# De-Identified UDS Plus RelatedPerson - De-Identified, Anonymized FHIR Profiles Library v0.1.0

* [**Table of Contents**](toc.md)
* [**Artifacts Summary**](artifacts.md)
* **De-Identified UDS Plus RelatedPerson**

## Resource Profile: De-Identified UDS Plus RelatedPerson 

| | | |
| :--- | :--- | :--- |
| *Official URL*:http://hl7.org/fhir/us/uds-plus/StructureDefinition/de-identified-uds-plus-relatedperson | *Version*:0.1.0 | |
| * Standards status: *[Trial-use](http://hl7.org/fhir/R4/versions.html#std-process) | [Maturity Level](http://hl7.org/fhir/versions.html#maturity): 1 | *Computable Name*:DeIdentifiedUDSPlusRelatedPerson |

 
This Patient profile represents a RelatedPerson of a Patient availing HRSA services. 

All canonical (Official) URLs will be changed in the future and are not available currently on the web.

### Introduction

This profile is used to represent de-identified RelatdPerson information. The de-identification process has to remove all data elements not explicitly identified as "SUPPORTED" in the profile.

The [HHS De-identification Guidance](https://www.hhs.gov/sites/default/files/ocr/privacy/hipaa/understanding/coveredentities/De-identification/hhs_deid_guidance.pdf) is to be followed to ensure appropriate level of de-identification is performed.

In FHIR Resources, text elements and reference.display elements which provide human readable information to the providers may be generated using programs and tools from the data present within the resource. For e.g a RelatedPerson resource text element may contain information such as the RelatedPerson name. This type of information will enable identification of the individuals. In order to avoid inadvertent revealing of PII/PHI, text elements cannot be included in the De-identified FHIR resource and the submission will be rejected when text elements are present by the validation process.

**Ids and References**

The original RelatedPerson resource id should not be included in the De-identified RelatedPerson instance. Instead a new id should be created and provided as part of the FHIR resource. This Data Submitter should be capable of using the generated id to relink the data to the original RelatedPerson. All resource references to the RelatedPerson submitted as part of the UDS+ report should refer to newly generated id.

Resource references cannot contain text element as it may contain PHI/PII. The text element for following references are not allowed

* patient

**Examples**

Examples of identifiable data and its corresponding de-identifiable data is present in [Reporting Guidance](reportingguidance.md).

**Usages:**

* Refer to this Profile: [DeIdentified UDS Plus Coverage](StructureDefinition-uds-plus-coverage.md)
* Examples for this Profile: [RelatedPerson/de-identified-example](RelatedPerson-de-identified-example.md)

You can also check for [usages in the FHIR IG Statistics](https://packages2.fhir.org/xig/hl7.fhir.us.dapl|current/StructureDefinition/de-identified-uds-plus-relatedperson)

### Formal Views of Profile Content

 [Description of Profiles, Differentials, Snapshots and how the different presentations work](http://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#structure-definitions). 

 

Other representations of profile: [CSV](StructureDefinition-de-identified-uds-plus-relatedperson.csv), [Excel](StructureDefinition-de-identified-uds-plus-relatedperson.xlsx), [Schematron](StructureDefinition-de-identified-uds-plus-relatedperson.sch) 



