Generated Narrative Resource "EORTCQLQCodeSystem" url: http://connect.ichom.org/fhir/CodeSystem/EORTC-QLQ version: 0.0.1 name: EORTCQLQCodeSystem title: Codes used in EORTC-QLQ questionnaire response status: active description: Codes used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire caseSensitive: true content: complete count: 4 concept code: 1 display: Not at all concept code: 2 display: A little concept code: 3 display: Quite a bit concept code: 4 display: Very much
Codes used in EORTC-QLQ questionnaire response
Codes used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire
Generated Narrative Resource "EORTCQLQValueSet" url: https://connect.ichom.org/fhir/ValueSet/EORTCQLQValueSet version: 0.0.1 name: EORTCQLQValueSet title: Values used in EORTC-QLQ questionnaire response status: active description: Valueset used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire compose Includes - System * Codes used in EORTC-QLQ questionnaire response
Values used in EORTC-QLQ questionnaire response
Valueset used in the European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire
Generated Narrative Resource "ResponseTimingCodeSystem" url: http://connect.ichom.org/fhir/CodeSystem/Timing version: 0.0.1 name: ResponseTimingCodeSystem title: Timing of the response of the patient reported outcome measures status: active description: Patient reported outcome measures are repeatedly collected from patients starting at the first doctor's visit (baseline) up untill 10 years after treatment. caseSensitive: true content: complete count: 12 concept code: 0 display: Patient's first doctor's visit (baseline) concept code: 6m display: 6 months post-treatment concept code: 1 display: 1 year post-treatment concept code: 2 display: 2 years post-treatment concept code: 3 display: 3 years post-treatment concept code: 4 display: 4 years post-treatment concept code: 5 display: 5 years post-treatment concept code: 6 display: 6 years post-treatment concept code: 7 display: 7 years post-treatment concept code: 8 display: 8 years post-treatment concept code: 9 display: 9 years post-treatment concept code: 10 display: 10 years post-treatment
Timing of the response of the patient reported outcome measures
Patient reported outcome measures are repeatedly collected from patients starting at the first doctor's visit (baseline) up untill 10 years after treatment.
Patient's first doctor's visit (baseline)
Generated Narrative Resource "ResponseTimingValueSet" url: https://connect.ichom.org/fhir/ValueSet/ResponseTimingValueSet version: 0.0.1 name: ResponseTimingValueSet title: Timing of the response of the patient reported outcome measures status: active description: Patient reported outcome measures are repeatedly collected from patients starting at the first doctor's visit (baseline) up untill 10 years after treatment. compose Includes - System * Timing of the response of the patient reported outcome measures
Generated Narrative Resource "EORTCQLQ" url: https://connect.ichom.org/fhir/Questionnaire/EORTCQLQ name: EORTCQLQ title: European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire status: draft experimental: true publisher: ICHOM item linkId: EORTCQLQC30_Timing text: What is the timing of the response of this questionnaire? type: choice required: true answerValueSet: Timing of the response of the patient reported outcome measures item linkId: Group_Q01-Q05 text: We are interested in some things about you and your health. Please answer all of the questions yourself by selecting the answer that best applies to you. There are no 'right' or 'wrong' answers. The information that you provide will remain strictly confidential. type: group Items - LinkId Text Type Required AnswerValueSet * EORTCQLQC30_Q01 Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q02 Do you have any trouble taking a long walk? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q03 Do you have any trouble taking a short walk outside of the house? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q04 Do you need to stay in bed or a chair during the day? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q05 Do you need help with eating, dressing, washing yourself or using the toilet? choice true Values used in EORTC-QLQ questionnaire response item linkId: Group_Q06-Q28 text: During the past week: type: group Items - LinkId Text Type Required AnswerValueSet * EORTCQLQC30_Q06 Were you limited in doing either your work or other daily activities? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q07 Were you limited in pursuing your hobbies or other leisure time activities? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q08 Were you short of breath? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q09 Have you had pain? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q10 Did you need to rest? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q11 Have you had trouble sleeping? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q12 Have you felt weak? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q13 Have you lacked appetite? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q14 Have you felt nauseated? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q15 Have you vomited? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q16 Have you been constipated? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q17 Have you had diarrhea? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q18 Were you tired? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q19 Did pain interfere with your daily activities? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q20 Have you had difficulty in concentrating on things, like reading a newspaper or watching television? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q21 Did you feel tense? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q22 Did you worry? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q23 Did you feel irritable? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q24 Did you feel depressed? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q25 Have you had difficulty remembering things? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q26 Has your physical condition or medical treatment interfered with your family life? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q27 Has your physical condition or medical treatment interfered with your social activities? