
      "min" : 1,
      "max" : "1",
      "type" : [{
        "code" : "Reference",
        "targetProfile" : ["http://hl7.org/fhir/us/uds-plus/StructureDefinition/de-identified-uds-plus-patient"]
      }],
      "mustSupport" : true
    },
    {
      "id" : "Observation.effectiveDateTime",
      "path" : "Observation.effectiveDateTime",
      "min" : 0,
      "max" : "1",
      "type" : [{
        "code" : "dateTime"
      }],
      "mustSupport" : true
    },
    {
      "id" : "Observation.valueCodeableConcept",
      "path" : "Observation.valueCodeableConcept",
      "min" : 0,
      "max" : "1",
      "type" : [{
        "code" : "CodeableConcept"
      }],
      "mustSupport" : true,
      "binding" : {
        "strength" : "extensible",
        "valueSet" : "http://hl7.org/fhir/us/uds-plus/ValueSet/uds-plus-sexual-orientation-codes"
      }
    }]
  }
}

```