## Resource Content

```json
{
  "resourceType" : "StructureDefinition",
  "id" : "de-identified-uds-plus-relatedperson",
  "meta" : {
    "versionId" : "12",
    "lastUpdated" : "2022-07-12T02:03:11.293+00:00",
    "source" : "#3LDMUQYYwafwTzqK"
  },
  "extension" : [{
    "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-wg",
    "valueCode" : "cgp"
  },
  {
    "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-fmm",
    "valueInteger" : 1,
    "_valueInteger" : {
      "extension" : [{
        "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-conformance-derivedFrom",
        "valueCanonical" : "http://hl7.org/fhir/us/dapl/ImplementationGuide/dapl"
      }]
    }
  },
  {
    "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-standards-status",
    "valueCode" : "trial-use",
    "_valueCode" : {
      "extension" : [{
        "url" : "http://hl7.org/fhir/StructureDefinition/structuredefinition-conformance-derivedFrom",
        "valueCanonical" : "http://hl7.org/fhir/us/dapl/ImplementationGuide/dapl"
      }]
    }
  }],
  "url" : "http://hl7.org/fhir/us/uds-plus/StructureDefinition/de-identified-uds-plus-relatedperson",
  "version" : "0.1.0",
  "name" : "DeIdentifiedUDSPlusRelatedPerson",
  "title" : "De-Identified UDS Plus RelatedPerson",
  "status" : "active",
  "experimental" : false,
  "date" : "2026-03-16T10:54:28+00:00",
  "publisher" : "HL7 International / Cross Group Projects",
  "contact" : [{
    "telecom" : [{
      "system" : "url",
      "value" : "http://www.hl7.org/Special/committees/cgp"
    }]
  }],
  "description" : "This Patient profile represents a RelatedPerson of a Patient availing HRSA services.",
  "jurisdiction" : [{
    "coding" : [{
      "system" : "urn:iso:std:iso:3166",
      "code" : "US"
    }]
  }],
  "fhirVersion" : "4.0.1",
  "mapping" : [{
    "identity" : "rim",
    "uri" : "http://hl7.org/v3",
    "name" : "RIM Mapping"
  },
  {
    "identity" : "w5",
    "uri" : "http://hl7.org/fhir/fivews",
    "name" : "FiveWs Pattern Mapping"
  },
  {
    "identity" : "v2",
    "uri" : "http://hl7.org/v2",
    "name" : "HL7 v2 Mapping"
  }],
  "kind" : "resource",
  "abstract" : false,
  "type" : "RelatedPerson",
  "baseDefinition" : "http://hl7.org/fhir/StructureDefinition/RelatedPerson",
  "derivation" : "constraint",
  "differential" : {
    "element" : [{
      "id" : "RelatedPerson",
      "path" : "RelatedPerson",
      "short" : "De-Identified UDS Plus RelatedPerson",
      "definition" : "The UDS+ profile is based on the **FHIR RelatedPerson resource and establishes the core elements, extensions, vocabularies and value sets for representing RelatedPerson of patients for UDS+ program."
    },
    {
      "id" : "RelatedPerson.id",
      "path" : "RelatedPerson.id",
      "short" : "The de-identified RelatedPerson identifier created by the health center to send data to HRSA.",
      "definition" : "De-dentified RelatedPerson identifier.",
      "mustSupport" : true
    },
    {
      "id" : "RelatedPerson.text",
      "path" : "RelatedPerson.text",
      "short" : "Cannot include any text in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.contained",
      "path" : "RelatedPerson.contained",
      "short" : "Cannot include any contained resources in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.extension",
      "path" : "RelatedPerson.extension",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.patient",
      "path" : "RelatedPerson.patient",
      "type" : [{
        "code" : "Reference",
        "targetProfile" : ["http://hl7.org/fhir/us/uds-plus/StructureDefinition/de-identified-uds-plus-patient"]
      }],
      "mustSupport" : true
    },
    {
      "id" : "RelatedPerson.patient.display",
      "path" : "RelatedPerson.patient.display",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.relationship",
      "path" : "RelatedPerson.relationship",
      "mustSupport" : true,
      "binding" : {
        "strength" : "extensible",
        "description" : "The set of codes to be used for UDS+ reporting.",
        "valueSet" : "http://hl7.org/fhir/ValueSet/relatedperson-relationshiptype"
      }
    },
    {
      "id" : "RelatedPerson.relationship.text",
      "path" : "RelatedPerson.relationship.text",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.name",
      "path" : "RelatedPerson.name",
      "short" : "Cannot include any name in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.telecom",
      "path" : "RelatedPerson.telecom",
      "short" : "Cannot include any telecom information in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.gender",
      "path" : "RelatedPerson.gender",
      "short" : "Cannot include any gender information in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.birthDate",
      "path" : "RelatedPerson.birthDate",
      "short" : "Cannot include any date of birth information in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.address",
      "path" : "RelatedPerson.address",
      "short" : "Cannot include any address information in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.photo",
      "path" : "RelatedPerson.photo",
      "short" : "Cannot include any photo information in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    },
    {
      "id" : "RelatedPerson.communication",
      "path" : "RelatedPerson.communication",
      "short" : "Cannot include any communication information in the resource as part of the de-identified data.",
      "min" : 0,
      "max" : "0",
      "mustSupport" : false
    }]
  }
}

```