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQC30_Q28 Has your physical condition or medical treatment caused you financial difficulties? choice true Values used in EORTC-QLQ questionnaire response item linkId: Group_Q29-Q30 text: For the following questions please select the number between 1 and 7 that best applies to you, with 1 = Very poor and 7 = Excellent. type: group item linkId: EORTCQLQC30_Q29 text: How would you rate your overall health during the past week? type: choice required: true item linkId: EORTCQLQC30_Q30 text: How would you rate your overall quality of life during the past week? type: choice required: true item linkId: Group_Q31-Q43 text: Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these symptoms or problems during the past week. Please answer by selecting the answer that best applies to you. During the past week: type: group item linkId: EORTCQLQBR23_Q31 text: Did you have a dry mouth? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q32 text: Did food and drink taste different than usual? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q33 text: Were your eyes painful, irritated or watery? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q34 text: Have you lost any hair? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q35 text: Were you upset by the loss of your hair? type: choice answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q36 text: Did you feel ill or unwell? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q37 text: Did you have hot flushes? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q38 text: Did you have headaches? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q39 text: Have you felt physically less attractive as a result of your disease or treatment? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q40 text: Have you been feeling less feminine as a result of your disease or treatment? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q41 text: Did you find it difficult to look at yourself naked? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q42 text: Have you been dissatisfied with your body? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q43 text: Were you worried about your health in the future? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: Group_Q44-Q46 text: During the past four weeks: type: group item linkId: EORTCQLQBR23_Q44 text: To what extent were you interested in sex? type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q45 text: To what extent were you sexually active? (with or without intercourse) type: choice required: true answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: EORTCQLQBR23_Q46 text: To what extent was sex enjoyable for you? type: choice answerValueSet: Values used in EORTC-QLQ questionnaire response item linkId: Group_Q47-Q53 text: During the past week: type: group Items - LinkId Text Type Required AnswerValueSet * EORTCQLQBR23_Q48 Did you have a swollen arm or hand? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQBR23_Q49 Was it difficult to raise your arm or to move it sideways? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQBR23_Q50 Have you had any pain in the area of your affected breast? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQBR23_Q51 Was the area of your affected breast swollen? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQBR23_Q52 Was the area of your affected breast oversensitive? choice true Values used in EORTC-QLQ questionnaire response * EORTCQLQBR23_Q53 Have you had skin problems on or in the area of your affected breast (e.g., itchy, dry, flaky)? choice true Values used in EORTC-QLQ questionnaire response * EORTC QLQ-LMC21 Have you had tingling hands or feet? choice true Values used in EORTC-QLQ questionnaire response
European Organization for Research and Treatment of Cancer Quality-of-Life Questionnaire
What is the timing of the response of this questionnaire?
We are interested in some things about you and your health. Please answer all of the questions yourself by selecting the answer that best applies to you. There are no 'right' or 'wrong' answers. The information that you provide will remain strictly confidential.
Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?
Do you have any trouble taking a long walk?
Do you have any trouble taking a short walk outside of the house?
Do you need to stay in bed or a chair during the day?
Do you need help with eating, dressing, washing yourself or using the toilet?
Were you limited in doing either your work or other daily activities?
Were you limited in pursuing your hobbies or other leisure time activities?
Did pain interfere with your daily activities?
Have you had difficulty in concentrating on things, like reading a newspaper or watching television?
Have you had difficulty remembering things?
Has your physical condition or medical treatment interfered with your family life?
Has your physical condition or medical treatment interfered with your social activities?
Has your physical condition or medical treatment caused you financial difficulties?
For the following questions please select the number between 1 and 7 that best applies to you, with 1 = Very poor and 7 = Excellent.
How would you rate your overall health during the past week?
How would you rate your overall quality of life during the past week?
Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these symptoms or problems during the past week. Please answer by selecting the answer that best applies to you. During the past week:
Did food and drink taste different than usual?
Were your eyes painful, irritated or watery?
Were you upset by the loss of your hair?
Have you felt physically less attractive as a result of your disease or treatment?
Have you been feeling less feminine as a result of your disease or treatment?
Did you find it difficult to look at yourself naked?
Have you been dissatisfied with your body?
Were you worried about your health in the future?
To what extent were you interested in sex?
To what extent were you sexually active? (with or without intercourse)
To what extent was sex enjoyable for you?
Was it difficult to raise your arm or to move it sideways?
Have you had any pain in the area of your affected breast?
Was the area of your affected breast swollen?
Was the area of your affected breast oversensitive?
Have you had skin problems on or in the area of your affected breast (e.g., itchy, dry, flaky)?