PanCareSurPass Project HL7 FHIR Implementation Guide
0.2.0 - CI Build
150
PanCareSurPass Project HL7 FHIR Implementation Guide
0.2.0 - CI Build
150
PanCareSurPass Project HL7 FHIR Implementation Guide, published by PanCareSurPass Project. This guide is not an authorized publication; it is the continuous build for version 0.2.0 built by the FHIR (HL7® FHIR® Standard) CI Build. This version is based on the current content of https://github.com/hl7-eu/pcsp/ and changes regularly. See the Directory of published versions
| Official URL: http://hl7.eu/fhir/ig/pcsp/ImplementationGuide/hl7.eu.fhir.pcsp | Version: 0.2.0 | |||
| Draft as of 2024-02-09 | Computable Name: PCSPImplementationGuide | |||
Specify HL7 FHIR logical models and profiles to be used within the European project PanCareSurPass. This project studies the scale-up and implementation of the digital Survivorship Passport to improve people-centred care for childhood cancer survivors.
PanCareSurPass is a EU funded Research and Innovation action aiming to study the scale-up and implementation of the digital Survivorship Passport to improve people-centred care for childhood cancer survivors.
PanCareSurPass will conduct a robust assessment of the implementation of the Survivorship Passport by first conducting a pre-implementation study in six countries (Austria, Belgium, Germany, Italy, Lithuania, Spain) representing three infrastructural scenarios in Europe. The Survivorship Passport is an innovative, digital tool, developed in previous EU-funded projects, that can be used to overcome well-known knowledge gaps to improve people-centred long-term survivorship care.
The overall aim of PanCareSurPass is to leverage the digital transformation of healthcare to improve people-centred survivorship care by scaling up and implementing an interoperable SurPass v2.0 across Europe.
design and conduct a multi-country pre-implementation study to assess the barriers and facilitators for scaling up use of the SurPass v2.0
develop a practical Implementation Strategy informed by the findings of the pre-implementation activities and IT technical specifications for SurPass v2.0 ensuring interoperability and cybersecurity.
develop, test and launch SurPass v2.0 using the IT specifications developed use in the multi-country implementation study.
conduct a multi-country implementation study of SurPass v2.0 for people-centred care with >5-year CCS and to assess implementation in terms of people-centred care (e.g. activation, empowerment, satisfaction, increase in knowledge), feasibility and cost effectiveness.
conduct a parallel observational qualitative study using SurPass v2.0 for delivering people-centred survivorship care to <5-year CCS and >5-year CCS (but with limited treatment data available).
develop a Prediction Model using data from the pre-implementation activities and multi-country implementation study to enable healthcare decision-makers to assess the suitability and costs of SurPass v2.0.
host an Implementation Toolkit for further European implementation of the SurPass for people-centred care in various healthcare settings across Europe.
disseminate and communicate the importance of people-centred survivorship care and results of PanCareSurPass to key stakeholders to promote future implementation of SurPass v2.0 to improve people-centred survivorship care in Europe.
Package hl7.fhir.uv.extensions.r4#1.0.0 This IG defines the global extensions - the ones defined for everyone. These extensions are always in scope wherever FHIR is being used (built Sun, Mar 26, 2023 08:46+1100+11:00) |
Package hl7.fhir.uv.ips#1.1.0 International Patient Summary (IPS) FHIR Implementation Guide (built Wed, Dec 20, 2023 16:50+0000+00:00) |
Package hl7.fhir.uv.bulkdata#2.0.0 FHIR based approach for exporting large data sets from a FHIR server to a client application (built Fri, Nov 26, 2021 05:56+1100+11:00) |
Package hl7.fhir.r4.examples#4.0.1 Example resources in the R4 version of the FHIR standard |
Package hl7.fhir.uv.sdc#3.0.0 The SDC specification provides an infrastructure to standardize the capture and expanded use of patient-level data collected within an EHR. |
Package hl7.fhir.us.core#5.0.1 The US Core Implementation Guide is based on FHIR Version R4 and defines the minimum conformance requirements for accessing patient data. The Argonaut pilot implementations, ONC 2015 Edition Common Clinical Data Set (CCDS), and ONC U.S. Core Data for Interoperability (USCDI) v1 provided the requirements for this guide. The prior Argonaut search and vocabulary requirements, based on FHIR DSTU2, are updated in this guide to support FHIR Version R4. This guide was used as the basis for further testing and guidance by the Argonaut Project Team to provide additional content and guidance specific to Data Query Access for purpose of ONC Certification testing. These profiles are the foundation for future US Realm FHIR implementation guides. In addition to Argonaut, they are used by DAF-Research, QI-Core, and CIMI. Under the guidance of HL7 and the HL7 US Realm Steering Committee, the content will expand in future versions to meet the needs specific to the US Realm. These requirements were originally developed, balloted, and published in FHIR DSTU2 as part of the Office of the National Coordinator for Health Information Technology (ONC) sponsored Data Access Framework (DAF) project. For more information on how DAF became US Core see the US Core change notes. (built Wed, Jun 22, 2022 19:44+0000+00:00) |
Package hl7.fhir.uv.genomics-reporting#2.0.0 Guidelines for reporting of clinical genomics results using HL7 FHIR. (built Mon, May 9, 2022 16:52+0000+00:00) |
Package hl7.fhir.uv.extensions#current This IG defines the global extensions - the ones defined for everyone. These extensions are always in scope wherever FHIR is being used (built Tue, Feb 6, 2024 18:33+0000+00:00) |
Package hl7.fhir.us.mcode#3.0.0 mCODE™ (short for Minimal Common Oncology Data Elements) is an initiative intended to assemble a core set of structured data elements for oncology electronic health records. (built Wed, Oct 25, 2023 20:29+0000+00:00) |
This is an R4 IG. None of the features it uses are changed in R4B, so it can be used as is with R4B systems. Packages for both R4 (hl7.eu.fhir.pcsp.r4) and R4B (hl7.eu.fhir.pcsp.r4b) are available.
There are no Global profiles defined
This publication includes IP covered under the following statements.
| Roles | Name | Organization | Contact |
|---|---|---|---|
| Autore | Giorgio Cangioli | HL7 Europe | giorgio.cangioli_at_gmail.com |
| Contributor | |||
| Contributor |
IG © 2021+ PanCareSurPass Project. Package hl7.eu.fhir.pcsp#0.2.0 based on FHIR 4.0.1. Generated 2024-02-09
Links: Table of Contents |
QA Report
The PanCareSurPass Research and Innovation Action has received funding from the European Union's Horizon 2020
research and innovation programme under grant agreement No. 899999.
